Lithium for Cluster Headaches User Reviews
Brand names: Lithium Carbonate ER, Lithobid
Lithium has an average rating of 8.8 out of 10 from a total of 8 reviews for the off-label treatment of Cluster Headaches. 88% of reviewers reported a positive experience, while 13% reported a negative experience.
- Anita
- April 2, 2013
"Lithium saved my life. Nothing worked on my cluster headaches until my Dr. prescribed lithium. It was miraculous and worked within 24 hours. It broke the cycle. Subsequently I have also used oxygen therapy and it too has been very effective. Just not as easy as taking a pill, but less side effects."
- road2...
- December 23, 2010
"My GP thinks the symptoms of what I thought was Parkinson's is in fact side-effects of Lithium. I take 1200 mg of lithium daily. I gave it a low score for the side-effects, the shakes and poor balance. It's very effective in preventing clusters. I took a chance this fall and quit all my medicines. The day after I did this I got slammed by clusters. Clusters are too painful to live with so it's better to live with lithium and its side effects than with the pain of cluster headaches."
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- drk
- February 3, 2014
"This is a godsend for daily cluster headaches."
- spawn...
- July 6, 2011
"I suffer from chronic clusters. Lithium has me pain free so compared to the pain I would be suffering I can live with the side effects."
Are you taking this medicine?
- Rock
- December 26, 2018
"900 Milligrams completely got rid of my chronic cluster headaches."
- Teach...
- Taken for 10 years or more
- January 4, 2017
"I have also used Lithium to control my cluster headaches. I usually start on a high dose of predinisone until the Lithium kicks in. It literally has been a "job" and "life" saver."
- Skirch
- Taken for 1 to 6 months
- June 5, 2017
Lithium Carbonate ER (lithium) "I've suffered Clusters for 30 years and have tried most meds, this is the first that has worked without massive doses of Prednisone , Indomethacin and O2."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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Eskalith, Lithobid, Eskalith-CR
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"I have been suffering from horrible daily chronic cluster/migraine for 30 years with absolutely no relief. My neurologist refused to put me on lithium. According to him it's an out of date medicine that belongs in the past. I have been on lithium for 2 weeks and have had my first headache free period in so many years. I went to my PCP and he gave me lithium. If you are not satisfied with current treatment, I do recommend this for chronic clusters/ migraines. "