Tirosint for Hashimoto's disease User Reviews (Page 2)

• 17895...
• Taken for less than 1 month
• February 11, 2018

"I had been on synthroid for over 10 years for hypothyroidism. I was then diagnosed last year with Hashimotos. I felt like the Synthroid was no longer working for me. I saw a new Endocrinologist who gave me samples of Tirosint. I am a migraine sufferer and have been for years. I started getting headaches with the Tirosint that were different than my migraines. Not even two weeks after starting Tirosint I had a headache so bad I could not stop puking. I ended up at the ER. As they started an IV and pain/nausea meds they tell me they need to admit me to ICU. My heart rate was 166, and I was in AFIB. I have never had heart problems in my life, and no history in my family. Luckily the drugs they were giving me in my IV put my heart back in rhythm, or they were going to have to stop/restart my heart. Once released from the hospital I never took Tirosint again, and went back to Synthroid. I am now permanently on Cardizem and an aspirin a day."

• Jouleen
• February 20, 2017

"I was started on levothyroxin, then Armour and my symptoms were worse than before medication. Tirosint literally gave me my life back. Then new insurance made me try naturethroid. Back to the same misery that plagued me the better part of the year. Whatever the cause or effect in chemistry I am immediately changing back. Brain fog, sore muscles lethargy, fatigue, constant hunger, weight gain. Never again will I try another medicine."

• Flowe...
• September 7, 2016

"I have hashimotos/hypothyroid and have been on Tirosint after being on synthroid for the first 7 weeks of my diagnosis. I have been on it for 5 years and absolutely love it. No reaction as there are no fillers or dyes like the other synthetic drugs. Most recently my Doctor added a little T3 and I have never felt better."

• Doesnt...
• Taken for 6 months to 1 year
• May 7, 2018

"I thought this med would be my silver bullet ! I was so relieved and excited to try it. 5 months in and no difference whatsoever! Even after multiple increases in dosage. Terribly disappointing as I had to fight to get it with insurance etc ect etc and it is not cheap ! I feel I am out of options as generic levo did nothing and I’ve also tried unithroid and armor, which was worse than all of them combined ! Armor is not worth all the praise it receives. I’m at a loss now. Gained over 25 MORE pounds on this tirosint!"

• Carme...
• Taken for 1 to 2 years
• March 28, 2017

"I was on Levoxyl for 15 years and had terrible side effects of reflux, asthma symptoms. The doctors had to put me on all kinds of asthma and GERD medications. Turns out it was the Levoxyl causing all those symptoms. Been on Tirosint for about 2 years and now off all GERD and asthma medications. My endo did not believe there was a correlation, I don't see her anymore. I feel pretty good on Tirosint, my new endo just upped my dosage, so hopefully I'll start losing some of the weight I gained when old endo put me on a lower dose. All in all, I'd rather pay a higher price and feel better than have to deal with all the side effects from the Levoxyl."

• Libby...
• October 9, 2016

"I was on levothyroxine for 10 years and it never did anything for me. My levels were never optimal and I continued to gain weight, be depressed, and waste money on a useless drug. So far with the Tirosint my only side effect is a slight headache. For the first time in my life my hormone levels are excellent, but my wallet is empty. Tirosint is ridiculously expensive. I use a compounding house which sells a month supply to me for $68 (Willow), as opposed to the $125 per month that CVS wanted. I feel the price is a disgrace and something needs to be done about this. I have insurance that does not cover this drug (BCBS). My doctor gave me a discount coupon for $35 a month but Blue Cross Blue Shield would not honor it. Ask your doc for this."

• Titi
• Taken for 1 to 6 months
• June 24, 2019

"I had a concern related to feeling bad and now I have a problem. The doctor recommended me Tirosint for 28 days. My results used to be optimal. I just got results and my TSH is 9. I never ever had more than 1 after being medicated for 12 years. Feeling really frustrated."

• Dee...
• September 6, 2015

"I was so exited to find this medication. I had previously been on synthroid and it's generic for over 20 years with no problems and suddenly became intolerant with debilitating side effects. We tried adding Cytemel which cause terrible heart palps and then tried Armour also causing terrible heart palps and chest pain, both meds were reduced greatly with the same effect. I finally found Tirosint and did wonderfully on it for over 6 months, then my stomach had severe issues, through specialists and so many tests, treatments and a whole lot of money we finally stopped Tirosint on a whim. I'm all better stomach wise, but out of options otherwise. Since even compounded T4 uses fillers, I have no more options."

• Dtrx
• August 17, 2016

"Love Tirosant..my hair is back and fingernails not broken anymore. Feel great. Was on Armour 6 years got hair loss and lost beautiful nails. Previous meds gave me heart palpitations and not able to sleep. This Med is the real deal, but too expensive"

• Hheys...
• Taken for less than 1 month
• March 6, 2018

"So I’m still very new to trying tirosint, I started on 100mcg which I personally felt was way too much! I had my doctor send over for a lower dose of 25mcg. It is still to new to really say besides it makes me cold where with out it I’m hot or having hot flash type symptoms. I really want to know why the company packages it in an odd number. A pack is 28 and not 30. My pharmacy is charging for a 30 day pack but I’m getting 28 days worth???? Is there some class action suit needed to be taken on the drug company or cvs pharmacy ?!?"

• MOMNYC
• Taken for 1 to 6 months
• December 1, 2016

"ON Tiroaint for about 4 months. I certainly have more energy. I have been on synthroid, levoxyl, lecothyroxine and nature throid, this seems to work the best. BUT_ I keep getting rashes in odd places, like my chest and now the backs of my shins, I am starting to think it is the meds as I have not switched detergents and the one I use is free of scent and dyes. Anyone else suffer with rashes on Tirosint. I won't stop, because the rash is better than the way I felt before Tirosint."

• Happy
• Taken for 6 months to 1 year
• July 20, 2019

"I am allergic to the binders in most meds. Tirosint has been a game changer for me. My thyroid med no longer make me sick. It is very pricy here $153.00 was for a 28 day supply now has changed to a 30 day supply. ( I do not have insurance currently.). With insurance I was paying $83.00 a month."

• Jenny
• Taken for less than 1 month
• May 7, 2019

"I have been taken Tirosint for a week and it makes me feel great! More energy, sense of well being and less water retention. I have no side effects until now. I am Italian and in Italy the price is 7.40 euro ( 8.30 $) for one month supply. I take a package with 30 (not 28!), 50 mg each. So I can't understand why you pay so much and I'm sorry for you."

• Laura
• Taken for 1 to 2 years
• December 13, 2023

"I am on Tirosint and also Armour. I cannot sleep, and my fingernails stay horrible. My TSH fluctuates. I feel better when it's around 2.0; mine is 3.93. I fight fatigue and mentally lack ambition. I wonder if others have this same complaint."

• Syste...
• March 19, 2016

"I was diagnosed in 2001 with hashimotos and just always knew since I was young I we different. I was always tired , insomiac, mental fog with no metabolism. Puberty made it worse and pregnancy sent me into storm. Years of misdiagnosis and remedies I had been on synthroid for years ,, with my numbers saying I was therapeutic, I felt no better. I took myself off all meds and spoke with my nurse prac about trying something new. Tirosent has made me feel so much better. I have internal energy, it's making me feel like getting back into the gym and motivated . Down side is cost. In 4 months it's gone up twice ..paid $104 today.. it hurts us financially but I can't put a price on my health. Guess I'll eat less .. get that benefit too :)"

• Yog
• Taken for 10 years or more
• April 19, 2023

"I have had Hashimoto's disease for 33 years. I have taken Tirosint for 13 years. I have allergies to dyes and other excipients in medications. I tried other brands, generic and natural, but Tirosint has worked well for me. If my dose needs adjustment they offer 13 to 25 mcg options to make transitioning up or down easier on my body. Always advocate for yourself. It's your body, you know how you feel. Speak up!"

• Fara
• December 4, 2018

"My doctor recently changed my T4 medication from Synthroid to Tirosint. Even though we lowered the dose to 100 mcg, from 110, I feel like it is still high. I am going to try taking it every other day to see how that works & do a blood test in a couple of weeks. Anyone with the same experience?"

• Ash
• Taken for 5 to 10 years
• February 7, 2019

"Totally agree with Babs. My prescription price doubled, and now I cannot afford the medication. Not sure what happened starting in 2019 other than the company doubling the price and insurance companies refusing to cover the difference. My insurer dropped it from their covered prescriptions totally. Such a shame. This will really mess with those that depend on this medication."

• SavvasM
• Taken for 2 to 5 years
• March 18, 2021

"I was diagnosed with Hashimoto's at the age of 18. I started on TIROSINT 50 but wasn't doing anything at all, my TSH was exactly the same. I jumped up to 75 and still no change. Finally after 4 months I got up to 100 and only then my TSH started dropping. As of today, I maintain a TSH value of 2 with TIROSINT 100 . I want to point out that the prices that all of you state seem quite marked up. In Greece, I pay 8.50€-8.80€ for a month worth of supplies (1 box of 30 capsules TIROSINT 100) . I've read that you can pay up to 80-100$ for 84 days worth which is insane! And it's not covered by health insurance in Greece . It's crazy how much mark up you have to pay! For me ,it's kinda weird and I get quite uncomfortable thinking that I'll have to depend on this medicine for the rest of my life. I can't imagine myself taking this for like 40-60 years everyday. In my 2,5 years using TIROSINT I had 0 issues with it."

• A1234...
• Taken for less than 1 month
• June 8, 2016

"Thyroid was removed a year ago for papillary cancer, been on levothyroxine since. Gained 20 pounds on generic levothyroxine and felt awful, would wake up with a puffy face and eyes even though blood tests showed in range. My endo just switched me to tirosint and after one week I feel so much better. My face and legs are retaining less water, last time I felt this good was prior to my thyroidectomy. I have celiac and crohns which probably caused absorption issues. I also hate dairy and generic levothyroxine has a dairy base, go figure."

• MaryChi
• Taken for 2 to 5 years
• October 5, 2017

"After being diagnosed with Hashimoto's (awful ideopathic urticaria/welts from being touched), I was told to try generic Synthroid. My rashes disappeared. Months later, I did a self-trial and came to find out it caused my awful acid reflux (so bad I was screaming and wrenching in pain), so it was a choice of off Synthroid totally or try Tirosint. My TSH and other levels are great and no more daily acid relux. Thank you, Tirosint!"

• Anonymous
• Taken for 1 to 6 months
• September 8, 2021

"Horrible medication. As a 65 year old with recent diagnosis of Hashimoto's disease, I was on this drug for 2 months. The second month things got worse. Chest pains, not sleeping, terrible muscle aches. Well, I ended up in the emergency room with chest pains which led to a triple bypass operation!!! This drug should be off the market!!!"

• Anonymous
• Taken for 1 to 6 months
• June 7, 2017

"I was on Synthyroid 50mcg and generic levothyroxine 50mcg. With both medications I had palpitations, heat intolerance, and severe insomina. Synthyroid was worse than levothyroxine. My TSH numbers were fine but I couldn't tolerate the insomina. The positive thing was that I lost 30 pounds. I was switched to Tirostint 50mcg& immediately could finally sleep. No more insomnia, no more palpitations, no more heat intolerance. I recently got my lab work back & I have a normal TSH, but I've started getting hypothyroid-like symptoms I used to have when I was no thyroid medication. So even though my TSH is normal and I can sleep, I am having weight gain, increased constipation, and hair line eczema. Alas I will try another brand!"

• Anonymous
• Taken for 5 to 10 years
• July 8, 2021

"I have been on Tirosint for several years, and haven’t “noticed” any type of changes. I just don’t always feel great. But for those of you upset with the price, which it is ridiculous. Even with insurance, Tirosint has a coupon online. Just type in Tirosint coupon. Hope this helps!! I pay $25.00 a month."

• AnnaB...
• December 26, 2021

"I am 25 years old and was diagnosed with Hashimoto’s a few months ago. Taking tirosint is the best I have felt in the 2 years of being diagnosed with hypothyroidism. I have more energy, the pill is easier to swallow (being gel), my mood has increased positively, and I can maintain weight. I will never take general levothyroxine or synthroid again."