Letrozole for Breast Cancer User Reviews (Page 5)

• Pam
• Taken for 1 to 6 months
• March 6, 2023

"I was diagnosed with invasive lobular breast cancer triple positive. Started taking Letrozole in September 2022. Had hot flashes at first and now dealing with bone pain. I’m hoping to stay on Letrozole for the full 10 years but we shall see."

• OldBi...
• Taken for 1 to 6 months
• March 10, 2023

"It was okay for the first month. I had hot flushes that subsided after a few weeks. Then the pain in my joints, lack of energy, and low mood kicked in. I didn't feel like doing anything which was just as well as I was in a lot of pain just walking around the house. My hips, knees, and lower back were the worst. They hurt all the time - even when I lay down to sleep. after five months of suffering on Letrozole, I was recently told I am pre-diabetic. I have just stopped taking the drug and have a phone appt to discuss with my GP."

• Conce...
• Taken for 1 to 2 years
• July 9, 2021

Femara (letrozole) "Male had breast cancer removed. Lymph nodes clear, but started on this after I had a bad MRI for an eye issue. Started taking letrozole as insurance. Recently have been having more brain fog, unexplained black eye, yellow bruises on legs, and one on my arm. Will probably stop taking. Also just diagnosed with glaucoma like someone else here. Good luck. It seems this drug works for many, and doesn't fit for a lot too. Make up your own mind for what is best for you. Good luck."

• Frien...
• Taken for 1 to 2 years
• November 21, 2021

"I took Letrozole for 15 months. I had developed very bad asthma. Both my Oncologist and Specialist Physician were treating me. No cause could be found and more medication was added. Suddenly one day I wondered if it could possibly be the Letrozole. I decided to stop taking it but didn't tell anybody. I was amazed that from the first day of stopping I didn't have any asthma attack. 2 weeks later and still no attacks I told my Physician what I'd done. I surely can't be the only person who has developed asthma from Letrozole. Why is it not listed in the side effects"

• Esra
• Taken for 1 to 6 months
• November 7, 2021

"I have been using letrazole for 4 months. 3 weeks ago I suddenly started having a lot of postnasal drip. I went to several doctors. they all gave me the same allergy treatment. But it doesn't stop. I've read that hormonal imbalances cause postnasal drip. Has anyone had a postnasal drip while using this drug?"

• Inis
• Taken for 2 to 5 years
• July 24, 2021

Femara (letrozole) "Took Femara for 2 years+. Just saw my oncologist recently and she asked about the joint pain. It has been awful, my joint and muscle pain is excruciating sometimes. I am a young 61 who felt 85. No more snow skiing. Could barely get out of bed many days. Oncologist suggested I take a week off of it and if it improved the pain, she would prescribe Aromasin. Sure enough, pain all gone and now have been on Aromasin a week. Fingers crossed!"

• tc1
• April 8, 2024

"I have been on letrozole for 12 months due to stage 1 breast cancer, estrogen positive. Had lumpectomy and 5 sessions of radiotherapy. I also have ME for 15 years. If this drug keeps the cancer away, I will continue to take it despite the side effects. I take it each evening at the same time; yes, I get the headaches, joint pains, fatigue, hot flushes, but I battle on with a smile on my face every day because I am still here."

• Blessed
• Taken for 2 to 5 years
• July 12, 2022

"I have tried other related anti-hormone drugs to help on my breast cancer journey. The side effects to Letrozole for my body was the least than any others they tried me on over months. There is LESS bone pain, nausea, sweating, moodiness, fatigue on Letrozole and the others. Everyone's body is different and reacts different. My personal choice is Letrozole. I highly recommend taking it every night at the same time. I only stopped it a week before my PET scans to help reduce inflammation for the scan. Then go right back on it. Usually this week I stop this medication, it doesn't fully leave your body, so it is no issue with the side effects when you continue it."

• JFitz
• Taken for 5 to 10 years
• May 31, 2021

"Had stage 1 breast cancer in January 2015 started on tamoxifen. Oncologist had me switch in 2017 to letrozole. Have wet macular degeneration. I am being treated for that with injections. I have been having lots of joint pain. Now I have noticed I had a Dexa in 2019 and now in 2021 have been diagnosed with osteoporosis. So since the beginning of the 2021 year I have started to become a hot mess. Talked to my oncologist and we now are stopping letrozole. I have had over 5 years of drugs. I feel the side effects of the drugs are damaging that you sometimes have to wonder is it worth it. At 61 I am extremely active walk between 8-10 miles during the week at work along with 3 sets of steps 3 times daily. I also exercise at night when I get home. Hope they can somehow work to improve these drugs."

• Lisa
• Taken for 5 to 10 years
• November 16, 2023

"I was diagnosed with Stage 2 & Stage 3 ILC breast cancer in 2017. 8 out of 18 lymph nodes were ER/PR positive. Left Radical mastectomy, risk reducing right mastectomy. Followed by 6 months of chemo, 5 1/2 weeks of daily radiation, and 1 year of Herceptin/Perjeta every 3 weeks. I am 6 years out from diagnosis, taking Letrozole 2.5mg daily. I have another 5 years to go on Letrozole. I do have stiff joints in my fingers and hands. Unable to make a fist without pain. Bike riding is out for me. The radiation gave me stiffness and pain in my left chest/arm, and I am unable to straighten my left arm."

• Molly
• June 5, 2021

"I took tamoxifen for 5 years then was switched to letrozole. For the first 6 months I had no issues. Gradually I noticed a stiffening in my joints: knees. hips, shoulders, ankles. Eventually I couldn’t get out of bed. I stopped EVERYTHING for one week and felt better. My oncologist switched me back to tamoxifen. After 4 weeks I can move again. Of course the hot flashes returned with tamoxifen. Two more weeks and I visit the oncologist to discuss options- I am so happy I can walk again."

• Steffie
• Taken for 6 months to 1 year
• July 7, 2021

"I took this med for 6 months. Around 6 month mark I got Carpel Tunnel in both hands. I literally could not use my hands or bend my fingers. My hands were so sore and swollen. I had to get steroid injections in my wrists to alleviate the pain. My Dr. just switched me to aromasin. We will give that a try and see if its better. I would not take Letrozole again."

• Susan
• Taken for 6 months to 1 year
• April 16, 2024

"After radiotherapy, I was given Letrozole to take for 5 years. I've been taking it for 8 months. First of all, came aches and pains in my joints. I feel weak, my skin has wrinkled so much and is very dry, but now I'm losing hair. It has aged me considerably. I don't feel any benefits but keep taking it as I don't want the cancer to come back."

• lmfau...
• April 6, 2009

Femara (letrozole) "For the past two years I've used Femara with no side effects at all, and still cancer-free for 5 years now."

• Anonymous
• September 20, 2011

Femara (letrozole) "My main concern was the memory loss. I could tolerate the hot flashes. The 'morning sickness' was undesired and difficult, but the memory loss is something I can't deal with."

• Notfe...
• September 9, 2016

Femara (letrozole) "Considering going off of it. Too many severe side effects such as painful hands and feet, tendinitis of wrists, weight gain."

• lkw
• April 23, 2012

Femara (letrozole) "I have been on Femara for 4 months. Hand pain and weight gain."

• first...
• Taken for 1 to 2 years
• December 23, 2013

"Got aches and pains in shoulders, knees, stiffness after sitting, trigger fingers and thumb-left hand, thinning hair."

• Anonymous
• March 24, 2009

Femara (letrozole) "I am having tremors in hands and feet. Joint pain and general feeling of ill health. Cannot handle it."

• Florida...
• Taken for 1 to 6 months
• March 20, 2016

"Stiff finger and legs, joint pain, swollen finger and toes, hip pain, hot flashes/ night sweats and weight gain."

• Anonymous
• Taken for 1 to 6 months
• September 13, 2023

Femara (letrozole) "I have been on Femara for 5 months so far for breast cancer. I will need to take it for 5 years. I have absolutely no side effects, in fact, I am feeling quite well. I hope it stays that way."

• Foxni...
• March 1, 2017

"Morning joint stiffness progressing to hip,wrist,shoulder stiffness and pain. Hip pain is the most bothersome. Also, dry mouth and some hair loss"

• Big...
• Taken for 2 to 5 years
• June 26, 2016

"No symptoms except dry mouth, which causes difficulty swallowing."

• TJano
• Taken for 1 to 2 years
• March 19, 2018

"Joint pain can be debilitating. Fortunately another medication I take helps this pain."

• Trish
• Taken for 5 to 10 years
• May 13, 2022

"The pain in my legs and knees is almost unbearable. I feel I cannot stand this for 5 years my life has completely changed"