Lacosamide for Seizures User Reviews (Page 5)

• kit...
• Taken for 1 to 6 months
• April 26, 2019

Lacosamide "I just started this medicine after I got a phase 2 surgery. It has helped with the longevity of the seizure, but it hasn't stopped them. I have now noticed the side effects of it, my hair is turning white and breaking easily, the vertigo, and nausea if I don't eat enough by the second dose. My eyes and urine have darkened, not to mention I have to use the restroom a million times a day. I don't know if I should stay on it or go ahead and get off?"

• Bet...
• Taken for 6 months to 1 year
• May 18, 2022

Lacosamide "This is by far one of the worst medications that I have ever been on. My neuro switched me to Vimpat mid-October, and symptoms started within several weeks. Increased BP, severe nausea, no appetite. I also started to get tingling in my arms and feet. My neuro never suggested that it could be the Vimpat. The symptoms/side effects worsened, yet my neuro said that they were not ones of Vimpat and kept referring me to other doctors and tests. Of course, all came back negative. Starting in January, my symptoms got to an extreme: daily panic attacks, no appetite, a 10 lb weight loss, constant nausea, restlessness, irritability, and agitation, and overall I felt like a completely different person. I had no idea who I was anymore. I finally contacted my pharmacist and had her look at my medications. She said the only medication that I was on that could be the cause is Vimpat. Despite defensiveness and agitation, my neuro weaned me off. I got rid of her and reported Vimpat to FDA and UCB."

• Cry...
• Taken for 5 to 10 years
• September 23, 2015

Lacosamide "I take Vimpat 200 mg in the morning and at night. I have been on it for the past 7 years, but recently I have had severe vertigo to where the room felt like it was spinning, and I would end up sick for hours. I have to take a pill for dizziness, it's gotten so bad. I think it's time for a change. I'm just scared to change because I have Grand Mal seizures, and I am severely allergic to Lamictal and Dilantin. I don't know what to do next. I take Depakote 500 mg ER in the morning and at night and 250 mg ER at night. But I need that extra med at night to keep my seizures at bay."

• Joe...
• Taken for 5 to 10 years
• April 24, 2021

Lacosamide "Effective drug, but within the first 2 hours of taking a dosage, I have to catch myself getting irritable/bad-tempered. In my case, I can't drink caffeine/sugar and take this drug at the same time without turning mean. Very expensive without insurance. ($1509.09/bottle). There is a manufacturer's discount card."

• djc...
• Taken for 10 years or more
• March 6, 2021

Lacosamide "I've had seizures since I was 8, mine were tonic-clonic on both sides of the brain. Normally, I was seeing a neurologist but didn't know there is an epilepticus doctor that just specializes in just epilepsy and can help you better. Anyway, I'm 45 now and take Vimpat and Keppra and can't sleep. I keep smelling ammonia and sometimes I feel so angry, but thank goodness I can control my rage. I get so tired sometimes I sleep until I pee myself. It is just crazy, I'd rather try to get off these meds than be on them!"

• Cye...
• Taken for 5 to 10 years
• June 24, 2018

Lacosamide "I started this medication in 2011. The Vimpat, along with clonazepam, has worked perfectly for me. I haven't had a seizure since 2012. I do notice my vision has changed, a little more blurred, but I am over 55, so I guess that also comes with age. I am happy Vimpat works for me!"

• jcr...
• Taken for 1 to 6 months
• April 11, 2016

Lacosamide "I was on Keppra, my doctor switched me to Vimpat. I can't see right. Walking is like a newborn trying to begin to walk, hitting into walls, trouble sleeping, biting my inner cheeks a lot, very sore. Can't sleep well. Feel something is going on while sleeping. My bottom front lip is all cut and very sore. I don't recommend, not worth it. I would rather have seizures."

• Bjo...
• Taken for 6 months to 1 year
• December 16, 2015

Lacosamide "Vimpat made me see double of everything after the first week I took it. Very bad feeling did not help my seizures well. Only down by 50%. And felt at night restless in legs. Dizziness when walking in the daytime. Not take anymore, feel better. Now take Topamax, and I find it much better."

• giz...
• August 9, 2015

Lacosamide "Been taking Dilantin for grand mal. Started getting partial and hangover headache every day. Started Vimpat. Clear head, no headaches, no partials or headache. Side effects: constipation and limited sleep, so take melatonin for sleep and Colace. So far, so good."

• mdb...
• Taken for 5 to 10 years
• May 29, 2024

Lacosamide "Vimpat has been a lifesaver for me. After my brain tumor, which caused seizures that never left, and trying just about all the seizure meds, this is the only one that really works. Every medicine has side effects, but this medicine has the least for me. I highly recommend and push through the side effects of titrating to your sweet level of seizure stopping."

• Anonymous
• October 14, 2021

Lacosamide "Honestly, one of the worst seizure medications I have ever been on. I haven't been able to move my body all day. The whole upper half of my body is locked up the whole entire time of taking this medication. My shoulders were locked up occasionally, and I just thought it was weird. I didn't think it was from this medication. I have also not been able to remember anything. The first night I took this medication, I vomited everywhere. I feel like I'm spinning, and I've been taking this medication for at least a month and a half. Do not let your doctor put you on this medication, please trust me. I have not been able to move all damn day. It also says it causes anxiety, and I have BPD and all kinds of other issues, so I'm pretty annoyed at my doctor. It seems like all these neurologists aren't good at thinking. This medication is also extremely expensive, and I have insurance. Even with insurance, it was expensive. This medication cost too much, and it's completely ineffective. It just caused me more pain than I was in."

• Anonymous
• April 18, 2021

Lacosamide "I have been on 3000 mg Keppra 750, and now I'm 1000 mg Keppra with Vimpat. Keppra seems to work some days, but mostly keeps me up, less appetite. I am 36, being diagnosed just a year ago with TLE epilepsy. I can't drive, work, or even live alone. One thing that has helped with panic attacks, manic episodes is taking vitamin B6. It helps with the neuroreceptors."

• Anonymous
• Taken for less than 1 month
• November 12, 2017

Lacosamide "Had blurry double vision the first week and a half, felt mildly drunk-headed, also random spaciness, and yes, that's a word lol. Also on Trileptal. So far, it's helped, but it seems to be an intoxicating substance, or it really brings out the side effect profile of clonazepam. I would bet it's Vimpat alone."

• Vim...
• Taken for 1 to 6 months
• October 1, 2015

Lacosamide "I was initially given 75 mg twice a day for a seizure related to a brain tumor. The tumor was removed. I started radiation and chemo 1 month later on the same dose for another month. I went to a neurologist because I was told he would prescribe any meds for anti-seizure. Well, he doubled the dose for 2 weeks, then tripled it. Now I'm totally useless. They won't tell me why they tripled the dose, only that I could have another seizure and that doctor was responsible. I'm not understanding why, if I had absolutely no symptoms, why he would do this."

• Spl...
• September 10, 2022

Lacosamide "Good pill. I like Vimpat better than Keppra! But at the beginning, you will experience anxiety and brain fog. When I say it slows your brain down, it slows it down for a couple of weeks. And the short-term memory loss you’ll have for a couple of weeks is horrible. Once you get past all of that, you’ll feel good! I’m on the 150 mg. You gotta push to get past the anxiety it gives you! It gave me such bad anxiety I ended up having a seizure! Lol."

• CHR...
• November 18, 2023

Lacosamide "I recently switched from phenytoin to Vimpat and everything went very smoothly. I am very grateful for that because I have God to thank for it. I don't have any side effects, and it has done wonders for me. I am thankful for that as well. God has answered all of my prayers. He has not let me down at all. This drug has been a wonder drug for me."

• Jie...
• Taken for 5 to 10 years
• October 31, 2021

Lacosamide "Drugs work okay, but can't take more than 300 mg a day without side effects (anger problems). Current insurance company will only pay for 75% of the cost, therefore, going to talk to neuro about finding a new drug. Taken all the old stuff (Keppra, Tegretol, Depakote), Depakote is awful."

• Anonymous
• Taken for 2 to 5 years
• September 21, 2021

Lacosamide "I went unconscious driving, and have had an insane irregular heartbeat. I am in the process of switching medicine. It is listed as a side effect and missed by many people at the hospital that this medicine could be the problem. The serious downfall of this medicine is the cost and lack of data showing side effects."

• Anonymous
• Taken for 2 to 5 years
• December 18, 2021

Lacosamide "I have been using this drug for years now, switched to this from levetiracetam because it would make me very drowsy every day. Vimpat doesn't come with that side effect and it does effectively prevent my nocturnal seizures. Unfortunately, there have been times where I either forgot or ran out of tablets, and if I had stress during that time, relapses would occur. So, I don't see myself ever coming off this drug. As other people are saying, I have also been having trouble with speech and memory, and it's getting noticeably worse. Levetiracetam was also recommended as a memory-protecting drug, but it causes too much drowsiness."

• Lon...
• Taken for 10 years or more
• June 17, 2024

"I have been using Lacosamide for many years now. After trying at least a dozen different meds and combinations of them, my doctor put me on Lacosamide. He warned me that the side effects could be unpleasant at first but might decrease over time. He also told me that getting the drug reliably and affordably could be a problem, but he would be my advocate if it worked so I weaned off the one I was on totally before starting Lacosamide. Although there were unpleasant side effects, particularly at first, it was the first time in many years that my seizures started to finally get under control so it was worth it. No more seizures but some side effects that I've gotten used to; dizziness and short-term memory loss are the most irritating. Those are worth putting up with as long as I have no big seizures and Lacosamide has stopped those to the extent that I panic if I have any trouble getting it, since it doesn't take long for me to start having seizures again not long after I miss some."

• 042...
• February 19, 2021

Lacosamide "USE WITH MAJOR CAUTION. This medicine does wonders for seizures but can very easily over-medicate you. This stuff had me to the point I thought my own family was against me. I truly thought I was all alone, and thank God."

• Anonymous
• Taken for 10 years or more
• October 1, 2022

"I love this medication! Seizures were caused by a TBI. Doctors tried several different medications, and none helped. I have to admit, very expensive, but not anymore, a generic was finally released, and I cannot explain how thankful I am to this medication. Been seizure-free since I started taking it! ☺️"

• Sei...
• Taken for 1 to 6 months
• October 15, 2019

"My son has tonic-clonic (grand mal seizures) and was first put on Keppra. It did nothing to control his seizures. His doctor then put him on Vimpat, and as long as he is consistent with taking it, it controls his seizures."

• Try...
• Taken for 6 months to 1 year
• August 21, 2021

Lacosamide "Vimpat doesn't stop nocturnal seizures for me. 200 mg am and pm. Side effects are mild, the biggest problem for me is not constipation but motility. I can't go for two days at a time. Very annoying but tolerable if this would work. Also taking Fycompa, no help but had to reduce because it caused eye irritation. I wish Parke Davis still made Dilantin back when it worked right!!!"

• Rav...
• March 22, 2021

Lacosamide "I started taking Vimpat two and a half weeks ago. I started at 50 mg twice daily and now I'm on 100 mg twice daily as I come off of Carbatrol. It's worth noting that I also take Keppra. I find my seizures have gone WAY down, and the ones I have are much weaker. However, I have noticed a change in my thought process. Nothing I consider to be bad, but definitely different. If I had to describe it, I now think in tie-dye. For example, one night I sat there thinking about ghosts. Simple enough, right? Well, then I thought, if when we die, we are a spirit and spirits roam the world...what happens when everyone is dead? Are we all a bunch of spirits roaming Earth? And if that's the case, then when we look at meteors that used to be planets out in space, are the hunks of rock covered in spirits of other beings that once lived? So naturally, I talked to a friend about this, and we discovered that a side effect can be mania. However, I don't feel manic. I just feel good, productive, happy."