Lacosamide for Seizures User Reviews (Page 2)

• Losing...
• February 8, 2013

Vimpat (lacosamide) "I will be 50 next week so the hair loss may be due to menopause although I am having no other signs of this (still have regular cycles, no hot flashes, etc.). And this came on so quickly; as soon as I started taking Vimpat so I feel there may be a connection. Started 400 mg in November and had terrible insomnia/tremors so I was cut back to 300. I did not have a reduction in the number of seizures (4 partial a month) but the severity has reduced greatly. However my hair is falling out at an unbelievable pace. I am so happy for the reduction in seizure severity I will buy a wig if needed. Just wanted to mention for anyone else who may be facing this as it is not a listed side effect. Also 8 lb weight loss and still a bit anxious."

• His...
• Taken for 2 to 5 years
• July 10, 2013

Vimpat (lacosamide) "My 14 yr old son has been on Vimpat coupled with Keppra and although it is not recommended for children, it has given me peace of mind. He has been seizure free for over two years. Side effects appear to be minimal, he does have short term memory loss, like walking into the kitchen and forgetting why he came in there. He especially forgets chores, but I don't know if it's because of the medicine or because he is just a typical lazy teenager."

• Anonymous
• January 20, 2013

Vimpat (lacosamide) "I am currently on 375mg Lamotrigine, and until recently, on 300mg Vimpat. My seizures reduced from one/month to one over a three month period, but still had frequent auras. My doctor increased my Vimpat to 400mg and I have not had a seizure in over 6 months and have had maybe only one aura. My seizures have started only in my sleep and it is a relief now to go to bed with out fearing that I will have a seizure. The only 'bad' side effect is the difficulty coming up with words. It's very irritating and does affect my job to some degree, but the tradeoff is worth it."

• Aunt...
• Taken for 1 to 2 years
• May 15, 2012

Vimpat (lacosamide) "This has helped control my complex partial seizures in combination with Neurontin, which I have been on since 1994. I have been on Vimpat for about 17 months now and it causes short/long term memory problems. I can't be on high doses of this. Sometimes I will be in mid-sentence and have to stop talking just trying to get the word(s) off the tip of my tongue. It also causes sleep problems and decreased appetite as well."

• Seizure...
• February 18, 2011

Vimpat (lacosamide) "When I started Vimpat I got vertigo, headaches, and nausea like woah. My neurologist asked me to try to stick it out, and I am SO glad I did. It replaced Topamax (which was messing up my kidneys) and it works. I went a record (for me) 124 days without a seizure with the Vimpat/Keppra combination I am on now. I still get dizzy more easily than I used to, but seizure freedom is absolutely worth the inconvenience."

• Anonymous
• December 29, 2011

Vimpat (lacosamide) "I have been taking Dilantin for almost 20 years. Tried all sorts of anti-seizure drugs. You name it I have it. Started Vimpat about 4/5 months ago along with Dilantin. 200mg/day. I felt initially that it is better than others. I did have short seizure (usually don't get frequently). With increased dose along with Dilantin I am confused, memory loss, dizziness, sort of depressive mood at times. Big thing is the memory loss. I forget what I did at work the other day, things like that. Feel very stressed and have become more sensitive . Major one is memory. "

• mark...
• July 17, 2011

Vimpat (lacosamide) "Though not indicated in the literature, I found that a few days after starting the Vimpat titration kit I began to experience extreme soreness in the legs. It may not have been from the medication but I had not done any physical activity that would have caused such soreness in the muscles in my legs and lower extremities. Though I cannot say for certain that it was a side effect of taking Vimpat it does seem that the symptoms only emerged a couple of days after beginning the titration kit of Vimpat 50 mg twice a day leading to Vimpat 100mg twice a day. I am interested in sharing this to see if anyone else has had similar experiences because this is not a symptom listed in the medicine guide or any other lists of side effects of Vimpat."

• Caz...
• April 19, 2013

Vimpat (lacosamide) "I had surgery in Jan 2013 to remove the right temporal lobe. My epilepsy changed altogether, I was just having daily partials but conscious when they happened. However after surgery things were really bad in terms of the quantity of seizures I was having. They were every 15 minutes!! Anyway I've now been on Vimpat for about 6 weeks and have noticed a huge improvement. I have gone from 40 partials to around 2-3 per day and so far no complex partials! However when I increased my last dose to 100mg twice a day, my heart was racing at 128 so had to reduce back to 50mg twice daily. I have noticed I am constantly itching and my memory is really bad. I'm not sure if this is because of the surgery or the Vimpat. I go back to work soon so really concerned."

• Rnewon
• Taken for less than 1 month
• April 9, 2014

Vimpat (lacosamide) "My seizures changed to Partial onset seizures. I can't remember what happened 5 minutes ago, but my seizures have subsided. I'm also weening off of Keppra it made me impossible to live with. I also want to sleep a lot."

• Anonymous
• August 16, 2010

Vimpat (lacosamide) "Vimpat has been doing a great job at stopping seizures. In fact I might even get to drive! However, it seems to cause great difficulty in remembering words and expressing ones self. Having previously been a great public speaker this is frustrating as now I cannot really talk without waving my hands around for a long time or saying "that one thing" or "uhhhhh". Typing is greatly slowed as I can't remember words. Forgetting things when not talking is also a problem. Problems with coordination are also apparent."

• Anonymous
• October 22, 2011

Vimpat (lacosamide) "Vimpat has some effectiveness for my partial seizures, but it is accompanied by other difficulties: 1. It gave me double vision early on. We had to balance my dosages of Vimpat and Lamictal to straighten out the problem. 2. I struggle with memory problems as a result of taking it. Sometimes I need to ponder extra long to even be able to recount what I did or learned just a few days before. And I'm not always successful. 3.Vimpat has intensified my emotions, especially in causing me to weep. I used to go a whole year without shedding a tear. Now I often can't even go a whole day without crying a bit. I don't think it's depression. I usually am moved to tears over something I deem wonderfully moving. Just totally out of character for me."

• Cora...
• Taken for 1 to 2 years
• August 18, 2014

Vimpat (lacosamide) "I had been on Keppra, and Vimpat 100mg twice a day, and it controlled my seizures well for about a year. I then started having seizures, Then the doctors increased the dosage to 175mg twice a day, and Keppra EX 1500 mg at bed time. I became like a zombie, dizzy, fell twice and bruised my head. I attributed the symptoms, to Overdose of Vimpat at one time. I started cutting the Vimpat pills 175mg in half, and spacing them six hours apart and now I am active, no dizziness, no falling. So far, I have not had my hair fall out as others have reported. I called the doctors to tell him the above, but he's on vacation, I can't find anything on cutting the pills, and spreading the dosage as I have done."

• mdb
• Taken for 1 to 2 years
• December 11, 2016

Vimpat (lacosamide) "After adding Vimpat to my Keppra regime, my seizures dropped to nearly nonexistent. I have tried most all other seizure meds, but this 1 worked for me. I realize everyone is different, this med worked for me with few side effects. I will gladly trade a few side effects versus a seizure."

• Krist...
• April 10, 2015

Vimpat (lacosamide) "Vimpat has been awesome at controlling my seizures. I was having multiple partial seizures a day and nocturnal grand mals every few months. However, I haven't had a seizure since I started taking Vimpat 6 years ago. I have experienced some of the same side effects others have mentioned; the dizziness/shaking, the sleepiness, the loss of my words/stuttering. I haven't experienced anything substantial with my hair or moods though, at least nothing that I can attribute to Vimpat alone. So all in all, it has worked well for me and the benefits outweigh the negative side effects."

• Rboo
• September 24, 2017

Vimpat (lacosamide) "I have been using vimpat since 2011. I found a New Doctor in 2011 he ordered Vimpat 100mg 2x a day, along with Clonezapam .05 2x a day, Somehow this was the perfect combination of both medicines as I have been Seizure free for 5 years! Vimpat Works For Me! :-)"

• Rachel...
• January 16, 2016

Vimpat (lacosamide) "While on this drug, I could not look at something without it moving. I felt a severe pain behind my eyes and no longer was able to sleep. I was put on this medication where they use it for patients with seizures more than any other drug. It was honestly a horrible experience, I would rather have seizures than be on this to be 100% honest with all of you. Really awful, do not let your doctors push this crap on you, I promise it is not worth it!"

• dino
• January 7, 2016

Vimpat (lacosamide) "Vimpat worked great, Only med that has been able to control my seizures. Neurologist had to adjust dosage too much at each dosing made me dizzy. I was on 600mg 2x daily, but had to switch to 600 mg 3x daily. It is very expensive w/o insurance. But I couldn't ask for any other med. This is the ONLY MED that has controlled my seizures. 2 years seizure free."

• TechS...
• Taken for 6 months to 1 year
• April 29, 2015

Vimpat (lacosamide) "Vimpat is a cursed drug to me. Its helped with my seizures, but its not worth it for the side effects. I started it with Lamictal XR 500 mg. I had seizures at Vimpat 100 mg. At 200 mg, I was having extreme vertigo-- I couldn't even lay down. It happened a few times, along with other side effects. The doctor balanced it out at Lamictal XR 400 mg and Vimpat 150 mg. I have double-vision at least one a week (mild to high), nausea frequently, vomiting a few times a month, and sometimes off balance. A mild vertigo has happened a few times. If I don't eat it with a good amount of food, the side effects are almost guaranteed for me. It stops the seizures, but its not worth it."

• ukgirl
• Taken for less than 1 month
• May 23, 2012

Vimpat (lacosamide) "I have started Vimpat just over 7 days ago and noticed I feel like losing marbles. I can't think straight, I can't concentrate on anything, can't read anything as can't concentrate long enough to read it. I get really dizzy, I'm forgetting lots, even walked out forgetting hadn't put shoes on. I was only started on 50mg one a day and within 7 days thinking it's making me a nutter."

• Silve...
• August 31, 2013

Vimpat (lacosamide) "I take Tegretol and I have been on Vimpat now for over a year. At first I still had seizures but they were completely different to the ones I had before, I used to jump and scream, now I become an ironing board then kick legs. After a few months they stopped completely, I had never felt better, it was the first time in 25 years I had been free, but the last couple of months they have returned and I have never felt worse. Side effects: extremely emotional [which is at the other end of the scale from Vigabatrin which made me a nutter] depression, memory loss, stuttering and significant weight gain. I am much better on them than without, but as far as stopping my seizures it was short lived"

• Karen...
• Taken for 1 to 6 months
• August 11, 2014

Vimpat (lacosamide) "I have been on Vimpat for 2 months now. Like many others, I have been on just about everything! After a week on the Vimpat I was no longer having partial seizures but after about a month, reaching my titrated level of 200mg twice a day. I started noticing weight gain, numbness in my mouth and throat, almost a numb feeling on my skin and a weird overall feeling, all these side effects ended after about a 1/2 hour. It is great to not have the seizures each day and to only be on one medicine while my doctor keeps reassuring me that they will fade with time. I just hope they do because I have to make sure I do not have anything I need to do after taking my dose. I had to fight like crazy for my insurance to cover the medication at $1954/ month."

• sad...
• Taken for 1 to 6 months
• July 23, 2013

Vimpat (lacosamide) "My uncle has had epilepsy since he was 18. He is now 60. He was on Dilanton up until 4 years ago when he was put on Depakote after a 45 minute seizure. Then no more until February. Then he started having seizures once a week. The doctor added Keppra. The seizures kept happening every couple weeks so the doctor sent him to a neurologist which maxed out the doses of both pills. Last month he had 4 lengthy seizures within 2 hour time period. That's when the doctor added Vimpat. As of today he has not had a seizure but the doc wants to up the Vimpat again. Since he has been on it he has had horrible memory loss. "

• Confu...
• Taken for 2 to 5 years
• August 31, 2015

Vimpat (lacosamide) "Does Vimpat seem to make anyone very,very forgetful ? I tend to explode verbally occasionally, in a negative way, and totally depressed. Sound any bit familiar? I'm on other meds but just seeing if anyone possibly noticed this from Vimpat. One other thing. I was working a lot of overtime both day and night and confused the amount of meds I was taking although I had them separated. Not good. Had terrible accident, was told the car rolled over 6 or 7 times. Thank god didn't involve any other cars or persons. Just drove off road. PLEASE take your meds as told to do so. Spine operation went well. GOD BLESS YOU , seat belt and air bags!!!"

• kcruser
• September 12, 2014

Vimpat (lacosamide) "Vimpat is wonderful, in that it has stopped my seizures for the past two years. I am also on Carbatrol. Short-term memory loss I can live with, but my main concern is dizziness. I can't find the combination of times to take it/foods to take it with. It seems like I find a combination that works for three or four days, then I'm so dizzy I cannot stand up. Very frustrating."

• Anonymous
• January 8, 2011

Vimpat (lacosamide) "I have been on Vimpat for about 6 months, adjunct to Zonegran. It has not helped to control my hormonal seizures yet, so my doctor keeps having to increase the dose of Vimpat. However, now I can't sleep well but feel really drowsy in the morning which doesn't help me at work, where I need to be very sharp. The worst is the chronic constipation. I am always bloated and have major abdominal discomfort since taking Vimpat."