Infliximab User Reviews & Ratings (Page 5)

• J Yoder
• August 20, 2016

Remicade (infliximab) for Crohn's Disease, Maintenance "I first had symptoms when I was 17 yrs old. Was not diagnosed until I was 25 during an exploratory surgery to find out what was wrong with me. I am now 67, have had three surgeries, 2 for blockages and a variety of meds.. This last surgery did not go well and my crohn's became worse. The doctor recommended I go on Remicade. Have had three treatments with no improvement, extremely exhausted. During my treatments I developed chest pains, had an angiogram, everything fine. Then became very short of breath, fever and got water on the heart from the procedure. Will be discussing this with the doctor and requesting I stop the treatments. I have not had a rewarding experience with Remicade. Not sure what my options are going forward."

• Tatiana...
• July 6, 2015

Remicade (infliximab) for Crohn's Disease, Maintenance "I suffer of Crohn's Disease about 2 years and took remicade for one now. At first i had headaches but now i just took remicade every 56 days and keeps me ok. I don't feel the syntons of disease and bacically i eat everything that i wish but i'm 29 so i'm always on diet to keep my body shape."

• GramaJ
• April 9, 2017

Remicade (infliximab) for Rheumatoid Arthritis "Like some RA people, diagnosed easily back in 1990. Genetically "gifted" it from maternal side. Having tried all the old first line drugs w/o success I started on second line of meds including Enbrel. It was great for 6 months. Then it stopped. Remicade was started & after one infusion I had a horrible reaction: Serum Sickness" . Paralyzed for 3 days, severe allodynia (pain all over). Would never take this drug. It was the mouse protein in Remicade that I reacted to. Wish you all well!"

• PENWE...
• April 25, 2009

Remicade (infliximab) for Crohn's Disease, Maintenance "I was diagnosed with Crohn's disease ten years ago. I had a flare-up six months ago. I had a small bowel resection two months ago. So far I have had five transfusions. At first I felt a little faint and scared. Now it feels fine. I feel great and am in remission. I supplement my Remicade transfusions with 50 mg Imuran and B-12 shot monthly. I am very happy. I hope the good times last."

• Mike
• Taken for 2 to 5 years
• March 30, 2019

For Crohn's Disease, Maintenance "I have been having infliximab infusions for Crohn's for 2 years now and it has given me my life back. I’m am also still taking azothioprine as a precaution so that my body doesn’t build immunity to the infliximab. It took about 3-4 months for it to work. Prior to taking it I had suffered a particularly bad 2 year flare, lost 35kg, hospitalisation, brought my marriage to the brink and I was contemplating the unthinkable. I can’t help crying as I write this as I remember what it was like. Reaching that point, it was worth the potential risks with the hope of being normal again. As I enter my third year of infusions, I am aware that the drugs effectiveness can wear off and I am praying it doesn’t. I am very fortunate to live in country that covers the cost of the infusions which would otherwise be financially devastating. Best of luck to you all and I hope it can work as well for you as it has me."

• Linda...
• Taken for 5 to 10 years
• February 13, 2017

Remicade (infliximab) for Ulcerative Colitis "Diagnosed in 2003 with ulcerative colitis. Started Remicade in 2010. Helped my symptoms but developed Discoid Lupus in 2015. Doctor thinks it was brought on by the Remicade. Stopped Remicade and now taking Entyvio for colitis and plaquenil for the lupus."

• Anonymous
• November 9, 2023

Avsola (infliximab) for Crohn's Disease "Diagnosed 20 years ago with Crohn's. Took Remicade until last year when I was forced to switch to Inflectra, then forced to switch to Avsola. I have no side effects and it is working excellent for me. Very happy so far."

• Roxy
• Taken for 10 years or more
• February 21, 2024

Remicade (infliximab) for Crohn's Disease "Have been on Remicade for 24 years, was relieved of all Crohn's symptoms after the first infusion after having Crohn's for 40 years. Never needed surgery, also never had side effects except for a mild headache and chills after the first few infusions. I find Remicade to be a great medicine for those that tolerate it, some people it doesn’t work on, which I find unusual, but everyone is different and I am one of those people that can’t tolerate many meds due to reactions. Remicade has had a good effect on my disease. I take 400 mg every 8 weeks."

• Indy...
• Taken for 1 to 6 months
• October 30, 2021

Inflectra (infliximab) for Crohn's Disease "Terrible side effects approximately 2 weeks after each infusion (2 total). Developed UTI after BOTH infusions and required antibiotics to treat. Sinus infection developed after 2nd infusion. Incredibly tired all the time, joint pain, muscle aches, and return of Crohn's abdominal pain. It’s a complete nightmare. Biosimilar in this instance is a joke. Nothing similar."

• Anonymous
• August 9, 2009

Remicade (infliximab) for Behcet's Disease "I have been taking Remicade for approxim ately one year now and find it works quite well for my Behcets symptoms. Things were great during the initial phase of loading doses but I found once my treatments were scheduled for every eight weeks, I seemed to experience a flare before my next session (Around the 5 or 6 week period). My doctor has just increased the treatments to every four weeks and we are hoping this will get rid of my flares all together. The only side effect of the Remicade that I have experienced is fatigue following the infusion."

• tkgoc...
• March 12, 2013

Remicade (infliximab) for Ulcerative Colitis "I was diagnosed wit Ulcerative Colitis 3 years ago after being on several different meds for it. My doc and I decided to try Remicade.. it works fine I think but the side effect for me was diarrhea. Plus the cost I just couldn't afford it any longer. I am back on Asacol."

• Lulu
• Taken for 1 to 6 months
• September 14, 2018

Remicade (infliximab) for Psoriatic Arthritis "I feel very tired all the time, am house bound due to fatigue and pain. I also have Ankolysing Spondylitis. I’m due for my third 8 weeks treatment next week. It also makes my moods labile in the first week after treatment. I’m 62 years old, unable to work. I’m hoping for things to get better soon."

• Anonymous
• August 6, 2009

Remicade (infliximab) for Ankylosing Spondylitis "I have been on Remicade since April after not getting any relief from Inbrel or Humira. The initial relief was wonderful, but the results since then have been very unreliable. I find that the week before my infusion is due, I am in terrible pain all over again. I also have a hard time with the methotrexate, it makes my stomach very upset and wipes me out the day I have to take it."

• Goose...
• Taken for 1 to 6 months
• August 17, 2020

Remicade (infliximab) for Ankylosing Spondylitis "I went on Remicade after Humira not working for my Ankylosing Spondylitis (AS). I am 60 years old. I was diagnosed with AS in 2017. I had the symptoms for many years before getting diagnosed correctly. Many women are misdiagnosed with Fibromyalgia. I had the Remicade infusions due to Medicare not covering any of the other biologics. I had 4 infusions of the drug. Each time I felt unwell 3-4 days after getting the infusion. After the last infusion the bottoms of my feet because seriously red, sore, painful and peeling. The doctor said it was a reaction from the Remicade. Then I started to have Eczema on both of my arms and feet. I am still struggling with side effects from this drug. Now I have the AS symptoms along with not feeling well at all. I would not recommend taking this drug. It's is a biological med and my elderly body obviously could not handle it. Never would I take this drug again!"

• Paugi
• November 13, 2019

Remicade (infliximab) for Crohn's Disease, Maintenance "After being diagnosed with Crohns, I took two (2) Remicade infusions I believe it was only two, (2) . My condition deteriorated quickly. I lost forty pounds (40), the last ten (10 pounds I lost took only ten (10) days. I had a Prometheus Study done and it showed no trace (0) of Remicade in my system, How is that possible? Has anyone else had this to happen?"

• crystal
• June 12, 2017

Remicade (infliximab) for Rheumatoid Arthritis "I started remicade in 2010 and stopped remicade in 2016, almost seven years it worked absolute wonders for me. Amazing for my Juvenile idiopathic arthritis (JIA), my arthritis started when I was a baby and I am now 25 year old female. Within the first year I developed psoriasis, who cares right? I can walk, I can actually bend my knees, zero pain. I started doing UVB light therapy and my psoriasis has not been back. 2016 I developed what I first thought was heat rash. Turned out after months and months of pain, swelling, terrible rash all over my legs that I had developed hypersensitivity leukocytoclastic vasculitis. A listed rare, severe side effect which immediately had my doctor taking me off of remicade. Giving remicade a 5 because it worked for me but couldn't continue."

• Summe...
• October 30, 2008

Remicade (infliximab) for Crohn's Disease, Maintenance "I am 23 years old and have had Crohn's since I was 19. I started Remicade about 6 months ago, and it's the only treatment that's worked so far. It is a bit time consuming, but it's better than taking 10 pills a day (or more) and more effective. I would recommend trying this after everything else fails. It feels good to be normal again."

• Tess
• October 25, 2019

Remicade (infliximab) for Crohn's Disease "I was on this for about 3 months and I felt awful almost every time after an infusion I ended up in the hospital. I decided it wasn't for me even though my Dr tried to force it on me. I now have rheumatoid arthritis and a constant cough. I don't advise this drug."

• Penguin...
• April 23, 2020

Remicade (infliximab) for Crohn's Disease "I have Crohn's. Had symptoms when I was 2 years old, but was misdiagnosed for 5 years. I was officially diagnosed at age 7. I tried a lot of medicines as a child, but when I got a blockage located where the small and large intestines meet, it was time for Remicade or surgery. At that time, Remicade was new. My parents made the best choice and chose Remicade. I was 12 when I started and been on it for 11 years. Yes, it's longer than I should be on it, but I was finally given a life. My intestines look like I've never had Crohn's. There were side effects and over the years they increased. Now my body has gotten used to the Remicade, at age 23, and has spread to 3 of the 4 saliva glands in my mouth, blisters in mouth/throat, and facial swelling. Other than these beauty flaws, my gut looks great! Long story short, my antibodies are fighting the Remicade and I must face my fear and try something new."

• Not...
• May 16, 2016

Remicade (infliximab) for Psoriatic Arthritis "Remicade just isn't working for me or not yet. When I did my 1 and 2 infusions I could tell a difference. I had my 3 on and have to wait 8 weeks. After 3 weeks I had a flare up and I am in week 6 and I still feel awful. Maybe I need them more frequently or a higher dose. I am feeling so darn frustrated. I was hoping for a miracle drug to make me feel better and so far it's not. I read how it helps everyone but I want that for me too! Can't wait to see my dr so we can get ask up and the pain"

• Woodj...
• Taken for 1 to 6 months
• October 2, 2015

Remicade (infliximab) for Ulcerative Colitis "Have had uc and chrons for about a year now and started off with a serious flare that had me bed ridden. I was finally talked into trying remicade and a couple days after the initial dose I felt great with no pains. A week after the dose I developed c diff and was right back to square one. So I got the c diff taken care of and did a second dose and the c diff came right back. So I got that taken care of again and did 3rd dose and guess what c diff again. I told my GI I wasn't going to waste my time or money on it anymore. I went to the Mayo in Minn for a second opinion on my condition and after days of testing they said that I had already developed antibodies to the remicade. I'm not sure the remicade caused the c diff but now to humira."

• In Ca...
• Taken for 1 to 2 years
• September 24, 2021

Remicade (infliximab) for Ulcerative Colitis "UC at 65 years old. Four years of bleeding, pain and sleeping on the bathroom floor. Tried the usual, including another biologic. Six months of Remicade had no effect. A specialist suggested I try a high dose of Remicade before opting for surgery. I was well after a few weeks and have been symptom free for two years."

• Derek
• December 28, 2015

Remicade (infliximab) for Ulcerative Colitis "I was diagnosed with pan UC 2 years ago. My doctor gave me different medication that didn't work for me and made me worse. I lost 20 pounds in two weeks and didn't eat or drink anything because I would go to the bathroom ten times a day. My doctor finally recommended remicade, symptoms went down and a year later I've started flaring up again. They increased dosage and I get it every month now. But while I'm writing this my flare ups started again and it's been two weeks of bleeding and my doctor is on vacation. I don't know to do next, I don't want to have surgery."

• Sassy...
• Taken for 5 to 10 years
• January 1, 2024

Remicade (infliximab) for Ulcerative Colitis "This drug is truly amazing. I had been in the hospital for two weeks, bloody stools up to 10x a day, vomiting, unable to eat much, steroids oral and IV didn't work. Then I had this drug, and immediately the blood stopped, and I was back to pooping 2-3x per day. Changed my life for real, surgery would have been the next option."

• AKMan
• Taken for 10 years or more
• December 24, 2023

Remicade (infliximab) for Ankylosing Spondylitis "I was placed on Remicade for Ankylosing Spondylitis 23 years ago. It has worked consistently well for me without side effects. Some treatments are more effective than others. I use the infusion rate recommended by the original manufacturer: 10ml/hr for 15 minutes, 20ml/hr for 15 minutes, 40ml/hr for 15 minutes, 80ml/hr for 30 minutes, and then the remaining medication at 250ml/hr. Giving it over 1 hour, at least for me, was not a reasonable plan given the manufacturer recommendations. I am happy to report that now, at 71 years of age, I work full time, and when I have pain, I use Voltaren cream and long-acting Tylenol."