Infliximab User Reviews & Ratings (Page 3)

• andrew...
• July 24, 2013

Remicade (infliximab) for Crohn's Disease, Maintenance "I am 37 and have had Crohn's since I was 18. Three surgeries of the terminal Ilieum. From 18 to 27 I was very very ill. The Remicade has basically helped me to have a normal life again. I feel great these days, but one gets to the point where you feel good and want to be medicine free. You hear horror stories of people getting off Remicade and getting galloping Crohn's disease coming back and then the Remicade doesn't work so well."

• momof...
• Taken for 1 to 6 months
• March 29, 2013

Remicade (infliximab) for Ulcerative Colitis "I was diagnosed with ulcerative colitis in Nov. They thought they that had it under control, so after being in the hospital for three weeks, I went home for two and almost died! I went back and stayed for over a month. The docs were trying everything with no answers, then they told me about Remicade and said it was for Crohn's disease, but we could try it out and see because it was my last hope. I really was happy to see that it was working and in the first of Jan I went home! I have had a kidney stone because of it, and it has acted up which made docs think it was either my appendix or diverticulitis. I still take it every 8wk through I.V, but the only other problem that I'm experiencing is hair loss now and I don't know if its the Remicade."

• ColK
• November 8, 2016

Remicade (infliximab) for Ulcerative Colitis "Severe UC flare hospitalized, prednisone intravenous didn't do anything. Remicade infusions every 4 weeks to start, now every 8. It worked within one week and after about one year I was in complete remission with no sign of UC on my colonoscopy! The IV is okay, very expensive, but you can go to the Remicade website for help paying deductibles no matter what your financial situation is. I wish my dr told me that before I spent $10,000 in deductible and copay this year! I guess it was worth it all around."

• Jklm
• March 30, 2016

Remicade (infliximab) for Crohn's Disease, Maintenance "This nightmare all started 9 years ago with an abcess. This turned into a fistula. The fistula went away after years then I developed another one on the opposite side. Then multiple fistulas. 10 surgeries later and now I have a fistula through the vagina. I finally changed Drs. My dr put me on remicade and methotraxate, and I am finally seeing results. Extremely tired I could continuously sleep my life away. I haven't felt any inflamation for weeks. No pain pills for 4 weeks now. So cross my fingers this works."

• Tsavary
• October 27, 2013

Remicade (infliximab) for Crohn's Disease, Maintenance "Ok I have had Crohn's disease for 15 years this December. I have maintained myself just fine with minor problems. Recently have learned my pain tolerance is so extreme I have been putting up with stuff shouldn't be for uncertain amount of time. Two questions from people with experience would help: 1. How is it going forward with these fistulas? Unheard of before last Wednesday and I have two forming or in process of. 2. I have limited options going forward and Remicade is seeming best course of action. How have people done with it long term it being an immune suppressant? I am knowledgeable about these things I am hoping to hear from people who have experience dealing with fistulas and taking Remicade. Thanks, Troy S."

• Lanag...
• February 18, 2017

Remicade (infliximab) for Rheumatoid Arthritis "Just had 3rd remicade infusion, can't believe all I'm able to do. Due to some joint damage in knees and hips, not totally free of pain. Best I've felt in years. Severely reduced prednisone after 3 years, plan to stop. Diagnosed in 2013, but have had symptoms off and on for 25 Years. Little to no improvement with humira, enbrel, orencia, Actemra,plaquenil,methotrexate made me sick, xeljanz,sulfasalazine. Vitamins, no sugar, wheat or milk helped me also. Joint pain and swelling nearly gone. Praying it lasts, thanking God."

• Shell...
• September 29, 2013

Remicade (infliximab) for Psoriatic Arthritis "I had my first infusion last week and within 3 days, I can honestly say I have no pain for the first time in weeks. I didn't have any reactions or side effects except for feeling exhausted, but that maybe related to not being able to sleep for weeks prior, due to pain. I am so happy with the effectiveness and results I have had. I would definitely recommend it!"

• SHERI...
• June 28, 2009

Remicade (infliximab) for Crohn's Disease, Maintenance "I'm 32 and I've had crohns now for 14 years. Remicade was a god send but only for a limited time. I started off like everyone else with i. V every 8 weeks. Then after a couple of years it was wearing off faster so then every 6 weeks. Then every 4 weeks then it was back on the steroids along with the 4 week treatment. Well after 6-7 years on remicade it wasn't working anymore. I do recommend it because I would give anything right now to get those 6 years back because even though I was became immune to it I felt 20 times better then compared to now. Since the remicade nothing has worked for me since."

• LAURA
• Taken for 5 to 10 years
• July 4, 2015

Remicade (infliximab) for Ankylosing Spondylitis "Getting up in the morning and walking around is a lot less challenging since I started Remicade in June 2008. Before Remicade, I'd have to sit down in my tripod stool after just crossing the street due to extreme fatigue. Now I can walk to the grocery and back."

• BILLAY
• Taken for 6 months to 1 year
• July 7, 2016

Remicade (infliximab) for Ulcerative Colitis "only few words please check your TB TEST FOR MORE THAN TWO OR THREE TIMES SPECIALLY WHEN YOU ARE ALREADY ON MEDS LIKE PREDNISONE AND IMURAN ....DONT PUT YOUR LIFE ON RISK ..........I AM SUFFERING A LOT BECAUSE OF THE USE OF THIS MEDICINE.....REMICADE....MY PERSONAL SOCIAL AND FINANCIAL LIFE IS DESTROYED ......SORRY IF I AM GETTING EMOTIONAL ......IT IS TRUE WHATEVER HAPPENED WITH ME .........I WISH THAT I WOULD HAVE NEVER USED THIS MEDICINE......."

• Anonymous
• May 24, 2009

Remicade (infliximab) for Crohn's Disease, Maintenance "I am a 28 year old male and was diagnosed with Crohn's 6 years ago. I had a flare up with an abdominal aneurysm and lost approx 90 lbs. I was put on Remicade and it has saved my life. I have been on it every 8 weeks for about 4 years and have regained a healthy weight and my symptoms are at an all time low. My only complaints are that getting the treatment is time consuming and the cost is obscene if you don't have good insurance. However, despite all that, it truly has saved my life and I couldn't be happier with the actual results of the medication."

• Gaga...
• September 17, 2014

Remicade (infliximab) for Psoriatic Arthritis "I have been taking Remicade infusions since September 2005 and I can't say anything negative about it. I go in for the infusion hurting and aching and come out feeling so much better. Worth the 12 sticks it sometimes takes to get me started infusing."

• Anonymous
• May 25, 2010

Remicade (infliximab) for Rheumatoid Arthritis "I have had rheumatoid arthirtis for 1 year now, and continue to take Sulfasalazine and Nabumetone daily. I stopped taking the Enbrel after 7 months as it was no longer relieving joint pains. I have had two infusions so far, and do notice improvement in my most painful joint (shoulder). My rheumatologist prescribed a dose pack of steroids, which I took after my 1st infusion. Receiving these drugs together, I was hoping for more improvement, but I will take what I can get. My arm has markedly improved range of motion, although it is not back to normal. My legs are still stiff, and I still need to shuffle my feet when I walk. I go back for my third infusion next month, and thereafter infusions will be every 6-8 weeks. I sure am hopeful this treatment will improve my quality of life."

• Eaimom
• Taken for 2 to 5 years
• May 10, 2016

Remicade (infliximab) for Ulcerative Colitis "When my daughter was 13, she had a sudden and severe onset of UC. She was hospitalized for 2 weeks (had constant pain, couldn't eat, and was going to the bathroom 15-20x/ day). She was given IV steroids/medications with no improvement of symptoms. The day after receiving remicade, her pain was gone and she wanted to eat. She went into complete remission and has had no symptoms for the last 4 years. She does remicade infusions every 10 weeks. It has been her wonder drug! But my other dtr was diagnosed with crohns a year later at 11. Her onset was slower and she was put on various medications first. Remicade worked for her for several months but then became less effective even with increasing dose and frequency so she was switched to humi"

• Nex
• Taken for 6 months to 1 year
• July 28, 2022

Inflectra (infliximab) for Ulcerative Colitis "I swear they created this drug just to get rid the sick people. It isn't working and the only answer the doctor gives me is 'it should be.' I have wounds on my body that won't heal. I swear this drug is bad for me. I am constantly sick. Because I have ulcerative colitis any symptom I have is just related to that according to doctors. I will likely die from this drug. I just feel it. How is a drug with so many side effects even approved? We will just shut your immune system down, even though you will likely die from something this medication caused way faster than your health issue would have. But hey, we made a lot of money. Hope you enjoyed you experience on Earth."

• Guru
• Taken for 1 to 6 months
• September 16, 2019

Remicade (infliximab) for Ulcerative Colitis "I had severe pancolitis and was hospitalized for 2 weeks. They started me on remicade because none of the mesalamine ever worked for me. It worked at first really well and worked well for about 2 months. After that the flare ups became so bad they were giving it to me every week. Even that didn't work this time around so the only option I had was surgery. The doctors didn't want to try other medications since I already had so much remicade in my system. After the surgery I immediately felt great. Some people might not like the idea of having a ostomy but I have gotten use to it. I did have the opportunity to get a j pouch, but one of my dads friend had a very bad experience so I decided not to."

• Ashers
• Taken for 6 months to 1 year
• December 12, 2017

Remicade (infliximab) for Rheumatoid Arthritis "I was diagnosed with Inflammatory Arthritis (RA) September of 2015 (29 years old). First I was on Plaquenil which never seemed to help and on top of it I developed a terrible hive rash which went away once I stopped taking it. Next I tried Humira. That worked great for about 6 months before my symptoms came back. Now I'm on Remicade and have been for almost a year now. It works great. I get my infusion every 8 weeks and have NO SYMPTOMS!! I love Remicade. It gave me my life back. I am slightly concerned though because I've developed another rash that won't seem to go away after 2 months of dealing with it, trying steroids etc etc. Cross your fingers it's not Remicade causing my rash. I'll cry!"

• Anonymous
• February 25, 2011

Remicade (infliximab) for Crohn's Disease, Maintenance "I was diagnosed with Crohn's Disease when I was 16 years old. I am now 47. Remicade has been a blessing. I am one of the very fortunate ones to have no real side effects. I have been on Remicade for at least 6 years. I am able to hold down an excellent job and enjoy being a wife and mother. I am grateful that I have a job with great benefits. I wish that the cost was not so outrageous so that others could benefit from this medicine. My son is on Humira and they have a program that decreases the cost significantly. Even with my insurance, they cover a large portion of my co-pay. All we can do is hope that the makers of Remicade will offer the same some day."

• Anonymous
• November 4, 2009

Remicade (infliximab) for Rheumatoid Arthritis "On Remicade for 10 months. At each infusion the dose has gone up with no lasting relief. Now at 800mg every six weeks relief lasted only 2 weeks, 2 days. Back on Prednisone and Darvocet until I see doctor tomorrow. Nothing has worked except combination of Arava and Methotrexate. Had to leave Methotrexate several years ago because of high liver enzymes. At this point nothing seems to give relief except Prednisone and I WILL not take that even more than a few days. Possibly adding Arava to Remicade after tomorrow. I am getting very tired of constant pain."

• Ednibi
• Taken for 1 to 6 months
• May 2, 2015

Remicade (infliximab) for Crohn's Disease, Maintenance "I have received Remicade infusions to treat Crohn's. Felt bad right after the first infusion but was convinced by my physician to continue. I have also received Prolia by injection to treat osteoporosis. I decided to stop the Remicade after 3 infusions as I could feel no benefit and had felt very ill throughout. 6 months later I was diagnosed with metastatic breast cancer - this is in spite of having annual mammograms. I can't help but think the Remicade is linked to the eruption and rapid spread of my cancer. Beware!"

• Welcho
• Taken for 2 to 5 years
• August 17, 2017

Remicade (infliximab) for Rheumatoid Arthritis "I was on enbrel for nearly 9 years before it stopped working and humira didn't work at all for me. I started remicade nearly 4 years ago, my Dr started me out getting an infusion every 8 weeks and over the first year he brought it down to every 4 weeks. It's been working great but after the first 2 years my knees started bothering me but after some injection at my orthopedist they have been under control. Now both my elbows are really bothering me, at first it was when I woke up but now it's 24-7. I go in for my next infusion next week and will talk to my rheumatologist about the pain. I was curious to see if anyone else has had knee or elbow pain after being on remicade"

• Anonymous
• April 26, 2011

Remicade (infliximab) for Crohn's Disease, Maintenance "I am a 16 year old male, and was diagnosed with Crohn's disease when I was 8. I have only been on Remicade for about 8 months, but have not seen much of a difference. My energy has stayed the same, and I haven't grown any. Improvements have been that I don't have the morning cramps that I usually get, and my appetite has grown. I went from 135 pounds before the infusions to 145 pounds. I have a bloody nose at least three times a week, I now catch stomach viruses a lot easier now, and I feel dizzy/lightheaded often. Overall I guess it's working, I will do an update when I have been on the medicine longer."

• Anonymous
• Taken for 1 to 2 years
• July 23, 2020

Inflectra (infliximab) for Crohn's Disease, Maintenance "My adult daughter’s both have Crohn’s disease and are on Inflectra and both now have Fistulas which should never had happened while on infusion therapy. My oldest daughter was feeling great on Remicade but to save money her insurance company made her change to Inflectra."

• d37
• September 30, 2011

Remicade (infliximab) for Ulcerative Colitis "The medicine works great. I've been on it for almost 2 years. The only thing is I'm getting a lot of the side effects. The one thing that is very bad is the itching on my arms that have lasted a long time. No medicine has helped so if anyone has any ideas on how to stop the itching please give me ideas. The only good thing about this medicine is that it's helping my ulcerative colitis."

• SusanM
• February 22, 2017

Remicade (infliximab) for Rheumatoid Arthritis "I was diagnosed w/ severe RA in 2009 by my general practitioner who discovered it through a blood test, which is not always common. Well, after being on MTX 8pills/a wk. (for 8 yrs) and Arava daily I have also been on Enbrel, Humira, Actemra, Orencia & Zeljanz one worked most didn't. I finally just started Remicade infusion on 2/16/17. The first day I slept 20 hrs. a few days later no change then yesterday ~The Miracle Day~ not one single pain, no flare ups 100% pain free! OMG I was so happy I cried! Today not so good as yesterday but I'm very hopeful! Good Luck to the rest of you all!!!"