Imbruvica for Waldenström Macroglobulinemia User Reviews

Rating: 4.8

Imbruvica has an average rating of 4.8 out of 10 from a total of 4 reviews for the treatment of waldenström macroglobulinemia. 50% of reviewers reported a positive experience, while 50% reported a negative experience.

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Fhe...
Taken for 1 to 2 years
May 26, 2019

"Initially, Imbruvica caused rather severe fatigue in the first two months, after which it gradually improved. The most noticeable side effect is frequent diarrhea. I take 1 Imodium cap almost every day and 2 after very loose stool. Also, considerably raised blood pressure. Added 2 meds for this. I’m about 18 months after diagnosis, and basic blood work shows white, red, and platelet counts normal, but IgM protein level still elevated, but steadily decreasing. Usually feeling good, but still have unpredictable, but short episodes of fatigue requiring several hours of rest. The manufacturer provides a $30 supplement, a pittance considering the monthly cost of $11,000."

8 / 10

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Log...
October 12, 2020

"My husband has non-Hodgkin's lymphoma and Waldenstrom macroglobulinemia, he had been treated with chemotherapy in the past. He was leading a very normal and active life, then, last year in June 2019, he needed to be started on ibrutinib. After the fifth month of treatment, on the 30th of November 2019, he suffered a cardiac arrest at home. It was the most terrifying thing I have ever witnessed, I had to perform CPR until the ambulance arrived! He was in the hospital for six months, he is home now, and I am his carer, as he suffered a hypoxic brain injury as a definite result of ibrutinib! The consultants in ICU said it was a direct result of being on ibrutinib, it is also written on my husband's discharge letter from the hospital. I totally blame ibrutinib, and now our lives will never be the same."

1 / 10

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7 Report

Bro...
Taken for 1 to 6 months
June 9, 2023

"My father was diagnosed with stage 1 Waldenstrom macroglobulinemia in March 2021. He underwent chemotherapy, and in January 2022, he was doing so well that they switched him to Imbruvica. By May 16, 2022, he was rushed via ambulance to the hospital and admitted to ICU on June 5, 2022. Sadly, he passed away. I believe with all my heart this medication killed him within 4-5 months of taking it. They NEED to take this medication off the market. People are losing their loved ones quicker because of this medicine."

2 / 10

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JjR...
Taken for 2 to 5 years
September 24, 2023

"I'm very pleased with the drug, but it would be prohibitive if I were on Medicare Part D. I'm not positive if my side effects of pain, fatigue, and diarrhea are caused by this or other health issues..."

8 / 10

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