Imbruvica for Chronic Lymphocytic Leukemia User Reviews (Page 2)

• Anonymous
• Taken for 1 to 6 months
• February 2, 2021

"After 76 days on Imbruvica (420mg) my prostate gland was swollen to the point where urination was almost impossible and my colon was blocked. Also there was swelling felt in my lungs and heart. At times after taking the tablet I could feel my heart beating against my sternum. The day after I stopped taking the drug the swelling subsided. I no apparent problems existed on the first two lots of the drug (56 days) I attribute the probable cause to a contaminated lot. After three weeks my bodily functions seemed to be back to normal. On the follow-up Pet-Scan no improvement was seen on lymph nodes."

• Anonymous
• Taken for 5 to 10 years
• September 25, 2023

"It helped my condition immediately. Previously I've had FR and BR treatments. I take it after dinner around 6:30 pm with a full glass of water. My only negative side effects are brittle nails with ridges. I've taken it for 7 years and 9 months. I'm a 71-year-old female with CLL/SLL."

• Mike
• Taken for 2 to 5 years
• August 2, 2021

"I've been on it a little over two years after relapsing from FCR in 2014, was in remission till May of 2019. I haven't had much in the way of side effects, mouth sores that can be controlled with mouthwash. My counts are all in the normal range & waiting on the results of an MRI I had for another issue to see what my lymph nodes are looking like."

• rcp
• Taken for 2 to 5 years
• July 15, 2024

"I took it when I was first diagnosed with CLL in 2014. It was the third medication I tried, and it worked very well for me 10 years ago. I was in remission from 2018 till 2023 when my CLL became active again. I tried various new meds that did not work well. Therefore, I asked my doctor to try Imbruvica again. I took it for 4 months, and it stabilized me. Then, I started having neuropathy all over my body, especially my feet and legs. It hurt to walk on my feet, and my legs felt very painful and heavy. My doctor took me off it again in May 2024. Then I began night sweats and felt very tired all the time. He put me back on it, and I broke out in boils. So I stopped taking it as of July 2024. I guess it no longer will work well for me. But in the beginning, it saved my life!"

• Ray
• Taken for 1 to 6 months
• February 22, 2024

"Thus far I have done well on Imbruvica. My swollen lymph nodes have been reduced by almost 100%. I am on week 5 and am in the early stages of taking the medication. I have had one mouth sore which cleared up and has not returned. I am fighting a bad chest cough. I see my doctor tomorrow."

• Del
• Taken for 5 to 10 years
• June 23, 2023

"On Imbruvica for almost 7 Years. I had to do 2 cycles of RCHOP first as Imbruvica was a second-line treatment. It was very effective at reducing my tumor load and keeping it away with 420 mg a day. I had side effects that were managed for most of the time. The neuropathy, diarrhea, heart palpitations, and lung damage were the most persistent. Fifteen months of bleeding from the lungs was the reason for stopping Imbruvica."

• Jinjari
• Taken for 6 months to 1 year
• May 13, 2023

"I was diagnosed with CLL in 2013. Treated with Rituxan and Bendamustine. Went into remission but CLL returned in 2022. The oncologist prescribed Imbruvica 420 mg daily. My WBC level is now in the normal range. I suffer a great deal from rash and fatigue since my hemoglobin level and red blood cell count are below the normal range."

• rspre...
• April 17, 2016

"My husband took 3 Imbruvica before bedtime and died from sudden cardiac arrest the next morning."

• Genicon
• Taken for 1 to 6 months
• March 25, 2017

"Shrunk lymph glands in back of neck first week of taking 3 capsules a day second week swollen glands in armpit are gone minor side effects ."

• Poor...
• July 7, 2017

"My husband took 3 Imbruvica before bedtime and died the next day from Sudden Cardiac Arrest"

• Nicole
• January 24, 2017

"My 78 year old mother was taking this and in her third month she had vomiting one day back and neck pain for 3 days, then passed away in her sleep, Didn't get a chance to lower the dose."

• Eddie...
• October 27, 2016

"Medication has effectively arrested my father's CLL. From 140,000 WBC to 5,000 within two months."

• jim
• Taken for 5 to 10 years
• April 26, 2024

"Using this for a few years now with no side effects so far."

• BBano
• January 3, 2019

"My mother has been given thus medicine and when the her dose increased it shut down her internal organs she nearly died. She now gets blood transfusions."

• Anne
• Taken for 2 to 5 years
• May 31, 2024

"Brought white blood cell count back to normal. On it for three years. Today I found out I now have atrial fibrillation!"

• Simon...
• Taken for 2 to 5 years
• December 1, 2020

"Taking this drug for over 3 years. Thankfully, never had any side effects. It is a lifesaver. Dropped my numbers from 160 to 13."

• Tbano
• March 14, 2021

"Arm sores so bad had to stop using."

• Chas
• Taken for 6 months to 1 year
• March 29, 2024

"I have taken Imbruvica from May 2023 until this week when it was stopped due to a severe rash on my torso, head, and arms."

• Anonymous
• Taken for 5 to 10 years
• December 1, 2023

"Has kept me alive - I had recurring Hodgkin's Lymphoma 7 years or so ago. Has side effects though - bruising easily - eyesight changing - increased blood pressure and fatigue"