Simponi for Psoriatic Arthritis User Reviews
Reviews for Simponi
- Kar...
- May 21, 2013
"I had been taking methotrexate for almost a year with moderate results. My skin cleared almost 80%, and my joints improved approximately 60%, however, each time I took my medication, I felt really ill for 48 hours afterwards. It was depressing. Anyway, my rheumatologist recommended Simponi. Having read the side effects, etc., I was a little apprehensive about taking Simponi, but after meeting with the Simponi nurse, I decided to go with it. After two shots (2 months), I felt a big difference, my joints were no longer stiff, and I was almost pain-free. After the fourth shot, my skin has cleared to 95%, and I have no stiffness in my joints. It really is working for me."
- Anonymous
- December 15, 2009
"I've been using Simponi for psoriatic arthritis for 5 months. Before that, I was using Enbrel. I had a small amount of psoriasis on my scalp before starting Simponi, and now I have much more. I like the once-a-month injection, but believe I'll be returning to Enbrel soon, as I believe it did a better job."
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- Kev...
- October 12, 2015
"It seemed to work well for me right from the start. I had been on Remicade previously, but I had to quit due to losing my insurance. By the time I went to Simponi, I was hurting pretty bad. Unfortunately, it stopped working after a while (18 months), but that has been my personal experience with biologics. When it worked, it worked well."
- PsA...
- Taken for 6 months to 1 year
- January 30, 2020
"I tried Simponi for 9 months for psoriatic arthritis. At first, it was like a miracle. Then the pustular psoriasis started on my legs, my hair started falling out, and my mood got very strange. Bloodwork showed super high cholesterol, which was 3 times what it ever was. Psoriasis flared worse than ever all over my body. My skin has never gone back to normal. Terrible, scary drug. Wish I'd never tried it."
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- October 2, 2009
"My husband took his first dose last month and is getting ready to take his second dose in a few days. While I think the drug is working, the Patient Cost Support Program is difficult to deal with, and we are still struggling to get reimbursement."
- Pip...
- Taken for 1 to 6 months
- July 8, 2015
"I have now just taken my 4th injection. I'm as bad as I was, if not worse than when I was first diagnosed. I can barely walk, have swelling in my toes, feet, and ankles, as well as my left knee. Also in my elbows, wrists, hands, and fingers... I have bad psoriasis on my scalp. I don't think this medication is very good at all and have shown no response to the previous 3 doses, and this dose I have been nauseous ever since taking it. I was on Humira previously for about 5 years, but I stopped responding, and Enbrel I had really bad reactions to... Hoping for something new when I go back to the specialist at the end of the month."
- Tho...
- Taken for 1 to 6 months
- January 27, 2021
"An absolute life changer. From living in excruciating pain each day and struggling to get out of bed - to being absolutely pain-free in a matter of only 3 months. No limitations as to what I can do physically, and the psoriasis on my scalp has cleared significantly. I have slight hand tremors, but that causes me no trouble and may be due to other causes (23 years old, dosage once every 4 weeks)."
- rrs...
- December 5, 2017
"I was on Remicade infusion for 7 years, I had wonderful results for 6 years, with PSA flares slowly creeping back in the 7th, but not unmanageable. Rheumy switched me to Simponi. After 2 injections, while my skin is still clear, the PSA is raging. I am in terrible pain. I spoke to my Rheumy once, and she said to give it a chance. Calling her again this morning. The pain and exhaustion are debilitating and affecting every aspect of my life. I asked her about Taltz and Cosentyx, but she wanted to keep me on a TNF blocker. I'm ready for change."
- jen...
- February 7, 2014
"I took Simponi for 8 months before stopping to get pregnant with my son. All of my symptoms had disappeared, and I was 100% flare-up free. However, after having my little guy and starting the Simponi injections again, I have not had any relief from my psoriasis and have experienced 2 flare-ups even after upping my dose to every 3 weeks. How can it have worked so well and now not well at all? I have requested an appointment with my rheumatologist to discuss other biologic medicines."
- Bar...
- February 9, 2023
"I have been taking Osimponi since November 2022 for psoriatic arthritis spondylitis. I have been experiencing chronic fatigue, shortness of breath, infections, low hemoglobin, dizzy spells, and high cholesterol. It has also made me sick every day to the point I can hardly eat due to chronic nausea. Will not be taking next month's injection. Horrendous experience."
- non...
- Taken for 1 to 6 months
- January 16, 2022
"I tried the injection once before after coming off of another biologic that made my symptoms worse. I did not really give it a chance as I did not seem to get any better. I was frustrated with my symptoms and took myself off of everything for 3 months. I had terrible joint pain, could not open anything up, and severe rash flare-up, so I tried it again with better results. So far, I will be on my second consecutive dose shortly. The only thing I have found odd and maybe unrelated is heart flutters and an upset stomach."
- ian...
- Taken for 5 to 10 years
- November 23, 2023
"This medication has been a life changer. After years of medications that seemed to have no major effect on my condition, there was a very noticeable improvement in my affected joints from the very first dose. I have suffered no side effects and have found both types of injections easier to administer than I imagined."
- can...
- Taken for 10 years or more
- December 16, 2022
"After taking sulfasalazine and Celebrex for years (also worked quite well)... Started my first biological, Simponi, 13 years ago, and it was a life changer. I have lived pain-free and clear skin since the day after I took my first shot. I know for me it gave me a quality of life I had only dreamed about for years. Wouldn't change it for anything. Sometimes the risk brings rewards. This was the case."
- Anonymous
- Taken for 1 to 6 months
- December 10, 2021
"I have gotten worse while taking this drug. My skin is far worse, and I’m incredibly itchy. I’ve suffered 2 severe middle ear infections and pustule psoriasis that I never had before in places I never had problems. I took 4 doses altogether. The side effects are not worth it for me. I’m happy it works for some people, unfortunately, I am not one of them."
- wor...
- Taken for 1 to 6 months
- July 6, 2013
"No pain after the second injection. 98% clear. Only side effect so far is nausea at times. Love this so far. Humira and Enbrel caused bad site reactions."
- Cat...
- Taken for 1 to 6 months
- July 19, 2017
"Worked okay on aches and pains, but really messed with me mentally. Made me very depressed and socially withdrawn. I feel more fatigue and a lot of headaches."
- Ant...
- November 2, 2011
"I received all of the side effects."
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"I was almost wheelchair-bound, every joint in my body inflamed, and lots of pain walking. Psoriasis was flaring too all over. The day I took my first shot, I could feel the joints loosening and pain lessening. Within 6 months, I was virtually pain-free and completely mobile. 2 years now, and I am riding my bike 25 miles a day, and combined with light treatment, my skin is 90% clear."