Golimumab User Reviews & Ratings (Page 3)

• Anonymous
• December 15, 2009

Simponi (golimumab) for Psoriatic Arthritis "I've been using Simponi for Psoriatic Arthritis for 5 months. Before that I was using Enbrel. I had a small amount of psoriasis on my scalp before starting Simponi and now I have much more. I like the once a month injection but believe I'll be returning to Enbrel soon as I believe it did a better job."

• Craig...
• Taken for 6 months to 1 year
• March 25, 2014

Simponi (golimumab) for Ankylosing Spondylitis "Having suffered with Ankylosing Spondylitis for 10 years and with vast peaks and troughs in pain and the awful Methotrexate for 4 years with loads of side effects, I can honestly report Simponi has simply transformed my life. It's reduced swelling so well on my once sore toes I have excess skin, I'm running and active, I don't get any morning stiffness and NO SIDE EFFECTS thus far, it has cleared up my Psoriasis as well which sometimes returns towards the end of a month as you'd expect. The delivery method is far superior to methotrexate."

• Sfshe...
• June 27, 2016

Simponi Aria (golimumab) for Rheumatoid Arthritis "I was dx with sero positive RA nearly 35 years ago and have been on just about every NSAID, dmard, infusion and combinations of these. Simponi Aria along with lefunimide is my current cocktail. While it seems to be keeping my joint pain under control, my fatigue is off the charts and I have lots of body aches, frequent headaches and gastro problems. My bp and glucose levels are also elevated, though I'm not sure if this is due to this medication, or not."

• Anonymous
• October 2, 2009

Simponi (golimumab) for Psoriatic Arthritis "My husband took his first dose last month and is getting ready to take his second dose in a few days. While I think the drug is working, the Patient Cost Support Program is difficult to deal with and we are still struggling to get reimbursement."

• Hugh
• October 8, 2023

Simponi (golimumab) for Rheumatoid Arthritis "Had RA for 50 years (now 67) and though the biologics do help with stiffness and pain, they do have many side effects which make life even harder. Was on 50 mg dose, now on 100 mg. Finding extreme tiredness, cold symptoms, and chest issues dreadful. Spoiling my life now, but been through most meds and I am stuck. Hoping reduction back to 50 mg will help with my general feeling."

• Aussi...
• Taken for 1 to 2 years
• November 3, 2020

Simponi (golimumab) for Ankylosing Spondylitis "I have Ankylosing Spondylitis which was diagnosed 4 years ago due to a very bad case of Uveitis. I was given three TNF blockers without success. I was offered Simponi and this one worked, the pain went away after a few days and I was very happy about that as AS is very painful and it explains why I had a sore back for most of my life. I am now 58yo. I did not get any side effects but it did raise the blood pressure which I already have hypertension so it's made that worse and I can not get my BP under control. It did not stop the Uveitis from reoccurring but overall it has worked well."

• Cooper
• Taken for 1 to 2 years
• June 16, 2020

Simponi (golimumab) for Rheumatoid Arthritis "I started taking infusion about 20 months ago. First year things appeared to go smoothly. Then I started experiencing weakness in right shoulder. Physical therapist diagnosed muscle deterioration and spent 3 months in therapy. Regained some of the strength then slipped and fell breaking ankle bone on both sides requiring surgery, pins, and plate in ankle. Never had a broken bone before!! It went down hill from there. Have had 2 infusions since and have had weakness in other shoulder, urinary infection. Horrible headaches, knees giving out and painful, sore wrists. Tire easily, weight gain, Blu-ray vision at times. I think it’s time to re-evaluate the benefits of this drug as I have went downhill quickly the past year"

• Tuckers...
• August 9, 2016

Simponi Aria (golimumab) for Rheumatoid Arthritis "I have had 3 infusions and I am tired all the time and just want to sleep. My vision has also been more blurry. I understand the immune system can be lower on Simponi. I now have the shingles on my face and I had the shingles vaccine two years ago. I have had RA for 33 years and Plaquenil has helped me more than anything as far as stiffness and pain. Have been taking it for at least 20 years. I also take celebrex and methotrexate."

• LVettel
• Taken for 5 to 10 years
• October 17, 2022

Simponi (golimumab) for Rheumatoid Arthritis "Simponi has been the most effective biologic for me. I've used (infusions or injectable) Humira, Embrel, Orencia, Remicade and Simponi. I have been on Simponi 3x's as long as any other medication. Over 6 years of effectiveness. I take one 50mg syringe monthly and although I still struggle with fatigue, flares are managed as well as joint degeneration."

• dreama...
• Taken for 1 to 6 months
• February 20, 2023

Simponi Aria (golimumab) for Rheumatoid Arthritis "I had my first infusion and was totally exhausted after it. Within two days though I felt fine. My hands are not as stiff and I can feel a difference in my feet. I am getting my second infusion this week and hope it continues to improve my Rheumatoid Arthritis symptoms."

• Linda
• Taken for 1 to 6 months
• May 14, 2023

Simponi (golimumab) for Rheumatoid Arthritis "I have been on every oral drug for treatment for RA. I then was prescribed Orencia subcutaneously for 2.5 years. I still had to use prednisone 15-25mg on a regular base when I worked. Orencia did not show any real change in my symptoms. I then changed to Simponi 50mg subcutaneously monthly. I could feel a difference after the very first injection. After 3 weeks my swelling and moderate to severe symptoms of RA improved. Following my second injection I noticed an over 50% improvement in my fatigue. As of now after my third injection, I can mostly claim I am improved by at least 80% of overall symptoms. Morning stiffness, my pain, my energy levels. In closing, without trying to sound dramatic I can confidently say Simponi 50mg subcutaneously monthly has overall improved the quality of my life by 90%."

• Kevin...
• October 12, 2015

Simponi (golimumab) for Psoriatic Arthritis "It seemed to work well for me right from the start. I had been on Remicade previously but I had to quit due to losing my insurance. By the time I went to Simponi I was hurting pretty bad. Unfortunately, it stopped working after a while (18 months) but that has been my personal experience with Biologics. When it worked, it worked well."

• PsA...
• Taken for 6 months to 1 year
• January 30, 2020

Simponi (golimumab) for Psoriatic Arthritis "I tried Simponi for 9 months for psoriatic arthritis. At first it was like a miracle. Then the pustular psoriasis started on my legs, my hair started falling out, and my mood got very strange. Bloodwork showed super high cholesterol which was 3xs what it ever was. Psoriasis flared worse than ever all over my body. My skin has never gone back to normal. Terrible, scary drug. Wish I'd never tried it."

• Melis...
• March 18, 2017

Simponi (golimumab) for Ulcerative Colitis "Simponi did not work for me. Tried it three months, and it made all the bleeding, cramping and diarrhea worse. I really wanted it to work for me...but it didn't. And Jannssen was NO help...called it "side effects," when it was "exacerbation of symptoms." Best wishes if you take it...I hope you find success with it. :)"

• Patrick...
• Taken for 1 to 6 months
• April 9, 2016

Simponi (golimumab) for Ankylosing Spondylitis "Well, I would like to say Simponi has been very effective for me. From my first shot to the sixth the shot I just received this month the Simponi removed my symptons of AS to the point where I feel normal. Before being diagnosed and receiving Simponi I was in pain constantly and taking meds that were basically for gout which what I was being treated for before my diagnosis for AS. One month the doc tried Remicade but it was ineffective for me. The Simponi has given me back normality at least in the sense of physical well-being. It has been wonderful for me and my family as they don't have to worry about helping me when I have symptoms of swelling and pain. In fact I noticed that When i get scratches my wounds even heal faster. Thanks,"

• Anonymous
• Taken for 1 to 6 months
• March 17, 2022

Simponi (golimumab) for Rheumatoid Arthritis "I started Simponi infusions , just recently my first infusion was fine, made me a bit tired but no side effects and no effects at all, my 2nd infusion was 3 weeks ago, I again was tired after the infusion but I was more tired than usual , I started not feeling real great, the next day I felt even worse I believe every side effect that this drug has I had, fever, cold chills, nausea, extremely fatigued, headache, my whole body has and still is swelled up 2 x more than normal, having trouble breathing I then ended up with sinus infection and then pneumonia. Let me say that I have been dealing with RA/Fibromyalgia for the past 23 years, I have been on everything and anything that is available as suffice to say nothing has worked for me, however I never had any side effects to this magnitude with the others. I am glad this works for others and was really hoping to finally get some relief but I guess my body is rejecting this medication so I feel I had better listen to it."

• Emm
• Taken for 1 to 6 months
• July 10, 2018

Simponi Aria (golimumab) for Psoriatic Arthritis "No pain or skin issues after 3 days, but about 2 weeks after the first injection I got sick for the 1st time. The fatigue set in at week 3. I was well again at week 4 right in time for my next dose. Once again by week 3 I was sick with the worst throat /adenoid infection that just wouldn't quit. The fatigue is life changing. Dr. took me off after my second throat infection in 6 weeks."

• Danni
• Taken for 6 months to 1 year
• April 1, 2023

Simponi (golimumab) for Rheumatoid Arthritis "While on Simponi I developed severe diarrhea. I was on this awful drug for 11 months. When I started Simponi I weighed 125 pounds I now weigh 101 pounds. After I stopped taking Simponi on my own I can't gain back the weight I lost and I am sick all the time I feel like my body is attacking me. My doctor wouldn't believe that Simponi caused diarrhea and the awful way I felt. I stopped Simponi a month ago and haven't had any signs of diarrhea. I still feel awful but I'm hoping to get my health back. You have to find a doctor who really listens when you talk which unfortunately I did not."

• Nathan
• Taken for 5 to 10 years
• October 8, 2020

Simponi (golimumab) for Ankylosing Spondylitis "Been on Simponi for 8 years. Has been amazing turned my life around. It can get sore within a week of injection but not sure if that can be helped. Tried Enbrel and Humira previously but they only worked for 6 months for me."

• Anonymous
• Taken for 1 to 6 months
• October 12, 2022

Simponi (golimumab) for Rheumatoid Arthritis "This is terrible stuff. Made my RA worse. Caused side effects of extreme fatigue, muscle pains, psoriasis on my scalp and dermatitis and my hair has been falling out. Also causing my lymph nodes to swell. It has been 3 months so I am trying something else and will discontinue. Wish I never tried"

• Chrys...
• Taken for 1 to 6 months
• January 4, 2020

Simponi Aria (golimumab) for Psoriatic Arthritis "Was doing fine for about 12 weeks. Then I broke out with a Whole new form of palmoplanter pustule psoriasis and my regular plaque psoriasis came back almost vengeful to the point where my skin feels like it is burning. I had my first infusion in Aug, the again the second one 4 weeks later and by the middle of my 8 week stretch was when these rashes happened. My first three days after the infusion I experienced vomiting, and extreme tiredness but overall I felt fine. The second infusion was pretty much the same but then all this happened. I am so sore on my hands and feet it feels like I am walking or touching broken glass. I have to wear vinyl gloves to keep the moisture on my hands and keep my feet wrapped with non stick gauze and taped and covered so I don’t developers a secondary type of infection from something else. I can’t take the pain so my husband has pushed me to hire a cleaning lady to do my housework because all I am able to do it lay around. This is no way to live."

• tngst...
• Taken for 1 to 2 years
• February 5, 2013

Simponi (golimumab) for Ankylosing Spondylitis "I have narcolepsy and ankylosing spondylitis, I also suspect that I have Psoriasis on my scalp, but haven't had it diagnosed officially yet. Simponi relieves some of the pain and discomfort from the AS and I usually have no lesions on my scalp while I am using the injection regularly. I also take 5 tabs of methotrexate weekly (along with all the side medication that goes along with these). I recently came down with a bad cold and was taken off these medicines temporarily. Immediately upon missing my injection my symptoms were back. The lesions started to appear on my scalp and are pretty bad. I would say that my quality of life has significantly improved since starting the Simponi about a year and a half ago. I take one injections per month."

• Phil
• Taken for 1 to 6 months
• June 20, 2019

Simponi (golimumab) for Ankylosing Spondylitis "Took only 2 injections! After the second became very ill had a 104 temp and then ended up in the hospital with a spinal infection! I then was transported to a specialty hospital 2 hours away via ambulance, due to increasing swelling of the spinal cyst I developed full of infection and they feared I may need intubation, but cervical spine is fused so I needed to be at a different hospital! I spent a total of 14 days in hospital 10 of which in ICU , then 14 weeks at home with a picc line and heavy duty antibiotics! All due to simponi!!!!!!! This almost bankrupt our family,I almost lost my LIFE and job! "

• Johan...
• Taken for 2 to 5 years
• October 27, 2013

Simponi (golimumab) for Ankylosing Spondylitis "Simponi helps me so much. I take 2 shots per month. I Washington diagnosed about 7 or 8 years after mycket first signs of illness. Ive had it very hard. I get oxycontin when i have it too hard. But all in all, simponi is The best. I got a new life with it. Works as a chef, and without simponi i would not. I live in sweden, so i only pay about $300 a year. Or else i would have to pay ALOT. like $4000 per month. The negatives with this med, you cancer get alot of crap from it. But the pain i had before was crazy. Thank you my sweet Dr."

• Dave
• Taken for less than 1 month
• November 5, 2021

Simponi Aria (golimumab) for Ankylosing Spondylitis "I was on Enbrel for 14 years I started Simponi aria this week and after my first infusion I am 75% better. This medication is amazing for people who suffer from A.S. Like myself. I would highly recommend. Talk with your Rhuematoligist Doctor to see if this will work for you too!!"