Gabapentin for Vulvodynia User Reviews
Brand names: Neurontin, Gralise, Gabarone, Fanatrex
Gabapentin has an average rating of 6.6 out of 10 from a total of 10 reviews for the off-label treatment of Vulvodynia. 40% of reviewers reported a positive experience, while 20% reported a negative experience.
Reviews for Gabapentin
- Anonymous
- December 26, 2008
Neurontin (gabapentin) "Neurontin plus physical therapy for my previously unrecognized pelvic bone rotation has basically cured my vulvodynia, which also involved horrendous skin irritation (raw, bleeding skin) in the area between my clitoris and vagina. What a miraculous combination! I strongly urge women to find out if they have nerve issues created by pelvic tilt/rotation, etc., by going to a women's health/pelvic pain physical therapist. The therapy is sometimes painful, but the results are great, and people who specialize in this are very, very kind and sympathetic! Neurontin is the icing on the cake for the cure. Calms nerves and allows them to return to normal."
- Anonymous
- December 12, 2009
Neurontin (gabapentin) "I started using Neurontin this summer. I was not able to function when my vulvodynia flared up, so many hours and days were spent lying on the couch in pain. Neurontin kicks in pretty fast and helps me be able to be productive. I would be lost without its help!"
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- jwa...
- August 27, 2011
"I was prescribed gabapentin a year and a half ago for vulvodynia. Initially, gabapentin did not help with the burning. I had to go way beyond 2000 mgs. Once the dose was increased, it definitely helped with the burning nerve pain. I would say it cut my pain by about 60%. Unfortunately, I have had to add other medicines to gabapentin over time to help with the burning pain. I added Lyrica and then Cymbalta. I'm on 3600 mgs of gabapentin along with the other two medications. My burning is pretty bad again. Gabapentin worked for a while, but now I need to switch medicines. I had no side effects on this medicine."
- Ros...
- Taken for less than 1 month
- May 7, 2022
"After suffering from vulvodynia for almost 6 years and trying all kinds of prescriptions and even a natural approach with no positive results, I decided to give gabapentin one more shot. I am so glad I did, it has cut my pain and burning to a level that I couldn’t have even dreamed of experiencing. I started with 300 mg for one week, then 600 mg for the second week, and 900 mg the third week, and I’m planning to keep it like that. The relief is incredible, and I have no side effects from the meds. I strongly suggest asking your doctor to see if you would benefit from it."
Are you taking this medicine?
Your review helps others make informed decisions.- Cel...
- Taken for 1 to 6 months
- July 29, 2019
"100 mg per night did not reduce my pain but helped me stay asleep at night. It helped slightly with anxiety. Unfortunately, this drug reduced my periods (likely lowered my estrogen levels - not great for vulvar pain!), so I decided to come off it."
- Anonymous
- Taken for 1 to 6 months
- January 5, 2018
"Did not reduce my pain, but no major side effects. Used in a topical cream for months with Baclofen with and without pelvic floor physical therapy. Also used it in another compound with Baclofen, Amitriptyline, and Lidocaine."
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- Anonymous
- November 1, 2011
Neurontin (gabapentin) "Made me tired in the beginning. Wouldn't say I'm cured, but I have so many more good days than bad."
- Anonymous
- January 4, 2011
Neurontin (gabapentin) "I stayed on this drug for 5-6 months, but it only helped a little bit. Was also hard to adjust to, making me very sleepy during the first month."
- B19...
- Taken for 6 months to 1 year
- October 4, 2021
"Not able to tolerate the high doses above 100mg. Much higher doses helped 300 mg 4 times a day but caused stomach issues as I have gastritis"
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"No more horrible constant burning, unprovoked vulvar pain! Also helped with my urethra pain from IC. Three months on it, I am almost back to normal. Able to have sex after two months. Worked my way up 100 mg at a time each week to 500 mg and stayed there. Don't be scared, take small constant doses to not have any side effects. 300 mg was too much to start with for me."