Gabapentin for Trigeminal Neuralgia User Reviews (Page 2)

• All...
• Taken for 6 months to 1 year
• January 19, 2019

"In June of 2018, I was prescribed 300 mg/day of Gabapentin after having allergic reactions to other, more effective drugs used to relieve the trigeminal nerve pain. Through the course of the next 6 months, my dosage was increased to 3600 mg/day. Over that time period, I began to experience pain in my feet, I'm on no other medication. In Jan. 2019, I underwent microvascular decompression (MVD) surgery, so I have been weaned off Gabapentin. I told my neurologist about my neuropathy in my feet, but it was always discounted. Now, I have continued neuropathy in my feet, hoping it will go away."

• MIs...
• Taken for 1 to 2 years
• November 30, 2021

"I was diagnosed with TN about two years ago. At first, I tried gabapentin, but I didn't find the relief that others here are talking about. I switched to carbamazepine, which calmed my face. However, I was non-functional and high as a kite while awake, but sleeping all day. I just noticed that the dose for gabapentin my doctor has me on is only 200 mg 2X a day. This seems low based on others' reviews. What worked for me was Botox in the jaw muscles. I get it every 6-7 months, and it works wonders after a week."

• Rae...
• Taken for 10 years or more
• September 11, 2017

"First prescribed gabapentin for trigeminal neuralgia 25-30 yrs ago. It was great! Since then, I have used it anytime Tylenol couldn't control any pain. Usually extreme stiff, sore muscles. I always worried I would build up a tolerance for it, consequently having to continually increase the dosage. To prevent this, I never take it constantly and always get off it ASAP! Tremors are getting worse, and I have never tried it for this condition. Just never occurred to me to try it. I will start tomorrow, if it helps, I'll not take a second dose until the tremors return. Treating as needed, not constantly. Hoping to ward off the tolerance factor. If the tremors are just an occasional nuisance, I can live with that."

• ani...
• Taken for 6 months to 1 year
• September 18, 2021

"I was diagnosed with trigeminal neuralgia in Feb 2021 (I am 50) and prescribed carbamazepine, which caused an allergic reaction. Then I was placed on gabapentin and slowly increased my dosage as it did nothing for my pain. At 900 mg/day, I still had no pain relief, but my blood pressure dropped to just about 90/60. I also began experiencing tingling in my hands and feet. My dose was decreased to 600 mg/day, and we waited to see if it would provide relief. I became so fatigued and had such trouble concentrating I had to quit my job in June 2021. When the tingling became 'zaps' accompanied by muscle aches and joint pain, we began eliminating my dose. In Sep 2021, I have been off gabapentin for a month. My fatigue and concentration are greatly improved, but I still have the tingling/aches/pain. I am told, although uncomfortable, it is not life-threatening and may take months for it to completely heal. It very rarely is ever permanent. This side effect, although known, is also extremely rare."

• des...
• Taken for 1 to 6 months
• July 31, 2021

"I was prescribed Gabapentin for TN as I am allergic to Carbamazepine. Initially (at 100 mg 3 x day), I felt jittery, but that subsided after a week or so. Once at 300 mg 3 x day, I began experiencing pins and needles in my arms/hands and legs/feet. My dose was reduced to 200 mg x 3 and 5 mg Baclofen added. The pins and needles remained in my arms/hands - which was more severe while driving (hands at 2 and 10). This was/is perplexing because that is the type of pain this drug is supposed to eliminate. As I stepped down to 100 mg x 3, the jittery feeling returned. Through all this, the TN pain was not reduced at all, and the pins and needles remain. If you have Type 2 TN, which I do - before you start Gabapentin, I would try to assess when your MD feels you should begin to notice a change in the pain. If it doesn't budge at that point in time - I would ask to stop taking this. I am now on 5 mg Baclofen 2 x day, and although pain remains - it hasn't gotten worse, which is a blessing with this disease."

• TMJ...
• October 23, 2015

"I am a nurse, never thought it would help. I had to retire. I awoke the second day without a crippling headache and facial pain. I really am able to do more and hurt so much less. I love it."

• Tri...
• Taken for 2 to 5 years
• April 24, 2013

"I found that gabapentin and Topamax reduced my trigeminal neuralgia pain by far, but I couldn't think straight. So I stopped taking them, and now I am in daily pain."

• Anonymous
• April 17, 2009

"Once my doctor prescribed this medication, my pain was relieved within days. I have not had any problems since."

• Tof...
• Taken for 1 to 6 months
• August 2, 2020

"Am on maximum dose, not helping at all, in fact, nerve pain worse than ever."

• Anonymous
• April 18, 2009

"I've had pins and needles in both hands from a pinched nerve in my neck. Muscle relaxers, stretching, new pillow, heat, nothing was working. This works really well."

• Anonymous
• March 13, 2009

"400 mg lifesaver for normal flare-ups but not strong enough for bad attacks. Good when used in conjunction with Topamax."

• Anonymous
• March 14, 2011

"This medicine does not help me at all with trigeminal neuralgia."

• Pop...
• December 16, 2021

"It helps with restless leg syndrome, but does nothing for alveolar nerve pain due to damage of nerve from root canal."