Soliris User Reviews & Ratings
Soliris has an average rating of 7.2 out of 10 from a total of 6 reviews on Drugs.com. 50% of reviewers reported a positive experience, while 17% reported a negative experience.
| Condition | Avg. Rating | Reviews | Compare |
|---|---|---|---|
| Myasthenia Gravis | 3 reviews for Myasthenia Gravis | 15 medications | |
| Paroxysmal Nocturnal Hemoglobinuria | 2 reviews for Paroxysmal Nocturnal Hemoglobinuria | 8 medications |
- rwm...
- Taken for 1 to 6 months
- December 31, 2024
For Paroxysmal Nocturnal Hemoglobinuria "Immediate improvement after 2 infusions, with an increase in hemoglobin / hematocrit. After vaccines for HepA and HepB 2 weeks prior to receiving treatment, I was given 4 weekly infusions, then 4 bi-weekly infusions which brought all my numbers into normal range. I was moved to treatments every 8 weeks, which continue. First 4 infusions were 600 mg. Infusions following have been 900 mg. I have experienced face flushing and increased energy with some agitation for 1 to 2 days following each infusion. I am retired and treatments are covered by Medicare and my supplemental Blue Cross / Blue Shield policy."
- Anonymous
- Taken for 2 to 5 years
- May 23, 2024
For Myasthenia Gravis "I have been taking Soliris for about 5 years. It has been great. I have only had to have pheresis and IVIGs a couple of times since I started it. I have the side effects though. I have a new symptom, which is burning feet. I don't know if it's from the drug or not?"
See also:
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Ultomiris
Ultomiris (ravulizumab-cwvz) is used for the treatment of myasthenia gravis, paroxysmal nocturnal ...
Enspryng
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Zilbrysq
Zilbrysq (zilucoplan) is a C5 inhibitor used to treat generalized myasthenia gravis (gMG) in AChR ...
Rystiggo
Rystiggo is used to treat generalized myasthenia gravis (gMG) in adults who are acetylcholine ...
Mestinon
Mestinon (pyridostigmine) is used to increase muscle strength in conditions such as myasthenia ...
Vyvgart
Vyvgart is used for myasthenia gravis to improve muscle weakness in adults whose myasthenia gravis ...
Fabhalta
Fabhalta is used to treat paroxysmal nocturnal hemoglobinuria (PNH), primary immunoglobulin A ...
Frequently asked questions
- How does Ultomiris compare to Soliris for PNH?
- How does Soliris work for PNH?
- How does Empaveli compare to Soliris?
- What biosimilars have been approved in the United States?
- Nic...
- Taken for 1 to 6 months
- July 10, 2019
For Myasthenia Gravis "I started taking Soliris in January 2019, and by July 2019, I had throat cancer, which was undetectable by CT scan but was confirmed by tissue biopsy."
- Ano...
- Taken for 1 to 2 years
- April 17, 2025
"Was on clinical trial, improved partially on half dose in the blinded part. Resolved completely during the open label full dosing part. No side effects that I knew about."
- Ano...
- Taken for 1 to 6 months
- May 26, 2025
For Myasthenia Gravis "28 yrs after being diagnosed with MG, Soliris is working better than anything I’ve been on. Double vision is mostly cleared up, and overall weakness is greatly improved. Highly recommend."
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For Paroxysmal Nocturnal Hemoglobinuria "This drug is for paroxysmal nocturnal hemoglobinuria (PNH), but the disease is heterogeneous. I feel worse being on it. Doctors push it, patients just do it. It is too much work. I never should have started."