Dupilumab for Atopic Dermatitis User Reviews (Page 3)

• Krist...
• Taken for 1 to 6 months
• November 21, 2017

Dupixent (dupilumab) "I’ve been taking dupixent a little over one month now and it’s already improving my life. 3-4 days in I already felt less reactive. 2 weeks in my hives were gone and my scalp and back were clear. 3 weeks in my skin feels soft again in most places and my hands a significantly less reactive (one of my worst spots). 4 weeks in I have some facial dryness, one spot in my chest, and still a little reactive spots on my hands (no longer itching me to death). Can’t wait to see what two more months does. I am so thankful for this medicine. It’s a life changing experience. I’ve suffered severely the last 5 years as well as my childhood. So pleased to know that I may not have to live in daily misery."

• TayWri
• October 10, 2017

Dupixent (dupilumab) "I am 21 years old and have had eczema my entire life but it wasn't until I got my tonsils removed when I was 18 that the eczema became severe and spread throughout my entire body. For months I could find no relief and had open wounds from scratching all over my body. I tried changing my diet, acupuncture, went to see allergists and nothing was working.I then went and saw a dermatologist who introduced me to dupixent after pills and steroid cream didn't fix it. Dupixent was finally approved and from the moment I started it my skin cleared up. I've been on it for nearly 4 months and still have clear skin with the occasional small flare up but cortisone cream fixes it right away. Can't praise dupixent enough!! Hopefully it continues to work!"

• Angie
• July 13, 2021

Dupixent (dupilumab) "The worst medicine ever!! Do not take. I know have dry eyes and severe joint paint. Stiffness and swelling of the hands . The most at night. The pain is now throughout my body. I am young and active and this medicine has slowed me down."

• Eshwar
• Taken for 1 to 2 years
• June 23, 2022

Dupixent (dupilumab) "For me, this drug has been nothing but an unbelievable life saver. I cannot even put into words how horribly I've suffered with atopic dermatitis from ages 17-21. I started taking this drug about two years ago, and after about 4-6 months the skin disease totally went away. I tried every type of diet before, every type of cream, lotion, topical care, nothing worked at all. It is sad that other users have experienced issues with their eyes, I can say that I am lucky enough to not experience any of that."

• Amanda
• Taken for 1 to 2 years
• December 3, 2018

Dupixent (dupilumab) "Two years ago my dermatitis went absolutely out of control and nothing was working. About 2/3 of my body was covered and I couldn't walk, eat, or sleep without pain. Triamcinolone, prednisone, you name it, no effect. I started on Dupixent in October of last year and there's been nothing but huge improvement since then. It took about 3 months for the effects to really take hold, but since then I've been down to just very mild eczema in a few spots (above my eyes, behind my ears, and my inner elbows). It's been an absolutely life changing drug for me. Only complaint I have is how much of a nightmare it was to get my insurance to cover it. Once it was though, I qualified for the manufacturer's copay card which covers up to $13,000 in out of pocket cost per year, so I currently pay nothing for my monthly prescription."

• Acalie
• Taken for 1 to 6 months
• April 10, 2019

Dupixent (dupilumab) "I have been using Dupixent for a month and a half now and feel pretty good, my husband says my skin feels soft. I've had dermatitis all my life only using topical creams but Dupixent so far is working better than anything I've tried. I am so grateful and happy now it can only get better from here"

• Finally...
• Taken for 1 to 6 months
• January 3, 2018

Dupixent (dupilumab) "After having constant eczema on hands, legs, arms, chest, neck and face, I have found a dr that was willing to do more than just prescribe steroid creams. I was constantly itching too, was really affecting my quality of life. I do have allergies which don’t help the situation but my wonderful dermatologist (3rd one’s a charm!) suggested I try Dupixent. I just gave myself the 4th shot this evening. I was nervous about doing the shots myself but they really are not hard. I prefer the stomach over the thigh. Seems to hurt more when I have done in thigh. The main thing that I noticed after the initial 2 shot dose? Was the itching calmed down dramatically. I have also seen an almost 80% clearing of my skin!!! Awesome drug!!!"

• Norm
• Taken for 6 months to 1 year
• March 13, 2023

Dupixent (dupilumab) "I was treated for atopic dermatitis for a year before my doctor decided to have me try dupixent. After a few injections, the rash on my chest suddenly covered my entire body. I am now being treated at MD Anderson for Cutaneous T-Cell Lymphoma (CTCL) Stage IIIa. DO NOT take this drug until you have had numerous blood tests done to rule out undiagnosed CTCL. MD Anderson told me Dupixent is known to worsen CTCL!"

• Cha
• Taken for 1 to 6 months
• October 16, 2022

Dupixent (dupilumab) "Been on Dupixent for the past 2.5 months. First 2 weeks on it, I experienced shiny plastic like skin and a lot of shedding of old dry-ish skin. I assumed that was the body getting used to the drug. Also experienced red face and neck with sore eyes. My eyesight started to get worse. Kept with it hoping it would fix things. Within the 2.5 months, my skin has felt better. Less itch, but my neck and face is still red and I feel my eyesight has gotten progressively worse. I'm stopping it as I feel out of the 14 days between jabs, I get about 2-3 days of good skin and like 7 days of side effects and the last 3 days of what feels like withdrawals. Highly hope people just keep that in mind when looking to go onto it. Your Dermo will push for it but just be aware of your own body. Also note that because it's a biologic, there's no end date to it, so even if it's not a steroid so you won't get withdrawals, you're still pumping yourself full of stuff constantly. Feels like a bandaid solution."

• Lor
• Taken for 6 months to 1 year
• April 16, 2018

Dupixent (dupilumab) "I am a atopic dermatitis/ eczema patient for 54 years. I have used every steroid and antibiotic ointment and pills. I have been on Otezla, Cellcept, taken tar-baths and bleach baths. Extremely itchy skin. My face, neck, and arms were heavily effected. When I had a flare I wouldn’t go out. My Dermatoligist started me on Dupixent and it has been life changing for me. I can finally sleep Itch free. I am 80% clear but still having some issues with my face and neck at times. I could use the next shot a couple days before it due because I start to flare. The side effects I have experienced have been eyes weeping, herpes/staph infection from time to time. To combat those I take bleach baths and I wash my face with an antibacterial soap. When I get out of the shower/tub I put liquid coconut oil all over even my face. I would recommend Dupixent to anyone who has experiences with that Incessant itching and rashing eczema/ contact dermatitis presents."

• WillyD
• Taken for 6 months to 1 year
• September 24, 2018

Dupixent (dupilumab) "My first dose of Dupixent in February, which is the double dose, was challenging. My arms broke out like never before, but that dissipated. It's been almost 8 months and with each dose I seem to get a little better. My skin has completely transformed from dry, red, and scaly, to soft, normally colored skin. Every time my husband touches me he comments how much my skin has changed and is amazed by it. The only negative I've experienced on this medication is that my eyesight has gotten worse. But, that is a price I'm willing to pay. Also, I wish this medicine was a weekly dose so as to not have the peaks and valleys of a bi-weekly injection."

• Lili
• March 17, 2021

Dupixent (dupilumab) "I have had AD all my life (36 yrs). Started with Dupixent in Feb 2021. Amazing results after 3 injections. But some side effects: - headaches (may be due to steroids stop) - weakness, need to sleep a lot - weight gain I did a blood test 3 days before starting Dupixent and then before my 4th shot to assess the impact of this new medication. I was surprised with an important decrease of my lymphocytes level (white blood cells) - that are now under the normal rate. Lymphocytes are the backbone of our immune system and I thought that Dupixent doesn't have any immunosuppressive effect. I think that I will continue using Dupixent as it really changed my life, but will try to space as much as possible my injections otherwise I am scared to destroy my immune system. I have already seen feedbacks where people have succeeded to do it once every 8-9 months. Anyway, Dupixent is a miraculous medication and I am very thankful to the research team for this progress in treating atopic dermatitis"

• disgu...
• January 17, 2019

Dupixent (dupilumab) "Most disgusting commercial I have ever seen. I change my channel when it comes on. Can't you do better than that with a commercial that is supposed to sell your product ???. I definitely would not buy it because I couldn't make myself use it. It is awful, awful, awful. Worst commercial I have ever seen. YYYYUUUUUKKKKKK"

• Stef
• Taken for 1 to 6 months
• August 29, 2018

Dupixent (dupilumab) "Good results on the Atopic dermatitis (AD). I did get problems with my eyes (itching). I try to keep the eyes in the best possible condition. I prefer to keep my skin in a good condition by this medication."

• LAL
• Taken for 1 to 6 months
• March 10, 2022

Dupixent (dupilumab) "I am a 51 year old female, who like a lot of people who had quite severe dry skin and eczema all of my life - all the usual things, interrupted sleeping, constant itch, hot showers, creams and wrappings. I started dupixent injections in April 2021 and had a fantastic response with the rash and itch clearing up over a couple of months. However around the 16 week mark I started noticing a strange prickly itch on the soles of my feet. Over the next couple of months I also developed tingling and pins and needles with numbness in limb extremities. The neurologist diagnosed polyneuropthy and is reluctant to blame dupixent but no other reason found. The small nerve fibres are affected in hands and feet which means they are more sensitive to heat and cold. Stopped injections in November. 3 months later the itch has come back and neurologist can't say if nerve damage has been permanent but most likely won't improve very much and I could be stuck with it."

• Itchy...
• Taken for 1 to 6 months
• August 29, 2020

Dupixent (dupilumab) "I have strong itchy skin since 5 years old, Now I am 60. I have itchy skin on most of legs especially on ankles since 5 years ago. I got three steroid shots last year. I started Dupixent on May 2020. I did 20 shots. This shot works on secondary itches after scratch. But I still have strong itch whiles sleeping, wake up, break time, after shower. I don't take steroid any more."

• ND Mama
• Taken for 1 to 2 years
• March 9, 2024

Dupixent (dupilumab) "Dupixent is the miracle I have always hoped for. I’ve had moderate-severe eczema (atopic dermatitis) since infancy with almost every area of skin affected. I have spent my entire life (34 years) on various topical steroids or topical calcium inhibitors, without success. I have been on Dupixent for approximately 12 months now. For the first time in my life, I have nearly full relief from itchiness & my skin is approximately 85% cleared up. The only areas that have not cleared up are seborrheic dermatitis on my scalp, eyebrows, & eyelids. All my other body areas have healed. I will note that my eyelid eczema is no worse than it was prior to Dupixent, nor am I experiencing other negative side effects involving the eyes. Before this medicine, the sensation of itchiness was relentless, maddening, a constant source of anxiety & frustration. So it is no exaggeration for me to say that this newfound relief from itchiness has been a miracle. This medicine has changed my life for the better. Thank you."

• Dupix...
• Taken for 2 to 5 years
• October 12, 2021

Dupixent (dupilumab) "Been using Dupixent for 3 years. Gradually reduced dose to one injection every 21 days - it works fine. Tried one injection every 28 days, got itchy skin on fingers, and across bridge of nose. So about 1% of what I used to have. Back up to 21 days, and it works fine. Upsides - horrendous eczema since I was 6 days old - and asthma since I was 10 - 'gone'. Still have dry skin but emollients help. Topical steroids nil. Downsides - eyes water and get sore - need eye drops. I use preservative free 0.24% Sodium Hyaluronate and or 0.1% Sodium Hyaluronate in isotonic water. - hair loss - body hair went thinner first, arms only have fine down now - then hair on scalp, I had a good head of hair, now I'm nearly bald and having to comb over ('dismissed' by GP as MPB) - but it's new to me. - libido - after 12 months, reduction in initiating coitus had become noticeable - partner concerned - everything works 'OK', just not as often, and a lot of assistance & stimulation is required."

• aroon
• February 9, 2018

Dupixent (dupilumab) "Just took my fourth dose and the results are fantastic. Used to have flare ups: hives with red face, chest, arms, legs and intense itching. These every three day episodes were followed by flaking skin everywhere. Now minimal flare ups that produce a couple hives and last only overnight. To go 10 full days with no reactions and limited itching has been life changing. I would say I’m about 75% clear of all my symptoms with no side effects. Thank you Dupixent!"

• MissT
• Taken for 1 to 6 months
• April 25, 2022

Dupixent (dupilumab) "Started Dupixent a few weeks ago. From the start it seemed to keep the hives away. So hopeful to finally find something that worked! Not difficult to administer the injection at all. However, after just having my fifth injection I find the side effects are intolerable. Weight gain, swelling in fingers and legs and ankles. Rash on face started yesterday. But the very worst part is the eye problem. I hate to research illnesses and symptoms but it has been so helpful to come here and understand that others are experiencing the same issues. At first I wondered if I might be losing my mind - my eyes are so irritated and the other miseries... I really, really hope this drug does help folks. I think it's just a matter of who is susceptible to the side effects."

• Brenda
• Taken for 1 to 6 months
• February 10, 2024

Dupixent (dupilumab) "Oh, sweet Dupixent! Where have you been all these years of my life? I have been diagnosed with so many things over those 24 years. I have suffered many years without relief. Nothing cured it. I have tried everything prescription and OTC. It is too many to list. I thought I was going to have to live with this the rest of my life. And I had given up. Even worse, I suffer from chronic itching. When I started the Dupixent injections, my skin was at its worst. I just had my 4th injection. But my skin was healed 5 weeks in!!! (insert cry face here) The itch is 100% gone. The last breakout is completely healed and I haven’t had one since. This has changed my life! I wish more people knew about this!"

• Audasc
• Taken for 1 to 6 months
• March 30, 2018

Dupixent (dupilumab) "This drug has changed my life. I seriously could kiss the manufacturer. I have had terrible outbreaks on my hands for 5+ years. The past year has been the worst. What was once on my hands turned in to my entire body with the exception of my face. I’ve lost at least 50% of my hair in the midst of an outbreak that lasted a year. I’m on my 3rd dermatologist (the 1st and 2nd one never did a skin biopsy and had different diagnosis). Please INSIST on a skin biopsy. The 3rd dermatologist did a biopsy and put me on dupixent (after injections of Humira which was prescribed by derm #2 and made my skin worse). Dupixent has been life changing. I haven’t had an outbreak at all after 3 injections. I’m happy, not depressed, not itchy and not a hermit. This drug has been a god send. After so many years of not knowing and trying to manage this, it’s finally under control"

• Bobbi
• April 12, 2021

Dupixent (dupilumab) "I tried this drug. First of all, the needle used for injection is extremely wide and big. It was very painful when the nurse injected the medicine. Second, this is very expensive. I should not have to endure that much pain with very, very little results. It also made my gastritis worse. I will not be taking this drug ever again."

• Dano
• Taken for less than 1 month
• March 2, 2021

Dupixent (dupilumab) "I received my 1st injections of Dupixent. I developed itchy eyelids. 3 days later I had a red rash on one of my arms. That went away. The eczema itch really hasn't changed any. In fact the eczema looks worse, I am not that impressed with this drug. This is rather disappointing. I received my 3rd injection and I am now suffering with terrible insomnia. I also have started itching on different parts of my body. The eczema looks a lot worse . I still am not impressed with this medication. I was hoping that this would help me. I really doubt that this medication is going to. I feel like I am going to be stuck with this."

• Moonie
• Taken for 2 to 5 years
• July 6, 2022

Dupixent (dupilumab) "I have been on Dupixent for over 24 months. It has been a life saver for both issues I have had. I have experienced severe weight gain. I am in my mid 70’s always in the 150 pounds area, but I am now in the 170+ range. Just would like to know if anyone else has experienced weight gain. I am very active, I live is a 3 story house and do stairs multiple times per day."