Budesonide User Reviews & Ratings (Page 4)

• mar...
• Taken for 1 to 6 months
• May 3, 2022

For Inflammatory Bowel Disease "I am newly diagnosed with collagenous colitis. Prescribed budesonide for two weeks, then off for two weeks, symptoms came back. Now on medication for another two weeks, works great. I'm to let the doctor know before two weeks is up how it went. A guessing game with this colon dysfunction. Question: how is it for long-term maintenance? A blessing of relief!"

• Mel...
• September 19, 2017

For Ulcerative Colitis "Was diagnosed with ulcerative colitis approximately 4 months ago; tried Lialda and Apriso as samples; Lialda tore my stomach up, and Apriso worked better but not that well after a short time; I then filled my prescription at one pharmacy through my Medicare D plan; tier 4 drug; I was astounded at the price: $773 for a 30-day supply; I found out after the fact I could have gotten some somewhere else for $258, wow, 1/3 the cost. The drug has worked; I also order through Canadian pharmacies for a 3-month supply; nice price difference; unfortunately, the medicine has stopped working for me, and I have been in the hospital; still very diarrhea; am looking for better days. Hope this helps."

• ckl...
• Taken for 1 to 6 months
• February 22, 2023

"Taking a 9-week taper for collagenous colitis. I can't wait until I'm off of it. Many side effects, insomnia, horrible nightmares when I do sleep, weight gain, my fingernails are brittle and peeling. Back and shoulder pain."

• phe...
• March 1, 2010

Budesonide for Eosinophilic Esophagitis "Entocort has been good to me and my eosinophilic esophagitis problem. It's not as effective as prednisone, but way easier to handle. I could usually last 3 to 4 weeks off of prednisone. I can only go about a week without Entocort. My side effects have been occasional dizziness, occasional indigestion/heartburn, and sometimes just feeling tired. After several years of prednisone, this is still much better and easier to handle. I take one 3 mg pill (3 times a day) and break it apart and pour it into my mouth and try to let the individual bits of medicine stay in my throat as long as I can. I've been doing well with this and I am happy with the results."

• Ann...
• Taken for 1 to 6 months
• April 10, 2020

For Autoimmune Hepatitis "I have been on this steroid, budesonide, for almost 6 months, taking 2 pills a day at 3 mg each. I have issues with red spotted dots under the skin, blurry vision that comes and goes, just started having my hair getting thin, a little swelling in the ankles, easy bruising, puffiness under the eyes, and I want to get off of them. I am gonna get to the bottom of why the REAL reason and cause of liver enzyme issues. A friend of mine had hormone issues, DHEA issues, and has Hashimoto's disease, all of this elevated her liver enzymes. I am planning to have the same tests she had done to see what and if there are any issues with me also."

• Kim...
• Taken for 5 to 10 years
• May 15, 2018

Budesonide for Crohn's Disease, Maintenance "I have been on it for 8 years. Have tried to wean off but always start to have Crohn’s symptoms again. I still have flares periodically on the medication, but they are minimal. Happy it works for me."

• Les...
• Taken for less than 1 month
• June 23, 2021

For Ulcerative Colitis "This did nothing for me, except result in more diarrhea and lack of sleep. I found the side effects far worse than prednisone. I took it for five days at 9 mg/day orally. I felt edgy, and the insomnia was horrible. I also had stomach cramps and more trips to the bathroom. I had to stop it."

• Wpa...
• Taken for 2 to 5 years
• July 9, 2021

Budesonide for Ulcerative Colitis, Active "A Mayo doc prescribed Uceris foam in April 2019 after several months of severe tenesmus controlled primarily with Bentyl. The medicine started working rather quickly, and all was good for about a year. Experience told me I had another attack coming a year after first use, and I had the doctor prescribe another round of treatment in May of 2020. It knocked out the symptoms again quickly. Here I am again about 14 months later, and I think the symptoms are coming back. I will try again, as it beats getting on the infusion treadmill for the rest of my life."

• Ham...
• Taken for 1 to 6 months
• October 27, 2024

For Crohn's Disease "I was prescribed 3 months of Budesonide. I had C. diff for over a year and couldn’t get rid of it, so I finally had a fecal transplant, which took care of the C. diff. But I was left with a bad flare of Crohn's, I couldn’t even leave the house. So now, I am down to one tablet of Budesonide and finish in about a week. It has worked for the most part, only 1 Crohn's flare-up that lasted 5 days, and another only 2. No side effects except my hair is falling out! I have waist-length hair that I’ve been growing for years. I’m told that after I stop Budesonide, within a couple of months, the hair starts to grow again. I keep telling myself I can get a wig, but I can’t get a new intestinal system, but this really bothers me. Many years ago, I had a number of respiratory arrests, and I was on high doses of prednisone for over a year, and the same thing happened. I had to cut my hair to about an inch. My hair did grow back, but it’s still disturbing nonetheless."

• Don...
• Taken for 1 to 6 months
• March 12, 2023

For Crohn's Disease "Was started on a very low dose of 9 mg for 28 days, then down to 6 mg for 28 days, and then down to 3 mg for another 28 days. Didn't notice any change in the first month, other than helping joint pain and swelling. Stomach pain continued and was still finding it difficult to eat anything solid. Unfortunately, by the second month, I'm feeling very agitated and have anxiety, unable to sleep much either, so I'm going to ask my doctor to wean me off them. The side effects are outweighing any benefit I'm receiving."

• Dik...
• Taken for 6 months to 1 year
• January 22, 2023

For Crohn's Disease "I've been taking 3 budesonide capsules a day since April 2022 for a month or so. After that, I am still taking the meds, but 2 capsules a day now. It decreases the amount of the thing that could be found in my stool (not sure what it is actually called!). Pretty sure the normal maximum amount would be 49? And before the pills, it was over 200 for me. After budesonide, it decreased to ~45 over a month or so. At the latest analysis check, it was 90, but I think that's because I didn't follow a proper diet. I personally did not have any side effects. That might be because I have a mild stage of Crohn's. I got diagnosed when I was 15."

• Sha...
• November 28, 2016

For Ulcerative Colitis "Budesonide has been a lifesaver for me. The GI doc put me on this after a colon biopsy. Two months at 9 mg per day. I went off, but the symptoms returned after about two weeks and escalated. He put me back on with 2 per day for a month. Then I have taken one daily for maintenance. Recently my pharmacy stopped selling the red and grey capsules and changed to the Teva peach and orange, and my colitis came back with a vengeance. I'm back on 9 mg per day again. I have some of each generic. The Teva product is NOT the same strength or quality as the other red and grey. I have since tried each for a period, and symptoms consistently return within 2 days with the Teva product."

• Bil...
• Taken for 1 to 6 months
• June 4, 2020

For Crohn's Disease "I’m currently on 9 mg of budesonide daily for Crohn's disease. 3 3 mg capsules in the morning. Doesn’t seem to control the diarrhea issues as well as prednisone did, but the side effects are far less and different. Headaches and a tingly pins-and-needles sensation on my back."

• Lan...
• Taken for 1 to 6 months
• September 29, 2024

For Inflammatory Bowel Disease "Of all the drugs I’ve tried for my condition, budesonide is the only one that actually works. It works right away. I started 3/d for 30d, then 2/d for 30d, lastly 1/d for 30 days. I was able to maintain a normal condition for about 6-8 months with selected supplements before having to repeat the budesonide."

• Bre...
• Taken for less than 1 month
• March 25, 2020

For Crohn's Disease "Budesonide worked so well on my Crohn's by day 5, but the side effect of the sore throat it gave me was not worth it. Each day after day 5, the sore throat got worse and worse, and each day, I felt like I had the flu. (I didn't have the flu or COVID-19.) My breath tasted like dog poop in my mouth. Within a day of going off the Budesonide, my sore throat was almost gone, by day 2, it was gone. I tried this twice, and both times, the same result. It was nice to be symptom-free for a few days. For my Crohn's issues, I'd give this drug an 8."

• Fpg...
• August 14, 2021

Budesonide for Ulcerative Colitis, Active "I have been on Asacol, then switched to Lialda, the past 10 years. I have ulcerative colitis. When I first got diagnosed, I was in very bad shape. Everything was inflamed. Two months ago, I had a colonoscopy. I had put it off for 10 years, so I was fearing the worst. Anyway, only a small area was active, huge improvement. My doctor recommended that I try Uceris. I said sure, so I started it. After the third week of taking the medication, I called my doctor, and we decided to stop it as I had no firm bowel movements. Since my colonoscopy, five days after stopping the medication, I returned to my normal bowel movements. The medication did not work for me. It made me have urgent bathroom needs. I can see the medication does what it says, it sounds good to me, just it didn't work for me. I was hoping it would."

• jus...
• Taken for less than 1 month
• November 11, 2016

For Eosinophilic Esophagitis "Been taking this for 2 weeks and have noticed some slight improvement via my esophagus not narrowing down while eating most foods. However, this drug has mitigated the freedom from depression/OCD/anxiety that I take other medications for (sertraline, fluvoxamine, Ativan), and I have felt a great increase in those symptoms since a few days in with this drug... so I'm getting off this and hope to find something better!"

• Sar...
• January 22, 2021

Budesonide for Ulcerative Colitis "It works really well for me when I'm not in too bad of a flare. I have been on it now for just over a year while I try all the different biologics, unable to get off of Uceris without flaring again. It takes a bit longer than prednisone to work, so give it a couple of weeks. It's been great for me while I try all of these biologic meds since they all take forever to see if they're going to work. I haven't had any side effects other than I started getting a ton of stretch marks for the first time in my life (I'm 37), and they kept coming even when I had stopped gaining weight. It's also been very difficult to lose much weight. I gained a ton while on prednisone a bunch over the past few years. I take the generic."

• Pau...
• Taken for 2 to 5 years
• February 13, 2021

Budesonide for Ulcerative Colitis "Terrific drug. I use the rectal foam every other day. My life is now completely normal. The drug, however, is expensive, costing $600 and up for a month's supply on the open market. My insurance company considers it a specialty drug. The last time I paid ca. $100 for a two-month supply. But the actual amount of the drug in the box of two cylinders may last as long as three months if the drug is taken no more than three or four times a week."

• Mom...
• Taken for less than 1 month
• June 26, 2017

For Ulcerative Colitis "Had horrible side effects from Lialda and sulfasalazine, and no response from enemas, including Cortifoam. On day 4 of bud, and see no relief from urgency, blood, or mucus. I was told to take one 3 mg/day even though Uceris script for 9 mg. Will check with MD when they open. Uceris after insurance was $1,000. Generic was $250-which I thought was better, but not if I have to take 3 pills/day instead of one!! How does anyone find this affordable?"

• JEH...
• April 30, 2023

For Inflammatory Bowel Disease "I have been on this drug for 3 months. Went through a regimen and weaned off. Began to have diarrhea immediately. Went back on one budesonide 3 mg pill. I have no appetite, have weakness, and nausea. Going to get off this pill and see if I can get to feeling better. I don’t think you are supposed to stay on this steroid."

• Dus...
• Taken for less than 1 month
• January 23, 2022

Budesonide "I was given this for COVID pneumonia. This gave me the worst stomach pain I think I’ve ever had. It felt like a gut punch, and it took hours for the pain to settle down. Other side effects were horrible taste in mouth, extreme stomach ache (almost called 911), headache, irritated my atopic dermatitis, fatigue, and an overwhelming sense of malaise. The only way I’d take it again is if I was dying."

• nal...
• Taken for 1 to 2 years
• March 9, 2017

For Ulcerative Colitis "GI doctors diagnosed me with IBS-D. None of the medications prescribed produced a solution. I was hit by repeated attacks of incontinence (diarrhea). My present GI doctor diagnosed me with microscopic colitis, for which he prescribed budesonide. It worked, I have been using it successfully for about a year and a half. It is an off-label drug, not yet OK'd by the FDA for colitis. It has been OK'd for use for asthma for about 10 years, but has not been OK'd for microscopic colitis. Therefore, I pay just under $400.00 a month for a medication that is generic, placed on 'Tier 4' in Medicare D. In 2016, I was billed just under $200.00 for the same quantity. No other drugs are effective. This one is too expensive."

• Liv...
• Taken for 1 to 6 months
• June 22, 2020

For Crohn's Disease "I've been taking 3 capsules of 3 mg a day for 5 weeks to help manage my Crohn's before taking a biological shot. So far, I haven't noticed any difference, and it doesn't seem to be helping. The side effects are starting to get bad. I'm getting dizzy all the time and have started to get nauseous and even started throwing up. I get daily headaches too (calling my doctor soon to get off of it)."

• Tum...
• Taken for 2 to 5 years
• October 16, 2021

For Inflammatory Bowel Disease "Taken this 3 times over the course of 3 years, as well as Entocort and Prednisolone, each one for several months. I found this does work for the first week or two, but then gets less effective, and my symptoms come back with a vengeance after that time. Also noticed that on all 3, my levels continued to rise in stool tests, despite colonoscopy showing nothing visual, so I would say it can work but not in all cases. Side effects of the first two drugs were a weakened immune system, tiredness, and headaches in the later cycles."