Budesonide User Reviews & Ratings (Page 2)

• Geoege
• Taken for 6 months to 1 year
• August 25, 2017

Uceris (budesonide) for Ulcerative Colitis "Uceris has been the best medicine I have tried for my collagenous colitis. Everything else did not work or had too many side effects. To me this is a miracle medicine. They say to take one 9mg per day, but believe it or not that actually made me constipated. For me nothing took away the D, even when I took seven Imodium a day. So I started taking Uceris on a as needed basis. It worked out to take one or two a week. So for me I rated a 10 with no side effects ."

• Mr News
• Taken for 6 months to 1 year
• January 10, 2019

Entocort EC (budesonide) for Crohn's Disease "Took Entocort as initial treatment for Crohn's in terminal ileum in 2004. I was only on it 3 months (tapering 9mg to 6mg to 3mg), and it worked well. Then, I was on Pentasa for 11 years, tapering slowly to zero. Crohn's symptoms came back wicked in Jan 2018, lost 43 lbs, and now have a 15cm stricture. Took Entocort again, for 7 months this time (2 mos @ 9mg, 2 mos @ 6mg, 3 mos @ 3mg), and again, it helped get the worst symptoms under control. Now living with the stricture, on 1gm of Pentasa daily. I'd say Entocort worked well for me, with minimal side effects. Some emotional lability, but that could be from any chronic illness. It's a useful drug for symptomatic treatment of mild-moderate Crohn's, and much safer than prednisone. I would be comfortable using a minimal dosage (3mg daily) for long-term maintenance, with calcium supplementation and periodic bone-density scans."

• reidc...
• June 21, 2009

Entocort EC (budesonide) for Inflammatory Bowel Disease "I have only been taking this medicine for a week, I am being treated for inflammatory bowel disease and nothing else has worked. So far I think I am on the way to being cured. I am keeping my fingers crossed. After two weeks I have to report back to my physician as to my experience with this medicine."

• clm
• Taken for less than 1 month
• February 17, 2018

Uceris (budesonide) for Ulcerative Colitis "I am now on this drug for the second time for Microscopic colitis . The last time was in 2014. The drug, in itself, works great for me BUT it is the drug company I have the issue with. They publicize that with their drug savings card plus your insurance, you only have to pay $25. THAT IS UNTRUE!! When you get to the fine print, you find that the company, in the goodness of their heart, will pay the first $800 ONCE per year for a drug costing $917.48 for 30 tablets. So, for the first script, it is a cost of $117.48 - hope don't need a second month cause then it would be $917.48. So please know this ahead of time!!!!"

• Lisa...
• Taken for 1 to 6 months
• June 1, 2021

For Inflammatory Bowel Disease "I have completed 2 rounds of this budesonide and when I'm on it, life is good and my IBD is controlled. Suffered for 10 years with chronic diarrhea and stomach pain, after 1st dose felt much better and progressively got better during 8 week course of treatment. My symptoms came back a couple of days after completing the medication, so doctor prescribed 2nd round. Just finished 2nd round and can feel myself reverting back, waking up with stomach pain and diarrhea again. Waiting for doctor to see what he recommends going forward, can't imagine taking a steroid for the rest of my life."

• DC in...
• June 14, 2015

Pulmicort Flexhaler (budesonide) for Asthma, Maintenance "I have recently reviewed the side effects associated with this medication and have found I have experienced quite a few of them. To my dismay, and my overall naiveness, these have contributed to some of the most uncomfortable and embarrassing situations. First and foremost, I had to have cataracts removed from both eyes just two years ago. Then there are the two bouts of pneumonia, the most recent was double pneumonia. Weight gain nearly impossible to control, swelling of feet and lower legs is becoming far too frequent these days, numbness in the extremities, rashes have been getting even worse than they have been in a while, suffered through shingles, eczema, and other strange and sundry skin maladies. I've been on it too long, obviously."

• Desti
• July 24, 2011

For Autoimmune Hepatitis "I have been taking budesonide Entocort since Feb 1, 2011. It was prescribed by my hepatologist for treatment of my autoimmune hepatitis. Nothing else I have taken has worked effectively (prednisone gave me ocular migraines along with azathioprine (nausea). Cellcept was tolerated but wasn't effective. Prograf (for transplant patients) did not work either and I had too many side effect (ended up getting shingles). I do have problems with dizziness but this is the only medicine that have brought my liver values down. I have noticed red rashes that come and go. Medicine is very expensive but fortunately my insurance covers the majority of it."

• Sheila
• Taken for 1 to 6 months
• July 21, 2020

For Inflammatory Bowel Disease "I was put on this drug budesonide 6 weeks ago, cured my diarrhea from inflammatory bowel disease, but has caused easy bruising all over my arms and legs. Started with 3 pills a day, after 6 weeks, went to 2 pills a day for 2 weeks. Now 1 pill a day for the next 2 weeks, experiencing low mood, stomach cramps, figured its withdrawal"

• Donna
• Taken for 1 to 2 years
• November 19, 2020

Entocort EC (budesonide) for Inflammatory Bowel Disease "I was diagnosed 1 and 1/2 years ago with lymphocytic colitis. I have had 3 flare ups and have been on endocort for each one. Great drug for me, unfortunately my sugars have elevated because I have type 2 diabetes. I stop the drug the end of December, very anxious to see what will happen. Lost 34 lbs since the beginning of this horrible disease and my symptoms return every 3 months after I stop taking endocort."

• Paunch
• Taken for less than 1 month
• May 13, 2019

Uceris (budesonide) for Ulcerative Colitis, Active "This drug Uceris may have initially helped but as time went (2nd week or earlier) on it caused so much, cramping, gas, bloating, pain & throwing up each day with my urgent other reasons for trips to the bathroom (and I had to have a bucket on my lap while dealing with the aftermath on both ends being violently ill). To have so much added pain to my already active flare was horrifying. I believe the time release part of the drug is to blame, as I’ve taken busidione in the form of Entocourt prior with decent results. I know it works for some people & that’s great, but others can’t tolerate the time release which was toxic to me."

• Anonymous
• Taken for less than 1 month
• June 27, 2014

Uceris (budesonide) for Ulcerative Colitis "Been using Balsalazide 3x3 for 9 years or so with occasional flareups I could resolve with slight overdosing. Could not resolve present flare up. After a month of 4 bowel motions a day, blood, diarrhea, doc started me on Uceris. Next day change to 1 bowel motion, no blood, slight diarrhea. Now 1 wk later, pretty normal 1 bowel motion per day, with occasional nausea in abdomen. I think pretty good for a week. But the price is outrageous, and even my copay is $75 mo. Doc insists on giving it to me for 3 mos."

• Misery
• Taken for less than 1 month
• August 30, 2018

For Inflammatory Bowel Disease "I have been on budesonide 9 mg for nearly 2 weeks. The diarrhea slowed down after a couple of days. I have been very sick on and off this last week. Stomach pain, nausea, headache weekness, insomnia. I have read the side effects just now and realised that it is the tablet that is making me so sick. Going O/S in 2 weeks and I am extremely worried."

• Anonymous
• Taken for 1 to 6 months
• July 8, 2019

Uceris (budesonide) for Ulcerative Colitis, Active "I didn’t notice a difference until the 5th week on Uceris. My symptoms finally went away and it looked like I was heading into a remission after a year of an active flare. I finished my 6th week of meds and then stopped the foam (since I was prescribed the foam twice/day for 4 weeks and once/day for 2 wks). After one week off the med, symptoms returned. The dr has me taking it every other day now. My symptoms are gone. We will see if this is another bandaid or if I’m able to get into a healthy remission."

• Nummy
• Taken for 1 to 2 years
• January 21, 2016

For Autoimmune Hepatitis "I was on Prednisone, 60 mg. for about 6 months after being diagnosed with AIH. During that time I had many severe side effects but my liver enzyme numbers were coming down. My physician switched me to 9 mg. Budesonide because of the side effects. I had no more side effects and my liver enzymes continued to go down. Now, I am off all steroids and my liver enzymes are in the low normal range using only Azathioprine. I had one flare two years ago after surgery and a few months of Budesonide brought me right back where I needed to be. I agree that the cost is outrageous."

• Jo-Ann
• Taken for 10 years or more
• November 18, 2021

Entocort EC (budesonide) for Inflammatory Bowel Disease "I've had stomach and intestinal issues for many, many years and have sporadically been using Entocort over 10 years. I'm sensitive to most medication and don't take it daily as it has side effects (i.e. vision & bone density issues). There have times when the gastroenterologist prescribed it everyday for about 4 weeks, tapering off after that time frame. Although, I wish I didn't have to take this steroid, it is the only medication which helps, even if for short periods. I'm amazed there is no cure for these debilitating intestinal diseases."

• MJohns
• May 6, 2013

For Autoimmune Hepatitis "I had been on prednisone for almost 10 years. With many of the common side effects; round face, always gaining weight and others. I am now on budesonide tablets, 6mg per day. With no side effects. It truly is a miracle. My only complaint of this medicine is it's outrageous cost. I say this, because the medicine has been around since the early nineties in inhalers. I know this, because my wife did clinical trials with this. My last month's bill was $360. for a thirty day script, I might add, with Humana insurance. Each month the cost has gone up. I am afraid to think of what next month's bill is going to be. The budesonide has given me known side effects. "

• Just...
• Taken for 2 to 5 years
• January 22, 2020

Pulmicort Flexhaler (budesonide) for Asthma, Maintenance "Have taken the past few years, it works well and have been mostly stable in conjunction with avoiding triggers. Like that it's not aerosol. I use it right before I brush my teeth so no issues with thrush. Have high copays so basically pay cash, I pharmacy shop for best price and there are usually manufacturers coupons available. Good luck all."

• kkrc...
• May 16, 2016

Uceris (budesonide) for Ulcerative Colitis "My physician prescribed budesonide originally for my Ulcerative Colitis, but I felt the out of pocket price for this RX was out of the ball park, so after contacting my physician again they gave me a RX for Uceris, and sent me information to assist in the cost, but after my insurance coverage and the $600, that the "coupon" that was sent to me, the total still came to over $200.00 for 30 days.. I have a copay of only $20.00, but since some entity seems to have the cost of this RX I have not been able to afford it and see what help it is--"

• Hopef...
• Taken for less than 1 month
• December 31, 2014

Uceris (budesonide) for Ulcerative Colitis, Active "I have faithfully taken 4 Lialda 1.2mg everyday for 8 years. I tried all medicines such Asacol, 6-mp, etc. and had to discontinue due to side effects. I also use the Rowasa enemas/suppositories temporarily and when stopped, the rectal bleeding starts again and worsen everyday. I have never been in remission with Lialda. I started the Uceris on 12/04/14 and I felt better than I had ever felt since the diagnosis in 2003. Two weeks into Uceris, legs and ankles swelling. Continued Uceris and praying swelling was temporary, Then had shortness of breath and fluid buildup in my chest. The swelling was unbearable. I stopped the Uceris; swelling subsided in 5 days. I do not want Remicade or Humira due to side effects. Why Lialda; no remission for 8 yrs."

• Dano
• Taken for less than 1 month
• November 30, 2018

Uceris (budesonide) for Ulcerative Colitis, Active "I’ve been using this for almost 2 weeks, 2 times a day. Will continue for 4 more weeks, once a day. Diagnosed with UC 15 months ago; was in remission 8 months and then daily bleeding and pain for past 5 months. CANASA hasn’t worked; hydro cortisone suppositories have not worked and so far, the Uceris foam seems to have reduced the number of trips to the bathroom, but still active daily bleeding. Hoping that the next 4 weeks will show that this is effective. Terrified of taking biologics, which would be the next step... 61 year old female who was in perfect health prior to UC"

• Rebecca...
• October 12, 2016

For Crohn's Disease "I was diagnosed with Crohns disease. I have been taking this drug for about a month and feel like a new person. No flares. No diarrhea. No stomach pain. My doctor said this can be used a daily drug because of the reduction of use until it reaches the liver, and unlike other steriods, the side effects are minimal to none. I would recommend this to anyone suffering from mild to moderate Crohns."

• Ali
• Taken for less than 1 month
• March 22, 2019

For Ulcerative Colitis, Active "I have had diarrhea for months, they put me on bentyl but did not help I had a endoscopy and colonoscopy and my biopsies were all negative but diagnosed with collagenous colitis. My GI doctor prescribed budesonide 9mg a day. My insurance said they did not cover it! I checked my prescription handbook and it said it was covered. But only at 3 mg, so my doctor prescribed the budesonide 3 mg and take three each morning. And my co pay was 8$! Today is my first day taking three 3 mg of budesonide. Can anyone tell me how soon you felt it working. Thank you"

• Anonymous
• January 25, 2012

Pulmicort Turbuhaler (budesonide) for Asthma, Maintenance "Works fantastically to manage my allergy-induced asthma symptoms. Have not needed "rescue" inhaler a single time since starting with Pulmicort. Have noticed some slight changes to my voice within the first couple of hours of each puff that slowly returned to normal over the course of the day."

• Anonymous
• December 3, 2009

Pulmicort Respules (budesonide) for Asthma, Maintenance "My daughter has used it since she was 6 months old. However I am unable to consistently give her the treatment because it is too expensive. It's too bad that something that can really help to keep kids from suffering costs so much that hardly anyone can afford it. Insurance pays half and I still have to pay $287/mo. "

• phill...
• Taken for less than 1 month
• September 18, 2017

Entocort EC (budesonide) for Crohn's Disease "Budesonide helped well with my flare, but on the 3rd day I developed breathing issues, The 4th day is terrible and I am going to stop taking it because I have COPD and heart issues. Unfortunately I have similar problems with prednisone. I've had Crohn's Disease for 50 years."