Baclofen for Dystonia User Reviews
Brand names: Lioresal, Lyvispah, Gablofen, Lioresal Intrathecal, Fleqsuvy, Ozobax DS, Ozobax
Baclofen has an average rating of 9.0 out of 10 from a total of 6 reviews for the off-label treatment of Dystonia. 83% of reviewers reported a positive experience, while 0% reported a negative experience.
- Mid...
- Taken for 2 to 5 years
- May 14, 2022
"I had almost the exact same experience as the 2015 review quoted below, however, I take 10 mg 3x/day at 5:30 a.m., 4:30 p.m., and right before bed. Strictly regimenting my dosage and treatment helped immensely. Main side effects include difficulty falling or staying asleep and occasional mild to moderate mood swings. “I suffered for 2 years with terrible dystonia and muscle cramping. Within 1 week, it helped keep it under control. I take it 2 times a day, and I am thankful that my doctor prescribed this.”"
- spi...
- Taken for 2 to 5 years
- November 10, 2022
"I had suffered with cervical dystonia, the pain was unbearable. My head tilted, and the left side of my body was drawn, my leg felt like a log I was dragging. It became almost crippling at times, I used a wheelchair. After starting on baclofen gradually, I saw some improvements. I now take 20 mg 4 times a day. I have had no side effects, and it has given me most of my independence back. It was a miracle drug for me. I still suffer with tremors and some pain, but absolutely nothing compared to what I had before."
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- hdm...
- Taken for less than 1 month
- January 19, 2016
"I was recently diagnosed with atypical torsion dystonia. My neurologist wanted me to discontinue 3 of my medications to make sure it wasn't medication induced. So far, not making a difference being off them. But he started me on baclofen 2 weeks ago. I have noticed that it does relax my muscular spasms, but has not seemed to affect the pain much. I've read it takes time to make its full effect. So far, it has helped enough that I'm not in such constant pain. Hopefully, it'll continue to get better."
- Jam...
- May 13, 2016
"I have an undiagnosed muscular condition coupled with JRA and borderline personality disorder. I only just started baclofen a week ago, 10 mg 3 times a day. I don't think I've ever NOT felt pain-it's amazing. My pain level was so high all the time, and it helped with the overall/daily pain as well as the cramping. Only downsides being that I appear to have side effects like dizziness, confusion, balance problems, and worsening psychotic symptoms. I've experienced some low-level hallucinations/spatial distortions (the floor looks like it's moving or the walls are breathing), which is more confusing than concerning. Only downsides to this medicine besides sleeping (which I love as an insomniac)!"
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Your review helps others make informed decisions.- Sys...
- January 12, 2016
"I have focal dystonia as well as 2 failed back surgeries on my cervical spine that left me with nerve damage at the root level. I have been having very painful and disruptive muscle cramping in both arms and feet, even in my sleep. My pain management team suggested baclofen, so they started me on a course of 10 mg 3x daily. So far, I'm experiencing sleepiness, balance issues, memory issues, and other neurological problems, but no painful spasms. It is my hope that, as with other medications, the side effects should decrease over time."
- Spo...
- December 22, 2016
"I was told by a friend that Baclofen would be better for me rather than the Rivotril I had been taking for a number of years. I slowly reduced the number of drips I'd Rivotril and started taking 1 x 10 mg Baclofen at night. Unfortunately, I had a migraine each following morning and was forced to drop the Baclofen after a month's trial and recommence with my Rivotril, which has no bad side effects that I'm aware of."
- Fli...
- Taken for 1 to 2 years
- January 17, 2015
"I suffered for 2 years with terrible dystonia and muscle cramping. Within 1 week, it helped keep it under control. I take it 2 times a day, and I am thankful that my doctor prescribed this."
- cgo...
- December 8, 2011
"Helped with the neck and shoulder pain, but I had chest pain, had to stop taking it."
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"Was prescribed Baclofen for muscle spasms/chronic pain from my Charcot-Marie-Tooth (MD) (a hereditary motor and sensory neuropathy). During a 2-day experience with this med, I became weak in my legs and noticed spastic movement. I fell numerous times. Also had a host of side effects that were obvious to family members as well as myself. I had slurred speech, trouble getting my words out. I had uncontrollable laughing spells to the point that I had my grandchildren scared and crying. I was so hyper and felt very out of control. Trouble staying awake and nightmares when I slept. One of the worst side effects was uncontrollable jerking. I would jerk at times and actually threw a cup of tea onto the floor! I had a horrible 3 days of side effects using this med. After stopping, I still dealt with some effects for 2 more days. God continue to bless those that are having good results, but please bless those that are dealing with side effects. Awful!!"