Arimidex and Hair Loss: What Users Say

• Uke...
• Taken for 2 to 5 years
• July 2, 2019

For Breast Cancer "Finished my 5 years of therapy on May 6th and was counting down the last 6 months leading up to that date! I would sweat so bad while on it, very intolerant of heat. Now that I am off it, I feel pretty warm sometimes but the sweat doesn't drip like it used to, thank goodness! I have been getting a little more sleep since stopping it (was only sleeping at the most, 4 hours at a time, while on the anastrozole). I am noticing much less hair loss in the shower, I don't get the odd, slight queasy feeling in the mornings anymore, and my general mood has improved - at least, I think so!"

• Gra...
• Taken for 2 to 5 years
• February 14, 2019

For Breast Cancer "I am 60 and have been on Arimidex going on 4 years now for stage 2 invasive lobular breast cancer. Initially, I experienced trigger finger, but that went away after a few months. I have also experienced slight weight gain (5 lbs), insomnia, and hot flashes regularly. I exercise every day to keep my bones strong, and luckily I have no joint or bone pain. I just noticed recently thinning hair after 4 years on this. My doctor says they recommend another 5 years after next year, so it will be 10 years total. I think for me the worst side effect is the hot flashes, but it’s okay! I’m still here! :)"

• Ste...
• Taken for 2 to 5 years
• October 29, 2019

For Breast Cancer "I’m finally off Arimidex. Every time I mentioned one of the many side effects I was experiencing, my oncologist said it's not from the drug. Read the flyer that comes with it. I’m hoping my joints and bones will stop hurting, that I won’t sweat through my insomnia, and that my hair will come back. What a miserable 5 years."

• Lea...
• Taken for 5 to 10 years
• February 26, 2014

For Breast Cancer "I took it for 5 years and 2 months. I cannot say if the changes were from chemo or from Arimidex. Changes in taste and smell persist. Frontal headache, blurred vision, cough, calcium loss - osteopenia. Stiff joints, long bone pain, sciatica pain of right leg, fatigue, wicked insomnia, hot flushes & flashes. Neuropathy in hands and feet, especially balls of feet and very sensitive tips of toes. Very dry skin, aged face, hair is very thin and breaking easily. Never got back full eyebrows, very SAD! I loved my eyebrows."

• Lea...
• Taken for 5 to 10 years
• February 26, 2014

For Breast Cancer "I took it for 5 years and 2 months. I cannot say if the changes were from chemo or from Arimidex. Changes in taste and smell persist. Frontal headache, blurred vision, cough, calcium loss - osteopenia. Stiff joints, long bone pain, sciatica pain of right leg, fatigue, wicked insomnia, hot flushes & flashes. Neuropathy in hands and feet, especially balls of feet and very sensitive tips of toes. Very dry skin, aged face, hair is very thin and breaking easily. Never got back full eyebrows, very SAD! I loved my eyebrows."

• oma...
• August 10, 2015

For Breast Cancer "Fine initially but within 2 weeks, severe ankle pain, insomnia, hot flashes and severe sweating. Thinning hair just after it all grew back beautifully. Difficult eye prescription, moody, tingling nerve pain in right thigh, tired and now have a hiatal hernia. Lack of interest in sex, which still has not returned. I just wonder what the long-term effects could be. This medication was one I loved to hate. But my cancer is gone and it has been 6 years that I am cancer-free."

• fre...
• June 16, 2009

For Breast Cancer "Initially, I tolerated the drug well. About 4 months into treatment, I had a lot of problems: dizziness, disorientation, joint and muscle pain, and stomach upset. Also, my hair started to thin, and nails cracked due to dryness. Within a week of stopping the drug, I was feeling better. One month out and I was very well."

• Anonymous
• October 15, 2012

For Breast Cancer "I've been on Arimidex for 4 years and 1 month, prior to which I took Tamoxifen for 5 months. During the first year, I developed a frozen shoulder, which my oncologist said could be due to the Arimidex. I experienced extreme joint stiffness, which gradually subsided after 9-12 months. I had intense hot flashes, which are now lessening. Other side effects include insomnia, vision issues (detached retina - but am also very myopic), pronounced facial aging, dry skin (I am 57 years old), and thinning hair. Additionally, I also experienced depression and mood swings starting 3 months after starting Arimidex. I did not take medication for it, but I have noticed that it has gradually lessened over the last 1 1/2 years."

• lin...
• March 26, 2011

For Breast Cancer "Have been on Arimidex for 7 years as my oncologist says that the trial period has only been up to 5 years and she wants me to continue as extra insurance. The only side effect that I have noticed beginning about a year ago is hair thinning, and it is starting to bother me. Three of my friends who had started taking Arimidex the same time I did and who had other oncologists, were taken off the drug after 5 years. They had noticed hair thinning during the time they were taking the drug and it has reversed since they stopped usage."

• Hob...
• August 10, 2017

For Breast Cancer "The first year of taking anastrozole, I experienced hair loss, weight gain even though I was having difficulty keeping food down. It wasn't really nausea, it was more like a reaction. Itchy skin, foggy head, aches and pains. During the second year, I found one morning that I could barely walk, severe knee pain, sore legs, sore bones...this is still the case, but I started gradually to start a yoga routine, which helps some days. It doesn't erase the pain, but seems to make it more manageable. It's like a different set of side effects every few months. I will stick with it, as much as I don't want to. The surgery and radiation are two things I never want to deal with again. Good luck to all of you, keep strong!"

• Tri...
• Taken for 2 to 5 years
• September 24, 2012

For Breast Cancer "I have been on Arimidex for 4 years 4 months. I have had the hot flashes, vision issues, bone density weakening, joint pain and stiffness, depression, mood changes, insomnia, back and bone pain, thinning nails (of already thin nails), weakness in hands and now, my hair is breaking off and drying out. My doctor wants me to hold on until the end of the 5 years. Not sure I can."

• ann...
• May 30, 2013

For Breast Cancer "Been taking Arimidex for nearly 6 years now. Side effects for me are joint & bone pain, weird feeling in my chest that wakes me up. Weight gain, hair thinning & occasional hot flushes. I take calcium tabs and alendronic acid for my bones. Apart from that I'm grateful to be alive."

• Bjs...
• Taken for 1 to 6 months
• March 11, 2023

For Breast Cancer "I had a stage 1c tumor and had a bilateral mastectomy with skin and nipple-sparing surgery with immediate reconstruction. Was on tamoxifen, but I’m 60 years old, and my cancer was strongly hormone positive. I had the worst reaction with letrozole - painful blisters and rash like chickenpox. I take Arimidex now but am worried about osteoporosis, I already have osteopenia and take calcium with vitamin D daily. The worst side effects so far are weight gain and hair thinning."