Anakinra for Still's Disease User Reviews

• Sessa
• January 31, 2012

Kineret (anakinra) "Yes, it does burn when you start to take it and the spot injected might itch. I did a couple of things before taking the shot. 1. warmed it up for about 30 minutes 2. applied ice to the spot I planned to inject 3. would take a Benadryl to keep the itching down. I've been on it several yrs now. It burns or itches...once in a blue moon. It has helped but doesn't keep the fevers and joint/muscle pain completely away, anymore. Good luck! This medicine is definitely worth a try if you have AOSD."

• Anonymous
• March 5, 2010

Kineret (anakinra) "The drug works very well. What they don't tell you, though, is that it burns like a steroid each time, every time. So go into it forewarned as it's not anywhere in any literature and it's not something your physician will likely tell you beforehand."

• Still...
• February 11, 2011

Kineret (anakinra) "I've only been taking the 100mg shots for 8 days now. It does burn even after it has warmed up. I think this might be because it's thick and has to be injected slowly. But like they say.. no pain no gain."

• McKaleB
• August 27, 2017

"I was diagnosed 2 months ago with Still's disease and began therapy with Kineret ASAP per my Rheumatologist's recommendation. Almost magically my symptoms that had previously left me bedridden and miserable subsided- within 2-3 days. Injecting daily is a pain in the butt and was difficult to learn at first, and I began experiencing some mild injection site reaction in the 3rd week, but otherwise would not know where I'd be without this medication. If you can stomach the daily needle and occasional red/itchy ISR, Kineret is well worth it!"

• SarahL
• Taken for 1 to 6 months
• May 24, 2018

"I was diagnosed with Aosd (Adult-onset Still's disease) Feb 2017 and after tying naproxen, steroids and methotrexate, my Rheumy put me on Kineret starting last Nov. I give Kineret an 8 because it stings... and because I still have joints flaring occasionally."

• AnnaSB
• June 2, 2014

"I just started on this medicine a week ago for AOSD. I have heard people comparing the burn of injection to that of a steroid shot... in my opinion it is a picnic [on the beach, at sunset] compared to that! It also burns way, way less than my Enbrel did. No injection site reaction or other side effects yet. I have high hopes!"

• It wo...
• Taken for 2 to 5 years
• September 8, 2021

"I had recurrent fevers due to Adult Stills Disease for years before starting Kineret about 5 years ago. The fevers stopped overnight and my inflammatory markers fell to a much safer range. I needed the addition of azathioprine to completely normalise inflammatory markers. The burning/itching side effects are transient. Having a daily injection is a nuisance but the drug does work, so it is a small price to pay."