Humira for Crohn's Disease, Active User Reviews

• Anonymous
• May 9, 2010

"I have been taking Humira for about 3 years now, and it has worked amazingly well. For active lifestyle patients such as myself, I would highly encourage you to ask your physician about using Humira before any other biologic. The at-home/take-with-you injections cause absolutely no disruption in my lifestyle or travel schedules."

• Anonymous
• April 4, 2012

"Within 4 months of having the maximum dose once a week, I was pain-free! I inject myself weekly with the pen, and together with Methotrexate, the Crohn's and rheumatoid arthritis are simply bad memories now."

• Dai...
• Taken for 5 to 10 years
• September 18, 2014

"I've had Crohn's disease since I was 8 years old. I am 52 now. I've had over 15 surgeries related to the disease. Humira has made my life so much better than I can ever remember it being. Not only is the medication great, but between the manufacturer (AbbVie), ConnectiCare, & Walgreens, they have me on a reduced cost plan, which makes it easily affordable."

• Lrd...
• April 9, 2018

"My doctor prescribed Humira for my Crohn's disease about 6 months ago. Within that time, I have experienced no benefits, as a matter of fact, my flare-ups are increasingly becoming worse and more painful. It is affecting my ability to work and perform simple activities of daily living. The side effects are endless. I would not recommend this form of treatment. I am currently researching other alternatives for my severe Crohn's disease."

• Slo...
• Taken for 2 to 5 years
• January 16, 2016

"It was awesome while it lasted, but it eventually caused pressure in my spinal fluid and gave me very severe headaches. I had to go off of Humira. I developed severe Crohn's symptoms and had to have a permanent ostomy. I will soon get a proctectomy also."

• Pos...
• Taken for 1 to 2 years
• December 16, 2015

"I had an ileostomy 34 years ago, whilst in my 20s, for severe ulcerative colitis. After many obstructions, I had been left with short bowel syndrome. Two years ago, I was diagnosed with Crohn's disease after fistulas started leaking feces through my skin. After a 6-hour surgery, I was put on Humira. After a year, I came out of remission and was put on Humira weekly. Despite that, I am now bleeding internally. I have only 4 feet of bowel left and have just finished a 60-day diet without food. I have nowhere to go, as my surgeon said further surgery isn't an option. Humira has extended my life by slowing the disease, I'm sure. Every day is a blessing, and I'm so much better than 2 years ago. I still have time to enjoy life with my family. I'm grateful."

• Ano...
• Taken for 1 to 6 months
• October 12, 2017

"The few months I was on Humira were the sickest I've ever been in my entire life. I got the flu- lasted 4 weeks, pink eye, cold sore, again for 4 weeks, you name it, and I got it. This was about 5 years ago, and I have since had 4 basal cell carcinoma surgeries on my face, and found this site because I believe I now have a cerebrospinal fluid (CSF) leak. It did nothing to help the Crohn's, nor the accompanying arthritis. Want to spend 6 months in bed wishing you were in a coma? Then this is for you."

• sad...
• Taken for 1 to 6 months
• March 10, 2019

"My hair was falling out soon after the Humira injections, and I had frequent nosebleeds. My Dr. changed to Remicade, and no more hair loss. I have Crohn's in remission, but this new med has helped my back problem more than anything. No Humira for me!!!!"

• Pat...
• May 10, 2022

"My son has been using Humira for approximately 8 years. Recently, he has started to get side effects, culminating in the events of last week: four full-blown seizures. Terrifying. Just writing this as a factual warning. Please be aware."

• Chr...
• January 18, 2019

"I was put on Humira in June 2018 during a two-week-long hospitalization for a serious Crohn's flare. Oral and IV prednisone/solu medrol weren't working to stop the flare (bleeding, 30+ trips daily to defecate mostly blood, severe weight loss, anemia, inability to hold food/liquids, pain, muscle atrophy, etc.), so Humira was introduced. Initially, I had SEVERE hair loss - clumps in my hands when I brushed/washed - that could also have been exacerbated by stopping corticosteroids. Seemingly put me into mostly symptomatic remission and has worked for 7 months without any major issues. I've had one cold virus, which wasn't any worse than usual. Seemed to also heavily dry my skin. Leading up to my biweekly injections and shortly after, I experience sharp pains in my feet. I've also developed moderate arthritis, which can be a symptom of Crohn's. So far, I have to say I'm pleased with Humira."