What does the rash of lupus really look and feel like?
Question posted by cleo130 on 14 Feb 2013
Last updated on 14 February 2013 by inthefaceofpain
I had to see the opthalmologist last week, with a follow up this week. She said my eyes were as dry as the sahara. I also had a very red face, which in thinking back I've had before. The doc asked if I had lupus, and even took a photo with my cell to show my rheumatologist. As it turned out her assistant has lupus and we talked about symptoms for a bit. She also has sjogrens (spelling?) which my very dry eyes are a part of.
Anyway, I was given 2 types of eye drops and a script for Restasis, told to take flaxseed oil and to come back in two months. That takes care of the eyes. I called my rheum. and requested a script for new bloodwork to test for autoimmune disorder, and also informed them of what the opthal. doc had said about my face. I'm reaching out to anyone that has experience with lupus/autoimmune for some clarity, whilst telling myself NOT to worry over the unknown, and just deal with all my other issues... like setting up a second appt with Shands teaching hospital to evaluate my neck and back for possible/probable surgery... at least on the neck.
Can anyone out there share some info about the lupus rash and other symptoms?
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Answers
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inthefaceofpain
15 Feb 2013
WOW! I already feel like you and I are connected! Back and spine, chronic pain, possible autoimmune. It is very hard to not worry about the unknown, especially when you are having real symptoms of "something". There are a lot of symptoms to lupus, though, and rashes can appear from many things, so to get a rash and think it may be lupus, may not be the first conclusion to let anyone help you jump to. The rash of lupus looks just like a butterfly across your face (body on the nose, wings on the cheeks). It can vary in redness and bumpiness. But definitely a butterfly. Rashes can come from so many different reasons, though, unless you are having other true Lupus symptoms, definitely don't rush into that conclusion! Good luck!
