The last two being within 1 yr. The pain I go through is incredible. The surgeons and GI doctors I've spoken to all say that there is nothing I can do to avoid another bowel obstruction. There has got to be something that I can do to help prevent future obstructions. Does anyone have any suggestions? I am so worried that this may happen again... the NG tube is the worst! I need to be proactive to make sure I don't get another one... any suggestions would be greatly appreciated! Thanks!
Intestinal Obstruction - had 4th bowel obstruction..how can I prevent future bowel obstructions?
Question posted by janicewid on 8 Aug 2012
Last updated on 18 June 2018
The information on this page reflects personal experiences shared by our community members. It is not reviewed for medical accuracy and should not replace professional medical advice.
63 Answers Page 4
judy carol
21 July 2014
I would love more information on this subject also. I had surgery 16 years ago for and obstruction and was fine until about two years ago. I have had five obstructions in the past couple of years. The last one occurred while I was on vacation and I had to be hospitalized . Someone suggested flying can contribute to the problem, has anyone heard of this before? I am basically now terrified to be to far from home in case I have an attack. I hate living in fear!
kris-hag
21 July 2014
It may not necessarily have anything to do with flying but if you are feeling any anxiety at all, that could definitely be a contributing factor. My nutritionist told me that any kind of stress (even good stress) can release stress hormones that tell your body to stop doing nonessential things (like digesting) and to go into a flight or fight mode. She told me that this is a normal function for us because our bodies are getting a signal that there is a reason to have all energies go into protecting itself and will stop other functions to do so. Thus, your digestion slows down or stops and any food in there could potentially cause a blockage. It does make sense as this has been a contributing factor for me in the past. I would suggest eating only something light before a flight or nothing at all if it's a short flight. That way, there shouldn't be any issues. But, I know what you mean about having a fear of going too far from home.
I haven't flown since I have started having small bowel obstructions but I have done long road trips successfully. I will say one thing, since I started having these episodes 6 years ago, I was like clockwork to get one every one to two weeks. Since I have not only adjusted what I eat but how much, I haven't had an episode since January (the longest I have ever gone). I am really thinking that the key is eating very small meals and only when I am hungry. At meals, I portion out my food on my plate in the correct serving amounts (1/2 cup of vegetables, one slice of bread, meat no larger than a deck of cards or smaller). I do not take seconds. If I still feel hungry after 20 minutes, I may allow myself a tiny bit more or drink something non-alcoholic (milk, water, tea, etc.). This has been my salvation.
Melika Bee
6 Nov 2014
Work on alleviating your fear.. As stress contributes
vipers5
4 July 2015
sounds like your scar tissue is back. they say its cobb web looking in your bowels / intestines food cannot pass thru..
vipers5
6 July 2014
I am so happy to find this site. just got home after my 4th bowel obstruction in a year and 6 months.. I eat healthy walk 3 miles a day and work full time. I refuse the ng tube . although my stomach muscles hurt from throwing up. my doctor lets me sit in the hospital for 3 days then sends me home each time. nothing she can do just wait until the next episode. I can pretty much diagnose when its going to happen again. I feel like I should use the ninja blender on all my food because food is my enemy. I work full time and I am worried this is going to be a problem in the future. Anyone with suggestions I am all ears! looks like a life long problem and I dread its coming again but don't know when it will happen!!
jmarienau
21 July 2014
Keep reading the posts for ideas. Start slow with the foods that you think are tolerable. Stay hydrated and get as much nutrition as possible. J
cashew12
14 Aug 2014
I've had 2 bowel obstruction surgeries and a bunch of partial obstructions over the last 20 plus years due to a mess of scar tissue from previous surgeries. Last year I went to a nutritionist who also told me to stay away from nuts and seeds. She also said to drink lots of water and to have unsaturated fats with every meal. She gave me a booklet and highlighted the foods that are gassy that I should also stay away from. I've been following her plan and for the first time in many years, I have had regular bowel movements. I did however, have a partial obstruction in December that landed me in the hospital with the awful NG tube. The nutritionist is convinced that if I hadn't been eating the way that I have, it would've been worse, which I assume she means surgery. Who knows, but I continue to follow the plan as it is all I can do.
I also learned that physical therapy is extremely helpful right after surgery with scar tissue. Even though I did not end up having surgery this time, I went for a couple of sessions with a physical therapist and felt amazing vitality in the abdomen area. I left feeling like "oh, this is how I'm supposed to feel!" I don't know if PT and following a plan of a nutritionist will help avoid another obstruction, but it helps me feel better in the meantime. Good luck all and God be with us.
Invernessity
25 April 2014
Janice, I have had more than 50 small bowel obstructions (sbos) in the past 15 years. At one time, I was hospitalized every month for conservative treatment of a complete obstruction primarily caused by adhesions. I am treated at one of the largest hospitals in Northern Virginia, but surgeons repeatedly told me that there was nothing I could do to prevent a recurrence except eat frequent, small meals instead of three large ones daily, and chew my food very well.
Then, three years ago, a surgeon who operated on me to repair a hernia causing some recent sbos, and who also lysed surface adhesions, ordered a post-surgery dietary consult. The dietitian strongly recommended that I follow a low residue diet, and that I liquefy as much of my food as possible, using a blender. I had never heard of a low residue diet, but I currently follow it religiously. I use a juicer, and the majority of my meals are the consistency of full liquids.
I noted a remarkable improvement in my condition immediately. I now suffer from sbos every six months or so, rather than monthly, and they are not as severe. But I eat no fresh fruits and vegetables, no nuts or popcorn and nothing similar. I found that even eating fresh fruits and vegetables in a liquid form caused obstructions. The critical issue for me seems to be the fiber content of food, rather than the form (liquid vs. solid).
It is not easy following this diet but, for the first time in many years, I do not live with the daily fear that I will develop a sbo. I didn't realize how scared I was, and how the fear that I would have another obstruction permeated every aspect of my life until after I adopted this diet and I found myself relaxing more often.
I have learned that, even though I am treated at one of the "best" hospitals in the nation, most surgeons do not know how to effectively diagnose and manage sbos. It is essential that I learn as much as I can, and I now read medical papers published about sbos. I always have a CT scan without oral contrast for diagnosis, and I am then treated with IV meds for pain and nausea (I use a pain pump from admission until the hour I am discharged because it gives me more control, and more relief). Finally, I always use an NG tube even when the doctors give me the option not to when I have proximal obstructions with little bloating. The NG tube markedly reduces my pain, and it also significantly reduces my inpatient recovery time. I can only tolerate this tube for days if the smallest possible size is used. (I have found that most nurses automatically insert one of the largest width tubes but these are extremely uncomfortable, and there is no significant benefit to using this instead of a smaller tube. It would only be necessary to use a larger tube if you have "chunky" stomach or intestinal contents, which is generally not the case.) I also monitor my suctioned fluids, and have the tube removed as soon as this fluid level drops.
When advancing my diet, I start with ice chips, and then sips of liquid, to make sure that I can tolerate the intake. Anything larger might set me back a day or two if I start on liquids too quickly. (I also monitor my bowel sounds - I have found that, even if I am feeling better, I can't tolerate liquids without increased pain if I do have markedly reduced bowel sounds.)
Finally, when inpatient I try to make it as comfortable as possible for myself. For example, it is routine in my hospital to draw blood from patients every morning at about five am. But most of these results are not needed by my surgeons, so I have these orders canceled so I can sleep unless the doctor tells me he specifically needs the blood tests on a particular day (he generally does want them again before I am discharged.) Another example of what I do to maximize comfort is that I ask the nurses to give me about an hour's notice before I leave the unit for xrays. This allows me to use both nausea and pain medicine so they take full effect when I am moving around. Nurses may say they can't tell you this timing, but the xray department absolutely can give them this information.
So, to summarize, I have found educating myself about the diagnosis and treatment of sbos has helped me enormously to manage recurrences. Also, adopting a strict low residue diet, and eating food in a liquid form when possible, has significantly reduced the number of recurrences I have. Finally, working with my doctors and nurses to plan inpatient stays has reduced the time I spend in the hospital, and made it more comfortable. I used to rely on my doctors almost exclusively to tell me what to do, and when, to manage and treat my sbos, but I have benefited enormously from doing my own research, and actively planning both my inpatient and outpatient treatment with my doctor.
I hope the foregoing helps, and I would be pleased to answer any additional questions that you may have. Reading about your situation, which is so similar to my own experiences, certainly helps me to feel encouraged because we are not alone facing these challenges. Mary
kris-hag
25 April 2014
You have brought up a very good point about fiber. Even if you puree the fresh fruits and vegetables, the fiber still remains. This is also what my nutritionist told me. Also, you cannot cook fiber out of fruits and vegetables. All the cooking does is make it easier to digest than if they were raw. But you are right about taking smaller meals. That's what I do too. But, I don't liquify or puree my food but I do take smaller portion sizes and chew it very slowly and completely. I haven't had an episode since January 4th of this year which is the longest I have gone. So, like you, having researched everything, met with a nutritionist, and through trial and error, I think I may have learned to manage this. One thing I learned for sure is that doctors really don't know how to manage this and consulting with them is an exercise in futility. They don't study much about nutrition in medical school which is why they usually refer you to a nutritionist or dietician. I highly recommend doing this.
jmarienau
10 May 2014
Mary, I'm sorry that you have this problem. I also have had SBO's numerous times and had to have a small bowel resection after one of the obstructions. It is scary living day-to-day. I also puree cooked vegetables and only consume very small amount of cooked fruits. I eat finely chopped chicken and canned fish almost daily. Some eggs and GF crackers and breads that are made with rice/corn. I also incorporate some of the FODMAP diet suggestions to limit gas, etc. that cause pain. Juicing makes me bloat as well as regular dairy, etc. The diet is limiting. I also strongly agree with you about the SIZE of the NG tubes they use. Every time, I have severe pain with the NG tubes and they (hospital) keep telling me it's fine. Once, I was even gagging and vomiting and they didn't believe me until they x-rayed and saw the excess tubing curled up in the stomach.
The normal or larger tubing gives me pain throughout the esphogus and I literally have to beg to have a smaller tube put in. After the smaller tube is inserted, I INSTANTLY feel relief. Even though this happens every time I still stuggle with them believing me. Also, when I go to the ER in severe pain I can only scream or cry out and can not speak in sentences. Nevertheless, they question if I'm "really" having pain even though it's on my chart for prior SBO. Nurses sometimes tell me to quiet down or take deep breaths but I can't and they seem to not believe me. I've been a patient for many years with problems from endometriosis, cancer, bowel surgery, etc. I've had over 20 surgeries so I think I know when I'm in pain. After surgeries, I ask them NOT to give me pain meds since they slow the bowel. I've gone 10 days at a time without any oral input, not even ice. Then, when I am allowed food, they give me way too much and too hard to digest. Doesn't make sense to me. After the 10-day stay they introduced clear liquids then the next morning brought me 3 trays of regular food to eat before 2:00 p.m. I was furious but they said I had to eat all of this before I was discharged. Sorry to go on and on. J.
kris-hag
10 May 2014
I am really shocked to hear how insensitive your nurses have been about your pain. I have been a nurse for over 40 years and know the research about pain. Pain is subjective and we, as nurses, need to take the patient's perspective seriously. How do we know what the patient is feeling? I have been fortunate to have had nurses at the hospital I go to who have been trained about pain. It is a specific area of nursing specialty that has worked very hard to educate nurses about this. Keep talking to them about them. One thing I have learned over the years is that as a nurse, I don't know all there is to know and that my patients were also my teachers in the profession. As a patient who also suffers from SBO and have been hospitalized for them, I would always make it a point to discuss my pain with nurses as calmly and seriously as I could (which isn't easy when you are in such misery). I just know that if I start yelling at them, yelling only turns people off. The discussion about your pain is best done once it is under control.
beezie
4 June 2014
Hello everyone, my husband has sbo and has been hospitalized for it 8 times since Feb. 3 times in May. We're getting very worn out from all this, as you can imagine. I was wondering if anyone had any advice because he's been on a liquid diet for two months with zero fiber and still gets blockages every few weeks or days just out of the hospital. He'll be fine the day he comes home after being NG'd and IV fluid'd. Then it all goes downhill. He's not able to tolerate more than a few sips of fluid before getting bloated. It's been impossible to keep him hydrated. Then he'll start getting dehydration symptoms which always includes confusion, then in a coupla days, it's back to the ER.
His last bowel surgery was in 2009. He had a bunch of surgeries from the 90’s on. The surgeons say he has a hostile gut and they will not do surgery. We've gone to two hospitals and no dice. Only if it's life/death will they touch him. He's on pain meds for other issues and wil be deceasing the dose over the next few weeks. They said that has a lot to do with it but he's been on them for nearly 10 yrs. This just started up last Sept. Honestly, something happened with the adhesions, not the meds. But he's giving it a try. And just as I'm typing this out, he started throwing up. He jus tgot out of the hospital last Saturday!
He's lost over 60 lbs since October and is becoming very frail. He has other health issues that are on hold because of this. I just don't know what to do to help him drink and gain back weight. It seems even the Ensures with zero fiber are getting caught up. It makes no sense to me. Any ideas are greatly appreciated. And I do wish the best for everyone!
jmarienau
4 June 2014
Beezie:
This sounds like a difficult situation. What do the CT scans show? Are there more than one areas where there are obstructions? Has your husband had surgery for the (or any) of the obstructions? Before he is discharged from the hospital, does the staff make sure he can tolerate any intake before he leaves? Ensure, etc. is good because it has nutrients, BUT these products OFTEN cause a LOT of bloating, gas, etc. and the IRON in them is constipating. Is your husband passing any stool? If he only drinks water does he get bloated? If not, I would stay away from the liquid nutrition drinks (like Ensure) for a few days. Instead, see if he can swallow or use a chewable (basic) multi-vitamin. Then, see if he can tolerate something like oyster crackers, hard candy (few), sips of plain decaf tea, etc. Start there and see how he does. If he is vomiting beforehand and has no to little intake he should go back to the hospital to prevent dehydration.
If the surgeon has no suggestions, go quickly (as possible) to another MAJOR hospital outside of your local area. Often, doctors won't give another opinion if they know or have a affiliation with another group of doctors. In the worse scenario, they may want to insert a feeding line directly into an area of the small intestine for a short time to further evaluate and see how he does. This will give his system a "rest" and also provide nutrition. The medical staff is right in the fact that PAIN MEDS will slow and sometimes almost put the intestines in a paralyzed mode. This is not good. There should be other drugs that they could suggest he switch to for pain control. Some may be anti-inflammatory medications which could be irritating to the GI tract. It depends on WHAT type of pain he was treating. The pain meds he is on may have to be weaned off. There are anti-inflammatory drugs like Toradol that are great for pain. They are normally given for up to 5 days because they can cause the same side effects as aspirin but may help while he is weaning off the pain meds. You may also be able to have a Home Health Nurse come to your house so that he could get IV hydration at home. Please don't give up hope. Write back if you need to.
kris-hag
4 June 2014
I was told by my hospital and a GI specialist that they couldn't do anymore for me either and I took the next step and contacted the Mayo Clinic. They took me in and really helped me. I don't know where you live and whether you can get to one or not but if so, it could well be worth your while to contact them. Or, if you live near a research hospital (university), try them. Your husband's condition sound pretty extreme and I get really concerned when the medical establishment just gives up on you like that. There are answers out there and sometimes it takes a lot of foot work to find them. I wish you the best of luck on finding help.
jmarienau
4 June 2014
I agree with you Kriss and I hope that information helps Breezie. A major medical center like Mayo, etc. is great advice even if it is a distance away. There is no time to waste.
beezie
8 June 2014
Thank you for the advice! He went into the hospital and saw a different Dr. that is familiar with his case. He is going to do the operation to clear the adhesions. But he said this won't be easy and is preparing us for what may happen. We'll see that Dr. on Monday in his office. The hosp. he's been going to is a teaching one and one of the best in NY. We did go to a different one and heard the same thing. no one wanted to touch him.
He's been out of the hospital since Friday and is already showing signs of another blockage. He's only had water and juices, no Ensures. I'm afraid we won't be able to avoid the ER before Monday.
Once the early signs start, is there any way to avoid it getting worse? One time I tried the magnesium, gasX and probiotic route and that didn't help at all. If he stops drinking fluids in the hopes this will pass, how long should he do that for? Is magnesium citrate (liquid form) safe to help clear it out? I'm worried about the dehydration, his intake has gone down today. But if not drinking for a bit may help, he's willing to try it. He isn't feeling bloated yet. Usually the bloating and hiccuping go together. So far, just the hiccups and mental slow down and sleepiness. I had asked the dr. if the dehydration brought on the blockage and he doesn't think so.
Thanks again for the help! I wish everyone well!!!
jmarienau
8 June 2014
Beezie: Thanks for your note. Sorry you are in the same situation as before. I know he must be uncomfortable and it's scary for you as well not having any options to help. I'm glad you found another Dr. that is open to doing surgery. Does that doctor also SEE patients at the hospital you use? If so, and you need to go back, maybe that doctor can see your husband as an inpatient if you can't wait for the appointment on Monday. In regards to the magnesium citrate, I would NOT GIVE him any. Mag. Citrate absorbs water to flush out the GI tract. Without proper hydration FIRST, this could be detrimental for him. It could cause a quick drop in blood pressure, nausea, vomiting, etc. I understand the comment from the doctor that dehydration shouldn't CAUSE a blockage but it certainly doesn't help. I think I was slightly dehydrated when a couple of mine occurred. I assume when your husband was hospitalized last week that he had an NG tube.
Right? I he doesn't feel like sipping water, maybe some chicken broth would be okay. He'll know if things are not any better or getting worse. Don't force any liquid if things are worse. Also, you can call the doctor and ask if an antispasmodic medication like Levsin or Bently would help. They can let you know if it's contraindicated or not for his status. Levsin comes in a tablet form that melts under the tongue. Hope some answers are found soon.
J
kris-hag
8 June 2014
Beezie--- I sure hope that your husband gets the help he needs. I too had a surgery to remove adhesions but that didn't help me either. I had other issues that took the Mayo Clinic to figure out. It doesn't sound like what your husband has but my small bowel obstructions are caused from having radiation therapy after having a large tumor removed from my lower spine. The radiation caused inflammation and scarring to the inner lining of the jejunum and ileus. This is permanent for me. More surgery is not an option for me. I got the most help from a nutritionist who told me that I needed to help my digestion. jmarienau was right to tell you that hydration is key. I have had trouble by not drinking enough fluids too. But the nutritionist had me do an elimination diet to see if there were any grain foods that could be increasing inflammation to my intestines. Dairy and wheat were OK but I found out that corn was not good for me.
So, I have eliminated that from my diet and it isn't easy when corn is in so many products. I need to read labels very carefully. Also, I take probiotics every day. She also told me to take a tablespoon of apple cider vinegar with every meal to help aid digestions (it's a little more acid to help the stomach acid to digest). If I eat any meat at a meal, I also take an enzyme tablet to help it get broken down. Meat is the hardest food to digest... even if it's pureed. I also eat smaller meals throughout the day and I eat very slowly. My nutritionist also told me that warm water is better to drink than cold because cold can slow everything down whereas warm helps move the stomach muscles. Hope this helps. But do try to work with a good nutritionist. Mine has worked a miracle for me. I haven't had an episode for 5 months now and it has been heaven. Before that, I was having them weekly... some severe enough to go to the ER. She gave me one more thing that I am going to be trying soon and it could work for him too. It's a castor oil pack that you apply to your abdomen with heat daily. Apparently castor oil has the ability to penetrate through the skin and to the organs within. Look it up on the internet and read about it. It sounds wacky but there is some evidence that it is a soothing remedy.
lewcol
2 July 2014
Hi- Wow- I just found this site and have read your history of pain and obstruction! What a nasty condition and I have had about 35 episodes in the past three years- at first I thought it was the flu but the pain was so terrible and I couldn't find any position to bring relief. Only after vomiting did it relax and give me peace. Every time it's the same- a little cramping early a.m. and then by afternoon I want to die- finally, I get dizzy, weak-kneed and vomit like a champ. Then, and only then am I better- so weird.
wiapril
6 Oct 2014
Mary, I was wondering if you are still active on this site? I have the same condition as you and need some advise and help asap. I hope and pray you will get this message somehow and message me. Bless you . April
Diskid7
7 July 2015
Mary, wow! I thought I was the only one that had an extraordinarily high amounts of obstructions. I actually back off when telling people the actual number since some think 5 is a lot. I've had over 133 cat scans. The RT from all the X-rays has def taken its toll in my abdomen and hip area. I'm 5'9". 130 pounds and I try to go to the gym min 5xs per week. Exercise is crucial. So I'm basically pretty thin. When and if I decide to have surgery, it takes so much longer for recovery since my BFI is less than 10%. But I need exercise to keep peace of mind.
I also have stage 2 lymphedema from the massive lymph node dissection in 1999 which was the same time as my surgery for my cancer. The swelling in my left leg started 4 years later and I've had over 15 hospital cellulitis inf. I try to catch them early and start Keflex at home to keep me out of the hospital.
I was discharged 10 days ago for an inf, and now I'm home with a partial obstruction hitting 8-8.8 pain levels. No need to go to the hospital unless I reach a 9. They will just give me more pain meds, or if major blockage NG tube. But I know the diff between partial and full. My body tells me when it's time to let the doctors get a grip.
But it's hard to go through life not being able to make plans. Canceling reservations and trips last min. When you've had to be med-jet from an island Hopsital that can't treat you 3xs, you get nervous when making plans. But you have to live. Get travel ins and make sure you have friends that understand and don't make you feel guilty when you have to Canx last minute.
This has happened to me many times since I may be one of the healthiest looking sick people out there. So no one take me serious. And my NY sarcasm is a front to hide some of the fear associated with all the health issues. I haven't liated them all.
But my advice is to stay strong. Stay positive. Have humor with those that can laugh with you about certain health conditions you may have. If we can't laugh at ourselves, crying In a corner is the other option. Which would anyone choose? Laughter. A few tears here and there. But we have to fight and get through it. Be your own doctor. Don't let anyone else be in charge of your health. You know your body better than anyone. The doctors see 40 some patients a day of not more. U was treated at Sloan Kettering in NYC. Now I'm at osu since I've relocated to ohio. Things are a bit diff here, and I'm not adjusting well to the medical staff. I have a few docs I like, but need to get through he ER bs can be a struggle within extensive medical history. So write it all down and keep a copy in your wallet. Even if its 4 pages as mine is. Saves you from all the chatter and thinking of all he past experiences. Of course all your meds and allergies should go on your copy as well. I keep an overnight hospital bag packed at all times with my pjs and lotions etc. Need to make my stay more comforting than it will be. Also slippers so you are not standing on the germy hospital floor.
Good luck!
Diskid7
MikSweet24
9 May 2016
Do you know of the difference between a blender and a juicer? A blender keeps all the fiber from fruits and vegetables while a juicer removes fiber after extracting enzymes, nutrients and liquids. I would not use a blender when I am recovering from sbo. Invest in a high quality slow juicer that will keep enzymes and remove fiber. Mastricating juicer is better than centrifugal juicer because it keeps nutrients and enzyme longer. Even a $400 juicer is well worth it, considering that you use it daily and if it comes is 15 year warranty.
I was recommended a low residual diet as well, but I hated that because I had to increase the intake of carbs and reduce the intake of veggies and fruits. I want to take as much nutrients as possible from food, rather than supplements because it increase the load to my liver to break it down. To me, a juicer was the solution.
cleo130
26 Aug 2016
Thanks so much for sharing your history. I was recently hospitalized with 2 bowel obstructions. Yes, the dreaded NG was inserted (my first time) and they thought they would have to do surgery, but the obstructions cleared. My first ice chip tasted heavenly! I was also diagnosed with Diverticulitis, a Hiatal hernia and chronic gastritis. I was colon, so U so bloated and in horrific pain on when I was admitted - it was frightening. When they removed the NG tube I was allowed ice chips, then water and a clear liquid diet for 2 more days. I had a colonoscopy and endoscopy after they determined the blockage was clear. I have what my gastro calls a "loopy" colon so I fully expect more problems in the future.
camdensmom03
15 April 2014
I have experienced bowel obstructions.my surgeon adviced me to eat small portions throughout the day.instead of a big meal at meal times.the last time I had an obstruction was in sept of this yr.so I have taken his advice and its helping feel less bloated.that way if I do get in trouble again It wouldn't make as sick.I have read you shouldn't eat an high fiber diet with an history of bo's
kris-hag
16 April 2014
Yes... smaller meals with smaller portions has been helpful to me too especially if I do get into trouble. If so, then it isn't so much pushing against the obstruction. Everything I have researched agrees with your conclusion that high fiber isn't helpful for small bowel obstructions and can actually be more harmful. Thanks for commenting on this as it is always nice to find others with the same issues you have. I don't feel so alone with this anymore.
cashew12
14 Aug 2014
I've had 2 bowel obstruction surgeries and a bunch of partial obstructions over the last 20 plus years due to a mess of scar tissue from previous surgeries. Last year I went to a nutritionist who also told me to stay away from nuts and seeds. She also said to drink lots of water and to have unsaturated fats with every meal. She gave me a booklet and highlighted the foods that are gassy that I should also stay away from. I've been following her plan and for the first time in many years, I have had regular bowel movements. I did however, have a partial obstruction in December that landed me in the hospital with the awful NG tube. The nutritionist is convinced that if I hadn't been eating the way that I have, it would've been worse, which I assume she means surgery. Who knows, but I continue to follow the plan as it is all I can do.
I also learned that physical therapy is extremely helpful right after surgery with scar tissue. Even though I did not end up having surgery this time, I went for a couple of sessions with a physical therapist and felt amazing vitality in the abdomen area. I left feeling like "oh, this is how I'm supposed to feel!" I don't know if PT and following a plan of a nutritionist will help avoid another obstruction, but it helps me feel better in the meantime. Good luck all and God be with us.
katie Rose
7 Nov 2014
I have also had my 4 bowel obstruction and had my 3rd sugery in September!!! This one was twisted and they had to remove 2 feet of my small intestine. I have been in alot of pain,bloating every since. I also do small portions when I'm able to eat but so far I have lost 20 pounds. I was wondering if you have had the same problems since surgery? I'm getting very frustrated because it seems it consume my life and I'm unable to do the things I have done before, even the everyday things.
jemangel
20 May 2015
See my answer to Kimmie about Calm Magnesium, your nutritionist should know about it too for bowel obstruct clients - it has saved my life!
Adding Fiber - aka a bulk one from retail - my G I told me last time is dangerous - b/c if people don't drink enough water - it becomes like cement and blocks the bowels - he sees this all the time in older patients.
joyce6412
27 May 2016
Wow, I just got out of the hospital with an obstruction. No surgery thought it subsided. But reading through all of the comments, I realize I had a big bowl of almonds and nuts the day before. I will stay away from nuts all together now. Just trying to figure out what to eat, I am so scared of that PAIN coming back again.
Nomoresurgeries
22 June 2016
I had not had a bowel obstruction for 40 years and then in the past 4 years I have had one a year. This last one was the worst. I knew I was in trouble when I went to bed, my stomach was hurting and bloated and then I started throwing up. Needless to say I went to ER and as they were putting in the ng tube I was throwing up. I had a bowel resection, appendix removed, scar tissue removed and part of my intestines removed. They opened me up 12 inches down the middle of my belly. I had that stupid tube for 6 days even after surgery. Spent 9 day's in there. I am so scared of another one. No one understands how scary this is. So glad there are others out there who know how this feels. I am going to stay away from all seeds, nuts and fiber.
Florencebarker
27 Sep 2016
I just got out of the hospital today with a small bowel obstruction , this makes my third this year, 2 prior years. I have had 2 C-sections ,histerectomy and gallbladder removed along with a spot on small intestine surgery over the past 30yrs. The reason I give you this history on me is because I am scared of what will come next. I have never reached out to see if there were others like me out there and as I read your testimonies I am brought to tears. Is there any advice or direction you can go be me.
ramberme
2 June 2017
I have a very similar condition, and sympathize with everyone in the same situation. There was a point where I was either in the ER or the hospital every month or two. At last the episode was so dire that they had to go in and do an emergency lysis of adhesions.(Breaking up the scar tissue surgically). I have been warned, however, that the obstructions are likely to recur. I evidently had worse than average scar tissue when they finally went in - the surgery took five and a half hours to complete. Things have been going relatively well once I recovered from the surgery.
As far as prevention goes, I found that high fiber was the worst thing I could do, so I can't say I recommend it. Low fiber, soft food (soups and that sort of thing) worked better for me. Also, avoid constipation at all costs. Miralax or the generic equivalent was recommended by my gi doctor, and I found taking it daily kept things moving. Lots of fluids and frequent very small meals help as well.
Best of luck to you - it is a miserable condition. It helps me not to think too much about it unless I am having the pain right at that moment, and there is no choice other than to pay attention to it - that way, the condition does not steal away
the good and relatively pain free days of my life!
Emel 55
26 Dec 2017
I had a hysterectomy and had surgery for a small intestine blockage because the scar from the first surgery twisted around my small intestine. Then after that I had two blockage and yes that NG tube is no joke this time they didn't have to put one in because I vomited so much there was nothing else there. Does anyone have any idea of what to eat?
asrhodes1
16 March 2014
For those indicating fiber to prevent bowel obstruction. PLEASE do some research 1st & know what the obstructions are related to. Bowel adhesions cause twisting & displacement of the bowel, Even very tortuous colons cause a slowing of the movement of particles & more time for water to be reabsorbed back into body. Imagine taking a water hose & twisting it & kinking it. Now pour in fiber then add water you now have yourself a huge ball of fiber that is rapidly growing because it cannot pass forward. I have been dealing with adhesions since 19yrs of age. I had no prior surgeries, but the pain came in waves like labor pains & it did intensify during menstration. No Dr. believed me & I would not even consider a colonoscopy, I tried seeing gynecologist but because I was not pregnant none of our Dr's were taking new patients.
Finally at 21 after moving to Texas & several trips to ER & getting a gynecologist on board, thinking it was gynecologically related, he did laparoscopic surgery & found a few small cyst on ovaries, mild endometriosis & per Dr. "her colon was twisted & grown around the back side of her pelvis so I cut it lose & put it back in place". Skip forward 23 years I have had 2 C-sections (no regrets there, saved my babies lives) 4 separate surgeries for what I thought was gynecologically related pain because they would identify cyst or fibroid tumors & each time per the Dr "oh & her colon was twisted all around & grown up over her pelvis so I cut it lose & stapled it all back in place". After each surgery I was tremendously better for a few years, then came 2011. I awoke with what felt like the worst labor like pains ever, I was not pregnant, I had a previous hysterectomy. Went to the ER & a subsequent colonoscopy was attempted. They could not even complete the full colonoscopy because they could not get through, even after using a pediatric scope. The GI Dr said it was the worst colon he had seen in his 20yrs. Yes diverticulitis but remember it is thought to be caused from increased pressure from constipation, adhesions & twisting of the colon cause increased pressures (remember the water hose kinked off, water pressure increases with smaller opening). Gi doc took out 13 inches if my colon, lab studies indicated I had had two previous bowel perforations that had healed on there own. Gi doc asked if I knew what pain was, yes I know pain & if I ever say im in pain, you better listen... Flash forward 2.5 years later, I live in CHRONIC ACUTE like pain, GI doc said it was impossible he fixed it. If I knew then what I knew now. Yes he cut out the severely diseased portion of the colon but what makes him think that he did something that the other dr's have been doing over & over with each surgery. For those reading this & saying thats why you shouldn't have surgery it causes adhesions REMEMBER I had NEVER had surgery when the 1st Dr. Peeked in & found what looked like a pile of spaghetti... I have no answers but small meals, I can do lettuce, greens, cabbage, broccoli, but NO carrots or apples or other high fiber fruits & vegetables & I live off mag citrate till another bowel perforation & despite the pain I get up & go to work EVERY DAY! I get up & move everyday, I have figured im going to hurt but the less I move, the less it moves, so I move, slowly but I move, I cant whip out my house cleaning in a day, it takes me 3, I cant scour through my flower beds & clean & plant them all in a weekend, it takes me 3, but I move. I will NOT lie down & quit!
kris-hag
17 March 2014
I admire your courage and can definitely relate. Although my issues are slightly different (my problem is in the small bowel and not the colon and were not caused by adhesions or no reason... like you... but by damage from radiation treatments after having a tumor removed from my lower spine). The pain is the same and I have found that fiber is an issue with me as is raw fruit or vegetables, meat (mostly beef), and too many nuts or whole grains. You are right about the description of adding fiber to a twisted bowel. In my case, the small bowel will twist for any number of reasons... even stress. Once that happens, nothing can pass through until it relaxes. Fiber only adds insult to injury for me. As soon as I feel even a twinge of anything adverse happening in my gut, I stop eating and drinking until the discomfort passes. I have been able to prevent many episodes that way. And exercise is great.
I am a nurse and can tell you that that is the main reason we move patients within hours of having surgery because if we don't, the patient runs the risk of developing pneumonia and/or bowel obstructions. We were made to move and if we don't, our insides don't move as well either. Your letter keeps my hopes up. Thank you!
asrhodes1
18 March 2014
Yes I also am a RN, nursing for 24 years. I know to move & never quit moving, walking stretching & abdominal massage & manipulation. A colon damaged by radiation is just as bad, it doesn't move either & is JUST as painful & results in the same problems & pain. I admire you, radiation & then damage caused from the radiation... just keep moving & smile through the pain it releases endorphins
Wilma Andino
2 April 2016
Why is the tube so important if I threwup everything that was on my stomach?
cleo130
26 Aug 2016
Your situation is unimaginable - you are a very strong person and I admire your determination. I have diverticulitis frequently and a tortuous colon. I had major surgery last August and have to go next month for an extension of the rod. I had 2 falls after the first surgery and the disc below the rod is fractured, Between the gastro issues and the back pain it's hard to breathe sometimes! I work a full time job and am determined to heal stronger this time. Best of luck to everyone... Beth
kimmiegirl
19 Feb 2014
I understand what you are going through because I am currently going through it myself. This is my 7th obstruction. I will NEVER get used to the NG tube, but my thinking is always without it I'm in pain. I have asked doctors what I can do to prevent future occurrences and to tell you the truth, I get mixed answers. Some say more fiber, some say less fiber.
I gotta tell you this disease is so frustrating, cruel, unpredictable and relentless. The actions I plan on taking are becoming more educated about what food I put in my system. No more greasy, fatty hard to digest foods, also no hardcore raw veggies and fruits as this can cause a blockage. Drinks lots of water and personally I'm thinking of speaking with a nutritionist.
I am learning just like you and I pray that both of us don't have to feel this pain anytime soon. You are not alone.
I how this helped to some extent
kris-hag
20 Feb 2014
You are soooo right about educating yourself. Here are some things I have learned... listen to your body! This has been very helpful to me. As soon as I feel even so much as a twinge of something, I stop eating until it goes away. I have been able to avoid many a problem by doing that. Also, I portion out my meal according to recommendations. In other words, I give myself only a 1/2 cup of cooked vegetables (which is what the serving size should be) and the meat portion is slightly less than the size of a deck of cards. By eating slowly and eating in smaller portions, my stomach doesn't get as full and digestion is much more effective and adequate. I eat only when I am hungry and stop when I am no longer hungry (which is before I feel full). Sometimes that means that a meal time may go by and I just don't eat. My husband will eat dinner alone when that happens. He understands and it works out just fine. Also, drink a large glass of water before your meal.
We are still able to eat out but because restaurants are notorious for large serving sizes, I portion off on my plate what I will eat and ask for a doggie bag to take the rest home. And, if I am feeling any stress at all, I won't eat. My nutritionist told me that when you are stressed, your body is in a "flight or fight" mode. When this happens, the hormones released shut your stomach down so that all the energy goes into protecting you by fighting or fleeing a situation. She told me that this is just the way we are wired. It just makes so much sense too. I have found that relaxation tapes help a lot. I have also made up my mind that life has handed me some lemons and I will either let them sit on the counter and rot or make lemonade with them. I have chosen the latter. I know that this will be forever and the only thing that can make this tolerable is changing my attitude towards this (besides the other things I have mentioned above). But, attitude can make or break even the best remedies. And, one thing I have learned about doctors is that many just don't know what to do for this which is why you get conflicting messages. They just don't know. I am a registered nurse and have worked with doctors for over 40 years in my profession. When they don't know something, many are just not able to tell you that. Instead, they tell you only what they think whether it is right or not. I think going to a nutritionist is a good decision because doctors don't know anything about dietary issues (which is why they leave this to dieticians, etc.). My nutritionist helped me immensely. She started by saying that there was probably more that I could eat than I was allowing myself and what was needed was to help my digestion. We started with an elimination protocol to find out if I had a sensitivity to corn, wheat, or dairy because a sensitivity would increase inflammation in your body. I found that corn was my problem; so I do my best to avoid it. That means reading labels all the time because corn is in everything and is sneaky because it comes in many names (maltodextrin, dexitrin, sorbitol, corn syrup, corn starch, xanthum gum, etc.). I take plant-based enzymes with any meals that contain meat. I take a tablespoon of apple cider vinegar with each meal. There is also a powdered product called "Inflammacore" that I can mix with milk that contains a lot of herbs and things that can help aid the gut and I do this every couple of days or so. All of this has been very helpful. Right now, I am going on 2 months since my last episode which is the longest I have gone in a long, long time. I know that it is due to all that I have learned and shared with you. I also know that this doesn't mean that I am cured and that I will never have another episode again. The way I see this is that each time I do have an episode, I examine what happened beforehand and try to learn something from it. These are the things I have learned. I know that I will continue to learn more going forward and each time, it will get better as a result. I hope this has helped you and I wish you the best.
2216JGM
21 Feb 2014
This may really help you!!
I have had 2 surgeries to correct bowl obstructions, and been admitted on 2-3 other occasions for obstructions which were resolved by NG tube.
Before my last surgery, I had frequent obstructions for 2-3 years which I “managed” by suffering through them until resolved as I knew they were not severe enough to require hospitalization. I knew adhesions were present.
Like everyone reading this, I had done research and really wanted to find a way to reduce the amount & severity of the obstructions.
During a conversation with the surgeon post-op, I again asked the age-old question: what can I do to help? She told me a very simple story about a common event: patients being admitted with a bowl obstruction hours after eating a lot of corn and/or broccoli.
The reason for their obstruction? Simple: a “mass” of undigested corn or broccoli hitting an area of the bowl that was somewhat restricted.
The moment I heard that, I completely changed my eating habit. Until then (and I was 60 at the time), I had always, by nature, “bolted” my food. i.e. ate it very quickly, not chewing it very much
Beginning with supper that night, and eating everything since, I have made a 180 degree turn, now chew everything as much as possible. It is like “night and day” in that I have been almost bowl-obstruction-free for a year. I am even starting to eat larger meals due to the added confidence I have in my digestive tract not “playing me up”! To underscore this: I even chew oatmeal as much as possible, all to help ensure that when the food enters my small bowl, it is as smooth as possible. (I have continued to eat a high fibre diet because it is the healthy thing to do, even though I am told by the literature I shouldn’t.) I often take 30 minutes to finish a very average-sized meal at supper time, all due to the amount of chewing I do.
I firmly believe that this one simple change has made a world of difference.
So “chew-chew-chew” and hopefully your life will improve dramatically as well. There is a massive benefit to “chewing like a cow to shit like a cow”. (Sorry, couldn’t resist; but you know what I am trying to say!)
Best of luck to you!
2216JGM
21 Feb 2014
I neglected to say something very important in my 1st post which is:
Keep your stool as soft as you can. Chewing a lot will really help, but by ensuring soft stool, it will also help avoid obstructions. So eat the right things to accomplish this. My intake most every day is:
Breakfast: Always fresh (or tinned) fruit, with some prunes + oatmeal/serial
Lunch: eat an apple after lunch, and an orange for a snack if necessary before supper.
Supper: Whatever, but no large amounts of meat, and don’t swallow anything that will be a lump (e.g. gristle)
Evening snack: nuts, dates & figs (not too many dates & figs otherwise you get gas!)
This approach seems to help as I always have stuff in my system to help maintain a soft stool.
I envision my bowls like being a river that has to suddenly accommodate a lot more water after very heavy rain. (i.e. digesting food after a meal) Large trees floating down-river can results in a log-jam and cause major problems, just like large clumps of food in your intestines. Keep all the trees and debris out of the river and it can do its job just fine, just as I try and ensure my bowls flow freely.
I hope this helps.
Mel
kris-hag
21 Feb 2014
I take MiraLax everyday to keep the stools soft because more fiber actually makes things worse for me. Also, I saw that you had surgery to help with adhesions. I did too but, it turns out, that was not what was causing my problem. I had extensive testing done at the Mayo Clinic in Rochester, MN and found that my blockages were caused by radiation enteritis (which does not have a treatment). I had a large tumor removed from my lower spine 10 years ago followed by 6 weeks of high-dose radiation. Surgery is not an option for me because the small bowel is weakened by the radiation and will never heal properly after any surgery to them. My condition is permanent. But, as I said before, I have learned how to manage it. You are right about chewing thoroughly and I do that too. Also, I do not swallow any gristle at all... as a matter of fact, I really limit eating any beef for that reason. It's OK because I was never a fond lover of steak anyways... I prefer fish and seafood. :)
jemangel
20 May 2015
Hey Kimmie - you are right about the NG Tube - bleeak!
FYI - to ANYONE in the hospital facing that awfulness - ask your Dr FIRST for magnesium in your IV.
Take the pain killers for awhile and see if the magnesium will kick in - thus avoiding the need for the nasal invasion! :)
*** FYI for anyone dealing with this issue re-currently - you must buy Calm Magnesium and take it every other day - it has worked beautifully for me and clients I know. You can find it on PureFormulas with no shipping fee and several other vit sites have no shipping as well, and cost less than retail.
Heinzstenz
19 March 2017
Would you please explain why you take magnesium. I've had over 35 small bowel obstructions over the last 10 years due to excessive scar tissue and adhesions. Every day I live in fear and have lost the ability to sleep adequately at night because of anxiety over the anticipation of the next SBO event. My last hospitalization was recent and out of state so my insurance wouldn't cover it. I feel as though I should just sit in a room and drink water because any exercise, pushing or pulling seems to aggravate my intestines. I'm about ready to give up.
Margaretandalan
8 Oct 2017
Hi how long does it take on a NG tube to work on a kinked bowel obstruction. Without surgery.
lherms22
26 Jan 2014
It has been a while since you posted, and I hope you're doing well! I am 36, and just recently went through a major bowel obstruction (my first), emergency surgery, and a lengthy stay in the hospital. I concur that this is definitely the most painful thing I have ever been through. My surgeon was wonderful, and spent tons of time with me, discussing everything. He also told me there really isn't much you can do to "prevent" this from happening, and that with every surgery, your chances of re-obstructing are that much greater. He said extra fiber, fruits, etc. are encouraged, but the way your insides move around, there's no way of knowing what can happen. One thing he did say, that was surprising to me, and my parents (one who has diverticulitis, and the other who had colon cancer after years of ulcerative colitis), is that there is no truth, in his medical opinion, to seeds, nuts, etc. having a negative effect on your organs.
He said he has been studying this for many years, and has never seen, in ANY of his surgeries, nuts or seeds locked in the colon or pockets. Again, this is just his view, but interesting none the less. Anyhow, I am currently sitting at a 60% chance of re-obstructing, and have been told if it is to happen, it will happen sooner rather than later. He said there is no scientific reasoning behind why it is this way, but obstructions tend to happen one after the next, and usually within a year of each other, and the longer time passes, the percentages tend to drop.
I did ask if kickboxing (or any other physical activities of that sort) can be a problem, since my obstruction happened 2 days after I started classes. He replied that, unfortunately, he couldn't answer that with a yes or no. I guess I can say I'm grateful to know how it feels, and what to expect, although it's scary to think of it happening again! I don't have much advice, but thought I'd share with you my experience, and what was told to me.
Again, I hope you've been well, and haven't had to go through it again. I know after multiple surgeries, you can get to a point where obstructions are unavoidable, and only therapy can help. Let's hope it never gets to that point!
Best wishes to you!
Lindsay
kris-hag
26 Jan 2014
From your comment, I am understanding that your obstruction occurred in the colon. This is different from what many of us are talking about. Yours would be a large bowel obstruction and, yes, seeds and nuts and extra fiber would be beneficial. But, I am suffering from a small bowel obstruction which is higher up in the digestive tract. Fiber, nuts and seeds can actually work against me and increase the chances for another obstruction. The canals are smaller and since this is where we absorb our nutrients from the foods we eat, this is where we can get into trouble if digestion in the stomach has been interfered with in any way. The small bowel can get twisted and when that happens, nothing can move and the pain is incredible as the digestive tract continues to try to push everything through. All we can do is either pray that we throw up thereby relieving the pressure behind the obstruction or hope that the small bowel relaxes thus allowing the contents to finally move ahead again.
Otherwise, I go to the emergency room and need to have a NG tube inserted to help relieve the pressure. Surgery doesn't help this condition especially in my case because my small bowel problems are a result of radiation treatments for a tumor I had on my lower spine. An irradiated bowel heals much more slowly than a normal bowel and, in some cases, may fail to heal at all. I cannot ever have surgery for this.
lherms22
15 April 2014
No Kris, my obstruction was scar tissue that had tied a knot around my small intestines - not colon related.
kris-hag
16 April 2014
At first that is what they thought mine was too until after I had an endoscopy which revealed that my scar tissue is in the lining of my small intestine (from the radiation treatments I'd had). So, it's this scar tissue that trips me up because motility is affected. If the intestine twists even a little, I'm in trouble. Because my motility will never be normal, I need to concentrate on helping my digestion so that food passes smoothly. Fibrous materials can only add to my misery. I would think that in your case, fiber could be beneficial. But, go easy on it until you're sure. Good hearing from you. Always helpful to find others with the same issues because, I feel all alone with this most of the time. Thanks for writing!
happyhaus
10 Sep 2017
Hope you read in these postings that fiber, raw fruits and veggies are NOT encouraged with this problem, in spite of what your surgeon said. Docs said I could eat anything but my experience does not bear that out. I got my 4th SBO following eating a bag of raw veggies.
Llandress
25 Dec 2013
Janice, look into massage theropist in your area that specialize in or know the technic called Visceral Manipulation. Eating right & diet are important, but after so many surgeries, I would say, you def have built up scar tissue in your abdominal area. Scar tissue grows and can wrap itself around your intestines causing an obstruction. It's a double edged sword; surgery is what fixes obstructions, (some) obstructions are caused by scar tissue from surgeries. Visceral manipulation is a technic done by experienced theropist that massage the abdominal area breaking up &/or releasing scar tissue. I have had 2 bowel obstruction & were also told there is nothing I can do to prevent it. However, I believe in this greatly!!! Also take supplements &/or eat foods that are natural anti-inflammatories. Blessings!
cashew12
27 Dec 2013
Just today, I've learned the term 'visceral manipulation' and it does sounds hopeful. I'm in the process of trying to find someone experienced and certified. Where do you live and how did you find a therapist?
cashew12
27 Dec 2013
forgot to check the box requesting an email if my question gets answered…thanks!
Llandress
27 Dec 2013
We live in Twentynine Palms, CA. :/ And I am just so fortunate to have found my last 2 gals by word of mouth. We are military and move often and I dread the day I have to find a new gal. I would start by searching on Yelp or some kind of search engine with reviews and look and see what reviews say. Then call and ask if any therapist practice that technic. Don't be fooled by therapist that say they "can" do it or "look into it" (I have had that happen before), they need to know what they are really doing. Or call around to Physical Therapy offices and ask if they know of anyone in the area. Wish I could be of more help. Good luck!
kris-hag
31 Dec 2013
I also tried visceral manipulation. Whereas I believe it had some therapeutic benefits, it didn't totally solve my issues. But, it is worth investigating.
Llandress
31 Dec 2013
Kris, have you had a bowel obstruction previous to your visceral manipulation treatments & have you had an obstruction since? I'm just curious.
kris-hag
1 Jan 2014
I had them both before and after. In any event, they didn't help me. The only thing that has helped me is a strict adherence to my diet (low fiber, small portions of meat, taking enzymes with a meal that has meat, a tablespoon of apple cider vinegar with each meal, eliminating all corn since I have discovered that it increases inflammation in my body, eating only when I am hungry and keeping my meals small, drinkining lots of water before each meal). Also, if I am coming down with a cold or have had a flu shot or something that sets my immunity system on high alert, I watch very carefully as this may set me up for an obstruction. Also, stress can be a factor as well.
Gemco309
11 Jan 2014
I have had four bowel obstructions averaging one every six months. I know these are miserable and effect life style--I have to be sure there are good hospitals in the area I travel to and don't go out of the country. I went to an acupuncturist for another condition. I had a discussion with him while I was sitting through the needles about my intestional blockages. I had noticed that my mouth no longer had a mucous lining. He gave me a Chinese herb tincture Stomach Energy. In three months I started developing a mucous lining in my mouth and I have not had an intestional blockage for a year. I do not know if the tinture has helped but I reason that if my mouth had lost the mucous lining so had the rest of my intestional tract. Therefore when I had a kink or twist in my colon the mucous lining allowed food to slide through where before it would have gotten stuck. If you have not lost the mucous lining in your mouth I do not know if this tinture would help!
I am like all of you searching for something to help this condition, since it is so miserable and can happen anytime or any where.
I will see if I remain intestional obstructin clear and if so report again.
Does anyone know what the name of this
condition is? I know this Chinese tincture sounds weird!
kris-hag
11 Jan 2014
My condition is called radiation eteritis because mine was caused by the radiation treatments I had had. The Mayo Clinic gave me this diagnosis after extensive testing.
vickilacop
11 Oct 2015
I have had 9 bowel obstructions since January of this year. They finally did surgery to remove scar tissue and a month later another bowel obstruction the doctor told me this just might be happening for the rest of my life. This is crazy. They have to do something.
KEKENONO
10 Dec 2013
I had an small bowel obstruction March 2011 and I can definitely relate to how you feel.I've learned that foods high in fiber are horrible for me also fried foods, raw veggies and dairy products.A bland diet seems to be the only answer. I've also noticed that my stomach seems to vary day to day. I learned to keep a Diary and document what bothers my stomach and what soothes it and that has really worked for me.I hope this has or will help you!
kris-hag
4 Sep 2013
I have been suffering from these for 5 years. After extensive testing at the Mayo Clinic, I discovered the reason for these is due to the high-dose radiation treatments I was required to undergo for treatment of a low-grade sarcoma near my lower spine 8 years ago. Inflammation set in followed by scar tissue. My gut will never fully recover from this. I have been trying to live with this as best I can. You are right... these are very painful and a couple of mine have landed me in the hospital. Surgery will never be an option for me. My suggestions to you would be to see a nutritionist and work with him/her on dietary changes. Low fiber is the way to go as high fiber will only add bulk which will increase your chances of a small bowel obstruction. The person who suggested high fiber is going on the premise that fiber helps to prevent constipation which is not your problem. Since I limit my fiber intake, I take MiraLAX everyday to help prevent getting constipated.
This product pulls fluid from your bowel to aid in the passage of feces. Avoid products like Metamucil which only adds bulk to your gut. Also avoid laxatives as these are harsh and can lead to dependency. Probiotics are great but be sure to get the good kind (mine need refrigeration). They can be a little spendy but I think they are worth it. And drink lots and lots of water... more than the average person... especially with meals. Eat smaller meals and chew all food completely. I take enzyme tablets with a meal that has meat because meat is very hard to digest. Also, try to limit fats since they are equally hard to digest. Avoid eating when feeling stressed as my nutritionist told me that your gut shuts down when you are stressed. Try relaxation tapes and meditation. Do not eat raw fruits or vegetables and avoid caffeine. I found out from my nutritionist that some foods can actually increase inflammation in the body (especially the gut). From doing an elimination diet, I found out that I have a sensitivity to corn and corn products. I have found that I need to read all food labels carefully since corn, corn starch, and corn syrup are in so many processed foods. Eliminating corn from my diet has helped to decrease the frequency and intensity of the episodes. I also lost a little weight too by eliminating corn syrup from my diet. Since you may never be able to eliminate the possibility of small bowel obstructions forever, you can try to get some control over this. At the first sign of not feeling quite right in the gut, especially after a meal (I have learned to be ultra sensitive for this first symptom), I stop eating and drinking except for small amounts of clear, warm fluids (i.e., decaffeinated tea). Sometimes having a heating pad on my belly can help to not only ease the cramping but can help to relax my gut enough to get it untwisted (which can take a few hours). The most important thing is to accept it and your friends and family can help support you with this. By accepting your condition, you become like a person with diabetes who needs to learn to control the condition rather than fight it. Better control leads to a much happier outcome.
vbidwell0921
8 May 2016
Something I found very helpful is using anti-spasmodic such as Levsin. My gastro prescribed them and at the first sign of small bowel distress take one. It relaxes the bowel and if the partial obstruction is caused by a 'kink' it will hopefully go away. Just a suggestion, works for me. Good luck to everyone who suffers with this.
Glamourgirl
21 June 2013
I'm overwhelmed by all the helpful information given by everyone, plus a little scared. I'm sitting in the hospital right now; anticipating probable surgery tomorrow, for my 2nd intestinal blockage. I had my first (which nearly cost me my life), in March of 2012.
I'm very healthy, I exercise, and eat all the "right foods"--- salads, raw veggies, almonds, fruits, etc... Did I say "right foods?", apparently not. I even stopped eating meat 7 months ago.
The first time I found out (after the surgery more than a year ago), that I was more prone to another blockage, was yesterday in the ER.
So after my surgery, I'm worried this may all happen again. The only thing I'm grateful for this time, is no NG tube. I've been threatened with it but have been able to keep them from giving it to me.
I plan on taking all this advice.
Anything else that may be helpful is most appreciated. So our your prayers.
Laurie
janicewid
21 June 2013
Dear Laurie...
I'm sorry to hear that you're in the hospital with possible surgery... I wish I could give you some sound advice but I'm clueless... the one question I have for you is... how did you avoid the ng tube? I tried everything to avoid it but lost that battle. .. what's your secret? Pls share!
Good luck. Let us know what happens. Thinking of you!
Janice
marzenka1968
21 June 2013
Glamour girl,sorry to hear that.i had 8 surgeries together,just back from Germany they do best job on adhesions if this is caused by adhesions than this is the right place for help.If you interested I can provide you let me know but I can give you doctors email when you provide me your own email due to privacy.Good luck with your surgery.Marzena
Glamourgirl
23 June 2013
Hi friends! Well the whole thing about avoiding the NG tube was stated too early. I was admitted to the hospital on Wed morning 6/19/13; my surgeon suggested I try the clear liquid diet and walk on thurs, to see if that might open the blockage up. Long story short, by the end of the day I was on my hospital room floor writhing in extreme pain and vomiting. I actually asked them to put the NG tube in to stop the agony. I've had it in since then and as uncomfortable as it is, it helps. Just got the injection in the stomach, and waiting for something to help me sleep. I'm having surgery tomorrow. I hope and pray this will be it. I can't go through this agony again. As I indulge in these ice chips rubbing the burning from the stomach injection; I know I have to do what ever research I can, on diet and lifestyle to prevent further problems.
Thank You for your kind words and thoughts. Will keep you posted.
Laurie
Gail11
18 Nov 2013
Here is some encouraging news. I had 4 obstructions, the last one about 4 years ago!! They started after surgery from accumulated scar surgery (hysterectomy, gall bladder, appendectomy several years before). Anyone who tells you to eat lots of fiber should be shot! They can't be talking from experience. Bowel obstructions hurt A LOT. . . and most of the time you get the dreaded NG tube and hospitalization. However, your intestines are always in motion, moving and squeezing food along the line, so any twists or turns in the bowel may loosen up a bit. Any narrow areas from adhesions will not get wider. Low fiber, small frequent meals, avoid seeds and roughage. Drink OJ instead of eating an orange, eat applesauce instead of an apple. Lots of water, lots of chewing. I wish everyone on this website the best of luck and I'm knocking on wood that I don't get another 'attack'. Use common sense a lot. Good luck.
stevanzmaj
18 Jan 2014
Hey how r u? This answer is a bit late unfortunately but if you ever get to read this again there are few things you can do so don't despair. I had been having so many episodes of bowel obstructions in the past until I started taking regular accupuncture and moxibustion treatments. I changed my diet which wasn't too hard for me being that I had already been a vegetarian. Liquid diet such as juicing is preferred as well as staying away from inflammatory foods. Staying active, doing sports, and working out is also a good way to keep your bowels working however it is diet that plays a major role. Another technique and treatment you can look into is called a clear passage therapy where they use massage to get rid of those adhesions and they teach you how to do it yourself to prevent any recurrences. Hope this helps, I pray for you because i know that awful and helpless feeling of experiencing that nasty episode. All the best and let me know if I can help you anyhow.
Marko
stevanzmaj
18 Jan 2014
Hey how r u? This answer is a bit late unfortunately but if you ever get to read this again there are few things you can do so don't despair. I had been having so many episodes of bowel obstructions in the past until I started taking regular accupuncture and moxibustion treatments. I changed my diet which wasn't too hard for me being that I had already been a vegetarian. Liquid diet such as juicing is preferred as well as staying away from inflammatory foods. Staying active, doing sports, and working out is also a good way to keep your bowels working however it is diet that plays a major role. Another technique and treatment you can look into is called a clear passage therapy where they use massage to get rid of those adhesions and they teach you how to do it yourself to prevent any recurrences. Hope this helps, I pray for you because i know that awful and helpless feeling of experiencing that nasty episode. All the best and let me know if I can help you anyhow.
Marko
marzenka1968
6 April 2013
I had similar problems but caused by adhesions scar tissue,I coudnt eat for 2 months only liquids.The Doctor in Germany helped me alot.If you interested write me and you can avoid bowel resection.This doctor is amazing and he can answer all your questions.
Marzena.
handlher
29 May 2013
Marzena, what did the doctor recommend? I've had 3 SBO's and am meeting with a dietician today. My surgeon, like many others, says there is no evidence that diet impacts SBO's. The online communities and the discharge paperwork all say low fiber, no nuts/seeds/skins, etc. It's terrible living in fear of another obstruction. Today I'm doing jamba juice fruit and vegetable smoothies and am thinking about buying a vitamix. I'm unclear whether the fiber would be broken down enough to be safe. Thank you for sharing.
marzenka1968
29 May 2013
Hi handlher you can ask doctor but first can you give me your personal email than I can send you doctor email. It is by privacy issue. Thanks, Marzena
BeckyCrown
21 June 2013
Hi - I would love to know more about your success treating your obstructions. I have 8 SBO from adhesions due to abdominal adhesions and radiation. Thanks!
Becky
Jojo b
28 Aug 2013
Hi - I am interested in hearing about avoiding the obstruction.
Thank you
BasilJZ
28 Sep 2013
Hello Marzena,
I just had my 3rd sbo last month. The second one resulted in middle-of-the-night surgery (added to the existing adhesions). I would be curious to know more about this Dr. in Germany. I'm new to this site and would like to know how do I go about sending you my personal email?
Thank you,
BasilJZ
sharonbodeen
2 April 2014
Marzena, I am interested in learning more from your Doctor in Germany.
I have been having intermittent small bowel obstructions for 17 years. I have lost track of the number of hospitalizations.
pbpb2005
14 April 2014
Hi Marzena,
I had my first sbo two weeks ago. I am interested in how I can avoid future bowel resection. Thank you.
marzenka1968
14 April 2014
I am trying to email you but email is invalid. Please send me valid email address. Thanks, Marzena :)
cmpokey
23 July 2014
Hi Marzena would you send me the doctor's name. I have had 2 pbo in last 7 months. thanks.
kimmiegirl
6 Sep 2014
Hi Marzena,
I have had small bowel obstructions since I was 9 years old. I have had 4 surgeries and the NG tube is one of the worst experiences that just goes along with this. I hate it! I've consulted GI docs and nutritionists. They have told me to avoid fruits and veggies. I don't want to cut veggies out of my diet completely.
Could you please email me the information about your doctor? Would really like to get some help in this matter.
I am 37 years old and my last hospital stay was 6 months ago where i had two infections from the surgy which kept me in there for one month. Then I had another partial sbo couple weeks ago. This is so difficult mentally and physically.
Please help! Any cutting edge information would be great to further explore. Thanks so much!
cormari
18 Sep 2014
Hi Marzena,
Pls. send me the name doctor in Germany who helped you with bowel obstructions. I have had 6 partial bowel obstructions in 8 months due to 2 cancer surgeries in my abdominal area. Doctors know for sure that it is caused by adhesions and not tumors. Blessings!
Deni66
27 Nov 2014
Hi. My son is on his third bowel obstruction and is only 16. I need to help him avoid them. Do you think the doctor in Germany could help him?
Yasmine123
6 March 2015
Hi Marzenka1968
Could I contact this doctor in Germany
How do I c ontact him or her
Thanks
Yasmine123
6 March 2015
What is the name of the German doctor
Nowaytolive
18 March 2015
Has anyone else talked with this Dr in Germany? I hag a ruptured appendix, that was miss diagnosed for 3 months, until I became septic, sense then I have had 4 lysis of adhesions. The last surgery 2/2. Since the JP drain was pulled I have been unable eat, the pain is different and higher than where the orginal pain was. I have been out of work for all this time, I can feel food trying to go through, causing the pain. I had ask for a dietary consult... I found better info on line for a low residue diet... to find I have been eating the wrong foods(what little I was eating). I have tried acupuncture, without any noticeable help... I am thinking that there hsd to be something to stop the afhesions from forming, I just can't believe that there is no help for all of us and anyone who has abdominal surgery... has anyone tried message therapy?
beckysp8
24 April 2015
Marenza,
My name is Becky and I have been thru 10 small bowel obstructions in the last year and am searching for answers. Please contact me about this Dr. and his answers!
Katiekatie100
6 May 2015
Hi Mazena,
My son has had 3 surgeries and the last one he was in the hospital for 6 weeks. Recently he had a partial blockage and fortunately it resolved itself. I would like to know the doctor's name in Germany also.
Katiekatie 100
positively1
29 Aug 2015
Hi Marzena
I have had 3 bowel obstructions within 6 months. The doctor said if again I have an obstruction I will then need to have a bowel resection. Could you please give me some details of the doctor in Germany as I'm desperate. Thanks.
karmistead
3 April 2016
I would like the contact information for this doctor in Germany. We want to hear any alternative ideas or solutions for Intestinal blockages. My husband suffers from intestinal blockage periodically due to damage from radiation from cancer treatments and from cancer damage to his intestines. We've done everything already mentioned about diet, low fiber, etc,. It's just that in the aggregate, the food has collected and for whatever reason, this obstruction has continued to occur. I'm thinking of getting him to my acupuncturist to improve digestion/circulation, and I'm also trying to get him to drink more water and start yoga. I can't think of any thing else other than reducing his food portion sizes again. He is now 60 and this is extremely stressful on his body and mind. I look forward to hearing from you. Thank you in advance for your help and advice. -K
Mj88
8 June 2016
Hi marzenka1968 I am also suffering daily -this is a terrible quality of life-
I was wondering if I can have the doctors email?
Jules99
12 June 2016
Marzena I would love to know the name of the Doctor in Germany. I'm struggling to eat anything that's not liquid or baby food - I am a nutritionist and have a lot of experience with special diets but these bowel obstructions are the worst. I joined this site hoping to learn from others. Thank you!
GaleD
27 July 2016
Hi Marzena, I know this is 3 years old but in the last two years I have had 5 to 6 obstructions from scar tissue and would love or know how your doctor helped you!
Shanna 39
2 Nov 2016
Marzena, I see your comment is from years ago,but am writing because I'm desperate I would love to hear advise from your doctor in Germany. I am in the hospital with an obstruction again for the fifth time (3rd time in six months) and it has been awfully painful. It is so terrible to be in the hospital away from family for so long. I have three kids and they miss me so much. Any help I can get would be greatly appreciated, thank you! :)
Mollymachock
10 Nov 2016
I would like to be able to be in contact with this amazing doctor. Can you forward me his email or a way to be in contact with my questions. Thank you Molly
WilliamsStrong
19 March 2017
I'm interested in his information!
rztool
18 April 2017
Marzena can you please give me the information for the doctor in Germany. My sister has had so many obstructions and is desperate to seek
help. She has 5 kids and has suffered so much. Please help
tgbarber58
2 June 2017
I have just been cured of Hepatitis C, by Obama's ACA. That was January, February, and March. The entire time, the medication seemed to offer a sort of an enteric melt, like a functional laxative? But in the last three weeks, I've had four sbos. My problem is that I try to do it myself, and haven't once gone to the hospital for it. Last night it hit me again, knotted spinach and black-green, fine fiber when I finally got some success. Has anyone tried the Epsum salt/olive oil cleanse? I used diluted epsum all day, with pain through the roof. But I've had some success finally, after many enemas and the sipping of the salts. I wondered if I should do the olive oil now? I'm leaning that way, but haven't done them in a couple years. Scared!
hunt1946
12 Aug 2017
Marzena,
I am interested in the name of your doctor. This site says that you need to add me as a friend before I can email you. My husband has lots of bowel obstructions due to adhesions and I would love the name of your doctor.
Thanks!
MitchR
7 Sep 2017
Can you please let us all know what your German physician recommends. I doubt very much we would get answers if suddenly he had an influx of emails. Also lets us know that there is no hidden agenda to purchase another unknown product. Sorry but we've all had a horrific time and all looking for answers.
jpyerger
30 March 2013
I feel your pain. I am lying in a hospital bed right now with my eighth partial obstruction. It has only gotten more painful each time. The NG tube is like my most hated friend. I hate it, but I couldn't live without it, you know? Stay away from corns, seeds, skins, red meat, veggies and fiber. I tried a gastroparesis diet for a while and it really helped but your doctor is right, there is no rhyme or reason to obstructions and no real way to avoid them. I hope you are better now. My prayers to you.
Kiwiky
3 March 2017
I am now in hospital recovering from a laparoscopy of the bowel, the doctor released the adhesions that had been causing me pain for some time. I did have to make this visit planned when the bowel was dilated and Not completely strained.
4 hours surgery the doctor said he released several adhesions and a half twisted knot.
He can't guarantee I won't have any more problems in the future but I am hoping my risks are lowered, as no there was scar tissue created.
Before this I have been hospitalised 4 times. Managed to have 2 suguries firstly to release my obstruction which was caused by hernia mesh second time it was caused by scar tissue.
I dodged the knife 2 times and was kept in hospital for 5 days on pain killers and IV drip waited for bowel to release itself.
I constantly live in fear and afraid of travel when I may have another episode.
I am now trying to think about my diet, and have come to the conclusion super sized salads which I live on are not good for this problem, anything that causes the bowel to over work is not good.
Margaretandalan
9 Oct 2017
My husband has had kidney surgery and now has kink in his bowel. He is now on the tube etc down his stomach they say the bowel should kick in itself after a few days is gjis always the case. As I don't want him having another surgery .
Maljja60
20 Dec 2017
I just got discharged from 2nd episode of SBO within 6 months. Doc said "three strikes your out", meaning surgery if I have another episode within 6 months. Both times I had begun a diet and obstructed on day 3. I was eating only vegetables (a lot of them), salads, and fruits. I ate a pound of cooked green beans at 8 PM, went to bed and woke up obstructed. I was eating a lot of fiber also. Even though the doctor did not state so, I am sure it was the diet. I was told to avoid seeds, nuts, fiber, vegetables, etc. except in MODERATION. Doc told me to think of all the foods good for you and avoid them. I can have white bread, desserts without nuts, etc. I am also wary of eating a lot at a time now and taking it easy, trying to drink a lot of fluids. Picture your small bowel like a drain, too much undisolved food gets stuck.
Kayerful
19 May 2018
I am currently in the hospital with my third obstruction in 9 months. I have had several abdominal surgeries to include gastric bypass and gastric bypass repair. I have been told that surgery would not be “easy”. I just want to get some insight on how to prevent this from continuing. I absolutely hate the NG tube but can’t see a way around it! Any suggestions?
Kayerful
19 May 2018
I am currently in the hospital with my third obstruction in 9 months. I have had several abdominal surgeries to include gastric bypass and gastric bypass repair. I have been told that surgery would not be “easy”. I just want to get some insight on how to prevent this from continuing. I absolutely hate the NG tube but can’t see a way around it! Any suggestions?
MelissaS82
2 Oct 2012
Hi Janice- I had an lapeoscopic appendectomy in July 2009 and within two weeks experienced a small bowel obstruction resulting caused by adhesions resulting in a bowel ressection. The part of the bowel affected was necrotic and therefore needed to be removed (about 2ft). In order to determine the damage they initially explored my abdomen laproscopically but ended up having to open me with a midline incision. They chose to use a subcutaneous suture so the scar would be more aesthetically pleasing. A day after my discharge from the hospital I was readmitted with a wound infection. Since the subcutaneous suture was one continuous suture they had to remove it (while I was awake and without pain meds). This only created more scar
Tissue. I was put on a wound vac to help with the infection but was readmitted to the hospital within a week for C.diff. It took months to rid myself of the c.diffile. This month (Sept 2012) I went to the ER experiencing symptoms of yet another bowel obstruction. It was ruled as a partial obstruction and they inserted an NG tube to help eliminate what was being produced in my stomach. After 5 days of watchful waiting and no improvement they decided surgery was the best option. Again, they first tried to explore and treat laprascopically but unfortunately needed to re-enter with a new (cutting out my old scar) midline incision. They performed a Lysis of Adhesions and freed my bowel of the looping band of scar tissue that had obstructed my bowel. This time there was no need to remove any bowel. Staples were used this time and I was happy because they needed to treat part of my wound with silver nitrate because it wouldn't stop bleeding post operation. This time, because it was stapled instead of sutured subcutaneously, they were able to pop out about 7 staples and only treat the specific location needing the cauterizing. I would highly recommend staples to anyone because of this. I was told that my bowel obstructions have been caused by adhesions and that each surgery to repair the bowel and/or remove scar tissue will only result in the creation of more scar tissue. Unfortunately I'm just waiting until the next SBO strikes. I have done a lot of reading of scholarly articles on the topic and some indicate that the chances do recurrence increase with each subsequent SBO caused by adhesions (that result in surgery). The only non-invasive therapy that I can find literature on is the "Wurn Technique" which attempts to stretch adhesional bands and decrease the chances of recurrence as well as diminish pain associated with abdominal adhesions. I am only 29 years old and am very discouraged when I think about how many years of potential SBOs I have left. I am encouraged, however, that there is a Support group for us to discuss out experiences, treatments and findings. I wish you luck and hope that one of us will be able to find relief and share with others in this community.
janicewid
3 Oct 2012
Dear Melissa:
I am so sorry you are going through this too! I went through a period of depression because I have no idea when the next obstruction will occur. My surgeon told me that the only thing he could suggest would be a liquid diet for the rest of my life but that wouldn't be living life... so he said to just chew well! Please post if you find anything else. I've cut out eating raw fruits with skin... nuts and raw veggies. I hope to bring them back into my diet eventually... but until I calm down, I have to eat this way... and Chew, chew, chew, WELL!!!
Keep in touch!
Janice
cleo130
8 April 2013
Bless your heart, you have endured so much more than I have!!
My main reason for writing is that I purchased a juicer about a month ago and have been juicing about 4 to 5 days a week. I use kale, spinach, collard greens, celery, carrots, tomatoes, cucumbers, kiwis (when I can get them), apples, pears and occasionally strawberries or blueberries. I would like to add some other things eventually. The juice ends up very green with a pleasant taste. I really enjoy it, and I do feel much better since I've been doing it. I think it might be a terrific way to get the fruits and veggies we need in a much easier to digest form.
I have Fibro, IBS, Interstitial Cystitis. Degenerative Disc Disease, Arthritis, Osteoporosis, etc. I developed a pain in my stomach mainly to the left of my belly button, but the pain travels at times. I saw my internist, who basically dismissed the pain with "it's probably constipation". He refused to do any tests at all. Needless to say I am looking for a new Primary doc. I did everything I knew to "clean" myself out, including the Magnesium Citrate in the bottle, and I did that several times.
After a week the pain was still there, so I called my former Gastroenterologist and found out that he is a provider for my insurance, and scheduled an appt. I called back the next day and they said I should go to the ER. I went and was seen after waiting about 9 hours!! I somehow got "lost" in the system. They put in an IV, did blood work, took me for a CT scan and said they couldn't diagnose anything from the tests that were done. I got home at nearly 10:30 that night and took the next day off from work because I was completely wiped out. I called the gastro doc again and they said he was in surgery but they would get him a message. A day later I got a call from his office to come right in. They scheduled me for a colonoscopy (I've already had three due to my dad being diagnosed with colon cancer... he passed away about 10 years later) and an upper GI for May 3rd. I have to basically do a two day prep because I have a "torturous colon" at the top part, right where I'm having the most pain. He also suggested a possible ulcer, so now I am trying to wait it out for 3 1/2 weeks. The only surgery I've had was a tummy tuck in '97 and a laporoscopy for an endometrial ablation. I wonder if those procedures could cause adhesions?
I will let you know when they find out what is going on. I really suggest that you all try juicing if at all possible. It's the only way I can get a well balanced amount of fruits and veggies.
My best to you all... Beth
redwine622
3 May 2013
Have had same issue over the years. Juicing is the answer.
bfarrell05
6 Jan 2014
Hi Melissa,
I just did the Wurn Technique at Clear Passage... I would highly recommend this as it did get rid of alot of the scar tissue I had from surgery when I was 14 (I am now 26). I just recently after 12 years started having these obstructions and went to the hospital 3 times in 3 weeks. I did the wurn technique, then unfortunately had another obstruction. The surgeon said there was barely any scar tissue and adhesions, but an adhesion was actually strangling my intestine, which the wurn technique could not resolve. But overall it helped a ton and in your case it may help completely because you may not have the adhesion stragulation. Hope this helps I would definitely give it a try even though it is expensive. To me it was worth the shot.
Gemco309
11 Jan 2014
I too have been in the hospital four times for intestional blockages and gone through the NT tube procedure. I wa s having this occur about every six months.
I am now taking a Chinese herb tinture called stomach energy and this has helped me. No problems for a year. Before I took the tinture my mouth was dry with no mucous lining. In about three months after starting the tinture the mucous lining started coming back and now I have a healthy mouth. I do not know if this helped my bowl obstructions but I hope so. I will see. If you do not have dry mouth this my not help you. My reasoning on my improvement is that the colon also did not have an adequate mucous lining so when the bowel gets twisted or whatever the food could not slide through easily. Kind of like a car motor without oil. I hope that the lubrication helps food pass when the bowl has problems. I know bowl obstruction is miserable and impacts life style and that is why I am passing this information on.
It has helped me so far and I hope it continues, I do not know if it can help anyone else but I know we would all like to find something to ease or condition. I know I could be in the hospital tonight with intestional blockage--- I hope not!
vipers5
14 Aug 2014
yes mine happens every 4 to 6 months .I ve had 6 in 1 year and 7 months.
5anita5
11 Jan 2017
Hi Melissa
I have not had any abdominal surgery however on intense pain all 7th September. September 8th early morning ambulance ride emergency operation found 80 cm dead small bowel bloddy fluid in abdomin i had 100cm of small bowel removed and reconected. 8days later home 2weeks later infection antibiotics then emergency department where they took a swab it was found i had a bacterial infection back in hospital for 8days. 3 months later week before Christmas the pain returns ambulance ride operation once again a twisted small bowel but thank goodness caught before any died. Im wondering when the pain will hit again?
LynnPotter
16 Feb 2017
I am at this moment being treated by the Wurns in Gainesville FL. After 2 full obstructions and 2 partials in 5 years. It is the only place that gives me hope. I am being trained on how to do self maintenance when I get home. For the first time I don't feel so hopeless. No one can guarantee with any health issues but this treatment gave me 2 things I didn't have. Hope and a sense of being in control again. I recommend looking into Clear Passage. Gainesville FL
Gail11
15 Aug 2012
I have been down your road--4 obstructions, 3 hospitalizations with NG tubes--no fun at all. From research and experience: I can't eat fiber (maybe 2 small sections of an orange, half an apple at the most, no raw veggies). Think "appetizer' size at mealtime and don't have 3 big meals a day. Those days are gone. Eat every couple hours with a SMALL amount. Lots of water and chew your food a lot! No big sticky pieces of dessert or bulk of anything. I joke with my doc that I can't eat fruit and veggies, but the twinkies and dingdongs pass right through. Try to stay healthy with small portions. Good luck.
janicewid
15 Aug 2012
Gail... I've come to the same conclusions you have regarding the raw veggies and peels on fruit... I'm also staying away from nuts too. I've been telling my husband that the things I'm eating are a lot more fattening than the salads I'm used to... The obstruction I had in September of 2011 the surgeon said he saw a lot of veggies... Not sure HOW he saw them... but that's what he said. This last obstruction happened after I ate a bunch of almonds. I've told the surgeon that I'm avoiding these foods and he thinks I'm crazy. I asked him to give me some words of wisdom and he told me... "enjoy life"... easier said than done.
How long have you been eating like this? How long has it been since your last obstruction? Please let me know as I think everything you wrote is exactly what I've been thinking!
Thanks for your help!
Janice
aamu1982
5 July 2013
I have been hospitalized 4 times with small bowl obstruction. It is from an extensive hysterectomy and kidney operation. The surgery is a result of a UFE gone bad. Uterine Fibroid Embolization. I am 52 perfect health, workout 5 days a week 145 pounds at 5'8". I gave up spicey,heavy sauces, hot heavy foods. No fried foods. Not a lot of fiber. I find that if I catch the problem in time. I drink 32 ounces of water with 2 teaspoons of sea salt. I heat it up. This acts like a oral enema. I drink it all and then go to the bathroom all day. The next day is a liquid and broth day. I only do this if I catch it at the beginning of stomache pain or discomfort. If I don't then it's the nasty NG tube. I'm hoping a cure will come because this is true torture
mosspoint55
16 July 2013
I have been dealing with bowel obstruction for 19 years. Every since I had colorectal cancer. Initially I was told not to eat a lot of leafy vegetables but to continue to eat my regular diet. I was in my early forties then and as I aged my diet has become more difficult. I can only eat small amounts of greens (collards, cabbage, turnips) and I had to drop lettuce completely. Some veggies will either block movements or cause diarrhea. Lying on your abdomen can cause blockages some times Stress has played a part as well. Too much beef is bad as well as too much fiber. You will have to figure out for yourself what is actually triggering the blockages. I work in an office so I always leave because I can't sit up very long because the paid is worse. Once I start feeling as if I want to throw up I know it's time for the hospital.
Most of the time I avoid hospitalization because I take precautions by taking to bed allowing the blockage to open on it's own, which is what I do when in the hospital. Surgery is the last thing they want to do because it can cause more scar tissue or additional problems for me. I hope that I have helped you in some way because this is a very painful thing. I went from have 3 4 episodes of complete blockages year to 1- 2 semi blockages a year.
Inactive
16 Nov 2013
I have had 3 small bowel obstructions the last 2 being in 8/2013 & 9/2013, with surgery FINALLY on 9/9/2013, they determined it was caused from severe scar tissue. My surgeon removed as much to release my bowel but not too much to have an issue as we know scar tissue grows back fast & furious..So I have a New GI doctor, which is hard after having the same one for 15 years. But he has had me taking Miramax 17mg & Magnesium 500mg twice a day, but it has been 8 days on this new little regimen & I haven't had much happening. The pain started again Thursday morning waking me up & hasn't gone away & this time its wrapping around into my back (It has done that one time of my other 2 blockages), but I saw my Surgeon yesterday & he said he heard bowel sounds, GREAT, than why am I in such pain, nauseated & feel like I am dying? Any suggestions? My husband & daughter keep telling me to go to the ER, I HATE the ER & Hospital... But I am almost to the Deseprate stage & hate when I get there... Any suggestions? Help?
cashew12
27 Dec 2013
I just got out of the hospital last week from an obstruction…no surgery. I've been to a nutritionist and reading a lot online. After years of dealing with this, when I'm not throwing up, I treat myself at home with complete intestinal rest, meaning nothing to eat or even drink for several hours. For some reason, the pain usually comes at night, so I go to bed at the first sign of pain. I've also been researching physical therapy as someone told me that it may help. I spoke to one therapist so far and although he said that PT cannot release adhesions, it can manipulate the organs to them function better. I'm following that thread at the moment.
Gail11
19 Feb 2014
After almost 3 years of no problems, I ate popcorn and that did the trick. It was 30 hours of extreme pain. It was a partial obs. . that's why I didn't go to the hospital. If I'm not vomiting, I figure something is getting through and I would rather stay at home--- the NG tube is enough to keep me away from the hospital. Now I'll be on liquids for a day, then soft foods, then regular--- if you can call what I eat 'regular'! Minimal fiber, no nuts, no bulk, and definitely no popcorn!!! Good luck to others with this problem.
sharonbodeen
2 April 2014
Gail, Excellent posting. I have been living with regular bowel obstructions for many years, and I have tried all kinds of approaches to managing the pain, and trying to continue on with a sort of normal life. I have had some success with limiting fiber intake to 10 grams a day, and in trying to stay hydrated. Small amounts of food at a time helps. I have a mediport for IV fluids as needed, and this reduces the severity and length of my obstructions.
Chats77
31 July 2014
Hi everyone, I am so glad I found this forum, just to know I'm not the only one suffering from SBO's! I had a total colectomy in 2007 and similar stories to you guys, due to complications in my surgery I have adhesions, so lots of obstructions, hospitalisation etc. I now try to manage with my diet, eating very low fibre, and I juice my veges and fruit. I am avoiding more ops too. I have just had another partial bowel obstruction and found the full fluid diet for a few days helped. I'm still not back to normal (my normal) so am trying to be really careful. I would love any hints or tips on how to manage this problem so am keen to hear from you.
Bobbi-jo
18 Aug 2015
Right now I'm going through a small bowel obstruction due to adhesions and it's something I've been struggling with for years. few surgeries and I felt good for few years now I'm down to 86 pounds and in a lot of pain. weak and malnourished. I would do anything to find a way to live and be able to eat. I thought you might be able to give me some advice. thanks
Gail11
6 April 2016
Commenting on my answer from 4 years ago. I've had 2 more episodes. Docs think it is Crohn's disease, but I don't. Not a single other problem until a blockage happens. Last time I ate nuts, cabbage salad and cauliflower. Everything I know not to eat. Ended up with another awful NG tube and a week in the hosp. I still don't think it's Crohn's. I think it is adhesions from previous surgeries and the diet remains the key to not relapsing. As time goes by, a person tends to relax and have a few 'forbidden' foods. What a price to pay afterward. Good luck to anyone with this problem.
Healthnut69
28 April 2016
There are so many things you can do. It is important to learn how your body works. Your digestive system needs the nutrients to properly digest and eliminate. The best and most affordable thing you can do is start with aloe. They sell it in a clear form that basically taste like water. It works because my boyfriend has major digestive issues and is terminally ill. You need to start slow because it can cause upset depending on your situation. The second best thing you can do is to rebuild gut flora. The best way is to make your own sauerkraut. It is the best form and the cheapest. However not practical for some. So you can buy them from the store. Make sure they are refrigerated and best In the billions. Do your research. Good foods are not the problem. It is the bad bacteria, viruses etc that are. The junk food doesn't bother you because it has no nutritional value to the critters living In you except candida that love it.
Research candida, parasites, good flora and you will start to learn what you need and why. In turn you will learn what to avoid and why. It is the only way you are going to improve your health and life. Best wishes. I am not big on going back and checking comments and all that. However I am confident this is the best starting point possible. Work up to doing doing A half cup twice a day and taking the probiotics twice a day as well. Eventually you will just need to be on a maintance fe dosage. YOU CANNOT INCREASE STUFF TOO QUICKLY BECAUSE YOU WILL GET SICK. Even on low dosages. The bad organisms die off. So you should read about die off as well. Low, slow and consistant.
pmaca
15 Aug 2016
I've been there too, many surgeries and a foot of small intestine taken out! I refuse the NG tube, never ever again, it can be done without it! I'm on a low-residue diet probably forever, I went to a nutritionist and she told me all of the high fiber food and veggies are just not healthy for me with having so much scar tissue! It sounds like and is the opposite of healthy eating, yes chew, chew, chew your food, avoid more than 8 grams of fiber a day, take probiotics (good for your gut), good luck, I pray I never end up in the hospital agin for this! it's horrible!
cleo130
24 Aug 2016
I got the same advice from my gastroenterologist and he gave me the FODmaps diet to use as a guide. I also take Miralax every day to avoid constipation.
spudnik72
15 Sep 2016
Coulnt agree more. You think you are doing the right thing eating lots of sultana bran and eating apples but is the worse thing you can do for recurring sbo. Having Metamucil daily helps with fibre needs without issue and everything else low fibre with no skins, seeds or strings. No coarse meat or hard bread or doughy bread. I have have 4 obstructions with Ng like you and found what you say to be the best advice. If I slip up and think a peanut won't hurt then that's when I end up in emergency with terrible pain and vomiting from obstruction. Etc.
hope you have recovered and feeling good.
camdensmom03
21 May 2017
i have a history of partial small bowel obstructions and i was happy to make it to my three yr anniversary since my last obstruction and i lost 40 pounds and have kept it off and had my sugar under control since i am type 2 diabetic and then in april 21st i woke up around 5 am and had a really bad stomache pain and it wouldn't let up and i went to the er and i was admitted in the hospital and they did a ct scan and it conformed i had an obstruction and i was there for 4 days and had the iv put in and then blood drawn and then the ng tube was placed and then i knew right then i was staying. and now i am back to square 1 and i got knocked down and i have to get back up and try this again and they told me i had a condition called gastroparesis and that its the very mild kind so i have to follow a special type of diet, i have been lucky so far that i haven't had to have surgery but i am afraid that 1 day i will. so anyways i have to either eat baby food or do liquid diet.
so i totally know where you are coming from so now i have to meet with a dietian and have them help me with a diabetic diet/low fiber diet. i also need a support group to help me learn to manage stress and be able to cope with it differently. cause stress is a factor in it too. but if it helps we can give each other ideas on how to manage our condition but can't totally prevent it from happening again.
Related topics
intestinal obstruction, pain, doctor
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