I have lost all sense of taste and smell after using the generic version of Flonase, is there anything I can do to get it back?
Flonase - Is there anything I can do to recover my sense of smell & taste?
Question posted by BeaJay618 on 20 Jan 2012
Last updated on 25 February 2023 by erdeg
The information on this page reflects personal experiences shared by our community members. It is not reviewed for medical accuracy and should not replace professional medical advice.
55 Answers
I had a problem with my nose in that it felt dry all the time so my doctor recommended flonase steroid spray . A couple of years later from using flonase steroid spray my nose started bleeding out of nowhere here and there. I didnt really think nothing of it because I thought its normal to experience that once in a while. But as years go by I started having more nose bleed so I was told to stop using flonase. Soon after I also began to realize I wasnt able to smell anything. I stopped using flonase a couple of years ago but my smell hasnt returned. Does anyone know of a lawyers who is interested in this or of class action lawsuit because from these comments here over the years it would seem like theres a lot who is experiencing this, it seems pretty common or at least its not rare. has anyone told their doctors about it and got a response that theyre not aware of such thing ?
I used flonase a couple years ago for a few weeks as recommended by my ENT to help with allergies or snoring. I noticed my smell and taste being very diminished. I notified him but he said it was an uncommon side effect. He said if I was worried to stop taking it. It took a few months before it felt more normal again.
I used generic Flonase for about four days as instructed and have lost most of my smell. I can still taste, but there is a weird bitter aftertaste. I can only smell strong scents when directly under my nose. I’m going to use the saline solution and pray for the best. I hope only having used it for a few days will help my recovery.
I used flonase twice, realized about two hours after the second use I couldn’t smell or taste. Confirming after I got home, can’t even smell straight vinegar. Have very minimal taste. I’ll be contacting my Dr. today.
I used Flonase fairly regularly for several years. Finally one day I realized I could not smell anything. I wondered about Covid but didn't really think I had it. Then I wondered about Flonase, researched online a bit and immediately stopped using it. It's been about 3 mos and I am just starting to smell a few very faint smells. They come and go from day to day. More bizarre is that I randomly through out the day get a weird smell I can't identify. (that no one else seems to smell) It seems to be more likely to happen when I am trying to smell something strong, but I get a different scent than it should be. Very disheartening. I have read about smell training and have just started that. Additionally, someone on this site mentioned Theophylline as potentially helpful. That is naturally in black tea and to a lessor extent in green tea. Not sure if it will help but I do drink black tea every morning. And I rinse with saline daily - thinking it couldn't hurt.
I really wish Flonase would just add this as a possibility on the label. I probably would still have used it (thinking that it would never happen to me) but I don't think I would have used it as often or for as long as I did. My doctor seemed to imply it was pretty safe to use. I am hopeful, reading all the posts on this site, that my smell will return eventually. I will give it more time and perhaps see an ENT later. Thanks for all your helpful comments.
I started using Flonase back in April 2020. I lost my sense of smell for 2 weeks, I wrote it off as COVID related.
August 23 we had a severe storm, and I asked my husband why the rain smelled horrible, musty/moldy scent. He replied with “it smells like rain” since that day I’ve noticed water smells like musty/chlorine/wet leaves
Onions and cheddar flavored foods, mint smell and taste like literal garbage.
I’m literally crying almost every night.
My depression has gotten extremely bad.
These new smells make me sick to my stomach daily.
It’s severely affecting my life
My sense a smell and taste were distorted. I used smell training and saline rinse twice a day. It too around six months for me to recover my smell completely. As for my taste , it to two and a half years to regain It fully and not distorted. I was 59 when this happened. I used Flonase 5-7 times only.
I believe it takes time for nerves to regenerate. Flonase has left me with tinnitus. Hopefully, that will go away. I will never take a Spray Steroid type nasal spray ever again. I know several people this has happened to. Give it time. I don’t belive it’s permanent.
I too used flonase for over 3 years. I haven't had any sense of smell for about 5 yrs now. There has got to be an attorney that would be willing to start a class action law suit.
I used Flonase 4 days ago (one dose on Saturday, one on Sunday). Today is Wednesday and I have absolutely no sense of taste or smell. I can eat a glob of wasabi and feel the heat in my nasal cavity but otherwise, nothing. It's incredibly depressing. I left a message with my doctor to see if she's heard of this and I'm praying she doesn't write this off as something Covid related since I do not have any other Covid symptoms. I try not to think about it because it's freaking terrifying to think this is permanent. This should be a class action lawsuit.
I looked it up and you can't even get a service dog for loss of smell which would be the ONLY upside of this.
I went through the same thing. It most likely will come back. You used such a small amount as I did. I used It maybe 5 more days than you. I had a CT scan and a MRI. My ENT told me. I see you did your homework when I should him this website. I called the FDA and their response is that they have heard of this reaction before. They gave me some lame excuse why the side effects are not on the generic Flonase. Ironically my next door neighbor went through the same thing. She’s fine now too. It took about six months for my smell to come completely back. I used Neil Med Saline to flush my nose twice a day. The packets. I also did smell training. My taste came back to two and a half years later where everything tasted the same as I remembered. Everything tasted distorted before that. I’m 61 maybe that’s why it took longer for me to heal. I also have tinnitus now. Hopefully you will be fine. You have to give time to your nerves to regenerate.
How long did it take?
My boyfriend and I experienced the same reaction with taking the generic brand “equate”. He did one squirt in each nostril and I did two. We only used this one time and that same day lost our sense of smell and taste.
I had called the nurse advice line with tricare and thw nurse had told me to use a humidifier/diffuser and saline spray to moisturize my nose. And as of today, using the saline spray routinely and keeping my diffuser on all night long, I have regained my taste more than enough to taste something. My boyfriend has been doing this as well. I recommend this as it flushes out the medicine in your nose and also helps with it being excessively dry. Hope this helps! Good luck to you all (and throw this nasty stuff away!)
How long did this take?
I am having the same problem after using Flonase, it’s been one week? Did anyone ever find out why this happens to smell and taste? Causing great stress and anxiety!
You can try to look into it, but all I got was doctors and lawyers who pretended the problem didn't exist and they never heard of Flonase being harmful. I just had to wait. I went to an ENT and got a steroid and did a CT scan. No one would make the connection between my loses and Flonase. You smell will come back. Go to the ent. Be patient. Try not to have anxiety. I hope this helps.
Thank you, you did get it Back though? I’m having extreme anxiety over it! How long before you got it back?
It took months.
I have also lost my sense of smell after using the NON-GENERIC version for 2 days. This is a warning and RED FLAG to anyone planning on using it. It may destroy your sense of smell. Gotta love the incompetent US government and medical industry paying homage to the highest bidder. Others are right, in this day and age you must do your research before taking any prescriptions.
I should add that this is the second time I have had my sense of smell lost because of this drug, the first time I had a cold and shrugged it off as a possible side effect of having the cold. (Although my loss of smell had never been that drastic my life when having a cold) I wasn't sure so I stopped taking it. My sense smell eventually came back after around 2 weeks. This time I took it for hay fever because I wasn't sure previously if it had been the cause. Again I am completely decongested and no hay fever but absolutely no sense of smell either. After reading this thread I am stopping it completely and never taking it again.
Yes. It's too bad that the company and the government will not acknowledge what this product is doing to people. I was so afraid when this happened to me because I could get very little affirmation that I was not just losing my mind. I am grateful for this thread because we know what happened to us.
How long did it take for it to come back?
I have had a cold for what seems like 6 weeks now, used generic fluticasone for about three weeks until yesterday without it helping my congestion and I lost my taste and smell weeks ago and attributed it to my cold, but after spraying it in my nostrils I realized I could smell the Flonase for about 20-30 seconds but nothing else. Finally looked into it and found this forum. I really hope I get it back. I will say I used brand name Flonase about six years ago for allergies and this never happened. I definitely think it’s something to do with the generic.
I’m super depressed I used the non generic Flonase and I have completely lost my smell and taste. I thought it was my anxiety and panic attacks but nooo I shoved ginger in my nose- nothing, garlic- nothing. I’m so scared my nerves are damaged and it will never return. I will try your recommendation but I’m so besides myself. Been crying myself to sleep every night.
I loss my smell and taste after 1 week of using Flonase daily. I am terrified it will not come back. Very depressed, cannot even taste coffee or chocolate. I am happy I found this site and can’t believe how many years this has been reported with no resolution.
How long has your sense of smell been gone? Mine has been almost completely gone since early January, and on its way out the month before that. So many days it was completely gone. A few of those days I’d get a fleeting whiff of a strong perfume if I sniffed extra hard right on it. Like you said, I couldn’t taste chocolate, peanut butter, garlic... nothing at all. I could only tell if something was salty or sweet. It was awful, scary, and mind consuming. But good news!! As of yesterday, I’m back at... I’d say 80-90%! It came back that fast! I quit using Flonase about a week ago, and my sense of smell was basically completely gone for several days after. I was freaking out. I started taking DHist as “jennygirl” suggested, and the results were unbelievable. In less than 24 hours my sniffer just turned back on like magic. I still can’t believe it. I have been dealing with this for nearly two months. The stress it has caused me is unforgivable.
I’ll warn everybody I know with allergies about using Flonase. And thank you jennygirl for the DHist recommendation. It worked a miracle on me. Magpie and others here should give it a try. I was skeptical. I had already resolved to my new life with never smelling or tasting again. I am feeling happy to say the least.
Hello I’m experiencing the same thing how are you now?
I just found this thread today. I have been using Fluticasone Propionate for months now. Allergy/asthma doc prescribed it. Generic Flonase. I haven't been able to smell for months. Didn't really notice it until I went shopping at Bath and Body Works and couldn't smell the fragrances! I stopped a couple of days ago and will try your suggestions here. I am all stuffed up right now. Last month when I had my annual check up with my allergy doc he just shrugged it off when I told him I couldn't smell. I wish I would have never taken this crap! I'll keep you all in the loop. If there is a class action lawsuit I'm all in.
Give it time to recover! It will come back! That stuff should be banned or at least in bold print, this could happen! It took me time but it does return! Try the d-hist! It’s amazing and works better especially if you have allergies! Better than Claritin Zyrtec and all of them! Good luck!
Thank you so much! I'm hoping and praying it comes back. I feel as if I'm not 100%. The sense of smell means so much! I miss smelling my fav cologne, coffee brewing, etc. Fingers crossed!
I appreciate the support and suggestions so much. I’m on the 4th day of no Flonase, and I can occasionally get a “whiff” of strong smells about 5% of the time (or less)... which is an improvement from 4 days ago. When I do catch a “whiff” I almost leap for joy... quickly finding something else I can do the smell test on, like perfume, lotion, or peanut butter, etc... to no avail. It’ll be gone again. I look like a crazy woman trying to test smell all day, but this is absolutely maddening.
This is why I believe Flonase caused this:
I have seasonal allergies which are usually in the winter. Here in the Deep South, our winters are much like fall for others. I was having sneezing attacks that were pretty bad this past December. I remembered my ENT a couple years back suggesting Flonase (two sprays in each nostril once a day). So I got the generic Flonase in December and started using it once a day (one spray each nostril). My allergies were getting much better, but my sense of smell was going in and out during the day (50/50). I attributed the smell loss to the allergies, so in early January, I started using Flonase twice a day... one puff each nostril morning and night... which is still in line with the doctor’s orders of two puffs in each nostril once a day. My allergies went completely away. No sneezing. No sinus issues at all. In fact I’m breathing very clear. The problem is that my sense of smell went completely away too. That’s when I put two and two together about Flonase being the cause. I never had a problem smelling before, even when I had severe allergies. It’s so clear to me what caused this. Funny thing is I went to my favorite family doctor a couple days ago (I decided why go to the ENT who suggested Flonase and would most likely defend it), and guess what, he defended it too! He said it was the allergies that caused me to lose my sense of smell and suggested I continue using Flonase and also told me to use another OCT spray (NasalCrom 2 x a day) and a prescription one (Astelin). I politely took the prescriptions, but have no intention of getting or using them. I looked them up... more steroids. Now it’s time to be my own doctor. I’m leaving my nose alone... Nothing goes up there anymore. I’m taking turmeric as someone else suggested and also plan on ordering the DHist for any future allergies, and just giving my nose time to heal. I hope and pray this is temporary. You don’t know how much you miss smelling things, tasting foods, till you can’t.
I was doing the same thing! Jumping from one thing to another to test my sense of smell and was pretty upset about it! It will heal! I took Dhist and I think it helped a lot! But, it takes time.
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Further information
- Flonase uses and safety info
- Flonase prescribing info & package insert (for Health Professionals)
- Side effects of Flonase (detailed)
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