Is there anyone who had tardive dyskinesia and it stopped?

The best natural remedy for ur problem is marijuana. Trust me it really is a fix all for many health symptoms

I have TD with severe tongue, mouth, lips, and jaw movements. I have tried Egressa, Austedo, and one more I can't remember it's name, without success. The side effects were horrible. My tongue is in pathetic shape. My dentist said he has never seen anyone with such deep bites in their tongue. And there is a thick white film on it. My mouth hygiene is excellent. I see one doctor who is both a psychiatrist and neurologist. I waited for one year for his first available appointment. He has turned me over to his PA who advised me to seek a support group because I am so depressed. On an upbeat note for you and others the doc said he has cured some people who have had it a short time with the above mentioned drugs.

Hi , first of all there is no cure. Maybe it goes away after time as others have mentioned ( fingers crossed for anyone that has this) There is symptom management... possibly without meds, ? I don't know. I have tried baby doses of Botox around mouth and jaw, didn't notice any difference. Then I decided to try Ingerzza again (been on the lowest 40 mg dose) because I am extremely sensitive to meds) tolerating it for 3 months now and notice a very slight improvement. Will prob be increasing to 80mg in January when I see Neuro. Klonopin and muscle relaxers help. Exercise and calming mediations help me quite a bit. Stress makes it WAY worse.
I highly recommend trying one of the TD medications, you can always stop it. Best wishes for you

I have Tardive Dyskinesia and was put on Ingrezza 80mg, After about 2 months my symptoms were nearly gone and unnoticeable. Then I encountered a stressful and anxious situation and all my symptoms came back. I’m waiting to see my Neurologist in 2 weeks. I hope this helps you

Hi @
I got TD from taking risperidone. At least that's what I was taking when it started. My dr told me it could have been caused by any number of drugs I've taken in the past. Mainly antipsychotics. I was taken off of it right away and I take Valium and Flexeril for the symptoms I still have. My dr has talked about putting me on the new drug Ingrezza cuz it works well for mouth and tongue movements which I have. Not sure I want to take it though. I've had symptoms for 4 years now.
Ruth

My Dr. has told me depending on the drug you are on causing those symptoms it will go away after discontinuing. I am on a drug right now that causes both but, need the drug he has put me on. He. Has put me on a new drug Ingrezza to see if it will decrease the symptoms which seems to be helping so far but, just started it. He says I have a mixture of Akasia and Tardive Dyskinesia due to the Med.

Have it going on 4 years. Tried medical marijuana.. seems to be working.

Hi, I’ve started experiencing TD systems recently after taking medication for a sleep disorder called Narcolepsy. I stopped taking the meds for a week and didn’t notice the symptoms (tongue movements) anymore. Is stopping your medication an option?

Hi. I’m hoping after all this time some of you are still on this site. I’m wondering if the treatments tetrabenazine and valbenazine are still working for you? I’m on Ingrezza( valbenazine) and have had some success. Have you found anything else?

My husband was told that if he still had his severe case of TD at the five year mark after stopping the Zyprexa, then he should consider it permanent. Please ask your MD about tetrabenazine or valbenazine to treat the TD. Anti-anxiety meds can also be somewhat effective in reducing TD symptoms.

I was told the same thing as hopingtosparkagain. My culprit was many years of risperidone. I am a little past 2 years and I still have it but it is under control for the most part with medication. My Dr and I research every new drug that she wants to use -or any other dr -for the side effects of TD. Stress is what really brings mine to the surface. I try to get some exercise at least every other day and pamper myself a couple days a week. It's amazing what your thoughts and mind can do to your physical health. I hope you find the answer you're looking for soon. Please share it with us. Good luck and God bless.
Buck2504

My TD was caused by years of being on Abilify and Wellbutrin. My advice is to check all of your meds & perspective meds on a website like med.com to make sure that they're not contraindicated with Tardive Dyskinesia. My neurologist told me that there's 2 chances for TD to go away either when you stop the causative meds and the next is 3 years in they don't know why, but if it doesn't go away then it is permanent. Good luck.

I took vitamin E 2 times a day and it stopped it a bit I was on abilify risperidone still on fluoxetine I have aspergers syndrome I am 40.