Cabozantinib for Thyroid Cancer User Reviews

• MzThi...
• June 18, 2017

Cometriq (cabozantinib) "I felt miserable from the start of taking this medicine. It did more harm than good. I experienced severe diarrhea (watery and explosive). I experienced nausea at any given time of the day. I developed painful sores on the palm of my hands and on my ankles. It became difficult to brush my teeth, turn a door knob, and even wash my hands. Any use of my hands was painful."

• Ravir...
• Taken for 1 to 6 months
• November 6, 2018

Cometriq (cabozantinib) ""This drug is not good" My father was on 60mg Cabozantinib about 5 week's with lot of side effects. His BP is normal but fatigue is still there and he can't walk without support. His hands, feet and whole body was numb. And he can't walk more than 10 steps. Also everyday before or after taking food he is doing vomiting which still continue. His weight before we started cometriq (Cabozantinib) was 52.5 kg and now his weight is 45kg. Today I decide to stop this medicine. So expensive medicine and nothing works. The best way to earn money is to play with people's emotions. And this method is not good for the patient and the patient's family."

• Vit
• Taken for less than 1 month
• November 18, 2022

Cabometyx (cabozantinib) "I’ve been taking it for a month, yes, there are results, the lymph nodes have decreased, but the side effect are such that you don’t know what is better to take it or not to take it? Side effects include ulcers on the hands, skin peels off, and I feel like I am drunk, but by the end of the fourth week, the condition improved. I think my body is getting used to it."

• Sue...
• Taken for 1 to 6 months
• September 23, 2023

"I started Cabozantinib 40 mg in June 19, 2023 for metastatic thyroid cancer to lung & bone. The first 2 months, I had no side effects, but then a bit of nausea in the morning & loss of taste. In August, the foot syndrome started. It got to the point that I could barely walk due to the painful calluses. I stopped meds for 3 days & began using steroid cream, foot soaks, & moisturizing twice a day. My feet got better, but it happened again a few weeks ago. My advice if you have this is to be diligent taking care of your feet! My PET scan showed shrinkage in lung nodules & no new bone mets. I can only hope it continues to do this. Next scan in November."

• Silvia
• Taken for 6 months to 1 year
• October 17, 2023

"My mum was diagnosed with thyroid cancer - C73 diagnosis. She has been on medication for 11 months now. As a side effect, diarrhea, sore mouth issues, not able to eat or brush her teeth, which resulted in her teeth falling out, numbness in her hands. For her, the most difficult thing is losing so much weight. Within a few months, she lost over 30 kilos, and she can't put it back on as every single piece of food is just going through her. She has been avoiding going out as she can't control her movements. We also noticed her cognitive function was very much affected when she was on 140 or 120 mg, but once the dosage was lowered to 60 mg, I got my mum back. Diarrhea is still persisting on 60 mg, and weight is not increasing. So far, the results are that it is not spreading."