Cabozantinib User Reviews & Ratings

• Wood
• Taken for 2 to 5 years
• August 1, 2020

Cabometyx (cabozantinib) for Renal Cell Carcinoma "I’ve been on cabometyx for three years now. I was diagnosed with Stage 3 renal cell carcinoma 6 years ago that had metastasized to the bone, lung and adrenal gland. I have done exceptionally well on cabometyx with only occasional side effects such as diarrhea, thinning hair, and tiredness. My tumors have not decreased in size but more importantly they have not grown. I am grateful that I, thus far have not experienced any pain and still have a wonderful appetite. All in all, I am thankful that six years after diagnosis, I am still here and still have quality of life. I am truly blessed."

• Cheavey
• Taken for 2 to 5 years
• March 20, 2023

Cabometyx (cabozantinib) for Renal Cell Carcinoma "I was diagnosed in 2015. I have been on several different drug therapies. I have been on Cabometyx for 2 1/2 years after finding a tumor impeding my spinal cord. I am in stage 4. It has been the best drug for my situation. I am on 40mg per day. Side effects for me were diarrhea, mouth issues, and severe joint pain. Tramadol has helped with the pain. I had an 8% chance of living 5 years. Will be starting my 9th year in June 2023."

• Dick
• Taken for 1 to 2 years
• September 7, 2019

Cabometyx (cabozantinib) for Renal Cell Carcinoma "Began treatment with 60mg Cabometyx. Side effects severe in some instances: foot pain to the point that I could barely walk, acid reflux, indigestion, loss of taste and appetite. The obvious result was I lost about 50 lbs in about six months. Not a pleasant experience; however, we reduced the dosage to 20mg. Appetite returned, along with taste; no acid reflux, minor indigestion, no foot problems. Now starting with alternating 40mg/20mg daily. My remaining kidney has small cysts but have shown no issues. Nodules in my lungs remain small. I am now into my 16th month with the drug and have learned to live with it by isolating taking it in the middle of the night far removed time-wise from eating anything. I concentrate on alkaline foods to decrease acidity. Gained back 20+lbs and feel normal but with some minor foot issues. The drug appears to be doing what it is supposed to be doing, with only minor inconveniences. Good support from Oncologist and staff helps."

• TDM
• Taken for less than 1 month
• March 31, 2022

Cabometyx (cabozantinib) for Renal Cell Carcinoma "I just started on Cabometyx this morning & was pretty scared, until I found this site. The reviews gave me so much hope! I have stage 4 renal cancer & after brain metastasis my treatment with immunotherapy changed to this med. I will report back after a while."

• Miss...
• September 4, 2018

For Renal Cell Carcinoma "My husband was on 60 mg Cabozantinib for about 7 weeks with limited side effects. His blood pressure was stable and fatigue was minimal. He did not have much mouth sensitivity or hand/foot soreness. During this time, he felt better and stronger than he had in a long time. This did not last. One of the serious side effects of this drug is internal bleeding. Last week, my husband died of a sudden internal pulmonary hemorrhage. It is impossible to know why this happened, however, I feel it is important to share his experience."

• Larrys...
• Taken for 2 to 5 years
• June 5, 2019

Cabometyx (cabozantinib) for Renal Cell Carcinoma "My husband has been on this drug for over 2 years. It has kept the tumor from growing and has kept the mets from increasing as well. He fell and broke his femur and they took him off it about 3 weeks, now he has to have the entire hip joint replaced because the femur did not heal together on the rod they inserted into his bone. So he will be off of it again. We shall see the next scan to see if this off and on is going to let it do it's job."

• Jeff...
• Taken for 1 to 6 months
• June 27, 2019

For Renal Cell Carcinoma "I’ve been on treatment now for 12 weeks 60 mg. Side effects have been as expected. Fortunately mild in comparison to the reviews I’ve read above. I’m receiving this treatment and also receiving a immunotherapy infusion every three weeks. The results have been very positive over such a short time. I had a 10.5cm mass on my shoulder that just melted away after 6 weeks. The other lesions and tumors have all continued to shrinks. "

• Prarie...
• Taken for 1 to 6 months
• October 31, 2018

Cabometyx (cabozantinib) for Renal Cell Carcinoma "Mixed results on multiple mets, some higher ratings while some lower on SUV. No further progression following 4 months of therapy. Major side effects diarrhea and minor increase in blood pressure."

• Jake
• Taken for 6 months to 1 year
• June 3, 2020

Cabometyx (cabozantinib) for Renal Cell Carcinoma "I have been on this drug Cabometyx for 12 months. It’s doing what is suppose to do but after 11 months I started to max on toxicity. Tried to drop dosage down to 40mg but didn’t work well Symptoms for me were severe body acne including scalp, tiredness, mouth ulcers. No problem with upset stomach, diarrhea, weakness in joints. Tried some other inhibitor like inlyta and IL2 but side effects were too much and results of scan were not very positive"

• Tumor...
• June 16, 2018

"I rated it a five only because I do not know how to rate a chemo drug. I was involved in the clinical trial for cabozantinib a few years ago. I was on it for about 8 months. After many other treatment options over the past few years, I’m back on cabozantinib. I have experienced pretty much all the “common and less common” side effects. The worse would be the mouth sores and the hand/foot syndrome. Now, we can all get annoyed about what the medication does to us, but remember, if you’re taking it, chances are you or someone you love has cancer. Unfortunately, cancer treatment is not supposed to be enjoyable. It SUCKS!!! I have an extremely rare form of cancer. My suggestion is ask your doctor if it’s possible to take “breaks” from cabozantinib. I’m sure it differs for all of us, but if you stop taking the medication, no matter if you are on 20, 40, or the dreaded 60mg, for about 4-6 days depending, your side effects will start to go away. Good luck everyone and stay strong. Our families need us."

• Denia
• Taken for less than 1 month
• August 26, 2022

For Renal Cell Carcinoma "My husband just started the 40mg tablet 6 days ago and he decided to go to 60mg as per asking his doctor. They came by fed ex today he will start them tonight. He has RCC the tumor was huge removed in 2020 and 1 month ago it had spread to his brain they removed the tumor and he had radiation 5 days ago on 9 spots on his brain it was the gamma knife radiation. We haven’t had scans yet till next month to see how that went. He’s doing very well some tiredness but he’s actually mowing the lawn as I speak. We are hoping it shrinks the lymph nodes in his abdomen and keeps it from spreading. His appetite is still great . Update later"

• Kea
• Taken for less than 1 month
• October 18, 2018

For Renal Cell Carcinoma "I just started. I have been on 60mg once a day around the 19th day I realized my vision became very blurred My hands and feet were numb I had to walk on my tippy toes because my feet was burning and blistered - just horrible, I have experienced shortness of breath and headaches my bp at the ER was 225/112, my dr stopped it for a week I really don't want to get back on"

• Warrior
• Taken for less than 1 month
• February 9, 2023

For Renal Cell Carcinoma "My husband has renal cancer with brain mets. He had targeted brain therapy in October but sadly suffered a brain bleed at the new year. He was told the cancer in his brain had spread so this drug is his last chance, he is due to start taking it in the morning. Feeling quite anxious about this. I will update this once we get going."

• John
• Taken for 6 months to 1 year
• May 22, 2023

Cabometyx (cabozantinib) for Renal Cell Carcinoma "I’ve been on Cabometyx for seven months, before that I was on Kakuda. Since being on Cabometyx I have had very few side effects. I’m on the 60 mg dosage. Some of the tumors in my lungs have shrunk and some have just stayed the same size. I was diagnosed with kidney cancer five years ago this month so the treatments I’ve been taking have definitely helped me."

• Drop...
• Taken for 1 to 2 years
• March 26, 2021

For Renal Cell Carcinoma "I started on this drug 16 months ago (60MG) and while it made significant changes in the size of the tumours I had to cease taking the drug after 3 months due to the side effects. I was unable to eat hot, cold or spicy food and had severe blistering on my feet. Also some sleep issues. Now on 40mg (12 months) dose which results in the same side effects but now working on length of time I can take it without side effects. 6weeks with 1 week break."

• MzThi...
• June 18, 2017

Cometriq (cabozantinib) for Thyroid Cancer "I felt miserable from the start of taking this medicine. It did more harm than good. I experienced severe diarrhea (watery and explosive). I experienced nausea at any given time of the day. I developed painful sores on the palm of my hands and on my ankles. It became difficult to brush my teeth, turn a door knob, and even wash my hands. Any use of my hands was painful."

• Ravir...
• Taken for 1 to 6 months
• November 6, 2018

Cometriq (cabozantinib) for Thyroid Cancer ""This drug is not good" My father was on 60mg Cabozantinib about 5 week's with lot of side effects. His BP is normal but fatigue is still there and he can't walk without support. His hands, feet and whole body was numb. And he can't walk more than 10 steps. Also everyday before or after taking food he is doing vomiting which still continue. His weight before we started cometriq (Cabozantinib) was 52.5 kg and now his weight is 45kg. Today I decide to stop this medicine. So expensive medicine and nothing works. The best way to earn money is to play with people's emotions. And this method is not good for the patient and the patient's family."

• Vit
• Taken for less than 1 month
• November 18, 2022

Cabometyx (cabozantinib) for Thyroid Cancer "I’ve been taking it for a month, yes, there are results, the lymph nodes have decreased, but the side effect are such that you don’t know what is better to take it or not to take it? Side effects include ulcers on the hands, skin peels off, and I feel like I am drunk, but by the end of the fourth week, the condition improved. I think my body is getting used to it."

• Arpita...
• Taken for 1 to 6 months
• July 22, 2022

For Renal Cell Carcinoma "Actually my father diagnosed with rcc stage 4 lungs metastasis in Feb 14. From this date he is taking cabozantinib 60 mg daily. At first we see the tumors are shrinking but in April we did another pet CT scan for observation. In that report we found 2 more deposits. One in pancreas and another in bone. Then Dr suggest to do biopsy one more time but fortunately the report came negative. But my father diagnosed with pancreatitis disease. In May last week he is feeling very tired and taking medication. In June 15 he was again diagnosed with liver jaundice. Lastly he left us in July 6. Cabozantinib create liver jaundice and pancreatitis disease."

• Sue...
• Taken for 1 to 6 months
• September 23, 2023

For Thyroid Cancer "I started Cabozantinib 40 mg in June 19, 2023 for metastatic thyroid cancer to lung & bone. The first 2 months, I had no side effects, but then a bit of nausea in the morning & loss of taste. In August, the foot syndrome started. It got to the point that I could barely walk due to the painful calluses. I stopped meds for 3 days & began using steroid cream, foot soaks, & moisturizing twice a day. My feet got better, but it happened again a few weeks ago. My advice if you have this is to be diligent taking care of your feet! My PET scan showed shrinkage in lung nodules & no new bone mets. I can only hope it continues to do this. Next scan in November."

• Silvia
• Taken for 6 months to 1 year
• October 17, 2023

For Thyroid Cancer "My mum was diagnosed with thyroid cancer - C73 diagnosis. She has been on medication for 11 months now. As a side effect, diarrhea, sore mouth issues, not able to eat or brush her teeth, which resulted in her teeth falling out, numbness in her hands. For her, the most difficult thing is losing so much weight. Within a few months, she lost over 30 kilos, and she can't put it back on as every single piece of food is just going through her. She has been avoiding going out as she can't control her movements. We also noticed her cognitive function was very much affected when she was on 140 or 120 mg, but once the dosage was lowered to 60 mg, I got my mum back. Diarrhea is still persisting on 60 mg, and weight is not increasing. So far, the results are that it is not spreading."

• Mish
• Taken for 1 to 6 months
• May 23, 2024

Cabometyx (cabozantinib) for Renal Cell Carcinoma "I've been on Cabometyx for 4 months for renal cell carcinoma recurrence. Latest scan results show it's working; 2 nodules have now reduced - 1 by 50% and the 2nd larger one by 33%. The lesion on my neck at C4 is gone; no hot spot at all. Side effects were blisters on my feet, but increasing vitamin B supplements and using a heel pain stick have assisted greatly. I've also been taking triple immune vita gummies to stay on top of things. All my bloods are perfect now."

• Anonymous
• Taken for 6 months to 1 year
• August 31, 2021

Cabometyx (cabozantinib) for Renal Cell Carcinoma "I have been taking cabometyx for the last seven months very mild side effects. Oh no sign of the tumor in my lung. Thank God."