Congenital Heart Disease in Children

Medically reviewed by Drugs.com. Last updated on Nov 3, 2024.

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What is congenital heart disease (CHD)?

CHD is a term used to describe defects in the structure of the heart. It may also be called congenital heart defect. Congenital means your child was born with the heart defect. The defect may affect the heart valves, walls, or blood vessels. Your child may have a hole in part of the heart or narrowing of arteries connected to the heart. Blood may not be able to flow to or flow through your child's heart correctly. The defect may be mild or severe.

What are the signs and symptoms of CHD?

Your child may not have signs or symptoms for a few years. He or she may never have signs or symptoms. Your child may have any of the following:

• High blood pressure
• Trouble breathing, hyperventilation (breathing too quickly)
• Chest pain or sweating
• Blue skin or nails that becomes worse when your child cries
• Fussiness, trouble feeding, or a lack of appetite
• Slower growth, or being small and underweight
• Being out of breath, especially after moving quickly
• Fatigue or fainting

What increases my child's risk for CHD?

• A condition such as Down syndrome
• Rubella infection in his or her mother during pregnancy
• A condition such as lupus or type 1 or type 2 diabetes in his or her mother
• Certain medicines his or her mother took during pregnancy
• Alcohol use by his or her mother during pregnancy

How is CHD diagnosed?

A congenital heart defect may be found before your baby is born. Your child's healthcare provider will examine your child and listen to his or her heartbeat and breathing. Tell him or her about your older child's signs or symptoms. Tell the provider if your child has had the signs or symptoms before, and how long they lasted. Your child may need any of the following:

• Blood tests measure the amount of oxygen in your child's blood. A heart defect can lower your child's blood oxygen level.
• X-ray, CT, or MRI pictures may show the size and shape of your child's heart. Your child may be given contrast liquid to help his or her heart show up better in the pictures. Tell the healthcare provider if your child has ever had an allergic reaction to contrast liquid. Do not let your child enter the MRI room with anything metal. Metal can cause serious damage. Tell the healthcare provider if your child has any metal in or on his or her body.
• A Doppler ultrasound test uses sound waves to measure blood flow through your child's veins and arteries.
• An EKG records your child's heart rhythm and how fast his or her heart beats. It is used to check for heart enlargement and abnormal heart rhythms.
• An echocardiogram is a type of ultrasound. Sound waves are used to show the structure and function of your child's heart.
• A Holter monitor is also called a portable electrocardiography (EKG) monitor. It shows the electrical activity of your child's heart while doing his or her usual activities. The monitor is a small battery-operated device that your child wears. It will show how fast your child's heart beats and if it beats in a regular pattern.
• A stress test helps your healthcare provider see how well your child's heart works when it is under stress. His or her heart function may be tested while walking on a treadmill or riding a stationary bicycle. Medicine may be used instead to put your child's heart under stress.
• Cardiac catheterization is used to show the blood vessels in your child's heart. A catheter is threaded into your child's heart through a blood vessel in his or her arm, leg, or neck. Contrast liquid is injected into an artery. Then x-rays of your child's blood flow are taken. Tell the healthcare provider if your child has ever had an allergic reaction to contrast liquid.

How is CHD treated?

Your child's heart defect may not need to be treated. The defect may need to be treated if it is severe or is a type that will not go away without treatment. Your child's age and overall health will also help healthcare providers decide if the defect should be treated. It may not cause health problems as your child gets older.

• Medicines may be used to help your child's heart beat more regularly. Your child may need to take heart medicines for several years. He or she may also need medicine to help remove extra fluid from his or her body. Your child may urinate more while taking this medicine.
• A catheter procedure may be used to repair a defect. A catheter is a long, thin tube. Your child's healthcare provider will move the catheter through a vein or artery until it is near the defect. He or she may place a patch or plug on a hole in your child's heart. To widen a narrowed area, a small balloon device attached to the catheter may be inflated. This may also widen a narrowed valve in the heart.
• Surgery may be needed to repair the defect. Your child may need surgery to have a heart valve repaired or replaced. Surgery can also help repair problems in blood vessels that did not form correctly. A heart transplant may be needed if the defect is severe and other treatments do not work. Your child may need more surgery over time.

Treatment options

The following list of medications are related to or used in the treatment of this condition.

• Xarelto
• rivaroxaban

What can I do to manage my child's CHD?

• Do not smoke around your child. Nicotine and other chemicals in cigarettes and cigars can cause heart and lung damage. Your child's risk for health problems is increased if he or she breathes in secondhand smoke. Talk to your older child about not smoking. Ask your healthcare provider for information if you or your older child currently smoke and need help to quit. E-cigarettes or smokeless tobacco still contain nicotine. Talk to your healthcare provider before you use these products.
• Ask about physical activity. Exercise is important for heart health. Your child's healthcare provider can tell you how much exercise your child needs each day and which exercises are best for him or her. Your child may not be able to do some physical activities or sports. The decision may depend on the type of defect your child has and if it was repaired. Your child's healthcare provider can give you written instructions for activities your child can do. You can give the instructions to your child's teachers.
• Give your child a variety of healthy foods. Healthy foods include fruits, vegetables, whole-grain breads, low-fat dairy products, lean meats and fish, and beans. Your child's healthcare provider or a dietitian can help you plan healthy meals and snacks for your child.
• Keep your child's teeth clean and healthy. Have your child get regular checkups at the dentist. Make sure your child brushes his or her teeth as directed. Cavities increase your child's risk for endocarditis (infection in the lining around his or her heart). Antibiotics may be needed before dental procedures. The antibiotic can help prevent an infection caused by bacteria.
• Ask about vaccines your child needs. Vaccines can help protect your child from diseases that can be dangerous for a child who has CHD. Examples include the flu, measles, and COVID-19. Ask which vaccines your child needs and when he or she should get them.

Call your local emergency number (911 in the US) for any of the following:

• Your child has any of the following signs of a stroke:
  • Numbness or drooping on one side of his or her face
  • Weakness in an arm or leg
  • Confusion or difficulty speaking
  • Dizziness, a severe headache, or vision loss
• Your child has a seizure.
• Your child faints or loses consciousness.
• Your child has sudden shortness of breath.

When should I call my child's doctor?

• Your child has a fever.
• Your child has chills, a cough, or feels weak and achy.
• Your child is not gaining weight as he or she should.
• You have questions or concerns about your child's condition or care.

Care Agreement

You have the right to help plan your child's care. Learn about your child's health condition and how it may be treated. Discuss treatment options with your child's healthcare providers to decide what care you want for your child. The above information is an educational aid only. It is not intended as medical advice for individual conditions or treatments. Talk to your doctor, nurse or pharmacist before following any medical regimen to see if it is safe and effective for you.

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