Zanubrutinib for Waldenström Macroglobulinemia User Reviews
Brand names: Brukinsa
Zanubrutinib has an average rating of 9.1 out of 10 from a total of 9 reviews for the treatment of Waldenström Macroglobulinemia. 78% of reviewers reported a positive experience, while 0% reported a negative experience.
- Sid
- Taken for 6 months to 1 year
- June 6, 2024
Brukinsa (zanubrutinib) "Was totally fatigued and had severe weight loss. Two weeks on Brukinsa, noticed the difference. Taking 160mg in the morning and 160mg in the evening. After taking these for one year, my weight is back to normal, no serious side effects, did have some bruising at the start. Healed quickly."
- Brian
- Taken for 6 months to 1 year
- March 6, 2024
Brukinsa (zanubrutinib) "My doctor changed from Imbruvica to Brukinsa approximately 8 months ago. My IgM did improve slightly, but a terrible skin rash appeared all over my body accompanied with uncontrollable itching. I blame Brukinsa for that. I now need advice about what to take for my Waldenstrom's condition with fewer side effects."
Frequently asked questions
- S s c
- Taken for 1 to 6 months
- August 27, 2023
"I am 81 years old. I was experiencing weight loss, no energy, shortness of breath, and feeling constantly tired. I am on my fourth bottle of Brukinsa and my symptoms are gone. I am gaining weight again. No side effects other than bruising easily, which could be attributed to my age."
- ssge
- Taken for 1 to 6 months
- December 20, 2022
"My IGM has gone from 2400 to 285 in 3 months after going from 4000 to 2400 doing R-chop for 4 months. I feel much much better than I have for the last 9 months. Some of my problems I'm blaming the R-chop. The only problems I'm having are fatigue and joint pains. This could be my 75 birthday and the R-chop but I really didn't have any real pain in my thumbs until I started on the zanubrutinib. And it seems to get much worse. My hands are very swollen overnight. I'm not able to hold a golf club."
Are you taking this medicine?
- Nan
- Taken for 6 months to 1 year
- July 1, 2024
"I have been taking 320 mg daily for 6 months. So far, so good - no negative side effects, and my labs show improvement. My overall experience is positive - especially when comparing it to other treatments that included steroids. Just hoping it continues to work!"
- Ana...
- April 19, 2024
Brukinsa (zanubrutinib) "I have been taking it for 3+ months and have no bad side effects. It is reducing my M-spikes and most of my blood values have moved back into normal ranges. I couldn't be more pleased!"
- Buddy
- Taken for 1 to 2 years
- May 10, 2024
Brukinsa (zanubrutinib) "Taking it for over a year and I feel great. No side effects except some occasional bruising. IGM numbers are definitely lower than they were to start and approaching normal."
- Kay
- Taken for 6 months to 1 year
- June 29, 2024
"Very few side effects. Minor if any most days. Easy to take and simple to maintain correct dosage daily. IGM and viscosity going down. Pleased."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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- Drug class: BTK inhibitors
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Brukinsa (zanubrutinib) "I have been using Brukinsa for over two years and I am now having difficulties with weight gain and lymphedema in my legs and feet to the point that I am having difficulties walking and getting in and out of a seat, especially in cars. I am looking for help with little success."