Brukinsa for Chronic Lymphocytic Leukemia User Reviews

• Coz...
• Taken for 1 to 6 months
• December 12, 2023

"I was diagnosed with CLL a little over 3.5 years ago at age 70. We were on a 'wait and see' routine up until about 6 weeks ago. My oncologist said I should go on treatment and he recommended Brukinsa. Being a little 'freaked' out about having to go on treatment, I contacted MD Anderson. My wife and I flew to Houston and had an array of blood tests done. 19 vials. The Dr. was very kind and patient and explained CLL and the clinical trials they are now conducting. I asked him what he would do in my situation, he said to stay the course on Brukinsa as it is one of the newest of the BTK inhibitors. So, for right now, I'm sticking to Brukinsa. As far as side effects, I haven't noticed any."

• Mar...
• Taken for 1 to 6 months
• April 26, 2024

"Taking it since November 2023 for SLL. Within a week, all bulky adenopathy melted away with transient high lymphocyte blood levels, but normal range in a few months. I have mild fatigue and low immune function, but have not been ill otherwise. Constipation managed with Metamucil and diet changes. I noticed slightly increased bleeding during oral care and just noticed petechiae on my legs today, very minor. Labs have been good, but decreasing neutrophils, basophils, eosinophils. 160 mg bid"

• Vic...
• Taken for 1 to 6 months
• September 26, 2024

"My mom, 74 years old, started taking Brukinsa recently on Aug 20, 2024. All swelling lymph nodes on the collarbone and underarms are gone. She is losing a little weight, no side effects. I have noticed some skin dryness and wrinkles around the neck, a little fatigue, but overall, much better than before treatment. Thanks to the lymphoma clinic in Fred Hutch Cancer Center, Seattle, and thanks to the Beigene company and their support team."

• JGT...
• Taken for less than 1 month
• July 9, 2024

"I just started Brukinsa 3 weeks ago. I take 320 mg in one dose in the morning. It has not caused any discomforting symptoms. I had lab work done today, and my lymphocyte count went from 171 x 1000 down to 65 x 1000. My platelets are well within the normal range, but my hemoglobin went from 10 down to 9.5."

• Anonymous
• Taken for 1 to 2 years
• February 3, 2024

"Side effects come and go but are common, lasting a few hours or a couple of days, like joint and muscle pain, especially to areas that were previously injured. Otherwise, no problem handling them. Remission occurred in six months."

• DRT...
• Taken for 1 to 2 years
• March 29, 2024

"Continuing to work extremely well after one year. Some fatigue, and presently having persistent nasal congestion and sneezing, but not sure if it is from the medication. All of my blood counts returned to normal after one month, and have remained normal."

• Luc...
• Taken for 1 to 6 months
• November 16, 2024

"Although at last report, white blood cell count went down a little. Having many symptoms worse if cough, runny nose, very nervous, dry mouth, many skin problems arms at times almost black.... tiredness (usually very active), weight gain, swelling of limbs, breasts, etc., top of leg numbness."

• a k...
• Taken for 6 months to 1 year
• April 9, 2025

"I've experienced 24 different side effects since starting my treatment last year. Other than an extremely high white blood count, few, if any, of these side effects existed, and I really did not feel bad before the treatment."

• dmp...
• Taken for less than 1 month
• February 1, 2024

"I started on Brukinsa on the 5th. I marked improvement in my headaches. I was on Imbruvica since March of 21, starting at 420mg and then reduced to 280mg in hopes of reducing headaches. There was no improvement, so I was taken off it totally on November 15th. I still have issues with bad headaches, but the intensity isn't as bad."

• Ano...
• Taken for 1 to 6 months
• April 16, 2025

"Dosage: 160 mg b.i.d. Significantly improved labs. Side effects have been manageable and include nausea, bruising, cough, musculoskeletal pain, constipation, and headaches."

• Bru...
• Taken for 1 to 6 months
• February 3, 2024

"Already 4 months on Brukinsa. All enlarged lymph nodes have disappeared. Very minor side effect - upper right foot skin sensitivity. So far, it has worked very well for me."

• Ste...
• Taken for less than 1 month
• March 3, 2024

"4 weeks so far so good. No side effects. Lymphs have gone down."

• Ton...
• Taken for 1 to 6 months
• March 19, 2025

"I've been on this treatment plan since December 28, 2024, and so far, well tolerated. Haven't had any side effects from it and was diagnosed with CLL!"

• joh...
• Taken for less than 1 month
• March 15, 2025

"Been 3 weeks now. So far, pretty good, just a bit of nausea. Goes away after an hour or two."

• Sim...
• Taken for 1 to 6 months
• May 20, 2024

"Rash on face after 1st month; I started to cough out blood after 8 weeks"

• Anonymous
• Taken for less than 1 month
• June 3, 2024

"At times, after taking Brukinsa, seem to feel tired."

• rob...
• Taken for 1 to 6 months
• February 27, 2025

"After 1 month, still very weak, dizzy, and shortness of breath. That's about the worst of it. White blood count still going up."

• Mon...
• Taken for less than 1 month
• November 20, 2024

"I have just started my journey. (Second day on the drug.) I look forward to seeing the results as time moves along. I also look forward to hearing others' comments."

• bru...
• Taken for 1 to 6 months
• April 17, 2025

"Slowed down and maybe improved energy levels after approx. 90 tablets and six weeks. Recently had plastic surgery and the wound will not heal. Leaking blood still after 40 hours."