Vedolizumab for Crohn's Disease User Reviews (Page 3)

• Kevin...
• Taken for 2 to 5 years
• March 15, 2022

Entyvio (vedolizumab) "I have been receiving Entyvio infusions for about three years for a Crohn's diagnosis of 40 plus years. I generally feel good but am plagued by frequent bowel movements - two to five time per day. Keeping a normal weight for my height is a challenge as it is a daily struggle to eat enough to replace nutrients lost during my daily purging. My current colonoscopies show that inflammation in my small intestine is 'stable' meaning it hasn't improved or gotten worse. When I first went on Entyvio I was told my Crohn's was in remission. Now I'm questioning whether Entyvio has run its course and time to try another treatment. I would rate the effectiveness of Entyvio at about a 4. If the number of bowel movements were to improve I would rate it close to and 8 or 9."

• Possu...
• Taken for 6 months to 1 year
• June 12, 2024

"I had UC from 1974 and an ileostomy in 1983 and lost my large bowel and rectum. In 2013, I developed Crohn’s disease but it was misdiagnosed as self-harm initially after a skin specialist ruled out Pyoderma Gangrenosum. I developed fistulas and one surfaced on my abdomen, leaking liquid feces. I was in agony and treated badly because of the misdiagnosis. Despite the agony, I was only in the hospital for 3 days. The Community Nurses couldn’t keep packing the wound, which was 14cm deep and leaking constantly. Finally, I was admitted on end-of-life care. My gastroenterologist asked to do a scope but perforated my bowel. After a very long surgery, I lost all but 4 feet of my small bowel. I started on Humira and lost my hair; I had many abscesses over the 8 years on it. I started on Vedolizumab infusions 8 months ago and my skin has cleared up. After infusions, I have hot coughs. I’ve put on 10kg even though I haven’t eaten for 7 years. I live on hospital formula, Hydralyte, and IV drips."

• Anonymous
• Taken for 2 to 5 years
• March 24, 2022

Entyvio (vedolizumab) "I’ve had Crohn’s since 1968. I’ve been on asulfadine, prednisone, Bentyl, amitripaline, parnate, remicade. Prednisone worked but the side effects impacted my joints. Second surgery in 2006. Started Imuran. It worked ok but not great. At my age, the doc said lymphoma potential was becoming a possibility. So I started Entyvio. It’s been over two years. I have my life with no issues except getting the infusion every 8 weeks. No side effects. Colonoscopy after 2 years showed over 90% reduction in inflammation. Biggest issue is losing 2 feet at the end of the small intestine resulted in needing B-12, D, E, K, and iron. BMS down to two a day unless I have certain spices or fatty meat, or anything deep fried. No medicine works for everyone, but this one has worked for me."

• Henry
• June 27, 2024

Entyvio (vedolizumab) "Entyvio working well now after 9 weeks with no side effects to speak of. I was ready to try Stelara if the Entyvio didn't kick in by week 10. As I understand it, Entyvio works incredibly well in 15 percent of patients, almost like a cure for Crohn's. Not as great for others who get on it. Such a relief to feel strong and positive again. To be more active without fighting fatigue and inflammation... and those terrible nights. I've started to test it out with some high fodmap foods which I would've never done two weeks ago... with great success. Regular exercise and alternative therapy and oils definitely help to boost the Entyvio, get me through the transition and lift mood. Fingers crossed... and no more prednisone."

• Don
• Taken for 1 to 6 months
• September 27, 2023

Entyvio (vedolizumab) "I started Entyvio some 26 weeks ago and I've experienced relief. I noticed diminishing symptoms from Crohn's disease around week 3. I did experience some discomfort prior to the second infusion at 8 weeks as well as just prior to the third. My gastroenterologist has now scheduled the infusion every 6 weeks and I look forward to full remission."

• son...
• Taken for 1 to 2 years
• June 23, 2023

"My experience with vedolizumab has been varied. The inflammation has stabilized my symptoms to a point I have found less invasive than other treatments. I accept they may all have different side effects for others. I have had Crohn's for around 30 years. I was diagnosed with Crohn's in 2018. Until then, I had no treatment as I was diagnosed with irritable bowel syndrome in 1985. My condition had progressed further than I and the doctors would like. My side effects are mainly terrible teeth pain and excruciating joints. I have never experienced this before; the problem I have just been diagnosed with is osteoporosis and osteoarthiritis. which is common in Crohn's patients. Seriously for myself, I believe it is something to do with my bone problems(I cannot prove it for myself. It seems logical, but I am not a doctor}. I do believe it will help some. unfortunately, in the last ten years, I have had a heart attack and bypass surgery, diabetes type 2, and a mini-stroke. I cannot say if this has affected the side effects?"

• Dange...
• Taken for 6 months to 1 year
• October 16, 2018

Entyvio (vedolizumab) "My husband took this drug a couple years ago for Crohn's and it caused him to have a stroke. He is lucky to be alive but would never recommend this drug to anyone."

• Worse...
• Taken for 1 to 6 months
• March 24, 2017

Entyvio (vedolizumab) "Flushing similar to hot flashes, nausea, severe headaches/migraines, increased diarrhea the day of infusion for up to two weeks after."

• Nick
• January 29, 2021

Entyvio (vedolizumab) "I was nervous to try something other than Remicade, but since the antibodies for Remicade were increasing I had to try something. This drug has been a good substitute with no noticeable side effects."

• ree-g...
• February 17, 2017

Entyvio (vedolizumab) "bowel control increased to approximately 60% side effects: runny nose, increased mucus, cough"

• Theo
• Taken for 1 to 2 years
• March 8, 2017

Entyvio (vedolizumab) "Stayed on it for over a year. Took in combination with Entocort. Saw little to no improvement. Gave significant side effects such as flushing, fevers, nausea, chills, severe migraines etc."

• Habib...
• Taken for 2 to 5 years
• April 16, 2024

Entyvio (vedolizumab) "After taking Entyvio for 3 years, I feel better. No remission, no pain, no hospital visits to solve the problems. I appreciate the company that's made me so happy after using their product."

• Rand
• Taken for 6 months to 1 year
• January 29, 2021

Entyvio (vedolizumab) "This drug saved my life. It gave me 15 years more of life. Remicade had stopped working and this drug worked."

• Randy
• Taken for less than 1 month
• December 31, 2020

Entyvio (vedolizumab) "It’s has only been 4 days since my initial Entyvio treatment but I feel better. Less cramping and less bathroom trips. So far no negative side effects"

• Tony
• Taken for 1 to 2 years
• December 5, 2023

Entyvio (vedolizumab) "Brilliant stopped almost all my symptoms, easy to use pen-style injections. Entyvio 108mg injected every two weeks."

• John...
• Taken for less than 1 month
• April 12, 2023

Entyvio (vedolizumab) "Works well and is easily taken by mouth - have only been on it a short time, but seems to be working well."

• Little...
• Taken for 2 to 5 years
• August 27, 2018

"All the side effects including breathlessness. It certainly doesn’t make my life better."

• WDCPSYD
• Taken for 1 to 2 years
• October 12, 2023

Entyvio (vedolizumab) "Infusions are easy; no adverse reactions to them. Crohn's symptoms have much improved. Side effects: it seems to be easy for me to get candida or urinary infections, and hard to get rid of them."