Ingrezza for Tardive Dyskinesia User Reviews

• Hop...
• Taken for 1 to 6 months
• January 11, 2020

"I am a parent of a son with schizophrenia. He most recently has been on Haldol for the last 2 1/2 years and started showing signs of TD (thrusting of his tongue). He tried Ingrezza first for 2 months. Started extreme drooling problems, limited speech, and vomiting. Discontinued Ingrezza, but his psychiatrist said his symptoms were not from Ingrezza. Per the doctor, he again went on Ingrezza to help his Tardive Dyskinesia, but within 2 days on this second try, MY SON HAD COMPLETE LACK OF ABILITY TO MOVE NOT ONLY HIS MOUTH BUT HIS ENTIRE BODY!!! HE DROOLED, COULD NOT SWALLOW, FROZEN IN PLACE STANDING IN THE HALLWAY. I had to help him move, and the vomiting again happened. He could not even direct his head over a trash can to vomit. It just came spewing down his face. Did not work for my son!"

• Tic...
• Taken for 1 to 2 years
• August 22, 2019

"Medication made me gain 70 pounds. That's right, you heard me, 70 pounds. Did not entirely stop my symptoms, so the doctor switched me to Vraylar, and I dropped 20 pounds and have no symptoms. Stay away from this drug unless you want to be obese like I am now."

• Aut...
• Taken for less than 1 month
• June 18, 2019

"I started noticing my tardive dyskinesia when I went on Abilify injection to treat my bipolar disorder. I had uncontrollable mouth movements and would often get comments asking me if I was chewing gum or yawning. My doctor recommended this drug and warned me that it is a fairly new drug and is in trial stage. I started taking it and within a couple of days, I started drooling uncontrollably and even broke out in hives! I believe I was allergic to the drug. Also, I did consume alcohol while on it, and I almost fainted and had to vomit very quickly. Now I am on Lamictal for BD and don’t have TD anymore! :)"

• sop...
• January 25, 2022

"Beware! Beware! This drug cured my Tardive Dyskinesia (TD) alright. And in exchange, it gave me Parkinsonism! Now I have a bunch of diseases, including MS, but nothing in my life was worse than this. I couldn’t eat a bowl of cereal, get up off the couch, get into or out of bed by myself, walk, write, turn over in bed, carry a cup of coffee, or even wipe myself. My husband thought he was going to have to quit his job to take care of me. I had to wait months to get an appointment with a super-specialist, then months more to wean off the drug very slowly. And now I am severely obese to boot. I lost a year of my life. Thank you, Ingrezza."

• Ran...
• Taken for less than 1 month
• October 6, 2021

"Beware this drug. After about a week and a half of using Ingrezza (which had no positive effect on my TD in that time, incidentally), I had an anaphylactic reaction resulting in hospitalization. I'm very lucky I didn't die, since it occurred very suddenly at night. I only lived through it because my mouth was so swollen that it was numb, and I woke up when I rolled over on that side and felt the strange sensation. That is the only time I've ever had an allergic reaction of any type. Again, beware."

• chi...
• Taken for 1 to 2 years
• June 13, 2020

"This medication is great. I have been on it since Jan 2019, diagnosed with TD since 2015, and it has all but stopped all the symptoms. Previous treatments were Cogentin, propranolol, and Klonopin, none of which seemed to have much of an effect. I have my life back thanks to this med."

• 28y...
• April 7, 2023

"Didn't work at all. Had a lot of side effects. Cost $100 a pill and I had to take 2 pills a day! I tried it again eight years later. Instead of them sending a week at a time, they sent out 5 weeks' worth at over $6,000.00. After the first pills were taken, I got bad side effects. We disposed of the pills properly. Don't waste your time on it. Get samples to see if it's going to work first. It's a rip-off, and you probably get better results eating jelly bellies."

• Djo...
• Taken for 2 to 5 years
• April 26, 2024

"I took Austedo for a while to control my TD symptoms. It was great at first, then, symptoms returned. I was then prescribed Ingrezza. You'll probably have to get a prior authorization from your insurance. It costs about $8,000. I have Medicare UHC, and they cover it. This made me really sleepy throughout the day, which resulted in being prescribed another drug. I took it at bedtime. I rarely have TD symptoms. It's worth it to have those sleepy days."

• Mic...
• Taken for less than 1 month
• October 4, 2024

"For me, it has been a wonderful experience so far. Started with the 40 mg dose and then up to 80 mg, and my tongue has had nothing but relief from the use. My TD issues are mostly with my tongue and mouth, and it has just been relief. I personally am very thankful for this medication, as it is simple to take, and my personal experience has been zero side effects."

• Sta...
• Taken for 10 years or more
• December 25, 2024

"I started taking Ingrezza 80 MG in 2012-13, which my psychiatrist prescribed to me because he noticed my shaking/involuntary movements, which he then asked me what was wrong, and I told him nothing was wrong, but I was diagnosed with Akathisia Tremors in 2019-20. Ingrezza 80 MG has helped me out with slowing down the shaking/involuntary movements. Even though it didn't stop completely, I can eat without my hands shaking so badly that it is noticeable. I haven't had nor have gotten any side effects from taking Ingrezza 80 MG."

• Sue...
• Taken for 1 to 2 years
• February 28, 2023

"My husband has taken Ingrezza (40 mg/day) for a couple of years now due to TD. He has had schizophrenia for decades and has been on Clozapine for 18 years, various other schizophrenia meds before that. He takes his meds always and has a healthy lifestyle which includes daily exercise and careful eating and monitoring his Type II diabetes. I just happened to look at these reviews and was shocked at the bad experiences people have had. He has had nothing but excellent results. Ingrezza removed the mouth movements with no side effects at all and no weight gain. In fact, I think over time it has also helped to decrease hallucinations and increase focus. I don't know if it is because his health and medications are so stable and consistent, I really can't say why his experience has been successful when it has not been so for others. But Ingrezza has certainly worked well for him."

• CFW...
• Taken for 2 to 5 years
• October 14, 2023

"My husband suffered from Parkinson’s as well as unipolar biological depression. His antidepressant medication caused TD, which he suffered from for years. His psychiatrist recommended Ingrezza. It truly was like a miracle cure, his symptoms were elevated within 24 hours. I bless whoever invented this every day."

• dfu...
• March 31, 2023

"I was experiencing uncontrollable tongue and jaw movements. I was and still am taking antipsychotic medications. It took only ten days for Ingrezza to significantly reduce the symptoms of TD. Because of other medications that I take, my doctor decided to keep me on the lower dose of 40 mg per day. The only side effects I have are sleepiness and fatigue. The reduction of my TD outweighs the side effects I have of Ingrezza."

• Ann...
• Taken for 1 to 6 months
• December 16, 2023

"It helped my TD but brought on severe hand tremors, so I stopped taking it!"

• Sha...
• Taken for less than 1 month
• July 30, 2022

"It not only didn't help, I now have Parkinsonism and am severely bent over, require a cane, and need help with everything! I have no quality of life now, thanks to this drug."

• Pre...
• Taken for 6 months to 1 year
• March 15, 2023

"Made my symptoms slow down to where you barely see the twitching. I had a pronounced movement in my mouth. Ingrezza made the tardive dyskinesia not so noticeable."

• Anonymous
• Taken for 1 to 6 months
• January 19, 2025

"Ingrezza has been great. Started about a month ago, so it's still pretty early to tell, but positive it will work. The only side effect I had was sleepiness, which the doctor informed me."