Ustekinumab User Reviews & Ratings (Page 5)

• Sus...
• September 27, 2017

For Psoriatic Arthritis "I am a 59-year-old woman who has psoriatic arthritis for over 7 years now. I was on Remicade and decided to try something else, so my RMD put me on Stelara. So here's the thing: although my psoriasis cleared up, my arthritis is bad. I've only been on it for 2 months, so I am giving it more of a chance. Anyone else here have arthritis and on Stelara? Thoughts, please, and thank you."

• Anonymous
• January 24, 2012

For Psoriasis "I'm 61 and have had psoriasis since I was 16. Of all the medicines I have tried (MTX, Enbrel, Raptive, Cyclosporine, Humira), this is the best in terms of effectiveness and side effects. I'm about 90% clear and have no side effects."

• tak...
• Taken for 1 to 6 months
• May 6, 2012

For Psoriasis "I have both psoriasis and psoriatic arthritis. I have been dealing with psoriasis for over 20 years all over my body and head... always embarrassed and having to wear long-sleeved shirts. Those of you that are still looking for something, Stelara is worth trying. I love it, after trying several other medications, this is so far the best. I have found, and it helps with both. I haven't had any side effects either. I have a 3-year-old, and I can finally take him to the park alone."

• Mat...
• Taken for 1 to 6 months
• March 4, 2020

For Psoriasis "I got my first plaque psoriasis patch on my scalp in the year 2000. Slowly, it increased all over the scalp and then different parts of the body. I was controlling it by applying various steroid creams, lotions, and moisturizers, but slowly got immune to most of them and they were not giving any relief. My doctor prescribed a few different drugs one after another. All of them were giving me too much trouble due to adverse side effects. Finally, he prescribed me Stelara. I took the first two shots and I am going for the third tomorrow (5th March 20). All my scalp got cleared two weeks after the first injection, and most of the other plaques on other parts of the body are getting cleared now. At least there is no flaking from the spots. Though I still have some joint pains, especially during early morning."

• don...
• Taken for 2 to 5 years
• January 15, 2013

For Psoriasis "Stelara is very effective, have been on it for 3 years and can lengthen time between injections, i.e., 16 weeks without too much flare-up. Have experienced chronic rhinitis and symptoms of depression as side effects."

• pat...
• July 1, 2015

For Psoriasis "I'm 38. I've been on Stelara for 6 years, and I was 80% covered. Within 6 months, I was 95% clear. The only drawback is it doesn't work on my scalp, and my fatigue over the years has gotten worse. Some days I don't even want to move."

• jai...
• December 1, 2014

For Psoriasis "27-year-old female. Suffered with plaque psoriasis since age 12 (15 years) just woke up covered from head to toe one morning. Tried every treatment available in Canada - nothing worked. Parents went on a year-long hunt for a cure the first year I had psoriasis, but turned up with nothing that remotely worked. Two years ago, I was prescribed Stelara, best decision I ever made. Price is insanely high, but with the right team's amazing coverage became available. So far, no noticeable side effects other than my common cold lasting longer than usual. Blood work and tests always come out fine. Only problem I have had while on this medication is I was diagnosed with strep throat, and because of that, my psoriasis came back very drastically and overnight."

• Jub...
• Taken for 6 months to 1 year
• August 15, 2018

For Psoriatic Arthritis "Severe psoriasis for 36 years. Progressed into psoriatic arthritis. 90% of body covered. Stelara has drastically changed the way I feel and look. 85% clear, and arthritis has subsided. My quality of life is something I cannot put into words. That disease was ravaging my body, first time in 35 years I feel better mentally and physically. Truly amazing."

• JR ...
• June 24, 2013

For Psoriasis "After my first initial starter dose, my affected areas (back, rear end, hips, front legs, hairline, and behind the ears) were almost totally clear. After my next shot to present, my skin is totally clear. I only have one issue (possible side effect), raising LDL (bad) cholesterol. My doctor did not think it was the cause. Had a regular liver enzyme test ordered by my doctor. I used another facility for the labs as I have no insurance. This test came with a full liver profile, and my total cholesterol was 350. It's never been over 220, and that's when I drank, smoked, was overweight, and ate terribly. All of those are now null. We tested it again a week later, and it was 344. I waited 2.5 months and retested, and it was 285. Nothing has changed, except time."

• ber...
• October 4, 2011

For Psoriasis "I have had memory problems for several years. I have been on the same medication for mental issues for at least 2 years. I received my 1st shot of Stelara, and it has been 3 weeks ago. I just wondered if this medication has been tested for other uses besides psoriasis? My memory is slowly coming back to me. And I would like to know if this could be due to Stelara? I love this change in me, and I think it's from the Stelara, not to mention my psoriasis is great - in the week, all my white scales went away. Thanks."

• No...
• April 11, 2012

For Psoriasis "I have had horrible psoriasis since the age of 20. Even as a kid, I had a flaky scalp that was embarrassing. Stelara, for me, feels like a miracle. I have been on Enbrel, cyclosporine, and I've used all of the steroids. I've used the Pagano diet, which is very difficult. Stelara is great. When I combined UVB lights at the doctor's office with Stelara, my skin cleared up 100 percent in about 3 and a half weeks. My scalp even cleared up. This is the only medicine that works that I've used. The blood tests to stay on the medication are expensive, and sadly many insurance companies won't pay for this. I hope that changes. I was so sick I could not work and got Stelara through charity for 1 year. It is amazing."

• Bos...
• August 17, 2018

For Psoriatic Arthritis "My psoriasis was so bad. Angry red, layers upon layers of scaling on both legs, elbows, even the groin area sometimes. I've been on so many medications for so many years I've lost count. Stelara is a miracle drug for me. After the first shot, within those first 30 days, my scaling was 99.9% GONE!! It's been over a week since the second shot, and my skin looks amazing. I can't say enough good things about this medication. I don't have to wear jeans and long sleeves in 90-degree heat this summer! Thank you so much, Stelara!"

• Kar...
• Taken for 1 to 6 months
• October 9, 2020

For Crohn's Disease "No side effects (only fatigue), but not working very well to control Crohn's flare-up. Don't use this if you have a severe active flare, you will not be able to control your disease. I'm switching to anti-TNF."

• Anonymous
• March 23, 2011

For Psoriasis "I just started Stelara 5 weeks ago. It is amazing! I had plaque psoriasis all over my body (50%). 98% of the psoriasis is GONE. I only have some small spots left on my elbows and knees where it was really thick and crusted. I don't have dandruff anymore. I can wear shorts and short shirts now. This is awesome! So far, no side effects. I am so grateful to the folks who made Stelara. Check with your insurance. I was thinking it would be too expensive, but when I checked, my insurance covered most of it. You have to work with specialty pharmacies to get it in my experience. Most pharmacies have them, but there is usually only 1 location where it is."

• Hou...
• Taken for 5 to 10 years
• October 17, 2019

For Plaque Psoriasis "I suddenly had plaque psoriasis show up at age 56 (male) with no general history of skin conditions before. Within one year, the plaque psoriasis had expanded to 40% of my body. Within one month of the first injections, I was on the way to clear skin. I have been clear-skinned for the past four years now. No side effects that I am aware of. For me, it has been like magic-amazing."

• Abl...
• Taken for 1 to 6 months
• October 23, 2016

For Psoriatic Arthritis "Stelara has lowered all the inflammatory markers in my blood to within a normal range. This, however, doesn't repair damage already done. I am, however, suffering much less burning in the joints. The aching is still pretty much the same. I was previously on Enbrel and have been on Stelara for only two months, so a way to go yet. So far, so good."

• Bar...
• Taken for less than 1 month
• September 20, 2021

For Crohn's Disease "I just started Stelara to treat Crohn's. It's been a rough year with 4 hospitalizations and constant illness related to the disease. I'm so hopeful that Stelara will allow me to stay off the oral steroids. The steroids are super effective but of course, horrible side effects. I've gained so much weight I don't recognize myself. I've only been on Stelara a week, so it's too soon to tell, but I do notice I'm sleeping a lot more than usual and I've been noticing a slight soreness in my throat. As I've been reading the reviews, I noticed a lot of people mention depression, which is concerning as I struggle with depression anyway. I'm hopeful Stelara may be the drug that finally works for me. Good luck to everyone in your healing journey."

• HIM...
• Taken for 5 to 10 years
• March 8, 2016

For Psoriasis "I have had psoriasis since 1978. I had tried just about everything when my dermatologist suggested I take part in the study for a new drug, eventually called Stelara. It worked about 80% and left only two patches of itchy plaque. It has not increased (or decreased) since then. I went off of it (would not sign the papers to put my information in the cloud) in June of last year (2015). Surprisingly, it has not returned any worse in the 7 months I have been off of the drug. The two patches remain the same and all other body parts remain free of plaque. I'm feeling pretty good about that - I hope it continues."

• Muf...
• Taken for 2 to 5 years
• October 18, 2012

For Psoriasis "Stelara was just as effective as the other biologics (Enbrel, Humira). A bit inconvenient is the doctor visit for the injection, but it is better controlled in this application. Great medicine for psoriasis. Been on it for 3 years and just recently getting headaches (5 days since injection). I'll give another 48 hours, then I'll check in with my doctor. I am still sold on this medication, wonderful breakthrough."

• Daw...
• Taken for 2 to 5 years
• January 11, 2022

For Crohn's Disease "I started with Humira when my disease was so horrible. I was in the hospital every month for two years, and it never worked. I’ve had 5 surgeries since 2016, and Stelara was a lifesaver for me. I started Stelara in the beginning of 2019, and I am still not in remission, getting close, but it definitely makes me feel better, and I have no side effects. No bleeding, which was a serious problem for me. Maybe tired, but I am always tired! Stelara and my awesome GI doctor have saved my life."

• Ran...
• May 8, 2019

For Psoriasis "18 yr old college student here! I was diagnosed with psoriasis a little over a year ago. I got my wisdom teeth out in March of 2018, and after 3 weeks, 85% of my body was covered in severe psoriasis. I used diet change, topical ointments and creams, phototherapy, cyclosporine, Humira, and Stelara. I built up autoantibodies to Humira, so I had to switch medications, and who was the lucky winner??! You guessed it. STELARA! I have been experiencing joint pain recently, but my skin is 99% clear now after taking my first dose of Stelara this January. I took my third dose 3 days ago, and my life has completely changed. I can actually focus on my studies while feeling healthy and happy in my own skin. Thank you, Stelara. You are giving me the chance to live out my college years to their fullest. I gave it a 9/10 rating because it was a NIGHTMARE trying to get my Stelara ordered to the package center at my college dorms."

• ele...
• Taken for 1 to 6 months
• July 14, 2013

For Psoriasis "I have had two injections of Stelara so far, and I am clear of all psoriasis. I did not have psoriasis too bad, just on my hips, elbows, and the side of my nose. I have kept my head shaved, which helps keep it off my head. I have been dealing with psoriasis for over 20 years but have just recently developed psoriatic arthritis (about 3 years now). I was on Enbrel, and it worked well for the psoriasis, but did nothing for the arthritis, and it looks like Stelara is going to be the same way, even though the doctor said it should work better than Enbrel for arthritis. The only other change in my lifestyle that I have noticed is the fact that I can hardly sleep-3 hours a night on a good night. Not sure if this is because of the Stelara or not."

• Neu...
• Taken for 1 to 2 years
• October 22, 2019

For Psoriasis "I had psoriasis really bad that covered 80 percent of my body. Tried creams, ointments, and Humira, which helped clear some of it, but then I tried Stelara for the past two years and am now 99% clear with no side effects!"

• fid...
• Taken for 1 to 6 months
• July 5, 2015

For Psoriatic Arthritis "Tried for 6 months after Humira for 3 years. Horrible lower back pain, symptoms of PSA worsening each month, psoriasis worsening each month, and the last shot has permanently discolored the skin on my thigh in a 3-inch by 2-inch area. Very noticeable and hasn't gone away even though discontinued Stelara several weeks ago. Back pain still unbearable at times. Would not use again ever."

• Tob...
• Taken for 6 months to 1 year
• December 28, 2019

For Psoriasis "After the load Stelara shots and before the first maintenance dose, my psoriasis cleared up almost completely. Then it stopped working. I now also feel lethargic and am depressed, crying for no reason. I will be trying something else more targeted for psoriasis. There have been a lot of new products coming out now, some of them are just for psoriasis. I am glad I gave it a try, though."