Topiramate for Trigeminal Neuralgia User Reviews

• pep...
• February 23, 2012

Topiramate "It took me a year to be diagnosed with trigeminal neuralgia - and I had to go to a doctor in Vienna for this, because the doctors in Romania misdiagnosed me - but Topamax is the medicine that really saved my life. Literally! Because I was contemplating suicide, the pain was that bad and nothing else was working for me. I have lost a little weight in the first couple of months, and I also have some trouble finding common words while speaking, but otherwise I did not experience any other side effects so far. My cholesterol level is now increasing - I am wondering if anyone is experiencing that as a possible side effect."

• Anonymous
• April 27, 2008

Topiramate "I suffered a stroke in '04, and my neurologist prescribed Neurontin to deal with the resulting numbness and tingling on the right side. A year later, and after emergency gallbladder surgery, he put me on a low dose of Topamax instead. It worked well, but I've had to eventually increase the dosage. The side effects were minimal; I needed to lose the 35 lbs I lost (and my wardrobe needed updating :0), and the additional tingling is nothing compared to what I feel when I don't take it. Expensive!"

• And...
• Taken for less than 1 month
• March 27, 2014

Topiramate "Placed on Topamax for severe migraine and trigeminal neuralgia. Three days later became disoriented with a rash and soreness all over the body, then skin became scaly. Numbness in both hands and feet. Ceased Topamax."

• Ang...
• December 10, 2020

Topiramate "Everybody responds to medicine differently. In my case, Topamax made everything bad for me. The pain of trigeminal and occipital neuralgia got really bad, and I was not able to sleep at night. It also gave me anxiety. I was not hungry, I was like a zombie. I've been with this pain since May 2020. My neurologist does not know why I started with this pain. My MRI and CT scan are normal. The next medication I'm going to start is Gabapentin. I'm really hoping this medicine will work."

• Hea...
• Taken for less than 1 month
• October 12, 2015

Topiramate "I only took Topamax for a short time, but the side effects were so bad I had to stop. Primarily, it made me feel goofy. I was in a cloud and had trouble remembering how to get places I went to frequently. I lost the ability to taste bubbles in beverages, and beer or soda without carbonation just wasn't the same. In short, the nickname 'dopamax' seemed well-earned to me."

• ive...
• November 6, 2010

Topiramate "This did not help my trigeminal neuralgia at all, even at high doses. It had helped me in the past for neuropathic pain in my neck, so I was surprised, but then, trigeminal neuralgia was a surprise. The side effects of high doses of Topamax for me were serious cognitive issues, hence, no help - bad side effects. I did find other medicines in combination that work - nortriptyline, Trileptal, and gabapentin."

• Eli...
• December 7, 2016

Topiramate "Works well when combined with medical marijuana. I take them at night, 2 in the morning. It lets me be able to sleep at night. I wasn't able to lay down after a failed MVD operation. Since I started the brand name Topamax, it helped me a great deal."

• Ken...
• Taken for 2 to 5 years
• February 9, 2018

"Drug worked fine, but side effects almost killed me. I had over 73 kidney stones, two stents, and two laparoscopic treatments. My renal doctor and urologist couldn't figure out why. Then I saw a magazine article, Topamax now used for headaches at 25 mg. Caution - May cause kidney stones. Was never a warning when I was on 375 mg. Stopped it and never had another kidney stone."

• Lay...
• January 12, 2016

"I'm giving it a 10 for the decrease of nerve pain, and it saved my life, truly. However, the weight loss? The only weight I lost was 17 lbs walking my dog and Nutrisystem 2 years ago and gained back 5 lbs of that when he got injured 3 months ago. This didn't help me lose one pound. I'm on 75 mgs a day, started at 50. It did change my taste, I no longer like orange, but it does zero for weight loss, which I was looking forward to since I have a good 30 lbs to lose. :) So big ups for the nerve pain, and I had no idea it worked on migraines, no wonder I hadn't had to have my migraine prescription filled in 2 years! So it has great benefits, and I would highly recommend it for other issues, but not weight loss. Good luck and happy New Year, all!"

• jle...
• June 18, 2010

"At first, this medicine worked great. I went from Tegretol to this one. I have bilateral trigeminal neuralgia, so they started me out at 50 mg and bumped me up quickly to 100 mg. It seemed to be working great, and yes, the bathroom trips at first seemed to be never-ending, but after a while, it seemed to calm down. I have been on it for 6 months now, but after upping my dose to 150 mg, after the pain started to come through with a vengeance, I started having twitching in my eyes and mouth, and other side effects happened as well. So I have to stop taking it now and start a new regimen. I did, however, lose 20 lbs, so that was a great thing because I was needing that!"

• 28E...
• Taken for 6 months to 1 year
• November 6, 2017

"I was given this medication because I have a very complicated case of trigeminal neuralgia, and after trying all of the others, this was one of the last before surgical options. This drug gave me severe memory problems to the point of needing a memory drug used on Alzheimer’s patients, and peripheral neuropathy, as I did not have it before and only did while on the medication, and it went away as soon as I stopped it. I don’t recommend taking it as I wasn't warned that the side effects can become permanent."

• MA ...
• July 13, 2008

Topiramate "I have taken it for 1 and 1/2 years for migraine. Also, after developing chronic lower back pain from degenerative discs, it has really helped me cope with the pain."

• Anonymous
• March 13, 2009

Topiramate "OK if you can tolerate the side effects."