Topiramate for Fibromyalgia User Reviews (Page 2)

Brand names: Topamax, Trokendi XR, Qudexy XR Eprontia

Topiramate has an average rating of 6.2 out of 10 from a total of 42 reviews for the off-label treatment of Fibromyalgia. 55% of reviewers reported a positive experience, while 36% reported a negative experience.

Reviews for Topiramate

Fibro...
Taken for 2 to 5 years
July 22, 2019

"I have been taking Topamax for 3 years now, for fibro and bipolar disorder. My dosage has been 150mg twice daily and on this dosage I have not experienced any pain and my mood has been stable. Getting onto this drug was difficult for me, I am an ex street drug user and while getting onto this medication it made my body feel like I was withdrawing from drugs at the times I was in between my doses. Once that was over the normal weight loss that most have, carbonated drinks etc I also experienced. Something that I have experienced that I have not read about is a MAJOR increase in food sensitivities. I am in my 40's and I have read that women who are hormonal can become food intolerant while taking Topamax. Recently I reduced my dosage to 100mg twice daily and my pain has reared its ugly head. For me topamax is a good medication. Good luck everyone. "

10 / 10

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15 Report

Momj
August 26, 2019

"For all you on Phetermine get off of it. You don’t need it to lose weight. The Topiramate you will drop weight on this alone. Especially at 50mg and above. Try not eating out fast food will put weight on you like no other, so will diet soda that’s worse for you than regular soda, don’t eat sugar free anything it’s all made with fake sugar your body can deal with real sugar as long as your not making a pig of yourself. But seriously even if you're not trying this will help you drop weight."

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14 Report

Blue
Taken for less than 1 month
March 27, 2018

"I started this medication for fibromyalgia and weight loss. I had a horrible reaction. I felt like I had the flu, I was cold and hot. The worst part was it was like it sucked all the energy out of me. All I could do was lay in bed and cry. I only got up to get water and go to the bathroom and even that was hard to do. Every time I would get up I felt like I was going to pass out. I would get dizzy and I had shortness of breath. Finally after 5 days I gave up and stopped taking it. Never again will I take this medication."

1 / 10

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16 Report

Frequently asked questions

It...
Taken for less than 1 month
October 23, 2016

"My doctor prescribed it for pain, but after taking only three pills I was dizzy, confused, I couldn't finished my sentences, I felt like I had had a stroke. I was in such bad shape. My daughter came over right away and took me to the hospital. They did a CAT SCAN because they thought I had a stroke. I THINK I DID!!!!!!! I AM WRITING THIS FROM THE HOSPITAL. DONT TAKE THIS MEDICINE!!!"

1 / 10

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17 Report

Sleep...
December 14, 2016

"I was put on this for my fibromyalgia and all I do is sleep and still in pain. I would rather be awake and somewhat enjoy the holiday. It also makes me walk like I'm drunk! This is on a do not take list"

1 / 10

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13 Report

Are you taking this medicine?

Bokeys
May 13, 2016

"I am getting ready to start this medicine so thanks for all the information. I also have tried everything with no real help. I also had bad HAIR LOSS for years now. And am not sure what causes it but have found a fix. Onion juice. I liquidity a onion with olive oil. The smell will be horrible, put it on all over hair an scalp. Leave on for an hour or more. Shampoo with dawn dish soap good twice an sock hair twice with vinegar. This will take care of smell. The results were immediate and awesome. Now instead of a hand full of hair with my shower I only have a few strands. I done this two weeks in a row, now I'm gonna go to once a month."

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12 Report

tryin...
Taken for 2 to 5 years
May 2, 2015

"I've been on it all! Cymbalta, toparite, Lyrica and Nexium. Also, Inderal. Still am for that matter! Fibro kicks butt and I don't know which one works and which one doesn't at this point. I do know I am losing my hair and my nails are peeling off! If anyone has any suggestion as to which drug might be doing this please help! I can't find this as a reaction to any of them."

5 / 10

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7 Report

More FAQ

Anyways
Taken for less than 1 month
December 17, 2021

Topamax (topiramate) "I just started topamax 100 mg a day but I’m also on gabapentin as well I’m haven't lost any weight. Has anyone been in this situation? Or if I completely go off gabapentin and just take topamax will it be ok? or will I start having withdrawals?"

10 / 10

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1 Report

Dov...
Taken for 6 months to 1 year
October 26, 2021

Topamax (topiramate) "This drug had absolutely no effect on my fibromyalgia symptoms, and on top of that it severely worsened my depression and suicidality. The only benefit I experienced was it inhibited sweating, which was a nice relief albeit not the point. I tried it alone and also with Keppra, to no avail. All of this occurred in my early teens, so I can't remember the exact dosage - I believe I was taking the recommended dosage as suggested by Table 1 in the dosage guide, but only once a day."

2 / 10

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0 Report

barbi...
Taken for 2 to 5 years
April 13, 2014

Topamax (topiramate) "Took away 95% of my pain"

10 / 10

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87 Report

momma...
December 21, 2009

Topamax (topiramate) "It's a wonder drug - my daughter takes it and lost so much weight. Her headaches are gone, she feels like a million bucks."

10 / 10

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110 Report

Holyc...
Taken for 2 to 5 years
August 31, 2013

Topamax (topiramate) "Helps with sleep and weight loss"

6 / 10

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60 Report

Anonymous
Taken for 6 months to 1 year
May 20, 2012

Topamax (topiramate) "WEIGHT LOSS GREAT but hair loss is not worth it"

1 / 10

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64 Report

efloyd
December 16, 2011

Topamax (topiramate) "Had cognitive thought and short term memory loss issues. "

1 / 10

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49 Report

galla...
August 10, 2011

Topamax (topiramate) "I didn't like Topamax. I became very paranoid, anxious and since I have been off of it I still have mild side effects from it. Not a good experience. Glad it works for some."

1 / 10

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45 Report

Anonymous
August 15, 2011

Topamax (topiramate) "This medication made me very anxious and caused panic attacks."

1 / 10

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42 Report

Happier...
Taken for 1 to 6 months
April 25, 2021

"I have been on Topiramate for 2 months now after trying everything for over 10 years to help my nerve pain, fibromyalgia and chronic pain. I am glad it works well enough to get some of my life back."

10 / 10

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11 Report

D1954
Taken for 1 to 6 months
July 20, 2014

Topamax Sprinkle (topiramate) "Not a good fit for me. Did not alleviate my symptoms and increased thoughts of death and feeling of hopelessness. Also experienced chronic urinary tract infections."

1 / 10

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25 Report

Lana...
May 8, 2016

"I have took Lyrica and it did not help but trokendi xr has helped my fibro more than any med the Dr. Has ever given me. It needs to be used more often, because it really helps."

10 / 10

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17 Report

ryan
September 30, 2015

Topamax (topiramate) "Very sick and dizziness"

6 / 10

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18 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.