Tocilizumab for Rheumatoid Arthritis User Reviews (Page 2)

Brand names: Actemra, Tyenne, Tofidence

Tocilizumab has an average rating of 6.5 out of 10 from a total of 33 reviews for the treatment of Rheumatoid Arthritis. 45% of reviewers reported a positive experience, while 21% reported a negative experience.

Reviews for Tocilizumab

gpl
Taken for 1 to 6 months
March 30, 2023

Actemra (tocilizumab) "I was diagnosed with RA in March 2022. My doctor put me on Humira and I did the injection every two weeks. It worked well for five months. Then I have a very bad flare (2 months after contracting COVID). Because I didn't react to Prednisone, my doctor suggested it wasn't RA, it is wear and tear and told me to take pain killers. Pain killers didn't help then she put me on Actemra three months into the flare-up. I injected it weekly. 2 months after using Actemra, I have a lesion pop up on the gum of my front tooth. I had it removed right away by an oral surgeon. I told my doctor, but she doesn't pay much attention to it. Unfortunately, the lesion grows back right away! Actemra also raised my cholesterol. Three months after taking the Actemra, my white blood cells dropped to 22, it supposes be over 40. I was told to stop using Actemra because of that. My doctor now tries to put me on Orencia but my insurance denied it."

2 / 10

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2 Report

Lou
Taken for 1 to 6 months
February 4, 2019

"I was born with arthritis diagnosed at 10 months old. I have tried everything and I mean everything I'm now 34 and gave tocilizumab a go. One infusion per month . I had 3 months worth, then had a seizure in my sleep was sleeping for 18 hours before wakening and realising what had happened. I have now been diagnosed with epilepsy and have seizures often .I'm not saying it's connected but if anyone has similar experiences would be good to hear"

5 / 10

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4 Report

JD-JRA
April 14, 2015

"While I did find that the medicine moderately relieved most of my RA symptoms, I found that I developed an absurd amount of mouth ulcers/ canker sores. I would get them everywhere in my mouth, including 3 nickel sized cankers on my soft palate which made it very difficult to eat. I finially had to stop taking the medication due to the cankers."

7 / 10

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5 Report

Frequently asked questions

cheza...
January 10, 2014

Actemra (tocilizumab) "I have had 3 infusions. My ESR have gone from 33 down to 8 & my CRP has gone from 17.9 down to 0.7. This stuff rocks."

10 / 10

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85 Report

Anonymous
Taken for 1 to 6 months
January 8, 2018

Actemra (tocilizumab) " I told my doctor to take me off this drug after I found out there was a class action law suit developing after several deaths"

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43 Report

Are you taking this medicine?

Bobby
Taken for 1 to 6 months
March 11, 2020

Actemra (tocilizumab) "Nothing seemed to work until my specialist put me on Actemra. Has been a God-send. All my swelling and pain is gone."

10 / 10

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22 Report

Sher
Taken for 1 to 2 years
January 7, 2018

Actemra (tocilizumab) "Helped greatly but still suffered terrible fatigue and pain along with upset stomach and weight gain"

7 / 10

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27 Report

Suzan...
Taken for 5 to 10 years
April 18, 2017

Actemra (tocilizumab) "The only drug that works for me"

10 / 10

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21 Report

ESA
Taken for 1 to 6 months
January 22, 2021

Actemra (tocilizumab) "I am in my third month is a totally change of life , my usual life is back"

9 / 10

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12 Report

doc
Taken for 6 months to 1 year
December 31, 2018

Actemra (tocilizumab) "Did me no good and stopped the medication "

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17 Report

sjorg...
April 25, 2023

"Skin peeling on my fingers, ulcer on my tongue, high cholesterol, blood pressure, and dizzy turns."

6 / 10

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0 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.