Aubagio for Multiple Sclerosis User Reviews (Page 3)

• Kit...
• Taken for less than 1 month
• August 30, 2019

"I have been taking Aubagio for almost a month, and I can tolerate it with very low bothersome issues. I do think my hair is getting thin, lots of itchy feelings on and off. I do get some muscle pain and soreness, but tolerable. I get very tired a few hours after I ingest Aubagio, but a nap and I’m good again. I’m satisfied with the low side effects of this drug."

• Ell...
• October 6, 2016

"Hate the way the pills are packaged. This has helped me a lot but not completely. Still have bladder issues and muscle spasms and some tingling and burning. I did have elevated liver enzymes for the first 6 months, but they were tested yesterday and now back to normal. I've had this relapse now since February, but really, it's much better than it was."

• Gig...
• Taken for 1 to 6 months
• June 26, 2019

"Have had M.S. since 19 years. Now 60 years. Was on Tysabri for 7 years, no relapses. Then tested positive for C.J. virus. Have taken Aubagio for 6 months, lots of hair loss and upset stomach, also burning in feet. Haven't had MRI yet, hope it’s working."

• Sof...
• Taken for 2 to 5 years
• February 9, 2020

"I have been diagnosed with MS in 2004, and I haven't taken any medication until 2018, when I started on Tecfidera, and it was horrible. I had all the side effects and felt I wasn't living a whole month. The doctor decided that I try Gilenya, but that didn't work for me since my heartbeat was too low to be on it. Then I started on Aubagio and was on it for two years. At the beginning, I had hair thinning and loss, sometimes I have heavy legs, weakness, and fatigue. My vision is sometimes not clear, especially if I am stressed on that day. Recently, the doctor asked me to stop it since I started having bruises all over my body, and from my blood work, I have a bleeding disorder caused by the medication and alopecia. I am having my MRI tomorrow and will decide what to be on. As someone said, we are just poisoning ourselves."

• Bel...
• Taken for 1 to 2 years
• January 10, 2021

"I got diagnosed with MS in 2018. Haven't got any new 'spots.' What I now have come to recognize as attacks is pain and hurt I've dealt with for many years. So I guess I've had MS a long time before I got diagnosed with it. I'm on Aubagio and gotten lazy, tired, angry, sad, clumsy as anything! It's like everything about my personality has gotten heightened by 100. I used to run half marathons, lift weights, walk, and run in the mountains. That's not happening now. I thought it was because of the MS, but now, after reading these reviews, I'm starting to think the Aubagio is to blame...."

• JCV...
• June 18, 2019

"I was diagnosed with MS in 2001, however, I was told I have had MS since I was in my 20s. My first and only medication so far has been Copaxone. I was tested for the JC Virus and came back positive. My neurologist said the only medication I am able to take is Aubagio. I have read the reviews, and the side effects seem horrible. I am still deciding whether or not to try Aubagio. June 16, 2019."

• Lal...
• Taken for 1 to 6 months
• June 18, 2019

"I took Aubagio for 6 months. My hair started to fall out, and I was being billed for my blood work. I've stopped taking it for a little over a month now, and I think my skin looks yellow. If you decide to take this, you should do your homework and always get your blood work done."

• Tan...
• Taken for 1 to 6 months
• October 25, 2020

"I was diagnosed with MS after an MRI and a lumbar puncture on 8/25/2020. My event was optic neuritis when I woke up one morning in July and could not see out of my left eye. I went to the ophthalmologist, who then referred me to the imaging center and then to the neurologist. The MRI showed only four MS lesions. The doctor put me on Aubagio. Seven milligrams for 30 days, then 14 milligrams thereafter. About the third week of the 7 milligram course, I did some light yard work, as up until that time I had no symptoms of MS except for my eye, which continues. After I did the yard work, I got really bad pain in my upper arms and shoulders, and my chest, like in my sternum. At first, I thought it was sore muscles from the work, but then the pain continued and got worse, not better. I didn't know initially whether the pain was a side effect or a symptom of MS. I forgot to take a pill one day, and my pain almost completely stopped. Like magic."

• ann...
• Taken for 6 months to 1 year
• March 9, 2021

"The medicine made me weak, always sick to my stomach. It affected my eyes, which the drug company said they had never heard of. Headache, skin was itchy all the time, and losing hair was not my cup of tea either. The doctor took me off. This drug is not for everyone."

• Bec...
• Taken for 2 to 5 years
• June 2, 2019

"I experienced a great deal of hair loss. I also had a lot of GI issues. Also, Aubagio has the worst customer service I have ever experienced. Because I moved, I had a new neurologist who had not been informed of a protocol for ordering a lab. The doctor stated an Aubagio rep has never even been to their office and they were unaware of the protocol. Well, I am stuck with an over $500 lab bill. Aubagio normally pays for this lab, but told me there was nothing they could do since the doctor did not know the protocol. Very poor customer service. I have stopped taking this med and will never take it again."

• So ...
• Taken for 1 to 6 months
• November 8, 2022

"This medication was toxic poison to my system. Legs felt like red hot burning coals. I took it for 3 and a half months. My skin peeled off, and I have nerve damage now that I didn’t have before. Terrible drug. I do not recommend this drug."

• Unk...
• Taken for 1 to 6 months
• July 29, 2020

"I only developed MS in January, but it was caught very early, so my doctor put me on Aubagio. It's been 7 months, and so far, my only side effect has been increased hunger, but yet I am losing weight too, but clean."

• PJH...
• Taken for 1 to 2 years
• April 14, 2023

"The medication was OK. I didn’t have a reaction to it. Working with the company’s MS One-to-One program was an enormous nightmare! Unbelievably inefficient process. I began speaking to them in early December to ensure I would get through the process more seamlessly this year than last year. Today is April 14, and the paperwork still isn’t finished. The nursing staff blames another department or my doctor… no accountability. Now I’m off my MS therapeutic for more than a week. I’ve had several drug companies to deal with during the 15 years I’ve had MS. This one is the worst! Unless you are OK with stopping and restarting treatment… or if your insurance pays for this medication, don’t start. MS One to One is a completely incompetent organization to deal with! I’ve spent many hours on this and made at least a dozen highly frustrating phone calls. Terrible! They really don’t seem to care or want to help."

• SMR...
• Taken for 1 to 6 months
• September 28, 2021

"Started on Aubagio 6 months ago and seems to be working for me, but then the neuropathy in my feet and hands felt like burning pins, and my toes felt like they wanted to explode. I'm going to get off this as soon as my neurologist responds to me. Was diagnosed in 2005 on Copaxone till I couldn't take hot injection areas on my body anymore. Then Tecfidera caused burning pins in my head, so I couldn't take the med. Was doing nothing to help my MS. Back on Copaxone 3 times a week injection. Started getting seizure-like shaking, so I stopped that, and now Aubagio neuropathy. You have to come to grips with these meds that are out there for us and their terrible side effects or just pray that your MS doesn't worsen. I hope now that I'm on SSDI and it works. Was very stressful for me, I can be somewhat okay with no meds. Good luck to all with MS and any drugs you decide on."

• Mat...
• Taken for 5 to 10 years
• July 10, 2023

"Nausea Cramps in leg muscles Burning sensation in fingers and feet while sleeping Twitching of toes at any time of day Lower back pain if do too much housework Aubagio helped me being able to walk, looking after myself, being able to shower, cook meals, doing light housework. I am not able to drive anymore due to doctor's orders. I have not had a relapse since 2016 and no further lesions since then."

• JMa...
• Taken for less than 1 month
• September 29, 2020

"I loved that Aubagio was a small pill, but I experienced GI symptoms starting on the first day. We hoped they would go away, but three weeks later, I was still having stomach issues every day. They diminished when the medication was discontinued."

• FMS...
• Taken for 1 to 2 years
• August 6, 2020

"I was diagnosed 3/1/19. My neuro put me on Aubagio that May. I’ve had no symptoms until about 2 weeks ago. I started to experience relapse symptoms that got worse by the day. I had an MRI yesterday, and my neuro says that she doesn’t think the Aubagio is working. This is so annoying! I was sure it was working. I say that to say, you may feel great taking it, but that doesn’t mean it’s working. Have to give it a 2."

• Jan...
• Taken for 2 to 5 years
• January 6, 2022

"Aubagio seems to be working after 2 years. Was on Avonex for 12 years with good results, but it stopped working. Then went on Tysabri, and I was allergic to it after my second infusion. I like a pill and not injections, so Aubagio works for me. The only problem I am having is paying for this drug. They keep raising the price every year to the point my insurance took it off their formulary. Even Medicare will not approve the tier structure for discount. I may have to discontinue using it for this reason. I believe the drug manufacturer is greedy and does not care about the Multiple Sclerosis patients. They only care about their bottom line!"

• Que...
• Taken for 5 to 10 years
• December 22, 2022

"I have been taking Aubagio 14 mg since 2016, when I was diagnosed. This year, in 2022, I started having heart palpitations. The first time it happened was in April 2022. I thought I was having a heart attack because my heart kept racing; very scary. I had been taking Aubagio for so long. I couldn't imagine this was happening. So, my doctor and I tried me taking a half a pill (7 mg half) because I just didn't want to change. My heart started racing again. In short, I have never had any problems with Aubagio. I've taken this drug for 6 years without any problems. So now I have to work on selecting a new drug. It's so hard to decide on another medication. They all have terrible side effects. The new drugs are scary; most have this PML (brain infection that you could develop). I have noticed some issues developing neuropathy in my left hand and left leg. I can walk fine, but something feels weird."

• Ste...
• Taken for 2 to 5 years
• June 26, 2022

"2022 makes 34th year of MS. No meds available then for a few years. I started on Betaseron first for a few years. Switched to Avonex for 19 years, then finally got tired of harpooning myself and changed to Plegridy for 2 years. Had to try Copaxone to satisfy insurance for a month or two. Only with Copaxone, it felt like I had been hit with a baseball bat after each shot. Then switched to Aubagio 4 years ago, and other than hair thinning a little, I have had NO problems. Enjoy the single pill and NO NEEDLES. Copaxone was the only med that ever gave me PROBLEMS."

• Tam...
• May 17, 2022

"Drug attempt number 3. I started Aubagio in January 2022. This is now May 2022. Since January, I have had an ear infection x2, chest infection, COVID (after being free of it for the whole 2 years), labyrinthitis, and now pelvic inflammatory disorder. It could all be a coincidence, however, my MS nurses seem to think that I may be one of the unlucky ones who have an increased risk of viral and bacterial infections due to this medication. No issues at all with my liver while being on this. The only other side effect is that my hair comes out in clumps almost, and my nails snap constantly, which is a bit of a bummer. I feel lately like my body is a punching bag and I am terribly done in and mentally exhausted while trying to remain positive. Looking at switching again, and if it doesn't work, I think I may go med-free for a while and work with vitamins and being strict with being as active as I can and eating healthy. Because I can't take much more."

• Til...
• Taken for 2 to 5 years
• January 13, 2022

"I was diagnosed with MS in July of 2017. I started out with Tecfidera, which caused my lymphocytes to go too low. My neuro switched me to Aubagio, which I've been on for over 2 1/2 years. I did have hair thinning for the first 7 or 8 months, but no other side effects, and the thinning stopped. In fact, my hair has been growing in thicker and now has a bit of a wave to it. I don't know if it's the Aubagio or just coincidence, but I've always had naturally straight, baby fine hair. I have always taken my pill at night right before bed, so maybe that helps with not having other side effects. I had 8 lesions on my brain back in 2017, and since I've been on a DMD, I have had no new lesions. Is it the meds working or just my body fighting it? Who knows, but I'll keep taking Aubagio since it's not causing any problems and there is the chance that it is keeping me from progressing. Plus, my insurance covers it, and with co-pay assist, I don't pay anything. Time will tell."

• Yva...
• Taken for 1 to 6 months
• November 24, 2022

"Easy to swallow, but causing backache, coughing/choking, and the odd urgent toilet trips. Bloods taken every month for the last 6 months and assume that my liver is fine as not told otherwise. Last relapse was December 2017 pre-diagnosis. No relapse after taking Copaxone/Brabio from 2/2010 to 7/2022, Aubagio 7/22-."

• Dar...
• Taken for 2 to 5 years
• August 23, 2022

"I was diagnosed with MS in 1975. I was given Copaxone in 2008 and was tired of injecting myself. Started taking Aubagio in 2019. In November 2020, I needed a bridge on my teeth that cost me $2400, and now I found out I have the worst tooth decay under my bridge my dentist has ever seen in that short of time. I am not taking this medication anymore!"

• Anonymous
• Taken for 10 years or more
• March 20, 2024

"I started on Aubagio in 2013. It's been over 10 years. The only drug I have taken this long. I did all 4 of the injections available at the time, and nothing worked. It took me years, but I'm better than I was before, even working part-time since 2018. This drug has been great for me."