Skip to main content

Lumryz for Narcolepsy User Reviews

Lumryz has an average rating of 10.0 out of 10 from a total of 3 reviews for the treatment of Narcolepsy. 100% of reviewers reported a positive experience, while 0% reported a negative experience.

Lumryz rating summary

10.0/10 average rating

3 ratings from 3 user reviews.

Compare all 33 medications used in the treatment of Narcolepsy.

10
100%
9
0%
8
0%
7
0%
6
0%
5
0%
4
0%
3
0%
2
0%
1
0%
  • taoco...
  • Taken for less than 1 month
  • September 24, 2023

"I've been taking Lumryz for 3 weeks now and feel like I am starting to adjust to it. I was taking Xyrem before, so I started at 7.5 grams. I think it's nice not waking up in the middle of the night to take a second dose. The only side effect I've experienced so far is occasional bed-wetting. It has been difficult to limit drinking water like I used to because if I do, then I'm more likely to wet the bed that night. Hopefully it won't last long."

10 / 10
Was this helpful?YesNo
12 Report
  • Spencer
  • Taken for 1 to 6 months
  • July 15, 2024

"Coming from Xywav, I was ready to not have to wake up in the middle of the night for my second dose (which I missed fairly regularly). I love Lumryz and its one dose! Waking up just feels so natural now, and I feel great all the time since I'm not missing doses. I haven't had any problems with the large salt amount, I take Magnesium every night before bed. My blood pressure was usually 110/70 - 120/80, at first it bumped up to 145/75, but I take 2 garlic pills every morning, and it's back down to 120 or 130/70. I can't recommend this enough! I myself am covered by Avadel's patient assistance program since my insurance didn't cover it, hopefully it'll be easier for others to get it covered."

10 / 10
Was this helpful?YesNo
0 Report
  • Igor
  • Taken for 1 to 6 months
  • May 2, 2024

"I've been on Lumryz for 2 months, and I am adjusting well. I have not experienced any real side effects. This is my first narcolepsy drug. I would say, on average, I'm sleeping about 7 hours per night without interruption. It took me about 3 weeks, but I am happy with the results so far. My days are much better."

10 / 10
Was this helpful?YesNo
0 Report

Frequently asked questions

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.

Learn more about Narcolepsy

Care guides

Symptoms and treatments

Medicine.com guides (external)