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Ruxolitinib User Reviews & Ratings (Page 2)

Brand names: Jakafi

Ruxolitinib has an average rating of 7.3 out of 10 from a total of 39 reviews on Drugs.com. 67% of reviewers reported a positive experience, while 18% reported a negative experience.

Reviews for Ruxolitinib

  • John
  • Taken for 6 months to 1 year
  • March 10, 2023

For Myelofibrosis "I have been on Ruxolitinib for about 9 months now. I started at 40mg/day and am down to 15mg/day now. My RBC has deteriorated significantly (even at low dosage), which has led to some significant fatigue. I was on Hydroxyurea for 10 years prior to this until I started to experience some uncomfortable side affects (quite painful Neuropathy), night sweats etc. I am quickly coming to the conclusion that this drug is not for me. With haemoglobin levels less than half of normal, it is hard to function properly. My Doctor just started me (6 weeks) on Eprex to try and stimulate more red blood cells but the results have not been positive so far. I am becoming somewhat despondent and not sure where to turn for an alternative course of treatment. Ruxolitinib is just not working."

2 / 10
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  • lee
  • Taken for 2 to 5 years
  • June 28, 2024

Jakafi (ruxolitinib) for Myelofibrosis "Been on it for the past 5 years, starting with 5 mg 2x a day and now 25 mg 2x a day, which is throwing off my hemoglobin and lowering platelets. Enlarged spleen 23 cm lets me know when it's time to up the dosage. I have gained over 20 pounds, and a lot of it is swelling, looking pregnant, but I'm a dude. This past week I had to stop taking it for two days because my hemoglobin/platelet count dropped too low (I had to stop shaving and do no type of manual labor). The side effects were tough: severe migraines - had to black out my room, dizzy, faint, nausea, balance/coordination issues, brain fog, laying in bed for most of 48 hours. I had to go back on it because my spleen was exploding in size and hurting really bad. I need to get off of it and find a newer drug or clinical studies."

7 / 10
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  • Karen
  • Taken for 2 to 5 years
  • February 13, 2020

Jakafi (ruxolitinib) for Polycythemia Vera "It’s either have to get a phlebotomy every month and become anemic or take Jakafi and be fat!"

5 / 10
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22 Report

Frequently asked questions

  • Woodc...
  • Taken for 2 to 5 years
  • August 2, 2023

Jakafi (ruxolitinib) "My platelets were over 800,000, and I could not tolerate hydroxyurea. It has kept my platelets in the low 500,000s. It is working great for over 4 years."

9 / 10
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6 Report
  • Just...
  • Taken for 1 to 2 years
  • November 26, 2023

Jakafi (ruxolitinib) for Polycythemia Vera "It has worked very well for me. However, I have gained quite a bit of weight since taking it."

9 / 10
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4 Report

Are you taking this medicine?

  • Slimp...
  • Taken for 1 to 2 years
  • March 19, 2021

Jakafi (ruxolitinib) for Myelofibrosis "Been on Jakafi for over a year. Twice a day varied from 5 to 20 Mg Frankly it has done little or none for me."

2 / 10
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12 Report
  • Lauren
  • Taken for 5 to 10 years
  • February 22, 2022

Jakafi (ruxolitinib) for Polycythemia Vera "Gained weight especially in the waist. And dieting does not help."

1 / 10
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  • TBs
  • Taken for 6 months to 1 year
  • March 23, 2023

Jakafi (ruxolitinib) for Graft-versus-host disease "I’ve been on Jakafi for 7 months to get rid of my GVHD rash which helped. My dose was 5 mg twice a day. Gained 30 lbs of weight and fluid. Getting weaned off now. Hoping I can lose the lbs."

10 / 10
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  • Jan
  • Taken for 2 to 5 years
  • May 21, 2023

Jakafi (ruxolitinib) for Polycythemia Vera "I have benefited from Jakafi maintaining my platelet count. I have experienced UTI and not sure Jakafi caused it. I also experience gas and diarrhea."

8 / 10
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  • Kelly
  • Taken for 1 to 2 years
  • April 27, 2019

Jakafi (ruxolitinib) for Polycythemia Vera "It works, feel fine!"

10 / 10
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10 Report
  • Kurt
  • Taken for 1 to 2 years
  • September 7, 2023

Jakafi (ruxolitinib) for Graft-versus-host disease "Taking Jakafi for 1 year 3 months, working well with no side effects. Take 5 mg daily. I take it for GvHD of the skin, and it has done a great job controlling it. I have had no flare-ups."

10 / 10
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  • Micker
  • Taken for 1 to 6 months
  • August 12, 2023

Jakafi (ruxolitinib) for Myelofibrosis "No side effects, on 5 mg, twice a day, raised my hemoglobin levels, decreased my tiredness."

10 / 10
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  • marie
  • Taken for 1 to 2 years
  • February 4, 2024

Jakafi (ruxolitinib) "It's brought my platelets right down, but lately my stomach has been killing me after I eat. Not sure if it's the Jakafi that's causing it."

7 / 10
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  • FWA
  • Taken for 1 to 2 years
  • December 11, 2021

For Graft-versus-host disease "Works great. Hardly any side effects. Had mostly mouth cgvhd after transplant 4 years ago. This helped me to greatly reduce prednisolone."

9 / 10
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  • Srwal...
  • March 20, 2023

Jakafi (ruxolitinib) for Graft-versus-host disease "My platelets were affected but so far my liver GVHD has improved."

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  • Scully
  • Taken for 6 months to 1 year
  • September 6, 2018

For Polycythemia Vera "Has anyone’s weight stayed the same or even lost weight on Jakafi? Please share your review."

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3 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.