Ropinirole for Restless Legs Syndrome User Reviews (Page 3)

• Mar...
• Taken for 1 to 2 years
• September 7, 2019

"I've had RLS nearly all my life, but it got a lot worse after I turned 40. The doctor first prescribed Gabapentin, which didn't do much. Then I was prescribed a low dose of Ropinirole, building up to 2 mg at night. It works for me... stops the RLS no problem. If I forget to take a tablet, I won't sleep... the RLS starts kicking in to remind me! As for the side effects, it induces impulse control disorders and hypersexuality disorders, so I now have a gambling problem, which is a known side effect, so I'm skint from gambling and have a sore penis from masturbating. Seriously."

• Kam...
• Taken for less than 1 month
• August 15, 2019

"I tried it last night for the first time, and I literally was on the phone with poison control for 30 minutes because I've never felt so sick in my entire life. It scared the beejesus out of me. Projectile vomiting, sweating, blacking out, anxiety through the roof, I had the fan on super low, and it felt like needles on my skin. Finally, after 3 hours of that, I fell asleep, but woke up a few hours ago, and I am still vomiting. My advice to anyone trying it for the first time: take a really small amount and make sure you have SOMETHING in your stomach."

• Sho...
• January 21, 2015

Ropinirole "My restless legs syndrome has become really annoying in the past few months. I was on Gabapentin, which seemed to help, but it started to become less effective, so the Dr. switched to Requip. On my first night, I felt sick and had flu-like symptoms. The next day, I took it early and immediately felt sick and started to throw up and felt chills and then felt hot. This medicine did absolutely nothing for me besides make me sick."

• EPH...
• October 31, 2016

Ropinirole "Have been taking this for years, and it definitely works for me, although it makes me very drowsy if I take two 1 mg at a time. In the past 18 months or so, my RLS has gradually become more frequent during the day, therefore, unable to sit in the afternoons, or if I'm on holiday, particularly in a hot country, they are a nightmare. Have recently been to the doctor and got 500 mcg, and when it's really bad, I'm going to try it and see if it helps during the day. On my last holiday, I took 1 mg about 3 o'clock, and it helped, but that only left 1 mg for the evening, and this meant it didn't last till morning. But to be honest, I think I need to up my dose, but am scared that my RLS is only going to get worse, so don't want to up my dose by too much."

• H J...
• July 28, 2015

Ropinirole "I have severe RLS and have slept on the floor for 25 years because the hardness of the floor against the muscles in my legs gives some relief. I have been on Requip for about 4 months and take 2 mg about 1.5 hours before bed. The effectiveness is hit or miss. On a good night, I fall asleep in about 30 minutes but wake up 3 to 5 hours later and toss and turn until the alarm goes off. On a bad night, I get about 2 hours of fitful sleep and then my legs ache for the rest of the night. Requip causes my legs to swell and I have had to increase my blood pressure meds. Also, it has given me some very interesting dreams. All in all, it is better than nothing because nothing means no sleep ever. I wish my doc would give me something else."

• Fra...
• December 17, 2016

"I have had RLS all my life. For the first 40 years, I was wide awake until 2-3 in the morning, and my legs were wanting to run a marathon. The first night on ropinirole was a come-to-Jesus-like experience. I had to up the dosages until I was at 4 mg, which has been just fine for the last 8 years. I do not know if I would have made it through the last 12 years without this medication."

• Rop...
• June 23, 2016

"Started ropinirole 0.5 mg before bedtime in 2012. Now, 4 years later, I have finally determined, by process of elimination of other contributing factors, that this drug was causing SEVERE muscle spasms/cramps over my entire body - from my face to my feet. Additionally, the addictive qualities affected me by eating habits. I found myself returning to the kitchen after a meal, on average, 4 times for a snack. This translates to overweight!! I began tapering off this nasty chemical and am losing weight, and within 3 days, my muscle issues are nearly gone... after 4 years of pain & suffering & lack of sleep due to muscle/leg cramps. This info is NOT provided with the prescription, internet searches show this is considered rare (1%)."

• Anonymous
• June 21, 2009

Ropinirole "Works great at getting rid of RLS, but causes rebound RLS after a few months of steady use. Also doesn't affect RLS brought on or worsened by extreme tiredness or dehydration. Rebound RLS is worse than before, and instead of having it a few times a week, RLS is constant after about 8 pm, and rebound starts up in the very early AM. It works well, but I started to have issues after several months."

• Drm...
• Taken for 1 to 2 years
• February 15, 2015

Ropinirole "It works great for Restless Legs Syndrome. I can finally sleep at night. I'm 41, and the first time I experienced RLS, I was 8. I could just do without the side effects. I'm on 2 mg, and I think if it was upped, my side effects would worsen. I feel sick to my stomach. I vomit at times. I've had hallucinations. It makes me feel like my blood sugar is dropping, but it's not. Just makes my body not feel right. Thinking about finding something else without these side effects."

• Anonymous
• April 10, 2012

Ropinirole "I loved Requip the first 3 months with no side effects. I was on 0.5 mg. Then I started to have anxiety attacks, emotional meltdowns, fatigued muscles, hot flashes during nighttime, and nausea. I stopped the medicine and all my problems went away, unfortunately, my RLS came back."

• Wpa...
• October 16, 2016

"I have been suffering from RLS since a young child, and during the past year, it had gotten so bad I was barely getting 3 hours of sleep a night. My dear husband was ready to hit me over the head with a baseball bat! My primary care physician just prescribed ropinirole (Requip generic) for me a week ago. I am on a low dose, .25 mg, taken 1.5 hours before bedtime. So far, this has been a game changer for me! I feel more rested and so much more energized in the morning. The little bit of nausea (the only side effect I have so far) I am suffering is a small price to pay for no RLS. I still have some insomnia and wake several times during the night, so I will up my dose to .50 mg and go from there. This drug has been a miracle for me!"

• Tex...
• Taken for less than 1 month
• February 18, 2016

Ropinirole "After years of suffering with RLS and two especially bad nights, I finally went to the doctor, and he prescribed Requip. Last night was my first night taking it, and it did work. It made me extremely nauseated and gave me a massive headache, and I woke up every couple of hours. The third time I woke up, I took a diphenhydramine sleeping pill. That is important to know because generally, a sleeping pill would send the RLS through the roof, affecting even my arms. No RLS symptoms after I took the sleeping pill. My head still hurts, and I'm still a little nauseated, but my legs are not bothering me. Since it did cause a massive headache, I will try using it only when the RLS is active and see if that works better for me."

• Mfi...
• February 14, 2021

Ropinirole "My wife has been taking this medicine for 3 years. She has been a lifelong, devout, churchgoing Christian. She developed an uncontrolled, secret, online gambling addiction that has likely caused us to lose our home just when we were fixing to pay it off. Destroyed our good credit rating, repossessions, etc. When I finally found out we had incurred $1800 in overdraft fees in only 4 weeks. She gambled my entire paycheck week after week and fell behind on the mortgage for MANY months with huge late fees attached and developed an awesome way to hide the addiction for a long time, which made the financial destruction larger than imaginable. She kept gambling anyway in hopes of eventually winning enough to fix the disaster this medicine created, hoping to fix it and I would never know. Doctors and pharmacists need to make it a priority to counsel the patient about Requip and plainly ask FREQUENTLY if the patient has found themselves gambling to help stop it before it destroys families."

• Sto...
• October 2, 2015

Ropinirole "Initially, the medication was very helpful, but the longer I'm on it, the less it helps. Now experiencing more daytime sleepiness, and I'm not able to stay asleep at night. Some nights it seems to help a lot, and then other nights nothing, it doesn't seem to help at all. Getting harder and harder to rest and feel rested. Going to my doctor within the next 2 weeks to discuss different medication. RLS is very frustrating."

• Cel...
• December 1, 2014

Ropinirole "I experienced bladder pain with Requip. I had a constant, frequent urge to urinate. This is not the most common side effect of this medicine; it is listed as 'less common.' But after taking this, I did have lasting bladder pain that did not go away after I stopped taking Requip."

• Dav...
• Taken for 6 months to 1 year
• March 12, 2019

"I was suffering with RLS for a couple of years without knowing what was going on. Finally, I mentioned the symptoms to my Dr., and he diagnosed me. I started on ropinirole .25 mg with very little effect. Over the months, it has been increased to 2 mg. It has helped a great deal. I do find it helps me sleep when I take it 2 hours before bedtime. Also, it seems to cause erections. I don’t see this listed on the side effects list. Perhaps if I work up the courage, I will ask my Dr. about that. I do recommend this medication if you are suffering from RLS."

• Cee...
• Taken for 2 to 5 years
• February 24, 2019

"I’ve suffered from RLS for 20 plus years. Like most, without medication, it is an unbearable sensation and condition. I have been using between 1 to 2, 2 mg per night. If I take it a few hours before bedtime, it is most effective. However, I pay for its usage by feeling very sluggish the following day. It’s unfortunate, yet it’s a trade-off I’m willing to accept. There’s very little worse than RLS."

• kit...
• December 27, 2011

Ropinirole "Requip has been a godsend for me. As with any other medication, it affects everyone differently. I take it only at bedtime because that is the only time it affects me. I do recommend this medicine to all that I know that suffer from restless leg syndrome."

• Sha...
• Taken for 1 to 6 months
• February 15, 2021

"I have had RLS for about 15 years. I was taking ropinirole .025 at bedtime. It helped for a few years. That dose didn't help, so my doctor said I am going through augmentation. Now I am on 1 mg at night. It was great for a few months, the same thing happened! (Augmentation). Let me tell you, I am suffering as I write this comment. I can't sleep. I can't concentrate, it's the worst feeling ever. What should I do to get some relief?"

• Anonymous
• Taken for less than 1 month
• November 14, 2012

Ropinirole "I have had restless legs syndrome for much longer than anyone knew what it was. I was a kid in the '70s getting in trouble for 'squirming' at my desk. It tends to act up more with periods of activity. When my wife and I were dating, I was at the gym and riding a bike, and I would wake up in the middle of the night and do stretches and anything to try and make the feeling go away. Recently, it has become unbearable again for some reason, it is ten years after the last bad period. I have tried Lyrica, which did not seem to help, Neurontin, which helped some but was wiping me out with tiredness, and I just switched to Mirapex because I couldn't see that 1-2 mg a night was doing anything but making me nauseous."

• Bma...
• March 12, 2018

"I began Ropinirole about 3 months ago. My RLS was out of control at bedtime and just sitting down for periods of time. I started with 1 mg before bed, then 2 mg, then 3 mg. I was SO SICK. Nauseated, using the restroom all the time, severe insomnia, fatigue, dizziness, confusion... However, most of these side effects have abated. My problem now is that right after I take the Ropinirole, my RLS gets horrible! It goes away after about an hour, but for that one hour, I'm in agony. Anyone else experience this? The restlessness is also in my arms. Ugh. Sometimes the insomnia persists. I'm also on clonazepam as needed."

• hip...
• April 9, 2015

"This was a godsend. After suffering from RLS for years, I was only sleeping for a couple of hours a night, no matter how exhausted I was. The first night of starting ropinirole, I actually managed 6 hours of sleep. It felt amazing. I was actually on the brink of committing suicide. I couldn't function during the day. Lost all joy in my life. Thank goodness for this drug. I have been on it for almost 10 years. Any side effects have been minor."

• Sjc...
• Taken for 1 to 2 years
• November 20, 2015

Ropinirole "I have tried several different medications over the past years. Some work at first, but later stop. Some have horrible side effects or just are not effective. I have found that Requip extended release works nearly all the time for me. I have to set a reminder on my phone and take it (2 mg) at 4:15 pm. Regular (not ext release) Requip made me nauseous."

• sun...
• Taken for 2 to 5 years
• July 13, 2016

"I take ropinirole, 3 mg about 2 hrs before bed. Restless Leg Syndrome rules my life for years now. I would be so lost without this medication. I start having problems with my legs starting early afternoon, but my doctor will not let me take any more than 3 mg a day. Sleep is more important, so nighttime it is. I never want to be without ropinirole!"

• Res...
• December 31, 2015

Ropinirole "I have had RLS since I was 14. I am now 42. RLS is a miserable existence. An annoyance beyond belief. I have gone with no sleep for 3 days at a time more than once because of my legs, or legs and arms, or even knees and a shoulder joining in to laugh at me. I have been on Mirapex most of my adult life at 1 mg, being told I could take 2 on bad nights, and it worked most nights, but most of my adult life I have taken Mirapex 1 mg, gabapentin 300 mg, trazodone 50 mg, and Tylenol #3 every night... just to go to sleep. And it took all of that just to go to sleep. A doctor might look at you like you're nuts if you ask for all that, but I'm telling you it will work. I moved, and my new doctor decided to take my Mirapex away and try me on Requip... fail..."