Xarelto for Deep Vein Thrombosis User Reviews

• kat...
• May 2, 2019

"I started on Xarelto after having a bleed out with Warfarin through my kidneys. I was on this drug for almost 8 years. In the last two years, I kept telling my doctors the side effects this drug was giving my body. Nobody listened. Eventually, I received some helpful information on the neurological side of this drug. Everything it said was what I was experiencing. So I have now switched to Eliquis (which is recommended by cardiologists almost worldwide) and it has been heaven ever since. No Xarelto-induced crazy dreams, leg twitching, cramps, headaches, tremors, anxiety, etc. Take control, people, over your own body."

• Tsu...
• Taken for less than 1 month
• April 5, 2013

"Treated with Coumadin for 3 years. Stopped Coumadin 2 days ago. Started Xarelto last night, 20 mg once a day. Maybe it is the excitement of being off Coumadin, but today is the first day I feel normal. No headache, no lightheadedness, no fuzzy head, was not tired in the middle of the day. Coumadin really made me feel different. I thought it was just getting old. Also, my eyes feel clear now. First thing I did last night was drink two glasses of cranberry juice. It was great. For lunch, spinach in my sandwich. Wonderful. Looking forward to not seeing my doctor to draw blood every month. Might even get back into some low-impact sports in the afternoon before dinner."

• NCY...
• Taken for 1 to 6 months
• February 24, 2014

"Doc put me on this after finding a small blood clot in calf after TKR. First month was not bad but after that, my upper stomach started to hurt off & on all day, every day, migraine headaches every night, insomnia every night and horrible itching at site of incision, bleeding hemorrhoids also. Had a Doppler taken after 2 months and it did not find any clots. Dr took me off of Xarelto cold turkey. Very frightening because I was told you should be weaned off of it but doc seemed to be ok with immediately stopping. It has been 4 days since I stopped and all the above symptoms went away, thank goodness."

• Sal...
• Taken for 1 to 6 months
• December 6, 2013

"Last summer I was placed on Xarelto after a dermatologist botched my laser leg vein surgery and caused a DVT. I am an otherwise healthy 50-year-old woman. I did not want to go on Coumadin as I am familiar with the side effects and monitoring required. I was sick on Xarelto the entire time, and the minute that I stopped it, most of the side effects went away. It took about two weeks for all side effects to subside. Side effects included migraine headaches (first time in my life), sharp pins and needles pain in hands and fingers, swollen joints especially finger joints, muscle cramps - especially legs and toes, etc."

• Ric...
• Taken for 1 to 6 months
• January 17, 2014

"Was on Xarelto for three months and enjoyed the freedom from warfarin... BUT went back to warfarin because headaches, constant sore upset stomach, weird dreams, and hallucinations at night... Three weeks off Xarelto and back on warfarin, am feeling normal again... Just me, and if Xarelto works for you, stay with it..."

• Sta...
• Taken for 1 to 6 months
• July 23, 2013

"I was on Coumadin from 2008-2013. I am now 28 years old. Imagine how I react when I go to a doctor, get told about Xarelto, that I do NOT need to see my doctor weekly to biweekly, and I CAN EAT GREENS! It was a miracle for me. Yes, the bleeding risk is still there. But a once daily pill for my chronic recurrent deep vein thrombosis versus modifying multiple times my Coumadin based on fluctuating INR levels is a godsend. My PCP was about to put me on the similar Xa-inhibitor medication but this came out. Off to enjoy sautéed spinach!"

• the...
• Taken for 1 to 6 months
• April 18, 2016

"I was diagnosed with a big DVT in my right leg in Oct. 2015. Was put on Xarelto for 6 months. Two months ago, had another ultrasound and no clots. I am 66 years old. The doctor just took me off Xarelto 4 days ago, and now I'm worried about having a stroke, more clots, etc. (thanks to all the scary commercials on TV), so now I'm stressed about being 'off' Xarelto. I didn't have any side effects that I am aware of while on Xarelto, luckily. The doctor told me to stay active (I sit 8 hours a day at work connected to a computer and phone), so I am sure this is why I got the clots to start with. I move my legs around under my desk and stand up for a few minutes every hour or two when I can. Will see what happens from here."

• Tsu...
• Taken for 2 to 5 years
• June 30, 2014

"DVT in ankle, then again in the other ankle, then one in the knee. Tried Warfarin with many headaches, stopped on my own due to the side effect. That's how the DVT came back. Went to Coumadin, and the difference was Coumadin gave me a consistent test result. Still the headaches almost daily. From minimal to taking 800 mg of ibuprofen just to get rid of the pain. Already allergic to peanuts, then restricted by medicine with no greens or cranberry. Really tough to find a good meal. Begged my doctor for a prescription before it was approved for DVT, and that could be part of my positive reaction. Now on Xarelto for 2 years, headaches once in a while - maybe due to medicine but not consistent enough to believe. Eat anything and everything."

• Sar...
• June 29, 2014

"I am a 39-year-old woman with a history of DVT who switched from warfarin to Xarelto. Shortly after starting the medicine, I began to experience migraines for the first time. After two weeks of being on it, I began my menstrual period as scheduled. The period was severe bleeding for 6 days straight. At that point, I went to the ER. I ended up with several blood transfusions that were not helping, my hemoglobin was dropping to dangerous levels. The only thing to be done was an emergency uterine ablation. I believe that blood levels do actually need to be monitored. My blood was so thin I was not clotting."

• Spe...
• April 19, 2020

"This drug sent me insane. Recently had DVT in arm. 1st tablet caused burning nerves in face and spine, rushed to A&E, who were dumbfounded. Within 1 week, I was pacing the house all night. Heart racing severely. Anxiety out of control (never suffered from anxiety). Week 2, lips and mouth burning. Anxiety and heart rate worse. Week 3, pacing house 16 hours a day, paranoia, intense pressure in head, muscle spasms, unable to close eyes. Nerves on skin. Reduced dose didn't help improve situation. Eventually, the doctor switched me to Eliquis, which I'm absolutely fine on. I believe this drug is okay for a lot of people, however, if you have a reaction, it's severe. Lost over a stone in 3 weeks, hyperventilated daily, my behavior and personality changed dramatically. Within 48 hours on Eliquis, all symptoms ceased. I'll be reporting this drug, as having done some research, I've found it can cause anxiety, paranoia, and muscle spasms, which are not listed in the literature."

• luc...
• Taken for less than 1 month
• May 19, 2015

"I was feeling a sharp right calf pain for about three days and thought it may be a Charlie horse. Decided to go to the ER and bam! DVT. Huge clot but below the knee. Was admitted for two days, heart rate went down to 38, close calls, but thank God I am here. Have been on Xarelto for 8 days now and not one side effect. Just hope it gets me through and helps my body dissolve the clot ASAP. Xarelto works for me."

• Anonymous
• October 1, 2015

"Had DVT in my calf, had a couple of clots get stuck in my lung 2 weeks after starting Xarelto. Now, after 2 1/2 months on it, I get headaches, dizzy, lightheadedness, weakness in legs and arms, and tingling in arms and hands. I had to leave work today because I was so weak. Going to have doc take me off it."

• you...
• Taken for 1 to 6 months
• April 29, 2015

"This is my second DVT in 5 years. I'm only 26, and it's from a genetic disorder. I took warfarin the first time around, and her doctor gave me Xarelto this time. I was thrilled due to no strict diet, constant finger pricks, etc. However, from day 1 of Xarelto, I had horrible headaches that I could not get rid of. I took my dose with dinner, and if we had a late dinner, after 7, I would get vivid dreams that left me exhausted in the morning. It caused two ocular migraines, which I have never had, which scared me because I thought I was going blind! I was also hallucinating at all times of the day. I'm back on warfarin now, all side effects have stopped! Loved the promise of Xarelto, but believe it needs more testing!"

• mds...
• December 30, 2014

"I was prescribed Xarelto when a blood clot developed after surgery for my broken leg. I did not notice any immediate side effects until... I normally have 3-day, semi-light periods, and they went to 7-9 days of the worst ever. I won't go into detail. It also caused my iron level to drop to 17! I stayed on Xarelto for 6 months, and it worked for me. I was told Xarelto won't dissolve your clot, it just thins your blood enough to prevent the clot from growing or new clots. The existing clot is absorbed into the body. I think my hair was falling out also, but that may have been from the low iron?"

• DVT...
• Taken for 1 to 6 months
• January 7, 2015

"I was prescribed Xarelto for two months after I got a deep vein thrombosis and pulmonary embolisms, and it definitely worked as prescribed. I did bruise very easily, but that was a small price to pay to completely get rid of my DVT and show no signs of it three months later."

• Mac...
• Taken for 1 to 6 months
• July 7, 2019

"This drug did great for resolving a clot in a deep vein in my right leg. At the six-month mark when I was cleared to come off it, no one ever told me, nor any of the safety literature indicated that what happened could happen. After one day of stopping Xarelto, I was so instantly fatigued and sick I couldn’t function for days. It made my blood pressure spike, and I had to see a doc about getting that under control. It finally took about 10 days for that medicine to let me go, and trust me, it was a miserable 10 days. A vascular surgeon and a cardiologist both told me they’ve never heard of this side effect. Kind of scary that this kind of stuff is not out there for patients to see early. Also, I consider it dangerous because where I live, there is no reversing agent available. If you decide to take Xarelto, you would be better off going to Vegas and betting on a dice throw. Your chances are better. If I need another blood thinner, I will go with the tried and tested Coumadin. It’s safer."

• lis...
• Taken for 1 to 6 months
• June 26, 2017

"Do not allow your Dr. to put you on this medication if you are autoimmune (positive ANA, rheumatoid arthritis, systemic lupus, Sjögren's syndrome) or take Effexor or any other SNRI. I am experiencing liver injury due to the combination of these conditions/drugs."

• Den...
• Taken for 1 to 6 months
• October 24, 2020

"I experienced a proximal (whole leg) DVT 5 months ago with extreme swelling and tightness. 15 mg Xarelto daily was prescribed in the ER for 1 month, followed by 20 mg daily. I did a lot of walking when able and have only slight discoloration above the ankle, along with tightness near the Achilles’ tendon now. The swelling has all gone. I experienced bouts of belching after 2 months, but that has subsided now. Extreme fatigue upon little exertion has been a recent issue. 72 years old."

• lis...
• December 12, 2018

"Had extreme pain in my hip, which I thought was from digging a drain line for my yard that was over 120' in length. Sudden 'POP' in my hip at work one day, and I almost passed out from the pain. An ER visit and sudden emergency surgery to remove clots from my hip to my ankle in the left leg. Another surgery to finish up the first surgery using a new surgical technique for 'REMOVING CLOTS.' Put on Xarelto 2 times a day for 30 days, then 1 time a day for 6 months. During that time frame, my niece had a massive PE and died at 25! Found out that blood clots are hereditary - my grandmother, father, sister, aunt, niece, and I all have had them. Protein S deficiency is what it's called. Will be on the meds for the rest of my life, I was 47 at the time. Terrific medicine for me anyways! No side effects at all that I can tell. Have to buy from Canada due to the price in the US being almost $1500.00 for 3 months - Canada meds are $138.00 for 84 pills."

• Loa...
• Taken for 1 to 6 months
• August 26, 2018

"I was put on 15 mg of Xarelto for a DVT. I experienced terrible fatigue and anxiety. I was an active person, but on Xarelto I could no longer walk a block or do basic activities without feeling exhausted. I also started to experience numbness and tingling in my toes and fingers. My doctor switched me to Eliquis and the fatigue was gone. I finally feel like myself again. Xarelto was a terrible drug for me."

• Bid...
• Taken for 1 to 6 months
• June 4, 2015

"I had two instances of DVT getting to my lungs. Almost killed me. I was on warfarin the first time for 6 months with no side effects. I have been taking Xarelto 20 mg for about a month now. I am having insomnia, upset stomach, and occasional muscle cramping in calves and ankles. However, I do not have to go to the doctor once a month to have blood tests, and I do not have to manage my eating habits so closely. So far, I am a fan, albeit a sleepy one."

• Han...
• April 28, 2017

"I am 20 years old, and I just started the rivaroxaban 2 weeks ago, after they found a clot in my arm! I'm on 20 mg twice a day for 3 weeks and then 15 mg for 3 months. I find I am really tired all the time, and I do get a good bit of sleep at night too! I never usually got headaches before, but now I find around an hour after taking the pill, I get a headache! Just wondering, is this due to the pill, or am I just overthinking it!"

• Xar...
• Taken for 6 months to 1 year
• February 25, 2020

"Been on over 7 months. Now on 10 mg by my own will plus research concluding that Xarelto 10 mg is more effective than aspirin. These sites lack knowledge and unquestionable advice. First of all, drink mostly water if you want the best combined results. Don't take 10 mg unless that is what your doctor told you or you have passed the end of your treatment program based on your algorithm. We all have one. Reduce consumption of colored drinks. Always wear stockings if there is a swelling problem. Exercise prevents new DVT on top of Xarelto."

• Sue...
• Taken for 1 to 6 months
• January 2, 2016

"I have my second DVT and have been on rivaroxaban for almost five weeks. I'm grateful my leg is less painful, and I believe it's working, however, I have experienced bleeding of the gums unprovoked and also had my first-ever nosebleed in the night. Never had one in 48 years!! I'm on 20 mg once a day, so I think it's making my blood too thin!"

• Bad...
• Taken for 1 to 6 months
• July 2, 2016

"I am a 37-year-old whose body hates me. May 20th, I had a hernia repair (the 1st surgery went bad). 3 weeks later, I got an infection in my incision. The doctor did a CT scan. That's when he saw the clot in my ovarian vein, 8 cm long. He admitted me to the hospital immediately. I was on a heparin drip and strong antibiotics. After 2 days, blood was flowing a tad bit better. I was put on Xarelto. So far, it seems okay. Minor side effects: sore back, very mild dizzy spells, sore stomach (maybe from surgery and infection), and some weird tingling in my mouth. Nothing major after being on it for almost a month. I do have to be on it for a total of 6 months. Hope nothing else happens. I can handle the side effects I do have. Just hope it makes the clot go away."