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Riluzole User Reviews & Ratings

Brand names: Rilutek, Exservan, Tiglutik

Riluzole has an average rating of 7.1 out of 10 from a total of 8 reviews on Drugs.com. 57% of reviewers reported a positive experience, while 14% reported a negative experience.

Condition Avg. Rating Reviews Compare
Amyotrophic Lateral Sclerosis
5.3
 4 reviews for Amyotrophic Lateral Sclerosis 7 medications
Obsessive Compulsive Disorder Off-label
8.5
 4 reviews for Obsessive Compulsive Disorder 9 medications

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  • Jan...
  • October 16, 2020

For Obsessive Compulsive Disorder "Completely changed my life. No more OCD, no depression, no social anxiety, GAD, panic attacks, obsessive thinking, intrusive thoughts, no more phobias. It's like everything changed overnight, literally, and my life is finally worth living!"

10 / 10
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59 Report
  • AJs...
  • January 20, 2012

Rilutek (riluzole) for Obsessive Compulsive Disorder "My son, now 19, started riluzole as part of a small double-blind NIH trial 2 years ago. He has Autism, OCD, mood disorder, tics, and ADHD. This medication is extremely helpful in easing the overwhelming obsessive thoughts and compulsions that interfere with his ability to function. No side effects. I fight to renew insurance coverage each year for this off-label use and twice he ran out of this medicine temporarily, and we immediately noticed a change in his behavior. He is off antidepressants and ADHD medicines (Zoloft & Concerta) and is now on lamotrigine for tics and mood stabilization. A great combination. His functional ability assessments (IQ) went from mild retardation into a 'normal' range. His communication skills improved dramatically."

9 / 10
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72 Report
  • BPD...
  • February 8, 2012

For Obsessive Compulsive Disorder "I have not been on the medicine for long enough to truly know what kind of difference it is going to make in my life. So far, I am almost completely pleased with the results. One of the major consequences of my particular type of OCD is isolation and avoidance. On Rilutek, I'm more willing to confront my fears, phobias, and triggers, and generally, I seem to be less stressed in those situations. My mind also seems to work better in that the thing I'm afraid of does not seem so real. Rilutek is an add-on to my other prescription medicines. In the last year, I have made more progress with medication than I have in the previous four together."

8 / 10
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37 Report

Frequently asked questions

  • Ano...
  • Taken for 1 to 6 months
  • October 25, 2021

For Amyotrophic Lateral Sclerosis "I think this drug is dangerous and shouldn't be prescribed. I believe this ended the life of the father of a friend of mine. Common side effects include respiratory problems? Taking this drug can temporarily lower the White blood cell count? I'm sure this comment will be deleted also which says it all really. Please take caution if you or somebody you know are taking this drug"

1 / 10
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11 Report
  • Pam...
  • Taken for less than 1 month
  • May 13, 2014

For Amyotrophic Lateral Sclerosis "We have noticed that when our mom decided to stop taking this medicine, she became weak and tired. She has only been taking it for 3 weeks. Was told she has amyotrophic lateral sclerosis in March 2014. Wish we didn't have to jump over so many walls to get answers. Got to love Medicare!"

6 / 10
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21 Report

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  • Naz...
  • August 10, 2022

For Amyotrophic Lateral Sclerosis "My husband has been taking this drug since August '2021 and has continued taking it without missing any doses. We set the time (7:00 a.m.& 19:00 p.m) to take reluzole in time without missing. After taking this drug it seems to delay the decrease of deterioration. But I don't what will happen in future. -10.08.2022"

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5 Report
  • ocd...
  • February 13, 2013

For Obsessive Compulsive Disorder "This medicine really helps."

7 / 10
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20 Report
  • Jen...
  • January 6, 2021

For Amyotrophic Lateral Sclerosis "My moms experience is the same as above. She went off it for a few days and we could see the decline."

9 / 10
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3 Report
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.