Pyridostigmine User Reviews & Ratings (Page 2)

• WWolf
• May 3, 2017

For Myasthenia Gravis "I am a 52 year old Female, I was diagnosed about 6 months ago, After the first dose of Pyridostigmine, 60 mg, I thought I had found the answer I had been searching for. Yes, I had and no I have not,...It works, but I have to take it 6 times a day. morning and night. The time release is really a great thing,...only slightly to much. So, I have to stop taking the long acting every so often and let a bit of it wear off. I don't really have any side effects except for getting shaky if I excercise too hard, and the 60 mg tab now give me indigestion no matter what I take it with. Small price to pay for feeling good!"

• Mazen
• Taken for 6 months to 1 year
• October 25, 2021

Mestinon (pyridostigmine) for Myasthenia Gravis "Mestinon helped ease my symptoms but did not completely relief the pain. Neck and shoulder cramps and pain still persist especially in the evenings and at night. I have been on mestinon since I was diagnosed about 6 months ago. Hoping with long term use it will improve my symptoms"

• Anonymous
• March 31, 2012

Mestinon (pyridostigmine) for Dysautonomia "Starting taking this a few months ago for dysautonomia and the POTS secondary to it. It helps the low blood pressure, low body temperature, and the gut-transit issues. It does not help the nerve pain or cognitive impairment. Sometimes when I take it a tad too soon (or even sometimes when I take a normal amount at a normal time) it will help my guts, but I will have a lot of difficulty breathing. "

• Anony...
• August 6, 2016

For Myasthenia Gravis "I just started this as a trial to see if it works. Double seroneg ocular MG though EMG showed problems in other muscles. Mild had for a while. Have liver disease so started on quarter of a sixty. On taking it I began to feel better, like relief through my body. I noticed my cheek felt normal not like full of lidocaine. I could smile evenly easier, less diplopia, better able to read, and happier. My ptosis is maybe a tiny bit better. I'm on such a little amount it wore off in a couple hours and I wanted to take more. I get to take more tomorrow. I think if you need it it could provide good relief. If it works time release sounds like the way to go."

• Marie
• Taken for 10 years or more
• July 1, 2022

For Myasthenia Gravis "I am a 67 year old woman and was diagnosed with ocular MG (double vision was my first symptom) and I tested positive to muscle and nerve damage in my neck. I started taking pyridostigmine and within a month, the double vision stopped. That was about 10 years ago. I was taking pyridostigmine 60mg 3 to 4 times a day, but now I just take one in the morning and whenever I need more - which is rarely. My symptoms are under control (remission), but I occasionally over work and/or get too hot and tired, and difficulty swallowing, breathing, fatigue, etc, occur. I have a good supply of pyridostigmine on hand always and it works wonders. I forget I have anything wrong with me. I have few limitations due to MG and am grateful for that."

• Anonymous
• Taken for 1 to 6 months
• September 14, 2022

Mestinon (pyridostigmine) for Dysautonomia "I had been on Mestinon for 6 months, in the mean time I felt bad from the beginning. My brain fog worsened, and at times it was hard to move my tongue, almost stroke like symptoms. In the beginning it caused severe nausea and headaches. Just seen my neurologist again and he took me off of this drug. It definitely did not work for me."

• Anonymous
• March 27, 2010

For Myasthenia Gravis "I was taking 3 pills a day, and it was ok for the first few weeks. Then I started with leg and hand cramps, where I couldn't lay down at night. I am now on 3 - 1/2 tablets a day, and the cramping has decreased, but the neurologist is concerned that the ocular symptoms will come back. "

• Linda
• Taken for 2 to 5 years
• September 3, 2023

Mestinon (pyridostigmine) for Myasthenia Gravis "I was diagnosed in Nov/Dec of 2019. I had weakness in legs/arms/chewing and double vision. I take 60 mg at approximately 8-hour intervals every day. I have diarrhea, which is made worse by having had bypass surgery for weight loss/control. I take 4 Imodium-type pills a day as well as some fiber and an iron tablet. This has helped me to walk and do activities again, although I normally will use a cane for short distances and a rollator or walker for longer distances. It has helped me lead a more normal life again."

• David
• Taken for 1 to 2 years
• January 7, 2024

Mestinon (pyridostigmine) for Myasthenia Gravis "Upon MG diagnosis, the Mestinon dosage was increased from 5mg x 4 daily by an additional 5mg every 2 weeks. A trial with adjusting the dosage interval timing resulted in a dosage every 3 1/2 hours x 4 daily of 180 mg (rapid release) and one 60mg dose during the night, for a total daily dosage of 780mg. This was all completed prior to going on Prednisone as a secondary medication."

• Maggs
• Taken for less than 1 month
• December 19, 2021

For Myasthenia Gravis "I currently have ocular Myasthenia Gravis. For the most part you all are fairly fortunate. I tried really hard but just can’t tolerate the drug. After 3 weeks of being sick, bloated and being crampy most of the time I had to go off. I lost 12 pounds ( I could afford to lose it) the hard way with no end in site. Dr. Said the drug was doing more harm than good. I am sad. I wonder what the future holds. I am new to this. Nov. 1, 2021."

• MRO
• Taken for less than 1 month
• March 29, 2023

Mestinon (pyridostigmine) for Myasthenia Gravis "I started Mestinon 30mg a few weeks ago and increased it to 60mg three times a day. The first several days it worked well but it seems to only help sporadically now. If I don't get 7 hours of sleep or overdo things it doesn't help me the next day. I am looking forward to getting put on immunosuppressive med. The side effects are some abdominal cramping and it seems to make me hungry."

• Kate
• Taken for 1 to 2 years
• October 29, 2020

Mestinon (pyridostigmine) "I have some symptoms of POTS but not most so my dr. put me on 60mg 5x day! It helped at first (been taking 1.5 yr) but then I was researching & noticed it was making my hair thin & falling out! I used to have the best hair & now it is thin, breaking like crazy. At least the balding is under in back of my head & I had thick hair to start w/ but be aware of that side effect!"

• Sbkul...
• Taken for 1 to 6 months
• February 4, 2021

For Myasthenia Gravis "I had good effect and first one tab in morning have partial relief, then 1 morning and evening still sometimes I had problems. Then started 3rd tablet after two - three months now one and half tab is ok with no driving but with driving for 5 hours effect reduces drastically of medicine"

• ocean...
• December 18, 2010

"I have Cervical Dystonia in the right side of my face and my eye and Mouth droop. I have only been on this medication for 4 days and can already see small changes. If it works like this, I'll take it forever. I used to have such a pretty smile and now it only smiles on the left...its awful. My nuroligist was giving me mylobloc so now we'll try this!! No side effects so far. Linda in Fl."

• Denise
• Taken for 1 to 6 months
• September 9, 2023

For Dysautonomia "I started on 30 mg, 3x daily. Taking the middle of the day dose has been a struggle to remember. I have felt more energy, less brain fog, little less pain. We increased the dose to 60mg after 2 weeks. I feel antsy/restless still after a month with increased dose. I'm finding sleep is difficult (falling, staying, early waking) even with taking 5mg of Ambien. I like having more energy, but now have to manage rest times as I have small crashes, less intense and amount of time is shorter."

• Kim
• Taken for 1 to 6 months
• November 17, 2021

Mestinon (pyridostigmine) for Reversal of Nondepolarizing Muscle Relaxants "I was prescribed tizanidine and got this tablet M180. I have had zero relief. I’d been taking tizanidine with much success. When I picked up this RX the number on the table was different, pharmacy said it was a different supplier. They didn’t say it was a different medication. This is debilitating, I couldn’t understand what changed; that’s when I found the different tab #"

• Noodles
• Taken for 10 years or more
• June 24, 2024

For Dysautonomia "I just want to share that if you are having problems tolerating pyridostigmine, please talk to your doctor about the possibility of considerably reducing your dose. It took me about 10 years to figure out that I need a very very small dose to feel better without the side effects. I have now for 15 years been using the pyridostigmine syrup so that I can easily take very small doses, like 5 mg. It is more costly, but well worth it to me. Do not do this without talking to your doctor first. Good luck everyone!"

• gumbo...
• July 16, 2014

Mestinon (pyridostigmine) for Myasthenia Gravis "I have been able to swallow within 2 hours of taking my first pill"

• Nay...
• Taken for 1 to 6 months
• June 11, 2019

Mestinon (pyridostigmine) for Dysautonomia "It actually made my breathing problems worse ~ was started on 30 mg once a day and increased to 30 mg 3 times a day"

• John...
• Taken for 6 months to 1 year
• July 22, 2017

Mestinon (pyridostigmine) for Myasthenia Gravis "Medicine works well . I do experience muscle cramps, stomach aches and muscle twitching at times. Blurred vision occasionally. Over all. Satisfied with results."

• Anonymous
• March 21, 2009

Mestinon (pyridostigmine) for Myasthenia Gravis "I tried taking Mestinon when I was first diagnosed and it caused bad diarrhea."

• Anonymous
• June 13, 2009

Mestinon (pyridostigmine) for Dysautonomia "I take 30mg (half tablet) 4 x daily. Works great for dysautonomia. "

• John
• Taken for 2 to 5 years
• September 13, 2020

Mestinon (pyridostigmine) for Myasthenia Gravis "Mestinon seems to be effective for me in treating symptoms."

• Droopy
• Taken for 1 to 6 months
• March 20, 2018

For Dysautonomia "This medication has been a lifesaver for me. It allows me to breath much easier and has helped with brain fog. I would not be able to work without it."

• Anonymous
• June 12, 2011

For Myasthenia Gravis "I've been taking this medicine for about a year and half and it works. When it starts to wear off the weakness comes back. I'm happy to put up with a few of the side effects."