Dilantin User Reviews & Ratings (Page 3)
Dilantin has an average rating of 7.7 out of 10 from a total of 72 reviews on Drugs.com. 68% of reviewers reported a positive experience, while 17% reported a negative experience.
Reviews for Dilantin
- Sanos...
- October 13, 2009
For Seizures "This medication was prescribed to me as a 37 year old cancer patient due to having suffered 3 seizures over the summer all of them grand mal seizures. Presently taking this medication without side effects (aside from being a bit slow in action)."
- Wendas
- Taken for 5 to 10 years
- December 3, 2019
For Epilepsy "Dilantin worked for my epilepsy and the side affects are not bad, they go away and if you have a high metab you will have high Dilantin levels even when you take it the right way, you just need to find your dose"
Frequently asked questions
- Groov...
- Taken for 10 years or more
- July 12, 2021
For Epilepsy "I was diagnosed with epilepsy in 1971. Have taken Dilantin for 50 years and have been seizure-free for the last 17. However, my doctor is weaning me off the Dilantin and onto Keppra because I am starting Harvoni for Hepatitis C and Dilantin is contraindicated. I am quite scared that I will experience breakthrough seizures, but my doctor will not allow me to take life-saving Harvoni without starting the Keppra. :("
- katie...
- March 9, 2008
For Seizures "I have been on dilantin since I was about 17. It has been working a lot better than the depekene I was taking before. When I was pregnant and started to gain a lot of weight, My doctor had to increase the dose. I am 31 now and my seizures are very well controled while on dilantin."
Are you taking this medicine?
- 55bar...
- Taken for 10 years or more
- May 1, 2021
For Seizures "On Dilantin extended plus phenobarbital for 47 years for seizures. Not an episode for 38 years. Requires regular check of blood level with adjustment when elevated. Excellent dental hygiene important. Bone loss after long term use with moderate anemia. These effects worth it for total control of episodes. Specialist prescribes brand only due to efficacy."
- Anonymous
- Taken for 10 years or more
- August 28, 2024
For Seizures "Dilantin has been the medication that all of my doctors have fallen back on when nothing else helped me with tonic-clonic seizures. No side effects for 48 years, 400-500 mg daily, no negative side effects, and no contraindications."
- Anonymous
- August 10, 2008
For Anxiety "I use 100 mg once a day to control anxiety. It works well. People at work have noticed I am much calmer at work."
- riggles
- August 30, 2007
For Seizures "I have been using Dilantin since I was 15 years old and have had no side effects. I am 42 years old now. I thank God because I have grown out of most of my seizures."
- Anonymous
- May 31, 2010
For Trigeminal Neuralgia "Very effective for Trigeminal Neuralgia for past 2 years at 500mg daily. Not so great now, so I must have built tolerance to it, as I'm having daily bouts of pain again."
- SANJA...
- Taken for 1 to 2 years
- July 9, 2012
For Seizures "I am on 300 mgs of Dilantin one day and 400 mg the next day. Unfortunately, the day I take 400 mg I do not get the full sound sleep at night. What are the experiences of others?"
- msbarch
- October 16, 2009
For Trigeminal Neuralgia "Stops the pain but makes me too dizzy to function. My doctor also doesn't like the long term effects on the cerebellum."
- JoeM
- February 8, 2009
For Epilepsy "I've been on Dilantin since 1979 and have not had any issues or seizures."
- Anonymous
- April 5, 2008
For Seizures "I'm 52 years old and had a Grand Mal 4 years ago and have been taking Dilantin since without incidence. No side effects. The medicine is effective and relatively affordable."
- almost...
- May 13, 2010
For Seizures "I experienced Stevens Johnson Syndrome when I first started taking this drug. It took 3 months of high doses of prednisone to recover. "
- Anonymous
- October 17, 2009
For Seizures "I think I might be allergic to this medicine as I had the hives in the evening from my scalp down. "
- Arabe...
- September 25, 2013
For Seizures "I have been taking Dilantin for about two weeks and so far no problems, hopefully I won't have any."
- Favid...
- July 23, 2020
For Epilepsy "I took Dilantin for 40 years. I am now 75years old and my blood pressure reading was 110/60 with a pulse of 55 last week at my annual physical. I have been off the medication for 25 years."
- christy...
- November 10, 2008
For Epilepsy "It is a miracle drug and it works fantastically."
- Anonymous
- June 21, 2009
For Epilepsy "It was okay, I took it for 15 years then they changed it 2 years ago and I cannot take it anymore."
- Anonymous
- November 8, 2009
For Epilepsy "I've been on Dilantin for about 20 years and it works for me."
- Chelle
- Taken for 6 months to 1 year
- December 7, 2012
For Epilepsy "The first 3-4 days made me a bit groggy immediately after taking it, I couldn't drive. Within a week, I adjusted quickly."
- Anonymous
- Taken for 10 years or more
- January 19, 2019
For Epilepsy "I have been on it for 18 years. I now have pins and needle feelings everywhere. It is really hard for me to sleep. I am wondering if I should mention this to my doctor?"
- no job
- Taken for 2 to 5 years
- December 29, 2014
For Seizures "Side effects- over 5 years losing hair but I take it 3 times a day with other medication for Multiple Sclerosis."
- david...
- October 13, 2008
For Epilepsy "Now I'm almost seizure free."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
More about Dilantin (phenytoin)
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- Side effects
- Dosage information
- During pregnancy
- Generic availability
- Drug class: group I antiarrhythmics
- Breastfeeding
Patient resources
- Dilantin drug information
- Dilantin injection
- Dilantin Infatabs (Advanced Reading)
- Dilantin-125 (Advanced Reading)
- Dilantin Infatabs
- Dilantin Kapseals
Other brands
Phenytek, Phenytoin Sodium, Prompt
Professional resources
- Dilantin prescribing information
- Dilantin Infatabs (FDA)
- Dilantin-125 (FDA)
- Phenytoin, Phenytoin Sodium (AHFS Monograph)
For Seizures "In 1992 (I was 26) I had my 1st seizure while I was asleep and after a couple more I was put on Dilantin, 300 mg at bed time. About 10 years later I started having what are called deja vu's and now take oxcarbazepine, 600 mg in the morning and 600 mg with the Dilantin at night. Dilantin has helped me have a great life, (last seizure about 10 years ago) Has anyone else had these issues?"