Skip to main content

Dilantin for Seizures User Reviews (Page 2)

Dilantin has an average rating of 7.4 out of 10 from a total of 31 reviews for the treatment of Seizures. 65% of reviewers reported a positive experience, while 19% reported a negative experience.

Reviews for Dilantin

  • Anonymous
  • March 14, 2010

"I have been taking Dilantin for a few months now for both Petit-mal and Grand-mal seizures. I have experience all of the side effects from the medication. My lymph nodes are swollen and very painful. It is making it difficult to talk. my whole face and neck are swollen as well. I have had painful headaches since two weeks after I started taking the medication. I have also had a fever for the past month around 99 degrees to 100 degrees. This medication works for other members of my family, but it does not work for me."

2 / 10
Was this helpful?YesNo
13 Report
  • Anonymous
  • Taken for 10 years or more
  • March 17, 2021

"I was reading your article above you mentioned hair loss while taking Dilantin. Try 500 mcg of biotin once a day. You want to protect your bones to with calcium, magnesium and vitamin D. Always talk to your neurologist first. Good Luck"

7 / 10
Was this helpful?YesNo
4 Report
  • Sanos...
  • October 13, 2009

"This medication was prescribed to me as a 37 year old cancer patient due to having suffered 3 seizures over the summer all of them grand mal seizures. Presently taking this medication without side effects (aside from being a bit slow in action)."

10 / 10
Was this helpful?YesNo
11 Report

Frequently asked questions

  • Patri...
  • January 23, 2023

"I have never had a seizure in my life I'm 59 years old about year and a half ago started having what they called silent seizures this went on for a year before they found out I was having seizures I was having seizures everyday they put me on dilantin for a year and a half I can tell already the bad side effects - I've gone from 150 pounds to 93 pounds falling broken bones walking around like I'm drunk but it did stop the seizures."

Was this helpful?YesNo
2 Report
  • Johnbo
  • Taken for 10 years or more
  • April 19, 2021

"In 1992 (I was 26) I had my 1st seizure while I was asleep and after a couple more I was put on Dilantin, 300 mg at bed time. About 10 years later I started having what are called deja vu's and now take oxcarbazepine, 600 mg in the morning and 600 mg with the Dilantin at night. Dilantin has helped me have a great life, (last seizure about 10 years ago) Has anyone else had these issues?"

8 / 10
Was this helpful?YesNo
3 Report

Are you taking this medicine?

  • katie...
  • March 9, 2008

"I have been on dilantin since I was about 17. It has been working a lot better than the depekene I was taking before. When I was pregnant and started to gain a lot of weight, My doctor had to increase the dose. I am 31 now and my seizures are very well controled while on dilantin."

10 / 10
Was this helpful?YesNo
9 Report
  • 55bar...
  • Taken for 10 years or more
  • May 1, 2021

"On Dilantin extended plus phenobarbital for 47 years for seizures. Not an episode for 38 years. Requires regular check of blood level with adjustment when elevated. Excellent dental hygiene important. Bone loss after long term use with moderate anemia. These effects worth it for total control of episodes. Specialist prescribes brand only due to efficacy."

9 / 10
Was this helpful?YesNo
1 Report
  • riggles
  • August 30, 2007

"I have been using dilantin since I was 15 years old and have had no side affects. I am 42 years old now. I thank god because I have grown out of most of my seizures."

Was this helpful?YesNo
29 Report
  • SANJA...
  • Taken for 1 to 2 years
  • July 9, 2012

"I am on 300 mgs of Dilantin one day and 400 mg the next day. Unfortunately, the day I take 400 mg I do not get the full sound sleep at night. What are the experiences of others?"

9 / 10
Was this helpful?YesNo
22 Report
  • Anonymous
  • April 5, 2008

"I'm 52 years old and had a Grand Mal 4 years ago and have been taking Dilantin since without incidence. No side effects. The medicine is effective and relatively affordable."

10 / 10
Was this helpful?YesNo
18 Report
  • almost...
  • May 13, 2010

"I experienced Stevens Johnson Syndrome when I first started taking this drug. It took 3 months of high doses of prednisone to recover. "

Was this helpful?YesNo
15 Report
  • Anonymous
  • October 17, 2009

"I think I might be allergic to this medicine as I had the hives in the evening from my scalp down. "

4 / 10
Was this helpful?YesNo
15 Report
  • Arabe...
  • September 25, 2013

"I have been taking Dilantin for about two weeks and so far no problems, hopefully I won't have any."

9 / 10
Was this helpful?YesNo
11 Report
  • ZHM
  • Taken for 1 to 6 months
  • November 12, 2023

"This medication caused extreme fatty liver disease and cognitive impairment. Both conditions were quickly reversed once I stopped taking Dilantin."

1 / 10
Was this helpful?YesNo
1 Report
  • no job
  • Taken for 2 to 5 years
  • December 29, 2014

"Side effects- over 5 years losing hair but I take it 3 times a day with other medication for Multiple Sclerosis."

8 / 10
Was this helpful?YesNo
7 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.