Fycompa for Epilepsy User Reviews (Page 2)

Fycompa has an average rating of 6.1 out of 10 from a total of 44 reviews for the treatment of Epilepsy. 57% of reviewers reported a positive experience, while 36% reported a negative experience.

Reviews for Fycompa

Keywe
Taken for 1 to 6 months
October 6, 2022

"I have focal epilepsy and have been struggling for 3 years to get it under control. I take LeVETicam which helps tremendously, but still had about 3 seizures per week. I started Fycompa approximately 4 months ago and LOVE IT! Oh my gosh, what a game changer! I still have seizures when I'm stressed, but they are much smaller and I only need about an hour to recover (it used to be about 4 hours). Fycompa has also brought my personality back ... I'm singing and dancing around the house again ... I finally feel that I'm awake and alive again. This drug has worked for me."

9 / 10

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5 Report

Worri...
July 13, 2018

"My 20 yr old just got prescribed this to gradually increase over 4 weeks from 2mg to 8mg. She is currently taking 500mg of Zonisamide. Her old neurologist wanted to do this a year ago and she decided not too after reading so many reviews about horrible side effects. I am really frightened about her going on Fycompa but her seizures have really increased so feel like we should."

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12 Report

Anonymous
February 5, 2018

"I have been on every medication and Fycompa was the worst. I was prescribed 2mg in morning and evening. I would get so dizzy that I could not stand and walk. I do not think my vimpat and Fycompa mixed well. On my own I started cutting both so that I did not take them together. The dizziness was less, I could at least function but still a little dizzy. Now my new doctor is having me take fycompa every other day for 10 days and then take me off the Fycomp. He said that medicine last for 300 hours yes 300."

1 / 10

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11 Report

Frequently asked questions

Zoey
Taken for 5 to 10 years
November 1, 2022

"I started taking Fycompa about five years ago. I was on high doses of Keppra and Lamictal and I still had seizures. Fycompa 6 mg was added and my life changed for the better. Between all three medications I do have side effects but I am able to handle them. My neurologist and Fycompa gave me back my life."

10 / 10

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4 Report

1972
Taken for 6 months to 1 year
March 19, 2017

"Good points: reduced my seizures and made me feel overall a lot more confident. If I ever had a seizure, I tended to know when it might occur and my 'trigger' points. Bad points: It made me in some ways over confident, to the point of feeling careless. Not so much suicidal, but thoughtless and self-indulgent. I would get angry easily. I work in a professional place and therefore had to taper down from it, though am still on a low dose."

6 / 10

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Are you taking this medicine?

fycompa...
Taken for 1 to 6 months
February 29, 2024

"Pros: seizure-free for 3 weeks, best I've gotten in a long time. However, this is on polytherapy with two other medicines. Cons: extremely irritable, more than I have ever been, biting myself in anger sometimes. Sometimes in anger, I imagine killing my dog when he's annoying me, however, I retain reason and know that would not be a good thing. Periodic extreme vertigo to the point of being unable to walk. Despite these side effects, my view of right/wrong has not changed, and I am not actually considering doing these things. However, I find myself thinking about these things far more than I should, over and over, for most of the day. Excellent medicine... if these side effects go away after a few more weeks."

8 / 10

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DaveG...
Taken for 6 months to 1 year
June 13, 2017

"My son had a tough case of seizures, that generally occurred overnight, and we had difficulty achieving seizure control. After exhausting many meds, a doctor told us we'd have a 3% chance of finding a medicine that would control his seizures. The seizures started right when he turned 4, he's now 5. Eventually the cocktail of Fycompa and oxcarbazepine did the trick; 10 months seizure free and counting. Also interesting to note is that he and I both have a genetic variant of unknown significance on the CACNA1A gene. I've never had seizures but he has. He is experiencing side effects, most noticeably, he gets groggy after taking the Fycompa and oxcarbazepine before bed. Also mood swings and behavior but part of that is being 5."

9 / 10

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SeCi
Taken for 1 to 6 months
June 16, 2020

"I have been on this Fycompa for a month, 4mg for LGS/ Rare Epilepsy. It has caused severe restlessness. I have called to see if I can be taken off it. Hopefully, I will get the call soon; and it will be possible."

10 / 10

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5 Report

Tbano
Taken for 2 to 5 years
July 26, 2021

"The only AED that helps me sleep deeply. On 2 others as well and until placed on Fycompa, I slept poorly. Made me dizzy, tired, and anxious at first however those side effects dissipated. Still sleepy in the mornings but that is to be expected being on any combination of AEDs."

8 / 10

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Phil...
Taken for 1 to 6 months
May 6, 2022

"A little background for context first: 39 year old male with right temporal lobe epilepsy. Focal point evolving to secondarily generalized convulsive tonic clonic seizures. Over 15 years of uncontrolled seizures. I had 3 open brain surgeries since March 2020, two temporal lobe resections and a hematoma evacuation. Continuing to have convulsive seizures, every six weeks on average. Current AED regiment: 150mg Briviact 2x daily and 6mg Fycompa nightly. I have been on Fycompa for 6 weeks now and continue to have focal point seizures and occasional g.t.c. Seizures. The first and primary side effect I noticed was an overwhelming sedation. Even for seizure drugs I’ve never been so “drugged” feeling. I take it before bed and wake up extremely sedated. I’ve noticed that it takes about 16 hours from dosing until I can function. It also messes with stomach and gives serious balance and gait problems after dosing. I wouldn’t recommend this drug for anything but a last resort treatment."

3 / 10

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Wendy
Taken for 1 to 2 years
August 18, 2023

"Started on 2mg and increased gradually to 10mg (recently). My seizures have decreased very slightly which I'm very pleased with. Side effects are feeling dizzy, can't walk straight, slurred speech and make me feel very tired and relaxed. I take it at night before bed, so by morning I'm back to normal. I take Clobazam and Tegretol at night and Tegretol in the morning. I do not drink alcohol and do not have any suicidal thoughts or aggression."

9 / 10

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Ahmed
Taken for 10 years or more
May 30, 2022

"Before any thing Many thanks to the organizers of this wonderful website I've only been taking this medication for 10 days and go from 2ml to 4ml I was greatly affected by (abdominal gas - difficulty defecation - increased appetite - severe pain in the lower back and pain in the left side of the body from the shoulders to the feet) I tested it with Vitamin B12 and saw improvement. I've taken many medications before, most recently and still Vimpat, which has greatly affected my memory and focus. Friends call me Alzheimer's. My main problem is the seizure after ejaculation and sex. I then go into insomnia for a period of between 1 week to a month, then the seizure comes after eating any meal directly or at bedtime. I have not yet found a doctor who can determine the causes and know the final treatment."

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notyo...
Taken for 1 to 6 months
September 18, 2017

"This medicine has made me more angry than usual and it doesn't help with my seizures. It also makes me sleepier than usual."

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15 Report

Dhani...
Taken for 5 to 10 years
May 7, 2017

"Started on this medication during its study phase. Just makes me real tired and in a "fog" in the morning. If still up an hour after taking it I sometime feel "drunk", balance is altered."

9 / 10

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15 Report

Kw60218
Taken for 1 to 6 months
March 26, 2022

"This is a very good medicine for epilepsy but it makes me hungry , off balance and sleep for almost 10hrs"

10 / 10

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4 Report

never...
January 6, 2017

"frequent bowel movements, later diarrea especially durning the morning hard to tell if it helped my seizures, as I had 4 seizures in a 5 month period"

2 / 10

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9 Report

Dhani...
Taken for 5 to 10 years
April 19, 2017

"I started on it during its study phase. The only side effects are it makes me very tired. And it does take me longer to wake up. I think it is an awesome medication."

9 / 10

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Rose...
Taken for 6 months to 1 year
October 28, 2021

"This is the most worse drugs for kids the side effects are real I do not recommend it for no one it causes mental problems. This is an awful drug should not be on the market"

1 / 10

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Ker
Taken for 1 to 6 months
May 25, 2022

"Was on it one month and stopped. Worst med I’ve ever taken. Caused severe memory and concentration issues. Was even let go from my job due to the side effects."

1 / 10

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Anonymous
Taken for less than 1 month
June 30, 2022

"Good med. I like it. It has helped me a lot. It has not been a problem as far as side effects. I feel pretty good and have had no problems since I started talking it."

8 / 10

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Anonymous
Taken for 1 to 2 years
April 9, 2022

"I had to increase the mg slowly and have found it made me extremely tired or dizzy when not taken with food. Overall I have gone from 5 seizures a month to 2 in the past 8 months and am on 6 mg."

9 / 10

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Heidi
June 7, 2024

"I had daily seizures until Fycompa. Thank God for Fycompa."

10 / 10

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0 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.