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Invega Sustenna for Schizophrenia User Reviews (Page 2)

Invega Sustenna has an average rating of 3.5 out of 10 from a total of 91 reviews for the treatment of Schizophrenia. 22% of reviewers reported a positive experience, while 68% reported a negative experience.

Reviews for Invega Sustenna

  • Straw...
  • Taken for 6 months to 1 year
  • November 5, 2018

"Invega Sustenna was a horrible experience for me. This medication caused me to gain 20-30 pounds. It stopped my monthly cycles. I was also not able to experience sexual pleasure. This medication ruins lives."

1 / 10
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  • Jacob...
  • Taken for 1 to 2 years
  • September 14, 2017

"Okay let me get started. Every social worker, psychologist, and mental health doctor shouldn't prescribe this drug to anyone. It is harmful in so many ways. I took it for 1-2 years because they said: I had said that I had bad schizophrenia. I did not have bad anything except a drug issue- which they already knew as they had tested my urine, but they didn't take that into consideration. If you take this drug you will sleep away your life. You will lose you train of thought every 5 sentences. You will probably 75% chance to lose your job in a fast pace environment. When you take this drug you will lose muscles, goals, and cause you too get depressed. "

1 / 10
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  • Citiz...
  • Taken for 6 months to 1 year
  • May 21, 2022

"I have been getting injections for 8 months now, and I have no energy, no stamina, I have a really difficult time organizing my thoughts, and any suicidal ideations I may have had before this medication, were nothing compared to the urgent need I sometimes have to kill myself. I know that these impulses are not what I consciously want, but I get trapped within my own mind sometimes, and start crying and cussing uncontrollably. I feel dizzy, disoriented, without hope or a lifeline connecting this dedicating husk of a man, to the passionate person who used to volunteer at the animal shelter and local charities. I was a productive member of society before this nightmare started, a good person who strove to remain productive and busy with day to day task. I cannot complete a sentence most of the time, and the doctor's refusal to take me off of this dangerous drug is bad for me. I can barely associate what I have become, to what I was."

1 / 10
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Frequently asked questions

  • tk999
  • Taken for 2 to 5 years
  • May 14, 2023

"This medication has turned me into a couch potato. Most of my life I have been a fit and physically active person, but since I have been givin this medication I have been struggling to get the energy to do anything. It took away my motivations in life and I have become numb emotionally. It does help with my symptoms abit but there has to be better medication out there then this."

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  • Takey...
  • Taken for 2 to 5 years
  • January 11, 2020

"I've been on this med Invega for years without it I was suicidal and often hurt myself with this med I'm happy again and have no desire to cause harm to myself only side effects are weight gain and long sleep"

9 / 10
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23 Report

Are you taking this medicine?

  • O2joe
  • Taken for 1 to 6 months
  • August 26, 2019

"The combination of drugs I was on, which included invega sustenna, caused a great amount of pain and suffering. Puking, coughing, kidney pain, prostate pain, brain on fire, lock jaw in the middle of the night, in some order which I've forgotten."

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24 Report
  • Anony...
  • Taken for 6 months to 1 year
  • January 30, 2021

"Worst experience of my life. Literally got rid who I am as a person. I feel nothing. No emotions, no joy out of life. Just an empty shell. I've felt suicidal, as it might be a better option than just living day to day feeling like a zombie. I wish the doctor never put me on this. LIVING IN A NIGHTMARE!!"

1 / 10
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More FAQ

  • Reali...
  • Taken for 1 to 6 months
  • December 3, 2019

"Let’s start off by saying it causes bloating. I hate the feeling. I been dieting and exercising but no results after eating. I have no sex drive, tiredness, no emotion, and lack of energy. I also don’t want to leave the house. This shot has worked for my voices but the side effects are worst. Hopefully getting off of it soon."

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  • Kiwi
  • Taken for 1 to 2 years
  • May 18, 2018

"Invega sustenna is gross. It blocks dopamine in the brain. So causes a long list of side effects. This drug is a gimmick it has no therapeutic value whatsoever. I think I threw up over a dozen times!"

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  • Invega
  • Taken for 1 to 2 years
  • March 21, 2016

"My wife has suffered from late onset schizophrenia with severe positive symptoms for over 10 years. She started Invega Sustena treatment (monthly injection) a year ago and has made dramatic improvements. All of her positive symptoms have gone away. Residual negative symptoms remain but is now manageable with talk therapy. The injection method helps with compliance as daily pills are difficult to maintain and easy to discontinue. This is a wonder drug..."

10 / 10
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33 Report
  • Strip...
  • Taken for 1 to 6 months
  • May 29, 2018

"I find the drug makes me calm/relaxed.. but I have the most severe insomnia. I've gone 7 weeks without much sleep and have 0 energy or motivation. This drug has basically ruined my life and turned me into a stay at home vegetable with no future. Gonna switch to abilify and hopefully have a life back and good healthy sleep back"

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  • kodein
  • Taken for 5 to 10 years
  • September 30, 2018

"Gained over 30 lbs on this medication even though I'm eating less and I've cut out sugar from my diet. What's even more depressing is that even though I'm heavier I'm actually weaker than I've been when I was skinny and off meds. Also when I skip my injection for a week I'm hitting threes and long two's like it's nothing on the basketball court, while on the medication there's no point in going to the court. Also the results of treatment are suboptimal: I don't have friends, during 6 years of treatment I've never been on a date (which probably also has something to do with poor sexual functioning while on the medication), I stay at home all the time, am unemployed and gained the status of a disabled person. However when on the medication I don't have positive symptoms like thought broadcasting. I'm seriously considering switching the medication, I'm depressed, desperate, feel awful all the time and can't do it anymore."

3 / 10
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  • Sea
  • February 10, 2021

"I have paranoia, panic disorder, and Bipolar 1 with psychotic features. I zoned out and day-dreamed living nightmares. It shattered my self-esteem. I heard people say my thoughts and I heard their thoughts. It did not clear my mind, it made it race with the paranoia condition I have. I gained 100 pounds in one year. My labs showed I would have cirrhosis of the liver in 2-5 years due to obesity. I saw a nutritionist, but lacked all motivation. I was constantly terrified. I rarely spoke. When I switched to another anti-psychotic, my hallucinations stopped. Five years later, I have no idealizations about people reading my mind. I am grateful I was too scared to talk about how I felt because my diagnosis could have changed. I lost my whole sense of who I was by getting injected with 150mg each month for four years. I blame myself little for sleeping the pain away. I would never recommend this medication to anyone."

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  • Jen
  • Taken for 1 to 2 years
  • January 12, 2021

"My husband is borderline schizophrenic and he is given the injection once a month. He has been given the needle for 18 months. During this time he is always asleep, no energy, no interest in life, very slow walking and just can’t do anything. This is not living just existing. Is there an alternative to this drug. So fed up with it all."

4 / 10
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  • Phleb...
  • October 18, 2017

"Well I have been on this medication for some time now. It has helped me with the voices but to be honest you do sleep a lot and that's the only constant this medication has. It makes you eat a lot and as far as sex drive goes lol I won't talk about it. I think that it depends on who you are around to make you feel depressed you have to keep in mind that it's a serious disease but with medication it can be manageable. And if you are getting too fat exercise. You will get the weight off. Keep positive people and remember the struggle is never done we may always have a stigma put on us or a label put on us but prove the enemy wrong. Be the best you can be and shine bright like a diamond. And remember god loves u"

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  • Chris...
  • Taken for 2 to 5 years
  • July 6, 2021

"Both me and my brother have been on invega for schizophrenia and it seems to have no affect on either of us. My brother for at least a month and me for more than 3 years. It is not getting rid of the hallucinations or paranoid delusions. We take it to keep our parents happy."

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  • Bob
  • Taken for 6 months to 1 year
  • February 25, 2020

"I don't feel much on this medication. It takes away the pleasure of enjoying things like video games sadly. I've lost my sense of smell while on this drug. I've gained the most weight I have compared to other antipsychotics. I tried coming off it for a month with no success, it's really strong on preventing delusions and hearing voices. I can't ejaculate or feel much sexual pleasure while on this medication."

5 / 10
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  • buddy...
  • Taken for 1 to 6 months
  • November 17, 2019

"this drug is driving me crazy! I don't like the weight gain and it slows me down considerably... I can't eat whatever! every thing has sodium in it. my body has gone through the wringer(think using the potty) and people have to take things away to keep me from committing suicide.things are done behind my back to keep me stable as well. the edge is gone (me saying the f word on regular basis) but what about sleep? I am 43 years old and i need my beauty sleep! I never want to feel the feeling of being awake for weeks on end! Guess It doesn't help that I discovered coffee... bring on the drugs that encourage you and not make you fat and bloated!"

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  • Anonymous
  • Taken for 1 to 6 months
  • June 18, 2014

"I have been on Invega for 5 months now and it has significantly improved my quality of living. Prior to the shot I was on numerous antipsychotics and would begin to stop taking the pills and go into relapse with symptoms. I'm not on the shot and auditory and visual hallucinations and paranoia have decreased dramatically. I like that it is a monthly shot and it cuts down remembering (or wanting) to take a pill once or twice a day."

9 / 10
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  • Charles
  • Taken for 1 to 6 months
  • April 21, 2016

"Clears the mind of weird thoughts, delusions and hallucinations. Weight gain has been noted as well as a general feeling of restlessness and drowsiness. I'm always on slow-motion and need to think things twice or 3 times. Still better than having conversations with dead people or thinking my brain can see in the future... by the way, DON'T try quitting this drug cold turkey. It's a recipe for disaster."

8 / 10
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  • Anonymous
  • Taken for 1 to 6 months
  • May 13, 2012

"Invega is working great on auditory symptoms and no lethargy noted. I have noted some of the adverse side effects after the first dose: sudden weight gain, indigestion, pain at injection site and sore throat. In addition to these there has been increasing facial and abdominal bloating, I am concerned but there is no other medicine I am aware of at this time and the doctor feels the benefit outweighs the side effects."

9 / 10
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36 Report
  • Voice...
  • Taken for 1 to 2 years
  • November 29, 2017

"I was going through thyroid storm because I had taken liquid iodine with thyroid pills. At the time I was having a episode... and forced treatment against my will. The doctor told me that it was the only drug I could take and coerced me into taking it. 432 mg shot that was nearly the twice the max dose. I didn't like it because before I was on a dopamine 2 and not dopamine 3 antagonist like this drug does. Absolute crap! Before the episode I was healthy able to run 10k in under 40 minutes on Seroquel xr.... and now I'm dealing with withdrawals and high inflammation that was .7 now 4.3 because of stupid shot. It'll make you not able to think or do your job. You'll lose interest in things like working out and being healthy. The drug is rubbish!!"

1 / 10
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  • Nina
  • Taken for less than 1 month
  • July 28, 2020

"I checked myself into the hospital for being severely underweight, dehydrated and malnourished (I have suffered from anorexia nervous for a long time). Instead of giving me medical attention, the staff at the hospital took my blood and urine , and quickly received a court order to take invega and to be inpatient treatment. My blood pressure seemed to keep declining. If you think 80/40 blood pressure is alarming, you are right. The nurses who were making a ton of money off of me did not care. My blood pressure got as low as 70/26~ in the hospital, where people are supposed to be receiving care. This is a very traumatic experience for me, and I really just want to live straightedge and abstinent (no sex, drugs, drinking, or smoking)."

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  • Dust
  • Taken for 1 to 2 years
  • November 30, 2020

"When taking Invega Sustenna you have either no emotions some days or it's out of control literally laughing crying and anger. Also if you're like me you can't hardly sit down makes me move a whole bunch."

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  • Robbi...
  • July 13, 2021

"Invega Sustenna was difficult at first. I felt very tired and would get headaches. I believe this was my body adjusting. After a few months, and now on the drug for a few years, I have had a great experience. I still have symptoms once in a while, but not as bad. With the education I was given, before taking the drug for my first time, I am now well aware of what a "symptom" is. I am prepared. The drug Invega Sustenna has only improved my thoughts, speech and dialect. As I would hear voices, preventing me from speaking clearly, Invega Sustenna has given be the ability to articulate my sentences. When I am ready, I will take either oral tablets or a 3 month injection. I think this will only help my limitations that I keep private. I no longer have headaches. I am no longer fatigued. I am in a good position and I am proud of the person I am becoming."

10 / 10
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12 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.

Learn more about Schizophrenia

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