Ozanimod User Reviews & Ratings
Brand names: Zeposia
Ozanimod has an average rating of 8.8 out of 10 from a total of 8 reviews on Drugs.com. 88% of reviewers reported a positive experience, while 0% reported a negative experience.
Condition | Avg. Rating | Reviews | Compare |
---|---|---|---|
Multiple Sclerosis | 5 reviews for Multiple Sclerosis | 102 medications | |
Ulcerative Colitis | 3 reviews for Ulcerative Colitis | 92 medications |
- MS...
- Taken for 1 to 2 years
- March 11, 2022
For Multiple Sclerosis "I have been on Zeposia for a year. I was on Tysabri for ten years before. It was such a pain to get my IV every month. Now, I take a small pill every day, and I have never felt better! I started having MS symptoms when I was a child. I truly can't remember ever feeling so healthy, so normal. I take other medicines, baclofen and all. But I feel like a million bucks. It's not a cure, but it sure does feel like it!"
- Zha...
- Taken for 1 to 6 months
- June 28, 2023
For Ulcerative Colitis "I was on Zeposia for 2 months. Before that, I was on Entyvio for 8 months. Zeposia has so many serious drug interactions that made it much harder for me to manage my pain and other issues. On day 19 on Zeposia, I started having severe SI joint and lower back pain. I couldn't walk or even lay down without pain (I'm 32 years old). I also had episodes of high blood pressure twice within 2 months with a headache and vomiting. I had to stop taking it because it didn't work for my UC and had too many side effects, unfortunately."
Frequently asked questions
- Is Zeposia (ozanimod) a biologic? How does it work?
- How long does it take Zeposia (ozanimod) to work?
- Why does Zeposia (ozanimod) slow down your heart rate?
- What are the new drugs used for multiple sclerosis (MS)?
- Sat...
- Taken for 1 to 2 years
- July 24, 2022
For Multiple Sclerosis "My wife has been on Zeposia for 1.5 years after 5 years on Tecfidera. Switched because of better efficacy and MRI showed relapse. Downside - blood pressure went up. Upside - no relapses. Easy to get onto treatment. Tecfidera made her nauseous for 4 months. She never feels good enough to have a normal life like some write about here, but MRIs are clear. She’s a bit unsteady on her feet, but walks well enough. Complains of vertigo sometimes. Still has pain daily in her legs."
- Cha...
- Taken for 6 months to 1 year
- February 23, 2024
For Ulcerative Colitis "I've been taking Zeposia for 9 months. It has changed my life. A wonder drug. I suffered with UC and my life was miserable. I have not been experiencing any of the side effects that some have mentioned. I take a daily pill. Can't say enough good things. I'm so grateful."
Are you taking this medicine?
Your review helps others make informed decisions.- Joh...
- Taken for 6 months to 1 year
- December 3, 2024
For Multiple Sclerosis "I have been using Zeposia for close to a year now. I transitioned from Tysabri, which I loved but wanted to have the flexibility of not having to go into a clinic. Yes, I have the side effects: stuffy nose, sore throat in the evening occasionally, cough every now and then. I can only think of one reason not to take it. When I am cured from this *^&* disease! I have been on several DMDs since my diagnosis in 2026 and feel this will be my last DMD."
- Ale...
- Taken for 6 months to 1 year
- April 18, 2025
For Ulcerative Colitis "Had a great experience with Zeposia so far. I’ve been using it for 1 year. Have not experienced any side effects that I’m aware of, other than a slightly slower heart rate BPM (I can’t seem to get my heart rate over 150 in the gym now, which is weird), and it has successfully reduced cal protection inflammation levels from a scary 2600 down to around 50 in a couple of months. Daily toilet visits down from countless to around a normal 1 or 2. Feels good knowing that my insides are calm and normal once again. Will monitor liver and kidney levels and other markers to ensure it’s not doing damage elsewhere. So far, so good."
- Dar...
- Taken for 5 to 10 years
- September 29, 2021
For Multiple Sclerosis "My partner used it for 6 years, through trial. No serious side effects, one flare-up, but according to MRI, there was progression, so went to Ocrevus."
Are you taking this medicine?
Your review helps others make informed decisions.More about ozanimod
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- During pregnancy
- Drug class: selective immunosuppressants
- Breastfeeding
- En español
For Multiple Sclerosis "Diagnosed with MS 17 years ago and never took any maintenance medication (solely my complete ignorance!) assuming a healthy diet, exercise, and vitamin D supplements were enough to keep me walking.... Failure! At year 15, I could barely walk to the end of the driveway without both of my legs collapsing. Zeposia saved me! I now can walk again 30 - 45 minutes up and down hills and in rough terrain (grass, rocks, and pebbles) not at first, but gradually over the last 2 years, I have accomplished this. Need to limit sun exposure for myself to 15-20 minutes max. After that, I start stumbling and tripping. Hot days, 90 degrees, okay as long as it's not sunny! I refinished my deck on an overcast dark 90-degree day, no problem. Felt compelled to share my story with others to give them hope! God bless us all."