OnabotulinumtoxinA for Cervical Dystonia User Reviews (Page 3)

• Derf
• Taken for 1 to 2 years
• May 7, 2022

Botox (onabotulinumtoxinA) "Had my initial series of injections which worked extremely well, no more head twisting. That place stopped taking my insurance but found another doctor that would continue the procedure. Injections every three months. Worked very well until my third series of injections. I have been told the muscles in the back of my neck have become too weak and the muscles in the front of my neck are pulling my head forward. I cannot stand straight up and tilt my head up. Very discomforting and at times very painful. It's like this intense pressure in the back of my neck and shoulders. It hurts to look up. Also, I have this weird sensation when I try to eat I need to lean forward and when I try to bring food to my mouth, I have difficulty opening my jaw fully. I have received injections in my front neck muscles to counteract the weakness in the rear muscles. . Would like t oknow if anyone else has had similar problems. Now the cure is worse than the disease."

• rex
• Taken for 2 to 5 years
• March 18, 2022

Botox (onabotulinumtoxinA) "I had been getting botox injections for three years for my cervical dystonia, and it helped tremendously but my last three injections caused respiratory failure. I had trouble swallowing, speaking and breathing ,the last time I got injected 2 weeks later I was asleep, rolled over on my side and as I did I tried to swallow and could not. I couldn't catch my breath, panicked, I was gasping for air, 4 hours I was gasping for air. I thought I was going to die. That was my last time I got botox injections. Has anyone else experienced these symptoms? I was getting 12 injections every visit to neurologist ,about 6 vials. It did help with my twisting neck but now I'm scared to go back. My pain is off the charts, got an appointment with pain management to see if pain pills will help. Has anyone tried pain pills? Do they work?"

• KimRN
• Taken for less than 1 month
• October 29, 2021

Botox (onabotulinumtoxinA) "Just received my first Botox treatment for neck pain 2 days ago. I'm now in worse pain than before. I can't bend my head down and can barely turn it. I'm feeling incredibly discouraged. This was my last hope...now I'm worse. Does the initial pain wear off?"

• Pupper
• Taken for 1 to 6 months
• September 14, 2021

Botox (onabotulinumtoxinA) "I had Botox shots for cervical dystonia 6 weeks ago. Sadly, the spasms have not gotten better and I have developed extremely painful nerve “shocks” in my neck. I’m very tired and dizzy and experienced a day of urinary incontinence about 3 weeks after the treatment. I honestly don’t know if the failure of the treatment and the side effects were because of the Botox or the way it was injected."

• GLS
• Taken for 10 years or more
• April 25, 2022

Botox (onabotulinumtoxinA) "Receiving Botox A injections neck and shoulder area 20+ yrs with excellent results. I suffered with extreme pain which made it impossible to function. 2 yrs. With no diagnosis tried everything from acupuncture to cortisone injections with no relief. Diagnosed by neurologist specializing in movement disorders. HE USES THE EMG MACHINE so there is no guesswork in locating EXACTLY where the activity in my neck is LOCATED AND HOW DEEP. 250 to 300 units approx. 10 shots every 10 to 12 wks some shots very deep. I was given my life back, able to raise my 3 children and then go back to work. To those who haven't had good results I IMPLORE YOU TO INSIST THE EMG MACHINE IS USED!!! Otherwise, shooting in the dark. I had terrible results with different Neuro less experience and no EMG.machine. IMHO, THE EMG MACHINE IS CRUCIAL ALONG WITH EXPERIENCED NEURO!!!! Give it another try! Insist on EMG"

• Johnesa...
• Taken for 6 months to 1 year
• December 13, 2021

"I was diagnosed with Movement Disorder/Cervical Dystonia this year. I was rear-ended while parked with no seatbelt on. My body flew right on top of the steering wheel. Botox help me so much, but only in a small area. I have to get 4 injections in my neck and trapezius area. The injections are very painful! My doctor put the needle in 3 muscle groups during 1 injection to lower the injection amount. The Botox doesn't last long, less than 3 months of relief. I still have to take muscle relaxers, which only help for a short amount of time. The Botox helps my head not to get stuck. My head first became stuck with my head tilted backwards and tilted left towards my shoulder. My trapezius area first went into spasms which caused my waist to twist like a pretzel. I get injections every 3 months."

• Doug
• Taken for 1 to 6 months
• July 31, 2023

Botox (onabotulinumtoxinA) "I was diagnosed with severe Cervical Dystonia and I've been getting Botox Injections, which is a life-changing experience! It works very well and I'm happy most of the time. Usually stays good for three months. May take a few weeks to get the right formula."

• Sam
• Taken for 6 months to 1 year
• June 24, 2023

Botox (onabotulinumtoxinA) "I have had four rounds of Botox injections for the cervical dystonia I was born with. I find minimal relief with Botox. If injected into the right spot, it gives relief around the immediate injection area, but not beyond it and there are many muscles in the neck. It would be impossible to inject every single one of them. It has side effects, namely more issues with swallowing and reflux, although dystonia causes issues with both of those on its own. It can't be good to receive a neurotoxin into your muscles repeatedly for a lifetime. That being said, it's the best we've got. DBS is a bad idea as most of the people I know who've had it are catatonic afterward and unable to communicate normally any longer. My neurologist in that cervical dystonia causes issues in your jaw or shoulders, but having been born with it and living with it for 40 years, I can tell you that, indeed it does, both are adjacent to the neck, and both can absolutely be involved. It's frustrating either way"

• unnykop
• Taken for less than 1 month
• December 2, 2021

Botox (onabotulinumtoxinA) "Friday 26th Nov I had botox injections all at 300 units for a focal segmental myoclonus. A neurologist gave me 3 injections in my neck for a twitch to the right, one on the left hand side under the jaw and 2 in the back of the neck on the right hand side. My neck was very stiff in this area. I also had 3 further injections 1 in the front of the shoulder 1 in the back of the shoulder and one in my side, which felt like in between a rib area. The second three injections were done with the use of the machine. I have read in the reviews that it is better to ask the neurologist to use the machine that reads the electrical activity. Am I right that the neurologist who gave me the first 3 jabs was just trying for pot luck ie not using the machine whilst the other, maybe his second in command did the job correctly?Initially the first night I felt I had an improvement, but since then it has got much worse. Although I can hear you all saying give it time, I was told 10 days. Any recommendations?"

• Chri
• October 1, 2008

Botox (onabotulinumtoxinA) "I have suffered with migraines and neck pain for many years. Botox has given me my life back. I have arthritis in my neck and Botox is the ONLY thing that has given me relief."

• CCI
• Taken for 2 to 5 years
• August 25, 2017

Botox (onabotulinumtoxinA) "I have been receiving Botox injections every 3 months for the past 2 yrs. The injections have helped my cervical dystonia pain & muscle twitching."

• Jerry...
• Taken for 10 years or more
• March 20, 2018

Botox (onabotulinumtoxinA) "The key to getting the relief is both a good Doctor and patience in finding the correct amount needed. Nothing will be perfect but the injections provide the only sensible way to cope."

• South...
• August 27, 2015

Botox (onabotulinumtoxinA) "Relief was immediate and dramatic."

• Lucy
• January 9, 2020

Botox (onabotulinumtoxinA) "I am advised to take these Botox injections, but undecided at present. Want to hear comments of those who received botox for cervical dystonia"

• Nicky
• Taken for less than 1 month
• May 28, 2020

Botox (onabotulinumtoxinA) "I had botox injections into my neck supposedly to help cervical dystonia and I have found no difference at all."

• Ljhs
• Taken for 5 to 10 years
• April 20, 2021

Botox (onabotulinumtoxinA) "Treatments don't work any more"

• sfely
• Taken for 10 years or more
• May 26, 2024

Botox (onabotulinumtoxinA) "Botox has changed my life for the better. I have a lot more normal days than I ever did before. I feel so lucky I was finally diagnosed with cervical dystonia and there is a medicine to help me."