Nivolumab for Non Small Cell Lung Cancer User Reviews (Page 2)

• einarf
• Taken for 1 to 6 months
• September 15, 2015

"Been on Nivolumba since July 31, every 2 weeks. As of Sept.14 I've lost about10 lbs, have loss of appetite, cough, and fatigue. I will be starting acupuncture today (9/15) and believe this will help me. I went through 6 weeks (every day)of radiation and chemo last year and started acupuncture at the very beginning of treatments and never had any side effects except loss of hair and I walked 2 miles every day while under going treatments. I'm very encouraged and believing that Nivolumba will eliminate my cancer. I can't compare the side effects of my treatments last year with Nivolumba because of the timely maner of acupuncture."

• Powder
• January 19, 2017

Opdivo (nivolumab) "I have been taking Ondivo since March 2016. My cancer is now in my liver and the medicine seems to be keeping the cancer strictly in my liver, due to a PET scan in 12-2016. I have developed a red rash and found that lotion and creams do help. Lately I have noticed my nails looking strange and the thumb nails look like they may come off. Have not discussed with my doctor, and will do so at the next appointment. My cancer started in a knot on my neck and in my lung as stage 4. I only have the cancer in my liver. I am unsure as to what I will do considering that cancer has been contained to my liver only. I have had cancer since August 2013."

• Jnetk
• December 27, 2017

Opdivo (nivolumab) "My husband has Stage 4 non-small cell lung cancer. He is 82 years old. He has been on Opdivo for 18 months. It has kept his cancer in remission with no new metastasis. He has some itching but no other side effects. It has been a wonder drug for him."

• Lealee
• July 18, 2017

"Love this stuff works miracles I was stage 4 spread to numerous lymph nodes. I was diagnosed June 2016 and started chemo which knocked the hell out off me, only on chemo for three months. Then started opdivo after only 15 treatments I am cancer free. I have never had any side affects gained more weight than I needed actually feel better than I ever have. It doesn't work for everyone I think about 20% which I think its roughly the same for chemo. It's sad we need something that works for 100%."

• Babette
• Taken for 2 to 5 years
• December 2, 2018

"Diagnosed with NSCL Stage III B in December 2003. After 6 treatments (carboplatin/taxotere) was told that I was stable but disease would come back within 2 years and then I would have 6 months and that would be it. In May of 2016 (after x number of chemo treatments) I was put on Opdivo and have felt great ever since. I use lots of body lotion after showers to keep the occasional rash in check. This is the only side effect I have to deal with. Love Opdivo and the carefree life it gives me."

• JSano
• Taken for less than 1 month
• September 26, 2019

"Opdivo caused increased intracranial pressure or demyelination to my my mom 3 weeks after her first IV dose (stage IV NSCLC -- slow metastasizing type of cancer). She was having trouble speaking as her first adverse effect. Health care practitioners were unable to tell what exactly caused it because this drug is so new. She was given the only thing the books tell them to do in such situations; high doses of steroids. She faded fast and died about a month after her first treatment. This drug is not for everybody, I wish I knew of these reviews before she started treatment. By then it was too late."

• KimK
• Taken for less than 1 month
• April 24, 2017

"My Dad was diagnosed last August 20 2016 with Stage 4 Lung cancer. He came home from the hospital and he started chemo right away. He had about 7 rounds of regular chemo. We thought he was doing so well. He had a scan in December and they said it was stable. Still continued treatment thru February. In the middle of March 2017 my Dad went in the hospital. He was there for 10 days Dr. Said the cancer was spreading he needed treatment. The new treatment Opdivo brought him home and 3/29/17 my Dad had is first treatment of Opdivo. My Dad seemed to start going down hill couldn't walk was having a hard time breathing. He never made the 2nd treatment my Dad died 4/19/2017. I am not saying it was from the Opdivo but it sure makes me wonder."

• JJano
• Taken for less than 1 month
• April 21, 2018

"My beloved mother is no longer with my family or me. Such an incredible shock this is. In my honest opinion, it wasn't because of the cancer itself, but from the allergic response and adverse effects of this drug, which hastened her death unquestionably (severe motor dysfunction and hydrocephalus.) I wish I did my homework on her new "treatment" before it was too late. If I could tell anyone about my story it would be this, do your research on cancer medications (antineoplastics) because sometimes the risks outweigh the potential benefits. Immunotherapy drugs e.g. keytruda, opdivo should be used with EXTREME caution in patients with a previous or a current autoimmune disease and those who show signs of generalized weakness before starting treatment. Thanks for taking my mom sooner than she needed to go Opdivo."

• MJW
• Taken for 1 to 2 years
• October 22, 2019

"In April 2017 I was diagnosed with stage IIIB metastatic lung cancer having gone to my lymph nodes. I had chemo and radiation which shrunk the tumor in my lung and destroyed the cancerous lymph nodes. But the next scan showed new nodes involved, so I was started on Opdivo in September 2017. After one year on the drug I showed No Evidence of Disease -cancer free. I have continued to stay cancer free but the side effects have worsened over the last year. Severe fatigue, worsening shortness of breath, nerve spasms, hot sweats, muscle weakness and pain. The side effects now are taking a toll, so I had my last infusion two weeks ago. Now it will take some time to start feeling better. I gave this drug a 9 because it saved my life and was tolerable for two years. I am very grateful. And I do believe I will start feeling better soon."

• His...
• Taken for less than 1 month
• September 23, 2021

Opdivo (nivolumab) "Opdivo is a JOKE ! My husband had a heart attack the day of his second treatment and died the following week because he could not undergo surgery due to being so weak. We were not aware of some of the side effects. After his death I owed more to the cancer center than the hospital due to the fact that this immunotherapy drug cost $16,000 per treatment even though medicare and the supplement helped pay. The ONLY ones who benefit from these drugs are the drug makers. I honestly do not know a single cancer patient that immunotherapy has saved."

• 77Shaka
• Taken for 1 to 6 months
• April 13, 2023

"On January 17th, 2023, I began treatment for stage 3a NSCLC, which included infusions every two weeks. At 75 years old, I was diagnosed on April 6th, 2022, after discovering a 1.9mm nodule at the bottom of my left lung, along with malignant hilar lymph nodes. Initially, I did not undergo any therapy for 9 months, opting instead for CT/PET scans every three months. During this period, there was no growth in the nodule, and the SUV hypermetabolic activity remained at around 7.7. Following five infusions, my doctor performed a PET/CT scan, which revealed that the hilar lymph region was cancer-free, although the nodule had grown slightly. However, the SUV was low. My next step is to have a radiation oncologist map the location of the nodule and perform a direct radiation beam, known as radiation surgery, to eliminate the nodule. Fortunately, I have an outstanding doctor who has not overtreated me. Despite initial fatigue and headaches, the side effects of Opdivo, the treatment I'm receiving, disappeared after a couple of infusions. I am scheduled for my seventh infusion on April 17th. Throughout my illness, I have not experienced any symptoms and have remained very active, participating in activities like surfing, mountain biking, hiking, and walking."

• Kyria...
• Taken for 1 to 6 months
• December 3, 2022

"This drug caused the death of my father earlier. When he received this drug, he had advanced non-small lung cancer (squamous) with multiple bone metastases. After the second dose, my father could not walk, and after 20 days, he passed away in the hospital. Do not give this to your loved ones in advanced stages. There are no benefits."

• Jocelyn...
• Taken for 6 months to 1 year
• April 29, 2018

Opdivo (nivolumab) "I have stage 3b lung cancer and was on chemo but couldn't take it, so then I was on opdivo. Iwas doing fine but it triggered my lichen planus back wondering if anyone out there ever heard of this or had it also."

• Jamie
• Taken for less than 1 month
• December 10, 2018

"My husband had NSCLC 2011 then 2013 it went to his head. After many rounds of chemo between 2013 and 2017 they weren’t working anymore. Opdivo was the answer for the drs. He was to have his 2nd opdivo treatment and on the very day I woke to him seizing in our bed. After ER trip we found out he had blood clots all up one side of his head and he died 3 days later."

• PRose
• Taken for 2 to 5 years
• October 31, 2022

Opdivo (nivolumab) "I've been on Opdivo, 4 years. I was diagnosed with Stage 3, Lung Cancer on Feb. 7, 2018. I had Chemo once a week for about 3 months, but Radiation 5 days a week at the same time. Then a month and a half later, more radiation for about another 5 weeks. Started Opdivo treatments Sept. 2018. I go every other Friday. My side effects where/are, joints ache, with swollenness. Get tired and feel fatigued at times. Had some weight gain also."

• Chrys
• Taken for 5 to 10 years
• March 2, 2024

"I have had monthly injections of nivolumab since 2018 for stage 4 non-small cell lung cancer! That's 6 years which I wouldn't have had with chemotherapy. I had a full-body rash after the first dose that was treated with steroids. It did not recur. I feel well and owe my life to this drug. Full disclosure, I live in Canada and the government covers all my medical costs associated with taking this drug."

• Carl
• Taken for 5 to 10 years
• November 22, 2023

Opdivo (nivolumab) "Nine years ago, I was told I had 6 to 9 months to live as I was diagnosed with metastatic lung cancer, which had spread to the bone, liver, and brain. I was on chemotherapy for the first year and then switched to Opdivo, which I have been treated with for the past 8 years. My current condition is described as stable, and Opdivo treatments were recently discontinued as it is believed that my own immune system is now attacking cancer growth. I consider Opdivo to be a miracle drug which, for me, had only mild and limited side effects, such as difficulty sleeping, headaches, etc."

• Anonymous
• July 17, 2017

Opdivo (nivolumab) "My brother died from taking this medication. His cancer was in his lungs. When he started opdivo, the cancer quickly went to his brain. He died weeks later. Why did the FDA approve this drug?"

• Anonymous
• Taken for 2 to 5 years
• May 24, 2020

Opdivo (nivolumab) "My mom has stage 4 nslc on year 7. She started Opdivo 4 years ago and at age 74 she’s still going strong. Minimal side effects cancer is almost non existent."

• Rayray
• Taken for 1 to 6 months
• March 2, 2017

Opdivo (nivolumab) "My mother died from lung cancer. Her last hope of this medication. Within a couple months she was gone"

• 92101
• Taken for 1 to 2 years
• April 21, 2017

"Very positive till mouth sores & rash Truly love the drug so much better than chemo allows me to do things I couldn't under chemotherapy"

• Regnar
• April 15, 2017

"I was done. The choices were crappy. No more chemo could even help. I hate big chemo companies. Sorry this stuff works period. Now how do you stop... 10k a pop. They say to keep going."